Portugal: Difference between revisions

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== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">portugalcountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


== [[Healthcare System]] ==
== Cancer Centers ==
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Portugal provides universal healthcare to all its residents, including the unemployed and illegal immigrants. There are also health insurance schemes that provide coverage for specific sectors, both public and private. Citizens can also opt for private health insurance schemes. The system providing healthcare in Portugal is called Serviço Nacional de Saúde (SNS), managed by the Ministry of Health, and is mainly funded through general taxation, but a third of its funding comes from the private sector such as out-of-pocket payments via co-funding or direct payment by the patient.
[[hasCancerCenter::Instituto Português de Oncologia do Porto Francisco Gentil]]


== [[Administrative or Claims Data]] ==
[[hasCancerCenter::Instituto Português de Oncologia de Lisboa Francisco Gentil]]  


== [[Registries]] ==
[[hasCancerCenter::Instituto Português de Oncologia de Coimbra Francisco Gentil]]
=== [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008461&xlang=pt&contexto=bd&selTab=tab2 Database: Mortality by Malignant Neoplasms] ===
[https://www.ine.pt/ngt_server/attachfileu.jsp?look_parentBoui=259457183&att_display=n&att_download=y [1]] [https://www.ine.pt/bddXplorer/htdocs/minfo.jsp?var_cd=0008461&lingua=EN [2]]


'''Primary purpose:''' Provide information regarding the national mortality and its social and demographic distribution.
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'''Sponsor, manager or home institution''': Instituto Nacional de Estatística (INE).
== [[hasHealthcareSystem::Healthcare_System_(Portugal)|Healthcare System]] ==
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'''Type of information''': Number of deaths filtered by data reference period, region of residence, sex, age group, and death cause (malignant neoplasms).
== Administrative or Claims Data ==
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The following indicators are also available and can be filtered by sex and region of residence:
=== [[hasDatabase::Database:_Health_Care_Personnel_Statistics_(Portugal)|Database: Health Care Personnel Statistics]] ===


*Potential years of life lost by type of cancer.
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*Rate of potential years of life lost by type of cancer.
*Mortality rate (per 100 000 inhabitants or in percentage) by type of cancer.
*Standardized mortality rate (per 100 000 inhabitants) by type of cancer.
*Standardized mortality rate (per 100 000 inhabitants) by type of cancer regarding people 65 years of age and older.
*Standardized mortality rate (per 100 000 inhabitants) by type of cancer regarding people younger than 65 years of age.


== Registries ==
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The list of variables included in Patient level data is longer and can be checked in [https://www.ine.pt/xportal/xmain?ine_smenu.boui=161302718&contexto=fct&xpgid=ine_bd_inv_fct&ine_smenu.selected=161302852&xpid=INE&selTab=fct this] website.
=== [[hasDatabase::Database:_Mortality_by_Malignant_Neoplasms_(Portugal)|Database: Mortality by Malignant Neoplasms]] ===


'''Source of information''': Data collection through the notary offices and registered in the Integrated System for Civil Registration and Identification (SIRIC).
=== [[hasDatabase::Database:_Cancer_Screening_Monitoring_(Portugal)|Database: Cancer Screening Monitoring]] ===


'''Data level''': Regional level (open access) and Patient level (restricted access).
=== [[hasDatabase::Database:_National_Cancer_Registry_(RON)_(Portugal)|Database: National Cancer Registry (RON)]] ===
</div>


'''Number of Records:''' Unknown.
== Databases for Clinical Trials, Surveys and Biobanks ==
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'''Date range''': Regional level (2002 onwards) and Patient level (1998 onwards).
=== [[hasDatabase::Survey:_National_Health_Interview_Survey_(INS)_(Portugal)|Survey: National Health Interview Survey (INS)]] ===


'''Cancer Areas of Interest:''' To be added.
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'''Data access''': Regional level data is openly available [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008461&selTab=tab0 here]. To ask for patient level data, follow the instructions presented in [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_serv_clientes&INST=161301979&ine_smenu.boui=161302718&ine_smenu.selected=161302852 this] webpage.
== Clinical Practices Guidelines ==
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'''Information/contact for data request''': [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_cont_inst&ine_smenu.boui=13711615&INST=56501 Contact information].
=== [[hasClinicalGuidelines::Guidelines: SPED National Guidelines Compilation (Portugal)|Guidelines: SPED National Guidelines Compilation]] ===
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=== Database: National Health Interview Survey (INS)===
== Latest Policymaking Initiatives ==
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'''Primary purpose:''' Publish statistics on health status, health care and health determinants, and socio-demographic characteristics of the population to enable the study and improvement of these areas.
=== [[hasReport::Reports:_National_Health_Statistics_(Portugal)|Reports: National Health Statistics]] ===


'''Sponsor, manager or home institution''': Instituto Nacional de Estatística (INE)
=== [[hasReport::Report:_National_Health_Service_(Portugal)|Report: National Health Service]] ===


'''Type of information''': Regarding cancer prevention information, contains the percentage of the female resident population aged 50 to 69 years who reported having had mammography done in the 2 years prior to the interview and the female resident population aged 20 to 69 years who reported having had cervical cytology done in the 3 years prior to the interview, both filtered by educational level.
=== [[hasReport::Report:_National_Cancer_Registry_(RON)_(Portugal)|Report: National Cancer Registry (RON)]] ===


The list of variables included in Patient level data is longer and can be checked in  [https://www.ine.pt/xportal/xmain?ine_smenu.boui=161302718&contexto=fct&xpgid=ine_bd_inv_fct&ine_smenu.selected=161302852&xpid=INE&selTab=fct this website].
=== [[hasReport::Report:_Southern_Regional_Oncology_Registry_(ROR-Sul)_(Portugal)|Report: Southern Regional Oncology Registry (ROR-Sul)]] ===


'''Source of information''': Instituto Nacional de Estatística (INE)
=== [[hasReport::Report:_Northern_Regional_Oncology_Registry_(RORENO)_(Portugal)|Report: Northern Regional Oncology Registry (RORENO)]] ===


'''Data level''': National level (open access) and Patient level (restricted access).
=== [[hasReport::Report:_Centro_Regional_Oncology_Registry_(ROR-Centro)_(Portugal)|Report: Centro Regional Oncology Registry (ROR-Centro)]] ===


'''Number of Records:''' Unknown.
=== [[hasReport::Report:_National_Commission_for_Palliative_Care_(CNCP)_(Portugal)|Report: National Commission for Palliative Care (CNCP)]] ===


'''Date range''': Regional level (2014 onwards) and Patient level (2005 onwards). It occurs on a five-year basis.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Portugal)|Report: EU Country Cancer Profile 2023]] ===


'''Cancer Areas of Interest:''' Breast and cervix neoplasms.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Portugal)|Report: EU Country Cancer Profile 2025]] ===


'''Data access''': Data regarding mammography examination can be accessed [https://www.ine.pt/xportal/ine/portal/portlets/html/basedados_v2/arvore_comp_v2.jsp?lingua=pt# here] and cervical cytology [https://www.ine.pt/xportal/ine/portal/portlets/html/basedados_v2/arvore_comp_v2.jsp?lingua=pt# here].
=== [[hasReport::Report:_National_Strategy_to_Fight_Cancer,_2030_horizon_(Portugal)|Report: National Strategy to Fight Cancer, 2030 horizon]] ===
</div>


'''Information/contact for data request''': [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_cont_inst&ine_smenu.boui=13711615&INST=56501 Contact information].
== Cancer-related Patient Associations and Resources ==
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<!--
=== [[hasPatientAssociation::Patient Association: Liga Portuguesa Contra o Cancro (Europa Donna Portugal) (Portugal)|Patient Association: Liga Portuguesa Contra o Cancro (Europa Donna Portugal)]] ===
=== [ Database: ] ===


'''Primary purpose:'''
=== [[hasPatientAssociation::Patient Association: Patient Associations Compilation (Portugal)|Patient Association: Patient Associations Compilation]] ===


'''Sponsor, manager or home institution''':  
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Portugal)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Type of information''':  
=== [[hasPatientResource::Self-help_Group:_Careca_Power_(Portugal)|Self-help Group: Careca Power]] ===
</div>


'''Source of information''':
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Portugal)|Quality of Life and Palliative Care Research]] ==


'''Data level''':  
__NOTOC__
 
<span style="display:none">hasCancerCenter::Instituto Português de Oncologia do Porto Francisco Gentil</span>
'''Number of Records:'''
<span style="display:none">hasCancerCenter::Instituto Português de Oncologia de Lisboa Francisco Gentil</span>
 
<span style="display:none">hasCancerCenter::Instituto Português de Oncologia de Coimbra Francisco Gentil</span>
'''Date range''':  
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Portugal)|Healthcare System</span>
 
<span style="display:none">hasDatabase::Database:_Hospital_Morbidity_Database_(Portugal)|Database: Hospital Morbidity Database</span>
'''Cancer Areas of Interest:'''
<span style="display:none">hasDatabase::Database:_Health_Care_Personnel_Statistics_(Portugal)|Database: Health Care Personnel Statistics</span>
 
<span style="display:none">hasDatabase::Database:_Mortality_by_Malignant_Neoplasms_(Portugal)|Database: Mortality by Malignant Neoplasms</span>
'''Data access''':  
<span style="display:none">hasDatabase::Database:_Cancer_Screening_Monitoring_(Portugal)|Database: Cancer Screening Monitoring</span>
 
<span style="display:none">hasDatabase::Database:_National_Cancer_Registry_(RON)_(Portugal)|Database: National Cancer Registry (RON)</span>
'''Information/contact for data request''': [ Contact information].
<span style="display:none">hasDatabase::Survey:_National_Health_Interview_Survey_(INS)_(Portugal)|Survey: National Health Interview Survey (INS)</span>
-->
<span style="display:none">hasClinicalGuidelines::Compilation:_SPED_National_Guidelines_(Portugal)|Compilation: SPED National Guidelines</span>
 
<span style="display:none">hasReport::Reports:_National_Health_Statistics_(Portugal)|Reports: National Health Statistics</span>
== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
<span style="display:none">hasReport::Report:_National_Health_Service_(Portugal)|Report: National Health Service</span>
 
<span style="display:none">hasReport::Report:_National_Cancer_Registry_(RON)_(Portugal)|Report: National Cancer Registry (RON)</span>
== [[Electronic Health Records]] ==
<span style="display:none">hasReport::Report:_Southern_Regional_Oncology_Registry_(ROR-Sul)_(Portugal)|Report: Southern Regional Oncology Registry (ROR-Sul)</span>
 
<span style="display:none">hasReport::Report:_Northern_Regional_Oncology_Registry_(RORENO)_(Portugal)|Report: Northern Regional Oncology Registry (RORENO)</span>
== [[Clinical Practices Guidelines]] ==
<span style="display:none">hasReport::Report:_Centro_Regional_Oncology_Registry_(ROR-Centro)_(Portugal)|Report: Centro Regional Oncology Registry (ROR-Centro)</span>
 
<span style="display:none">hasReport::Report:_National_Commission_for_Palliative_Care_(CNCP)_(Portugal)|Report: National Commission for Palliative Care (CNCP)</span>
== [[Latest Policymaking Initiatives]] ==
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Portugal)|Report: EU Country Cancer Profile 2023</span>
 
<span style="display:none">hasReport::Report:_National_Strategy_to_Fight_Cancer,_2030_horizon_(Portugal)|Report: National Strategy to Fight Cancer, 2030 horizon</span>
== [[Cancer-related Patient Associations and Resources]] ==
<span style="display:none">hasPatientAssociation::Patient_Associations_(Portugal)|Patient Associations</span>
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Portugal)|Compilation: ESMO Patient Guides</span>
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Portugal)|Quality of Life and Palliative Care Research</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_SPED_National_Guidelines_(Portugal)|Guidelines: SPED National Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: SPED National Guidelines Compilation (Portugal)|Guidelines: SPED National Guidelines Compilation</span>
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Portugal)|Patient Guides: ESMO Patient Guides Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 12:38, 22 January 2026

forresearchers forpatients forproviders forpolicymakers portugalcountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Instituto Português de Oncologia do Porto Francisco Gentil

Instituto Português de Oncologia de Lisboa Francisco Gentil

Instituto Português de Oncologia de Coimbra Francisco Gentil

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: Health Care Personnel Statistics[edit | edit source]

Registries[edit | edit source]

Database: Mortality by Malignant Neoplasms[edit | edit source]

Database: Cancer Screening Monitoring[edit | edit source]

Database: National Cancer Registry (RON)[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Survey: National Health Interview Survey (INS)[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: SPED National Guidelines Compilation[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Reports: National Health Statistics[edit | edit source]

Report: National Health Service[edit | edit source]

Report: National Cancer Registry (RON)[edit | edit source]

Report: Southern Regional Oncology Registry (ROR-Sul)[edit | edit source]

Report: Northern Regional Oncology Registry (RORENO)[edit | edit source]

Report: Centro Regional Oncology Registry (ROR-Centro)[edit | edit source]

Report: National Commission for Palliative Care (CNCP)[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: National Strategy to Fight Cancer, 2030 horizon[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Association: Liga Portuguesa Contra o Cancro (Europa Donna Portugal)[edit | edit source]

Patient Association: Patient Associations Compilation[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Self-help Group: Careca Power[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]

hasCancerCenter::Instituto Português de Oncologia do Porto Francisco Gentil hasCancerCenter::Instituto Português de Oncologia de Lisboa Francisco Gentil hasCancerCenter::Instituto Português de Oncologia de Coimbra Francisco Gentil hasHealthcareSystem::Healthcare_System_(Portugal)|Healthcare System hasDatabase::Database:_Hospital_Morbidity_Database_(Portugal)|Database: Hospital Morbidity Database hasDatabase::Database:_Health_Care_Personnel_Statistics_(Portugal)|Database: Health Care Personnel Statistics hasDatabase::Database:_Mortality_by_Malignant_Neoplasms_(Portugal)|Database: Mortality by Malignant Neoplasms hasDatabase::Database:_Cancer_Screening_Monitoring_(Portugal)|Database: Cancer Screening Monitoring hasDatabase::Database:_National_Cancer_Registry_(RON)_(Portugal)|Database: National Cancer Registry (RON) hasDatabase::Survey:_National_Health_Interview_Survey_(INS)_(Portugal)|Survey: National Health Interview Survey (INS) hasClinicalGuidelines::Compilation:_SPED_National_Guidelines_(Portugal)|Compilation: SPED National Guidelines hasReport::Reports:_National_Health_Statistics_(Portugal)|Reports: National Health Statistics hasReport::Report:_National_Health_Service_(Portugal)|Report: National Health Service hasReport::Report:_National_Cancer_Registry_(RON)_(Portugal)|Report: National Cancer Registry (RON) hasReport::Report:_Southern_Regional_Oncology_Registry_(ROR-Sul)_(Portugal)|Report: Southern Regional Oncology Registry (ROR-Sul) hasReport::Report:_Northern_Regional_Oncology_Registry_(RORENO)_(Portugal)|Report: Northern Regional Oncology Registry (RORENO) hasReport::Report:_Centro_Regional_Oncology_Registry_(ROR-Centro)_(Portugal)|Report: Centro Regional Oncology Registry (ROR-Centro) hasReport::Report:_National_Commission_for_Palliative_Care_(CNCP)_(Portugal)|Report: National Commission for Palliative Care (CNCP) hasReport::Report:_EU_Country_Cancer_Profile_2023_(Portugal)|Report: EU Country Cancer Profile 2023 hasReport::Report:_National_Strategy_to_Fight_Cancer,_2030_horizon_(Portugal)|Report: National Strategy to Fight Cancer, 2030 horizon hasPatientAssociation::Patient_Associations_(Portugal)|Patient Associations hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Portugal)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Portugal)|Quality of Life and Palliative Care Research hasClinicalGuidelines::Compilation:_SPED_National_Guidelines_(Portugal)|Guidelines: SPED National Guidelines Compilation hasClinicalGuidelines::Guidelines: SPED National Guidelines Compilation (Portugal)|Guidelines: SPED National Guidelines Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Portugal)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

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