The Netherlands: Difference between revisions

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== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
== [[Healthcare System]] ==
<span style="display:none">forpatients</span>
== [[Administrative or Claims Data]] ==
<span style="display:none">forproviders</span>
== [[Registries]] ==
<span style="display:none">forpolicymakers</span>
<span style="display:none">thenetherlandscountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


=== Database: Netherlands Cancer Registry (NKR) ===
== Cancer Centers ==
[https://iknl.nl/nkr/over-nkr] [https://bronnen.zorggegevens.nl/Bron?naam=Nederlandse-Kankerregistratie]
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'''Primary purpose:'''
[[hasCancerCenter::Netherlands Cancer Institute - Antoni van Leeuwenhoek]]


'''Sponsor, manager or home institution''': Comprehensive Cancer Center of the Netherlands (IKNL).
[[hasCancerCenter::The Maastricht UMC+ Comprehensive Cancer Center]]


'''Available type of information''':  
[[hasCancerCenter::University Medical Center Groningen Comprehensive Cancer Center]]
*Incidence: Count, crude rate, European Standardized Rate (ESR), World Standardized Rate (WSR), Revised European Standardized Rate (RESR) by type of cancer, gender, age, region, and year.
*Prevalence: 5 year, 10 year, and 20 year prevalence by type of cancer, gender, age, region, and year.
*Mortality: Count, crude rate, European Standardized Rate (ESR), World Standardized Rate (WSR), Revised European Standardized Rate (RESR) by type of cancer, gender, age, and year.
*Survival: Count by type of cancer, Period froofm diagnosis (1 year and 10 years), age at time of diagnosis, stage at time of diagnosis (TNM), gender.


[[hasCancerCenter::Erasmus MC Kanker Instituut]]


'''Source of information''': Hospitals' reports.
[[hasCancerCenter::Radboudumc Centre for Oncology]]


'''Data level''': Regional level (open access) and Patient level (restricted access).
[[hasCancerCenter::Rijnstate]]
</div>


'''Number of Records:''' Contains information about all new cases of malignant neoplasms and some benign neoplasms (tumors of the central nervous system, borderline tumors of the ovary, and AL amyloidosis) in Netherlands.
== [[hasHealthcareSystem::Healthcare_System_(The_Netherlands)|Healthcare System]] ==
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'''Date range''': Varies according to the diagnosis.
</div>


'''Cancer Areas of Interest:'''
== Administrative or Claims Data ==
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'''Data access''': Regional level data is available [https://iknl.nl/nkr-cijfers here]. Access to patient level data can be requested by following the steps described [https://iknl.nl/nkr/cijfers-op-maat/gegevensaanvraag here].
=== [[hasDatabase::Database:_National_Basic_Register_of_Hospital_Care_(LBZ)_(The_Netherlands)|Database: National Basic Register of Hospital Care (LBZ)]] ===


'''Information/contact for data request''': [https://iknl.nl/over-iknl/contact-adres Contact information].
</div>
<!--
=== Database: ===


'''Primary purpose:'''
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Sponsor, manager or home institution''':  
=== [[hasDatabase::Database:_Netherlands_Cancer_Registry_(NKR)_(The_Netherlands)|Database: Netherlands Cancer Registry (NKR)]] ===


'''Type of information''':
=== [[hasDatabase::Database:_Mortality_by_Cause_of_Death_(The_Netherlands)|Database: Mortality by Cause of Death]] ===


'''Source of information''':
=== [[hasDatabase::Database:_Registry_of_Histo_and_Cytopathology_(The_Netherlands)|Database: Registry of Histo and Cytopathology]] ===


'''Data level''':  
=== [[hasDatabase::Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)|Database: Dutch Institute for Clinical Auditing Databases (DICA)]] ===


'''Number of Records:''' Contains information regarding the whole territory of Lithuania.
</div>


'''Date range''':  
== Databases for Clinical Trials, Surveys and Biobanks ==
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=== [[hasDatabase::Survey:_National_Population_Surveys:_Screenings_for_breast,_cervical_and_colon_cancer_(The_Netherlands)|Survey: National Population Surveys: Screenings for breast, cervical and colon cancer]] ===


'''Cancer Areas of Interest:'''
</div>


'''Data access''':
== Clinical Practices Guidelines ==
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'''Information/contact for data request''': [ Contact information].
=== [[hasClinicalGuidelines::Guidelines: IKNL Guidelines Compilation (The Netherlands)|Guidelines: IKNL Guidelines Compilation]] ===
-->


== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
=== [[hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines: Guidelines for Palliative Care]] ===
== [[Electronic Health Records]] ==
 
== [[Clinical Practices Guidelines]] ==
=== [[hasClinicalGuidelines::Guidelines: NHG Guidelines Compilation (The Netherlands)|Guidelines: NHG Guidelines Compilation]] ===
== [[Latest Policymaking Initiatives]] ==
</div>
 
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
 
=== [[hasReport::Reports:_IKNL_(The_Netherlands)|Reports: IKNL]] ===
 
=== [[hasReport::Reports:_Palliaweb_(The_Netherlands)|Reports: Palliaweb]] ===
 
=== [[hasReport::Report:_Breast_cancer_screening_program_(The_Netherlands)|Report: Breast cancer screening program]] ===
 
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(The_Netherlands)|Report: EU Country Cancer Profile 2023]] ===
 
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(The_Netherlands)|Report: EU Country Cancer Profile 2025]] ===
 
=== [[hasReport::Report:_The_Dutch_Cancer_Agenda_(The_Netherlands)|Report: The Dutch Cancer Agenda]] ===
 
=== [[hasInitiative::Initiative:_National_Action_Plan_for_Cancer_&_Life_(The_Netherlands)|Initiative: National Action Plan for Cancer & Life]] ===
</div>
 
== Cancer-related Patient Associations and Resources ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
 
=== [[hasPatientAssociation::Patient Association: Dutch Breast Cancer Association (Europa Donna Netherlands) (The Netherlands)|Patient Association: Dutch Breast Cancer Association (Europa Donna Netherlands)]] ===
 
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (The Netherlands)|Patient Guides: ESMO Patient Guides Compilation]] ===
 
=== [[hasPatientResource::Self-help_group:_Dutch_cancer_support_center_“House_by_the_Water”_(The Netherlands)|Self-help group: Dutch cancer support center “House by the Water”]] ===
 
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(The_Netherlands)|Quality of Life and Palliative Care Research]] ==
 
__NOTOC__
<span style="display:none">hasCancerCenter::Netherlands Cancer Institute - Antoni van Leeuwenhoek</span>
<span style="display:none">hasCancerCenter::The Maastricht UMC+ Comprehensive Cancer Center</span>
<span style="display:none">hasCancerCenter::University Medical Center Groningen Comprehensive Cancer Center</span>
<span style="display:none">hasCancerCenter::Erasmus MC Kanker Instituut</span>
<span style="display:none">hasCancerCenter::Radboudumc Centre for Oncology</span>
<span style="display:none">hasCancerCenter::Rijnstate</span>
<span style="display:none">hasHealthcareSystem::Healthcare_System_(The_Netherlands)|Healthcare System</span>
<span style="display:none">hasDatabase::Database:_National_Basic_Register_of_Hospital_Care_(LBZ)_(The_Netherlands)|Database: National Basic Register of Hospital Care (LBZ)</span>
<span style="display:none">hasDatabase::Database:_Netherlands_Cancer_Registry_(NKR)_(The_Netherlands)|Database: Netherlands Cancer Registry (NKR)</span>
<span style="display:none">hasDatabase::Database:_Mortality_by_Cause_of_Death_(The_Netherlands)|Database: Mortality by Cause of Death</span>
<span style="display:none">hasDatabase::Database:_Registry_of_Histo_and_Cytopathology_(The_Netherlands)|Database: Registry of Histo and Cytopathology</span>
<span style="display:none">hasDatabase::Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)|Database: Dutch Institute for Clinical Auditing Databases (DICA)</span>
<span style="display:none">hasDatabase::Survey:_National_Population_Surveys:_Screenings_for_breast,_cervical_and_colon_cancer_(The_Netherlands)|Survey: National Population Surveys: Screenings for breast, cervical and colon cancer</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Compilation: IKNL Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines for Palliative Care</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_NHG_Guidelines_(The_Netherlands)|Compilation: NHG Guidelines</span>
<span style="display:none">hasReport::Reports:_IKNL_(The_Netherlands)|Reports: IKNL</span>
<span style="display:none">hasReport::Reports:_Palliaweb_(The_Netherlands)|Reports: Palliaweb</span>
<span style="display:none">hasReport::Report:_Breast_cancer_screening_program_(The_Netherlands)|Report: Breast cancer screening program</span>
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(The_Netherlands)|Report: EU Country Cancer Profile 2023</span>
<span style="display:none">hasReport::Report:_The_Dutch_Cancer_Agenda_(The_Netherlands)|Report: The Dutch Cancer Agenda</span>
<span style="display:none">hasInitiative::Initiative:_National_Action_Plan_for_Cancer_&_Life_(The_Netherlands)|Initiative: National Action Plan for Cancer & Life</span>
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(The_Netherlands)|Compilation: ESMO Patient Guides</span>
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(The_Netherlands)|Quality of Life and Palliative Care Research</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Guidelines: IKNL Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines: Guidelines for Palliative Care</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_NHG_Guidelines_(The_Netherlands)|Guidelines: NHG Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: IKNL Guidelines Compilation (The Netherlands)|Guidelines: IKNL Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: NHG Guidelines Compilation (The Netherlands)|Guidelines: NHG Guidelines Compilation</span>
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (The Netherlands)|Patient Guides: ESMO Patient Guides Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 13:57, 27 January 2026

forresearchers forpatients forproviders forpolicymakers thenetherlandscountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Netherlands Cancer Institute - Antoni van Leeuwenhoek

The Maastricht UMC+ Comprehensive Cancer Center

University Medical Center Groningen Comprehensive Cancer Center

Erasmus MC Kanker Instituut

Radboudumc Centre for Oncology

Rijnstate

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: National Basic Register of Hospital Care (LBZ)[edit | edit source]

Registries[edit | edit source]

Database: Netherlands Cancer Registry (NKR)[edit | edit source]

Database: Mortality by Cause of Death[edit | edit source]

Database: Registry of Histo and Cytopathology[edit | edit source]

Database: Dutch Institute for Clinical Auditing Databases (DICA)[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Survey: National Population Surveys: Screenings for breast, cervical and colon cancer[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: IKNL Guidelines Compilation[edit | edit source]

Guidelines: Guidelines for Palliative Care[edit | edit source]

Guidelines: NHG Guidelines Compilation[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Reports: IKNL[edit | edit source]

Reports: Palliaweb[edit | edit source]

Report: Breast cancer screening program[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: The Dutch Cancer Agenda[edit | edit source]

Initiative: National Action Plan for Cancer & Life[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Association: Dutch Breast Cancer Association (Europa Donna Netherlands)[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Self-help group: Dutch cancer support center “House by the Water”[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]

hasCancerCenter::Netherlands Cancer Institute - Antoni van Leeuwenhoek hasCancerCenter::The Maastricht UMC+ Comprehensive Cancer Center hasCancerCenter::University Medical Center Groningen Comprehensive Cancer Center hasCancerCenter::Erasmus MC Kanker Instituut hasCancerCenter::Radboudumc Centre for Oncology hasCancerCenter::Rijnstate hasHealthcareSystem::Healthcare_System_(The_Netherlands)|Healthcare System hasDatabase::Database:_National_Basic_Register_of_Hospital_Care_(LBZ)_(The_Netherlands)|Database: National Basic Register of Hospital Care (LBZ) hasDatabase::Database:_Netherlands_Cancer_Registry_(NKR)_(The_Netherlands)|Database: Netherlands Cancer Registry (NKR) hasDatabase::Database:_Mortality_by_Cause_of_Death_(The_Netherlands)|Database: Mortality by Cause of Death hasDatabase::Database:_Registry_of_Histo_and_Cytopathology_(The_Netherlands)|Database: Registry of Histo and Cytopathology hasDatabase::Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)|Database: Dutch Institute for Clinical Auditing Databases (DICA) hasDatabase::Survey:_National_Population_Surveys:_Screenings_for_breast,_cervical_and_colon_cancer_(The_Netherlands)|Survey: National Population Surveys: Screenings for breast, cervical and colon cancer hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Compilation: IKNL Guidelines hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines for Palliative Care hasClinicalGuidelines::Compilation:_NHG_Guidelines_(The_Netherlands)|Compilation: NHG Guidelines hasReport::Reports:_IKNL_(The_Netherlands)|Reports: IKNL hasReport::Reports:_Palliaweb_(The_Netherlands)|Reports: Palliaweb hasReport::Report:_Breast_cancer_screening_program_(The_Netherlands)|Report: Breast cancer screening program hasReport::Report:_EU_Country_Cancer_Profile_2023_(The_Netherlands)|Report: EU Country Cancer Profile 2023 hasReport::Report:_The_Dutch_Cancer_Agenda_(The_Netherlands)|Report: The Dutch Cancer Agenda hasInitiative::Initiative:_National_Action_Plan_for_Cancer_&_Life_(The_Netherlands)|Initiative: National Action Plan for Cancer & Life hasPatientGuides::Compilation:_ESMO_Patient_Guides_(The_Netherlands)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(The_Netherlands)|Quality of Life and Palliative Care Research hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Guidelines: IKNL Guidelines Compilation hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines: Guidelines for Palliative Care hasClinicalGuidelines::Compilation:_NHG_Guidelines_(The_Netherlands)|Guidelines: NHG Guidelines Compilation hasClinicalGuidelines::Guidelines: IKNL Guidelines Compilation (The Netherlands)|Guidelines: IKNL Guidelines Compilation hasClinicalGuidelines::Guidelines: NHG Guidelines Compilation (The Netherlands)|Guidelines: NHG Guidelines Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (The Netherlands)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

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