Estonia: Difference between revisions

hasCancerType::C00-D48: All neoplasms hasCancerType::C40-C41: Bone cancers hasCancerType::C50: Breast cancer hasCancerType::D10-D36: Benign tumour hasCancerType::unknown

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-== [[Cancer Centers]] ==
+<span style="display:none">forresearchers</span>
+<span style="display:none">forpatients</span>
+<span style="display:none">forproviders</span>
+<span style="display:none">forpolicymakers</span>
+<span style="display:none">estoniacountry</span>
+[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
-=== [[North Estonia Medical Centre]] ===
+== Cancer Centers ==
-<!--
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-[[East Tallinn Central Hospital]]
-[[Tartu University Hospital]]
--->
-== [[Healthcare System]] ==
-Estonia’s healthcare system is the Health Insurance System, described as “solidarity-based health insurance” [https://www.haigekassa.ee/en/organisation/annual-reports-0 [1]], and the Estonian Health Insurance Fund (EHIF) is the public law organization responsible for providing the organization of national healthcare services in accordance with the Health Insurance Act, the Health Services Organization Act, and other legislation.
+[[hasCancerCenter::Tartu University Hospital]]
-The body responsible for healthcare and all social policies in Estonia is the Ministry of Social Affairs. The Health Board is its child agency. Estonia’s [https://www.riigiteataja.ee/en/eli/514112013001/consolide Public Information Act] details the terms of compliance to request information not already publicly available. The request is exempt from covering expenses if the request is made for research work.
+[[hasCancerCenter::North Estonia Medical Centre]]
-== [[Administrative or Claims Data]] ==
+[[hasCancerCenter::East Tallinn Central Hospital]]
+</div>
-===[https://www.haigekassa.ee/en/organisation/about-us Estonian Health Insurance Fund (EHIF) Database]===
+== [[hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System]] ==
-[https://link.springer.com/chapter/10.1007/978-3-030-51455-6_16 [2]]
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
+</div>
-'''Sponsor, manager or home institution:''' Estonian Health Insurance Fund (EHIF); The Ministry of Social Affairs
+== Administrative or Claims Data ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Type of information:''' Medical contacts (physician visit, hospital stay, etc.), including diagnostic tests, prescription medicine, medical devices, and treatment.
+=== [[hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database]] ===
+</div>
-'''Source of Information:''' Based on claims data from all Estonian healthcare providers that have signed a contract with EHIF and deliver EHIF-financed healthcare.
+== Registries ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Data level:''' Patient level.
+=== [[hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry]] ===
-'''Number of Records:''' 1.3 million people, i.e. 95% of Estonia's population.
+=== [[hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry]] ===
-'''Date Range:''' 2004 onwards.
+=== [[hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death]] ===
-'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://www.tervisekassa.ee/koik-teenused here]. Information on how to access the data can be found [https://www.tervisekassa.ee/tervisekassa/teabenoue here].
+=== [[hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death]] ===
-'''Link/Contact for data request:''' [https://www.haigekassa.ee/en/organisation/contact-client-service Contact information.]
+=== [[hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours]] ===
-<!--
+</div>
-Sources for quotes:
-(1) 2020's Annual Report: https://www.haigekassa.ee/en/organisation/annual-reports-0
-(2) https://link.springer.com/chapter/10.1007/978-3-030-51455-6_16
--->
-== [[Registries]] ==
+== Databases for Clinical Trials, Surveys and Biobanks ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-=== [https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry Estonian Cancer Registry] ===
+=== [[hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)]] ===
-'''Primary purpose:''' A complete and reliable registration of incident cancer cases in Estonia.
+=== [[hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)]] ===
+</div>
-'''Sponsor, manager, or home institution:''' The [https://en.tai.ee/en/ National Institute for Health Development]; Ministry of Social Affairs.
+== Clinical Practice Guidelines ==
+=== [[hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline]] ===
-'''Available databases:''' The [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/?tablelist=true Health Statistics and Health Research Database] and the [http://pub.stat.ee/px-web.2001/dialog/statfile1.asp Statistics Estonia Database]
+== Electronic Health Records ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Available type of information:''' Datasets about the incidence of cancer in general and specific types of cancer, sortable by year, sex, site and age group, as well as causes of death and death rates.
+=== [[hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System]] ===
+</div>
-'''Available data level:''' National level. Malignant neoplasms' statistics are submitted by 15 counties.
+== Latest Policymaking Initiatives ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Type of Information:''' patient name, identification number, gender, date of birth, place of birth, residence, marital status, nationality, primary site, date of diagnosis, confirmation methods of diagnosis, tumour morphology and grade, extent of disease, primary treatment (surgery, radiotherapy, cytostatic chemotherapy, hormone therapy, other treatment), follow-up data (date of death or emigration) and cause of death, source of information
+=== [[hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control]] ===
-'''Number of records:''' Every registered Estonian citizen.
+=== [[hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia]] ===
-'''Data source:''' “Reporting of cancer cases is compulsory to all physicians working in Estonia who diagnose or treat cancer. Data are submitted to the registry also by forensic pathologists-experts” [https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry [3]].
+=== [[hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's]] ===
-'''Cancer areas of interest (ICD):''' All sites (C00–C97);
+=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023]] ===
-All sites except other skin (C00–C97, except C44);
-Lip, oral cavity and pharynx (C00–C14);
-Digestive organs (C15–C26);
-Respiratory and intrathoracic organs (C30–C39);
-Female genital organs (C51–C58);
-Male genital organs (C60–C63);
-Urinary tract (C64–C68);
-Brain and central nervous system (C70–C72);
-Leukaemia (C91–C95);
-Lymphomas (C81–C85/C96); county-level lymphoma data include Hodgkin’s disease as well as non-Hodgkin lymphomas.
-'''Link/contact:''' [https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry Contact information.]
+=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Estonia)|Report: EU Country Cancer Profile 2025]] ===
-=== Database: Health Statistics and Health Research Database Cause of Death ===
+=== [[hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival]] ===
+</div>
-'''Sponsor, manager or home institution:'''
+== Cancer-related Patient Associations and Resources ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Primary purpose:'''
+=== [[hasPatientAssociation::Patient Association: Estonian Cancer Society (Europa Donna Estonia) (Estonia)|Patient Association: Estonian Cancer Society (Europa Donna Estonia)]] ===
-'''Type of information:'''
+=== [[hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation]] ===
-'''Source of Information:''' The first page of Death certificate.
+=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Estonia)|Patient Guides: ESMO Patient Guides Compilation]] ===
-'''Data level:'''
+=== [[hasPatientGuides::Patient Guides: Ravijuhend Patient Guides (Estonia)|Patient Guides: Ravijuhend Patient Guides]] ===
-'''Number of Records:'''
+== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research]] ==
+</div>
-'''Date Range:'''
+__NOTOC__
+<span style="display:none">hasCancerCenter::Tartu University Hospital</span>
-'''Cancer Areas of Interest:'''
+<span style="display:none">hasCancerCenter::North Estonia Medical Centre</span>
+<span style="display:none">hasCancerCenter::East Tallinn Central Hospital</span>
-'''Open data access:'''
+<span style="display:none">hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System</span>
+<span style="display:none">hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database</span>
-'''Information/Contact for data request:'''
+<span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry</span>
+<span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry</span>
+<span style="display:none">hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death</span>
+<span style="display:none">hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death</span>
-=== Database: Statistics Estonia Cause of Death ===
+<span style="display:none">hasDatabase::Statistics_Estonia:_Malignant_Tumours_(Estonia)|Statistics Estonia: Malignant Tumours</span>
+<span style="display:none">hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)</span>
-'''Sponsor, manager or home institution:''' Statistics Estonia.
+<span style="display:none">hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)</span>
+<span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Palliative Care Treatment Guideline</span>
-'''Primary purpose:''' The database provides information on deaths of Estonian permanent residents, including causes of death, to be used for population statistics, mortality rate assessment, population forecasting, and comparison with other EU member states, as well as by various state institutions, statisticians, and international organizations.
+<span style="display:none">hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System</span>
+<span style="display:none">hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control</span>
-'''Type of information:''' The number of deaths registered during the calendar year and the distribution of the dead by demographic indicators and medical causes of death; indicators are published in absolute and relative numbers (multipliers). By type of deceased settlement unit, place of residence and month of death, gender, age group, nationality, marital status, education level, cause of death. Perinatal deaths;
+<span style="display:none">hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia</span>
-Stillbirths. Infant deaths by gender, age, place of residence, date of birth, mother's age, mother's marital status, mother's level of education.
+<span style="display:none">hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's</span>
+<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023</span>
-'''Available type of information:''' Total deaths, death rate, standardized death multiplier, death per 100,000 population, cause of death, sex, and age.
+<span style="display:none">hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation</span>
-'''Source of Information:''' Census.
+<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides</span>
+<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research</span>
-'''Data level:''' Patient level.
+<span style="display:none">hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours</span>
+<span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline</span>
-'''Available data level:''' National level.
+<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
+<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
-'''Number of Records:''' Unknown.
+<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
+<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
-'''Date Range:''' 1989 onwards.
+<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
+<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
-'''Cancer Areas of Interest:'''
+<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
+<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
-'''Open data access:''' Data is partially publicly available. Publicly available data can be found [https://andmed.stat.ee/et/stat here] at "Population > Population indicators and composition > Population and population composition". Information on how to access full database can be found [https://www.stat.ee/sites/default/files/2020-08/Konfidentsiaalsete%20andmete%20teaduslikel%20eesm%c3%a4rkidel%20edastamise%20kord%202015.pdf here].
+<span style="display:none">hasCancerType::C50: Breast cancer</span>
+<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
-'''Information/Contact for data request:''' Contact information can be found [https://www.stat.ee/et/avasta-statistikat/metoodika-ja-kvaliteet/esms-metaandmed/30205#1-Kontaktandmed-0 here].
+<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
+<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
-=== [https://rkav.tehik.ee/rkav/faces/pages/tegevuslubaForm/tegevuslubaOtsing.xhtml Activity License Registry] ===
+<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
+<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
-'''Primary purpose:''' A search tool for any pharmacy, wholesale distributor or manufacturer
+<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
-with an Estonian activity licence for handling medicines.
+<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
+<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
-'''Sponsor, manager, or home institution:''' Estonian Agency of Medicine.
+<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
+<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
-'''Available information:''' Site name, activity license holder, activity license number, county, city/town/village and type of activity license.
+<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
+<span style="display:none">hasCancerType::unknown</span>
-'''Level:''' City/town/village level.
-=== [https://ravimiregister.ee/en/publichomepage.aspx Medical Products Registry] ===
-'''Primary purpose:''' To have an account of all medicinal products and their packages sold in Estonia.
-'''Sponsor, manager, or home institution:''' Estonian Agency of Medicine.
-'''Available information:''' Active substance, pharmaceutical form, strength, information about the marketing authorisation, the last date of import, reference price, discount prices and rates, unique codes for package sizes, among other information.
-<!--
-== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
--->
-== [[Electronic Health Records]] ==
-=== [https://www.tehik.ee/en/health-information-system Health Information System] ===
-'''Primary Purpose:''' Allowing healthcare service providers to see and share patient information and healthcare data across the country.
-'''Sponsor, manager, or home institution:''' Ministry of Social Affairs (sponsor); Health and Welfare Information Systems Centre - TEHIK (manager)
-'''Number of records:''' Any Estonian citizen who used a healthcare service since 2008.
-'''Data source:''' Data inserted by healthcare providers.
-'''Date range:''' 2008 onwards.
-'''Link/contact:''' [https://www.digilugu.ee/login Contact information.]
-== [[Clinical Practices Guidelines]] ==
-=== [https://www.tai.ee/et/valjaanded/vahitorje-tegevuskava-2021-2030 Action Plan for Cancer Control] ===
-'''Primary purpose:''' Reducing the number of cancer cases and deaths, and improving the quality of life of cancer patients.
-'''Sponsor, manager or home institution:''' Ministry of Social Affairs; National Institute of Health Development; Estonian Cancer Society.
-'''Level:''' National level.
-'''Cancer ares of interest:''' All.
-'''Availability in English:''' No.
-=== [https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/kliinilised-uuringud Good Practices Guidelines for Clinical Trials] ===
-'''Primary purpose:''' To ensure the rights, safety and well-being of the participant according to the principles of the [https://www.wma.net/what-we-do/medical-ethics/declaration-of-helsinki/ Declaration of Helsinki].
-'''Sponsor, manager or home institution:''' European Medicines Agency.
-'''Level:''' National level.
-'''Cancer Areas of Interest:''' All.
-'''Availability in English:''' [https://www.ema.europa.eu/en/ich-e6-r2-good-clinical-practice-scientific-guideline Yes].
-=== [https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/kliinilised-uuringud Other Requirements for Clinical Trials] ===
-== [[Latest Policymaking Initiatives]] ==
-=== [https://www.sm.ee/rahvastiku-tervise-arengukava-2020-2030 Population Health Development Plan 2030] ===
-'''Institution:''' Ministry of Social Affairs
-'''Primary purpose:''' National health plan to increase life expectancy and quality of life during later years, and decrease healthcare inequalities.
-'''Type of information:''' A detailed plan to deliver on the goals stated above, with data to support policy decisions, which includes cancer-related decision-making.
-'''Level:''' National level.
-=== [https://www.haigekassa.ee/en/organisation/about-us/reports-and-studies The State of Healthcare Integration in Estonia Report] ===
-'''Institution:''' Estonian Health Insurance Fund.
-'''Primary purpose:''' Assess healthcare integration in Estonia.
-'''Type of information:''' Overview of the Estonian healthcare system, information about avoidable admissions to hospitals and specialist visits, hospital stay, NMIS procedures, patient behavior, provider behavior, care continuity, preventive services, and other various information.
-'''Level:''' National level.
-=== [https://www.haigekassa.ee/en/organisation/about-us/reports-and-studies "Quality Bonus System Needs Adjustment" Report] ===
-'''Institution:''' Estonian Health Insurance Fund.
-'''Primary purpose:''' Point out flaws in the QBS system and suggest easy-to-make adjustments.
-'''Type of information:''' Analysis of QBS score distribution including tables and graphs for various data, list of proposals for adjustments to the QBS system with details, among other information.
-'''Level:''' National level.
-=== [https://intra.tai.ee//images/prints/documents/161537779082_Tervishoiukulud_2019.pdf Healthcare Costs 2019] ===
-'''Institution:''' National Institute for Health Development.
-'''Primary purpose:''' Provide information about healthcare costs for anyone interested in healthcare.
-'''Type of information:''' Total national health expenditure, comparisons to previous years, share of public sector and other details, household expenditures, and healthcare insurance fund expenditures, among others.
-'''Level:''' National level.
-=== [https://tervis.ut.ee/sites/default/files/inline-files/estonian_handbook_for_guidelines_development_2020.pdf Estonian Handbook for Guideline Development] ===
-'''Institution:''' Estonian Health Insurance Fund.
-'''Primary purpose:''' To serve as an up-to-date practical resource for developing health guidelines.
-'''Type of information:''' Guideline development process, topic proposals, evidence retrieving, report, dissemination of recommendations, among other topics.
-'''Level:''' National level.
-=== [https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/ravimi-muugiluba Marketing Authorization for a Drug] ===
-'''Institution:''' Medicines Board
-'''Primary purpose:''' Legislation and Forms to inform the marketing authorization for drugs.
-'''Type of information:''' Medicine-related laws, regulations, conditions, requirements and statutes related to the authorization of drug marketing, guides and manuals to inform the process as well as forms that are required to be authorized.
-'''Level:''' National level.
-=== [https://ravimiamet.ee/oigusaktid-juhendid-materjalid/oigusaktid-juhendid-ja-vormid/ravimite-kaitlemine Handling of Medicine] ===
-'''Institution:''' Medicines Board
-'''Primary purpose:''' Legislation and Forms to inform the handling of drugs.
-'''Type of information:''' Medicine-related laws, regulations, conditions, requirements and statutes related to the handling of drugs, guides  to inform the handling of drugs as well as forms that are required to be authorized to handle drugs.
-'''Level:''' National level.
-=== [https://www.haigekassa.ee/en/partner/legislation Other Estonian Health Legislation] ===
-== [[Cancer-related Patient Associations and Resources]] ==
-=== [https://kingitudelu.ee/for-cancer-patients "Gift of Life" Foundation] ===
-'''Primary purpose:''' To support cancer treatment not covered by the Estonian Health Insurance Fund.
-'''Level:''' National level.
-<!--
-This RSS feed shows the Public Information Act updates.
-<rss max=3 highlight="Test RSS">https://www.riigiteataja.ee/en/tolge/versions?grupiId=100220</rss>
--->