The Netherlands: Difference between revisions

From Beacon
 
(169 intermediate revisions by 5 users not shown)
Line 1: Line 1:
== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
== [[Healthcare System]] ==
<span style="display:none">forpatients</span>
== [[Administrative or Claims Data]] ==
<span style="display:none">forproviders</span>
== [[Registries]] ==
<span style="display:none">forpolicymakers</span>
<span style="display:none">thenetherlandscountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


=== Database: Netherlands Cancer Registry (NKR) ===
== Cancer Centers ==
[https://iknl.nl/nkr/over-nkr] [https://iknl.nl/nkr/uitleg-nkr-cijfers]
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Primary purpose:''' Registry and monitor cancer statistics around Netherlands.
[[hasCancerCenter::Netherlands Cancer Institute - Antoni van Leeuwenhoek]]


'''Sponsor, manager or home institution''': Comprehensive Cancer Center of the Netherlands (IKNL).
[[hasCancerCenter::The Maastricht UMC+ Comprehensive Cancer Center]]


'''Available type of information''':  
[[hasCancerCenter::University Medical Center Groningen Comprehensive Cancer Center]]
*Incidence: Count, crude rate per 100,000 persons per year, European Standardized Rate (ESR) per 100,000 persons per year, World Standardized Rate (WSR), Revised European Standardized Rate (RESR) by type of cancer, gender, age, region, and year.
*Prevalence: 5 year, 10 year, and 20 year prevalence by type of cancer, gender, age, region, and year.
*Mortality: Count, crude rate per 100,000 persons per year, European Standardized Rate (ESR) per 100,000 persons per year, World Standardized Rate (WSR), Revised European Standardized Rate (RESR) by type of cancer, gender, age, and year.
*Survival: relative survival by type of cancer, Period from diagnosis (1 year and 10 years), age at time of diagnosis, stage at time of diagnosis (TNM), and gender.


[[hasCancerCenter::Erasmus MC Kanker Instituut]]


Also, there is a cancer atlas that informs of the incidence of cancer in each region of the Netherlands in the period of 2011–2020 and compares it to the Dutch average. This information can be selected by type of cancer, region, and gender.
[[hasCancerCenter::Radboudumc Centre for Oncology]]


'''Type of information''': The type of information available to each type of cancer at patient level can be seen in [https://iknl.nl/nkr/registratie/itemsets this] website.
[[hasCancerCenter::Rijnstate]]
</div>


'''Source of information''': Hospitals' reports.
== [[hasHealthcareSystem::Healthcare_System_(The_Netherlands)|Healthcare System]] ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Data level''': Regional level (open access) and Patient level (restricted access).
</div>


'''Number of Records:''' Contains information about all new cases of malignant neoplasms and some benign neoplasms (tumors of the central nervous system, borderline tumors of the ovary, and AL amyloidosis) in Netherlands.
== Administrative or Claims Data ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Date range''': Varies according to the diagnosis and the type of information. It can be checked in [https://iknl.nl/nkr/registratie/itemsets this] website.
=== [[hasDatabase::Database:_National_Basic_Register_of_Hospital_Care_(LBZ)_(The_Netherlands)|Database: National Basic Register of Hospital Care (LBZ)]] ===


'''Cancer Areas of Interest:''' Regional data includes all invasive cancers except basal cell carcinoma of the skin.
</div>


'''Data access''': Regional level data is available [https://iknl.nl/nkr-cijfers here]. Access to patient level data can be requested by following the steps described [https://iknl.nl/nkr/cijfers-op-maat/gegevensaanvraag here]. The cancer atlas can be accessed [https://kankeratlas.iknl.nl/ here].
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Information/contact for data request''': [https://iknl.nl/over-iknl/contact-adres Contact information].
=== [[hasDatabase::Database:_Netherlands_Cancer_Registry_(NKR)_(The_Netherlands)|Database: Netherlands Cancer Registry (NKR)]] ===


=== Database: Mortality by Cause of Death ===
=== [[hasDatabase::Database:_Mortality_by_Cause_of_Death_(The_Netherlands)|Database: Mortality by Cause of Death]] ===
[https://www.cbs.nl/nl-nl/onze-diensten/methoden/onderzoeksomschrijvingen/korte-onderzoeksbeschrijvingen/doodsoorzakenstatistiek]


'''Primary purpose:''' Publish data concerning the number of deaths in the territory.
=== [[hasDatabase::Database:_Registry_of_Histo_and_Cytopathology_(The_Netherlands)|Database: Registry of Histo and Cytopathology]] ===


'''Sponsor, manager or home institution''': Centraal Bureau voor de Statistiek.
=== [[hasDatabase::Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)|Database: Dutch Institute for Clinical Auditing Databases (DICA)]] ===


'''Type of information''': Number of deaths in the population of the Netherlands by main underlying cause of death (extensive list of 'three digit codes'), by age, gender, and year.
</div>


Deceased; leading causes of death (short list) by region, age, gender, and year.
== Databases for Clinical Trials, Surveys and Biobanks ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
=== [[hasDatabase::Survey:_National_Population_Surveys:_Screenings_for_breast,_cervical_and_colon_cancer_(The_Netherlands)|Survey: National Population Surveys: Screenings for breast, cervical and colon cancer]] ===


'''Source of information''': Declaration of the cause of death and Basic personal registration (BRP) are sent from regional hospitals to the statistical organization.
</div>


'''Data level''': National level, Regional level (open access) and Patient level (restricted access).
== Clinical Practices Guidelines ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Number of Records:''' Unknown.
=== [[hasClinicalGuidelines::Guidelines: IKNL Guidelines Compilation (The Netherlands)|Guidelines: IKNL Guidelines Compilation]] ===


'''Date range''': 1996 onwards (national and regional level) and 1995 onwards (patient level).
=== [[hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines: Guidelines for Palliative Care]] ===


'''Cancer Areas of Interest:''' Total neoplasms (C00-D48); Total malignant neoplasms (C00-C97);  Malignant neoplasms of lip, oral cavity and pharynx (C00-C14); Malignant neoplasms of oesophagus (C15); Malignant neoplasms of stomach (C16); Malignant neoplasms of colon (C18); Malignant neoplasms of rectum, rectosigmoid and anus (C19-C21); Malignants neoplasms of liver and intrahepatic bile ducts (C22.0 - C22.8); Malignant neoplasms of galbladder and bile ducts (C23-C24); Malignant neoplasms of pancreas (C25); Malignant neoplasms of larynx (C32); Malignant neoplasms of trachea, bronchus and lung, Trachea (windpipe) including branchings (C33-C34); Melanoma skin (C43); Malignant neoplasms of breast (C50); Malignant neoplasms of cervix uteri (C53); Malignant neoplasms of corpus uteri and uterus unspecified (C54-C55); Malignant neoplasms of ovary (C56); Malignant neoplasms of prostate (C61); Malignant neoplasms of kidney, except renal pelvis (C64); Malignant neoplasms of bladder (C67); Malignant neoplasms of lymphoid, heamatopoietic and related tissue (C81-C96); Other malignant neoplasms (C17, C22.9, C26-C31, C35-C41, C44-C49, C51-C52, C57-C60, C62-C63, C65-C66, C68-C80, C97); Other neoplasms (D00-D48). [https://www.cbs.nl/en-gb/figures/detail/7052eng]
=== [[hasClinicalGuidelines::Guidelines: NHG Guidelines Compilation (The Netherlands)|Guidelines: NHG Guidelines Compilation]] ===
</div>


'''Data access''': National level data can be accessed [https://opendata.cbs.nl/statline/portal.html?_la=en&_catalog=CBS&tableId=7233ENG&_theme=1133 here]. Regional level information can be accessed [https://opendata.cbs.nl/#/CBS/nl/dataset/80202ned/table?ts=1681159800171 here]. The required proccess to access patient level data can be checked [https://www.cbs.nl/nl-nl/onze-diensten/maatwerk-en-microdata/microdata-zelf-onderzoek-doen here].
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Information/contact for data request''': [https://www.cbs.nl/nl-nl/onze-diensten/maatwerk-en-microdata/microdata-zelf-onderzoek-doen/contact Contact information].
=== [[hasReport::Reports:_IKNL_(The_Netherlands)|Reports: IKNL]] ===


<!--
=== [[hasReport::Reports:_Palliaweb_(The_Netherlands)|Reports: Palliaweb]] ===
=== Database: ===


'''Primary purpose:'''
=== [[hasReport::Report:_Breast_cancer_screening_program_(The_Netherlands)|Report: Breast cancer screening program]] ===


'''Sponsor, manager or home institution''':  
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(The_Netherlands)|Report: EU Country Cancer Profile 2023]] ===


'''Type of information''':  
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(The_Netherlands)|Report: EU Country Cancer Profile 2025]] ===


'''Source of information''':  
=== [[hasReport::Report:_The_Dutch_Cancer_Agenda_(The_Netherlands)|Report: The Dutch Cancer Agenda]] ===


'''Data level''':  
=== [[hasInitiative::Initiative:_National_Action_Plan_for_Cancer_&_Life_(The_Netherlands)|Initiative: National Action Plan for Cancer & Life]] ===
</div>


'''Number of Records:''' Contains information regarding the whole territory of Lithuania.
== Cancer-related Patient Associations and Resources ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Date range''':  
=== [[hasPatientAssociation::Patient Association: Dutch Breast Cancer Association (Europa Donna Netherlands) (The Netherlands)|Patient Association: Dutch Breast Cancer Association (Europa Donna Netherlands)]] ===


'''Cancer Areas of Interest:'''
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (The Netherlands)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Data access''':  
=== [[hasPatientResource::Self-help_group:_Dutch_cancer_support_center_“House_by_the_Water”_(The Netherlands)|Self-help group: Dutch cancer support center “House by the Water”]] ===


'''Information/contact for data request''': [ Contact information].
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(The_Netherlands)|Quality of Life and Palliative Care Research]] ==
-->


== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
__NOTOC__
== [[Electronic Health Records]] ==
<span style="display:none">hasCancerCenter::Netherlands Cancer Institute - Antoni van Leeuwenhoek</span>
== [[Clinical Practices Guidelines]] ==
<span style="display:none">hasCancerCenter::The Maastricht UMC+ Comprehensive Cancer Center</span>
== [[Latest Policymaking Initiatives]] ==
<span style="display:none">hasCancerCenter::University Medical Center Groningen Comprehensive Cancer Center</span>
<span style="display:none">hasCancerCenter::Erasmus MC Kanker Instituut</span>
<span style="display:none">hasCancerCenter::Radboudumc Centre for Oncology</span>
<span style="display:none">hasCancerCenter::Rijnstate</span>
<span style="display:none">hasHealthcareSystem::Healthcare_System_(The_Netherlands)|Healthcare System</span>
<span style="display:none">hasDatabase::Database:_National_Basic_Register_of_Hospital_Care_(LBZ)_(The_Netherlands)|Database: National Basic Register of Hospital Care (LBZ)</span>
<span style="display:none">hasDatabase::Database:_Netherlands_Cancer_Registry_(NKR)_(The_Netherlands)|Database: Netherlands Cancer Registry (NKR)</span>
<span style="display:none">hasDatabase::Database:_Mortality_by_Cause_of_Death_(The_Netherlands)|Database: Mortality by Cause of Death</span>
<span style="display:none">hasDatabase::Database:_Registry_of_Histo_and_Cytopathology_(The_Netherlands)|Database: Registry of Histo and Cytopathology</span>
<span style="display:none">hasDatabase::Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)|Database: Dutch Institute for Clinical Auditing Databases (DICA)</span>
<span style="display:none">hasDatabase::Survey:_National_Population_Surveys:_Screenings_for_breast,_cervical_and_colon_cancer_(The_Netherlands)|Survey: National Population Surveys: Screenings for breast, cervical and colon cancer</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Compilation: IKNL Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines for Palliative Care</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_NHG_Guidelines_(The_Netherlands)|Compilation: NHG Guidelines</span>
<span style="display:none">hasReport::Reports:_IKNL_(The_Netherlands)|Reports: IKNL</span>
<span style="display:none">hasReport::Reports:_Palliaweb_(The_Netherlands)|Reports: Palliaweb</span>
<span style="display:none">hasReport::Report:_Breast_cancer_screening_program_(The_Netherlands)|Report: Breast cancer screening program</span>
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(The_Netherlands)|Report: EU Country Cancer Profile 2023</span>
<span style="display:none">hasReport::Report:_The_Dutch_Cancer_Agenda_(The_Netherlands)|Report: The Dutch Cancer Agenda</span>
<span style="display:none">hasInitiative::Initiative:_National_Action_Plan_for_Cancer_&_Life_(The_Netherlands)|Initiative: National Action Plan for Cancer & Life</span>
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(The_Netherlands)|Compilation: ESMO Patient Guides</span>
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(The_Netherlands)|Quality of Life and Palliative Care Research</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Guidelines: IKNL Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines: Guidelines for Palliative Care</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_NHG_Guidelines_(The_Netherlands)|Guidelines: NHG Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: IKNL Guidelines Compilation (The Netherlands)|Guidelines: IKNL Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: NHG Guidelines Compilation (The Netherlands)|Guidelines: NHG Guidelines Compilation</span>
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (The Netherlands)|Patient Guides: ESMO Patient Guides Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 13:57, 27 January 2026

forresearchers forpatients forproviders forpolicymakers thenetherlandscountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Netherlands Cancer Institute - Antoni van Leeuwenhoek

The Maastricht UMC+ Comprehensive Cancer Center

University Medical Center Groningen Comprehensive Cancer Center

Erasmus MC Kanker Instituut

Radboudumc Centre for Oncology

Rijnstate

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: National Basic Register of Hospital Care (LBZ)[edit | edit source]

Registries[edit | edit source]

Database: Netherlands Cancer Registry (NKR)[edit | edit source]

Database: Mortality by Cause of Death[edit | edit source]

Database: Registry of Histo and Cytopathology[edit | edit source]

Database: Dutch Institute for Clinical Auditing Databases (DICA)[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Survey: National Population Surveys: Screenings for breast, cervical and colon cancer[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: IKNL Guidelines Compilation[edit | edit source]

Guidelines: Guidelines for Palliative Care[edit | edit source]

Guidelines: NHG Guidelines Compilation[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Reports: IKNL[edit | edit source]

Reports: Palliaweb[edit | edit source]

Report: Breast cancer screening program[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: The Dutch Cancer Agenda[edit | edit source]

Initiative: National Action Plan for Cancer & Life[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Association: Dutch Breast Cancer Association (Europa Donna Netherlands)[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Self-help group: Dutch cancer support center “House by the Water”[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]

hasCancerCenter::Netherlands Cancer Institute - Antoni van Leeuwenhoek hasCancerCenter::The Maastricht UMC+ Comprehensive Cancer Center hasCancerCenter::University Medical Center Groningen Comprehensive Cancer Center hasCancerCenter::Erasmus MC Kanker Instituut hasCancerCenter::Radboudumc Centre for Oncology hasCancerCenter::Rijnstate hasHealthcareSystem::Healthcare_System_(The_Netherlands)|Healthcare System hasDatabase::Database:_National_Basic_Register_of_Hospital_Care_(LBZ)_(The_Netherlands)|Database: National Basic Register of Hospital Care (LBZ) hasDatabase::Database:_Netherlands_Cancer_Registry_(NKR)_(The_Netherlands)|Database: Netherlands Cancer Registry (NKR) hasDatabase::Database:_Mortality_by_Cause_of_Death_(The_Netherlands)|Database: Mortality by Cause of Death hasDatabase::Database:_Registry_of_Histo_and_Cytopathology_(The_Netherlands)|Database: Registry of Histo and Cytopathology hasDatabase::Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)|Database: Dutch Institute for Clinical Auditing Databases (DICA) hasDatabase::Survey:_National_Population_Surveys:_Screenings_for_breast,_cervical_and_colon_cancer_(The_Netherlands)|Survey: National Population Surveys: Screenings for breast, cervical and colon cancer hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Compilation: IKNL Guidelines hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines for Palliative Care hasClinicalGuidelines::Compilation:_NHG_Guidelines_(The_Netherlands)|Compilation: NHG Guidelines hasReport::Reports:_IKNL_(The_Netherlands)|Reports: IKNL hasReport::Reports:_Palliaweb_(The_Netherlands)|Reports: Palliaweb hasReport::Report:_Breast_cancer_screening_program_(The_Netherlands)|Report: Breast cancer screening program hasReport::Report:_EU_Country_Cancer_Profile_2023_(The_Netherlands)|Report: EU Country Cancer Profile 2023 hasReport::Report:_The_Dutch_Cancer_Agenda_(The_Netherlands)|Report: The Dutch Cancer Agenda hasInitiative::Initiative:_National_Action_Plan_for_Cancer_&_Life_(The_Netherlands)|Initiative: National Action Plan for Cancer & Life hasPatientGuides::Compilation:_ESMO_Patient_Guides_(The_Netherlands)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(The_Netherlands)|Quality of Life and Palliative Care Research hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Guidelines: IKNL Guidelines Compilation hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines: Guidelines for Palliative Care hasClinicalGuidelines::Compilation:_NHG_Guidelines_(The_Netherlands)|Guidelines: NHG Guidelines Compilation hasClinicalGuidelines::Guidelines: IKNL Guidelines Compilation (The Netherlands)|Guidelines: IKNL Guidelines Compilation hasClinicalGuidelines::Guidelines: NHG Guidelines Compilation (The Netherlands)|Guidelines: NHG Guidelines Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (The Netherlands)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

Retrieved from "https://wiki.beaconcancer.org/index.php?title=The_Netherlands&oldid=36347"
Powered by MediaWiki
Powered by Semantic MediaWiki