Estonia: Difference between revisions

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Estonia’s healthcare system is the Health Insurance System, described as “solidarity-based health insurance”(1) and the Estonian Health Insurance Fund (EHIF) is the public law organization responsible for providing the organization of national healthcare services in accordance with the Health Insurance Act, the Health Services Organization Act and other legislation.
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">estoniacountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


The body responsible for healthcare and all social policies in Estonia is the Ministry of Social Affairs. The Health Board is its child agency. Estonia’s [https://www.riigiteataja.ee/en/eli/514112013001/consolide Public Information Act] details the terms of compliance to request information not already publicly available. The request is exempt from covering expenses if the request is made for research work.
== Cancer Centers ==
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This is a list of data sources for Estonia.
[[hasCancerCenter::Tartu University Hospital]]


== [[Cancer Centers]] ==
[[hasCancerCenter::North Estonia Medical Centre]]  


=== [[North Estonia Medical Centre]] ===
[[hasCancerCenter::East Tallinn Central Hospital]]
<!--
</div>
[[East Tallinn Central Hospital]]
[[Tartu University Hospital]]
-->


== [[Administrative or Claims Data]] ==
== [[hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System]] ==
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</div>


====[https://www.haigekassa.ee/en/organisation/about-us Estonian Health Insurance Fund (EHIF) Database]====
== Administrative or Claims Data ==
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'''Sponsor, manager or home institution:''' Estonian Health Insurance Fund (EHIF); The Ministry of Social Affairs
=== [[hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database]] ===
</div>


'''Type of information:''' Medical contacts (physician visit, hospital stay, etc.), including diagnostic tests, prescription medicine, medical devices, and treatment.
== Registries ==
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'''Source of Information:''' The database is based on claims data from all Estonian healthcare providers that have signed a contract with EHIF and deliver EHIF-financed healthcare, which is almost all of them.
=== [[hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry]] ===


'''Data level:''' Patient level.
=== [[hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry]] ===


'''Number of Records:''' 1.3 million people, i.e. 95% of Estonia's population.
=== [[hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death]] ===


'''Date Range:''' 2004 onwards.
=== [[hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death]] ===


'''Link/Contact for data request:''' info@haigekassa.ee.
=== [[hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours]] ===
<!--
</div>
Sources for quotes:
(1) 2020's Annual Report: https://www.haigekassa.ee/en/organisation/annual-reports-0
(2) https://link.springer.com/chapter/10.1007/978-3-030-51455-6_16
-->


== [[Registries]] ==
== Databases for Clinical Trials, Surveys and Biobanks ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


===[https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/?tablelist=true Health Statistics and Health Research Database]===
=== [[hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)]] ===


'''Primary purpose:''' A complete and reliable registration of incident cancer cases in Estonia.
=== [[hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)]] ===
</div>


'''Sponsor, manager, or home institution:''' The [https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry National Institute for Health Development]
== Clinical Practice Guidelines ==
=== [[hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline]] ===


'''Type of information:''' Datasets about incidence of cancer in general and specific types of cancer, sortable by year, sex, site and age group.
== Electronic Health Records ==
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'''Data level:''' National level. Malignant neoplasms' statistics are submitted by 15 counties.
=== [[hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System]] ===
<!-- ''' Number of records:''' Unknown. -->
</div>


'''Number of records:''' Every registered Estonian citizen i.e. 1.3 million people.
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Date range:''' From 1968 to 2019.
=== [[hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control]] ===


'''Data source:''' According to the Institute, “Reporting of cancer cases is compulsory to all physicians working in Estonia who diagnose or treat cancer. Data are submitted to the registry also by forensic pathologists-experts” (3).
=== [[hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia]] ===


'''Cancer areas of interest (ICD):''' All sites (C00–C97);
=== [[hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's]] ===
All sites except other skin (C00–C97, except C44);
Lip, oral cavity and pharynx (C00–C14);
Digestive organs (C15–C26);
Respiratory and intrathoracic organs (C30–C39);
Female genital organs (C51–C58);
Male genital organs (C60–C63);
Urinary tract (C64–C68);
Brain and central nervous system (C70–C72);
Leukaemia (C91–C95);
Lymphomas (C81–C85/C96); county-level lymphoma data include Hodgkin’s disease as well as non-Hodgkin lymphomas.


'''Link/contact:''' Margit Mägi,
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023]] ===
Head of Registry,
Tel: +372 659 3830,
E-mail: margit.magi@tai.ee


=== [https://andmed.stat.ee/en/stat/search?searchquery=malignant%20neoplasm Statistics Estonia Database] ===
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Estonia)|Report: EU Country Cancer Profile 2025]] ===


'''Primary Purpose:''' To provide information about demographic, social, economic and environmental development of Estonia for the purposes of development plans and projections, policy planning, scientific and applied research, and making informed decisions.
=== [[hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival]] ===
</div>


'''Sponsor, manager, or home institution:''' [https://www.stat.ee/en/statistics-estonia/about-us Statistics Estonia], responsible for coordinating the system of classifications and for data governance in the country.
== Cancer-related Patient Associations and Resources ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Type of information:''' Datasets on causes of death and death rates.
=== [[hasPatientAssociation::Patient Association: Estonian Cancer Society (Europa Donna Estonia) (Estonia)|Patient Association: Estonian Cancer Society (Europa Donna Estonia)]] ===


'''Data level:''' National level.
=== [[hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation]] ===


'''Number of records:''' Every registered Estonian citizen i.e. 1.3 million people.
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Estonia)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Data source:''' Estonian Causes of Death Registry
=== [[hasPatientGuides::Patient Guides: Ravijuhend Patient Guides (Estonia)|Patient Guides: Ravijuhend Patient Guides]] ===


== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research]] ==
</div>


 
__NOTOC__
1. Registry name:  
<span style="display:none">hasCancerCenter::Tartu University Hospital</span>
  - *Primary purpose* -
<span style="display:none">hasCancerCenter::North Estonia Medical Centre</span>
  - *Sponsor, manager, or home institution* -  <!-- além do próprio CC (ex. instituições parceiras, fontes de financiamento, etc)-->  
<span style="display:none">hasCancerCenter::East Tallinn Central Hospital</span>
  - *Type of information* <!-- e.g., medical contacts (physician visit, hospital stay, etc.), including diagnostic tests, prescription medicine, medical devices, and treatment -->
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System</span>
  - *Data level* <!-- e.g., patient-level, hospital-level, provider-level, state/city-level -->
<span style="display:none">hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database</span>
  - *Number of records* - <!-- e.g., may be of patients or of hospitals -->
<span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry</span>
  - *Date range* 
<span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry</span>
  - *Cancer areas of interest* - <!-- @todo checar nomenclatura do SEER medicare -->  
<span style="display:none">hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death</span>
  - *Other*
<span style="display:none">hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death</span>
  - *Link/contact*
<span style="display:none">hasDatabase::Statistics_Estonia:_Malignant_Tumours_(Estonia)|Statistics Estonia: Malignant Tumours</span>
 
<span style="display:none">hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)</span>
 
<span style="display:none">hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)</span>
 
<span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Palliative Care Treatment Guideline</span>
 
<span style="display:none">hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System</span>
<!--
<span style="display:none">hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control</span>
Sources for quotes:
<span style="display:none">hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia</span>
 
<span style="display:none">hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's</span>
(3) https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023</span>
-->
<span style="display:none">hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation</span>
== [[Electronic Health Records]] ==
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides</span>
 
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research</span>
Estonia's Electronic Health Records are created and managed by [https://www.tehik.ee/en TEHIK], an Estonian organization founded for this purpose. TEHIK manages over 40 databases helping them provide e-services in the fields of health, social security, technology and labour, and are used by almost 1,3 million people.
<span style="display:none">hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours</span>
 
<span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline</span>
<!--
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
=== [[Clinical Practices Guidelines]] ===
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
 
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
=== [[Latest Policymaking Initiatives]] ===
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
-->
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
 
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
This RSS feed shows the Public Information Act updates.
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
 
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<rss max=3 highlight="Test RSS">https://www.riigiteataja.ee/en/tolge/versions?grupiId=100220</rss>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 03:17, 21 January 2026

forresearchers forpatients forproviders forpolicymakers estoniacountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Tartu University Hospital

North Estonia Medical Centre

East Tallinn Central Hospital

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: Estonian Health Insurance Fund (EHIF) Database[edit | edit source]

Registries[edit | edit source]

Database: Andmebaas Cancer Screening Registry[edit | edit source]

Database: Andmebaas Cancer Registry[edit | edit source]

Database: Andmebaas Cause of Death[edit | edit source]

Database: Statistics Estonia Cause of Death[edit | edit source]

Database: Statistics Estonia - Malignant Tumours[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)[edit | edit source]

Survey: The Estonian Health Interview Survey (ETeU)[edit | edit source]

Clinical Practice Guidelines[edit | edit source]

Guidelines: Palliative Care Treatment Guideline[edit | edit source]

Electronic Health Records[edit | edit source]

Database: Health Information System[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

National Plan: Action Plan for Cancer Control[edit | edit source]

Report: The State of Healthcare Integration in Estonia[edit | edit source]

Reports: The Health Fund's[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: Cancer in Estonia: morbidity and survival[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Association: Estonian Cancer Society (Europa Donna Estonia)[edit | edit source]

Patient Association: "Gift of Life" Foundation[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Patient Guides: Ravijuhend Patient Guides[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::Tartu University Hospital hasCancerCenter::North Estonia Medical Centre hasCancerCenter::East Tallinn Central Hospital hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death hasDatabase::Statistics_Estonia:_Malignant_Tumours_(Estonia)|Statistics Estonia: Malignant Tumours hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE) hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU) hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Palliative Care Treatment Guideline hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023 hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

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