The Netherlands: Difference between revisions

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<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">thenetherlandscountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


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=== [[hasDatabase::Database:_Registry_of_Histo_and_Cytopathology_(The_Netherlands)|Database: Registry of Histo and Cytopathology]] ===
=== [[hasDatabase::Database:_Registry_of_Histo_and_Cytopathology_(The_Netherlands)|Database: Registry of Histo and Cytopathology]] ===
=== [[hasDatabase::Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)|Database: Dutch Institute for Clinical Auditing Databases (DICA)]] ===


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=== [[hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Compilation: IKNL Guidelines]] ===
=== [[hasClinicalGuidelines::Guidelines: IKNL Guidelines Compilation (The Netherlands)|Guidelines: IKNL Guidelines Compilation]] ===
 
'''Sponsor, manager or home institution:''' Integraal Kankercentrum Nederland.
 
'''Primary purpose:''' To provide access to oncological guidelines, stored in various databases according to professional groups, aiming to support optimal clinical decision-making, ensure up-to-date treatment advice, and improve the quality of cancer care in the Netherlands.
 
'''Type of information:''' Epidemiology, diagnostics, treatments and follow up of various types of cancer.
 
'''Access to information:''' List of guidelines [https://iknl.nl/nkr/evaluatie-met-nkr-data/richtlijnen].
</div>
 
=== [[hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines for Palliative Care]] ===


'''Sponsor, manager or home institution:''' Integrated Cancer Center Netherlands.
=== [[hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines: Guidelines for Palliative Care]] ===


'''Primary purpose:''' To provide the latest evidence-based insights on diagnosis and treatment in palliative care, with input from professionals nationwide.
=== [[hasClinicalGuidelines::Guidelines: NHG Guidelines Compilation (The Netherlands)|Guidelines: NHG Guidelines Compilation]] ===
 
'''Type of information:''' Quality framework for pediatric palliative care; Depression; Fever; Nausea and vomiting; Pain in cancer patients, among other.
 
'''Access to information:''' List of guidelines [https://palliaweb.nl/richtlijnen-palliatieve-zorg/richtlijn].
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=== [[hasReports::Reports:_IKNL_(The_Netherlands)|Reports: IKNL]] ===
=== [[hasReport::Reports:_IKNL_(The_Netherlands)|Reports: IKNL]] ===
 
'''Sponsor, manager or home institution:''' Integraal Kankercentrum Nederland.
 
'''Primary purpose:''' To provide reliable data on all cancer patients for research to improve healthcare.
 
'''Type of information:''' Cancer in the Netherlands, trends and forecasts; Oncology networks; Cancer in young adults; Meningiomas in the Netherlands; Stomach and esophageal cancer; Pancreatic cancer in the Netherlands; Prostate cancer in the Netherlands; Hemato-oncological care in the Netherlands; Imaging metastatic cancer; Sarcoma care in the Netherlands; Report on Primary Tumor Unknown; Skin cancer in the Netherlands; Breast cancer in the Netherlands; Figures on bladder cancer; Cancer care in the picture: about living with and after cancer; Rare cancers; Quality of life of cancer patients; Cancer treatments.
 
'''Data level:''' National level.
 
'''Access to information:''' Access Information [https://iknl.nl/onderzoek/rapporten].


=== [[hasReport::Reports:_Palliaweb_(The_Netherlands)|Reports: Palliaweb]] ===
=== [[hasReport::Reports:_Palliaweb_(The_Netherlands)|Reports: Palliaweb]] ===
'''Sponsor, manager or home institution:''' Integraal Kankercentrum Nederland; Fibula Foundation; Palliative Care Netherlands (PZNL).
'''Primary purpose:''' To focus on the organization of palliative care and facilitate partnerships to provide everyone with the best possible palliative care.
'''Type of information:''' Palliative care consulting; Consultants; Quality indicators; Infograph of consultation services in palliative care; The roles and functions of specialized healthcare; The future of palliative care.
'''Data level:''' National and Regional level.
'''Access to information:''' Access Information [https://palliaweb.nl/publicaties?searchText=&publicatietype=Verslag#submit-scroll-anchor].


=== [[hasReport::Report:_Breast_cancer_screening_program_(The_Netherlands)|Report: Breast cancer screening program]] ===
=== [[hasReport::Report:_Breast_cancer_screening_program_(The_Netherlands)|Report: Breast cancer screening program]] ===
'''Sponsor, manager or home institution:''' Integraal Kankercentrum Nederland.
'''Primary purpose:''' To detect breast cancer early, leading to better prognosis, and it is coordinated by the RIVM, with annual monitoring by IKNL to ensure program quality and identify trends and bottlenecks.
'''Type of information:''' The number screened in the reporting year; Invitations, participation rate and referrals; Incidence and mortality rates.
'''Data level:''' National level.
'''Access to information:''' Access Information [https://iknl.nl/getmedia/b9e6bc9b-a5d8-4b25-a915-9e6b1d1d67bd/national-monitoring-breast-cancer-screening-in-the-Netherlands-2020-2021.pdf].


=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(The_Netherlands)|Report: EU Country Cancer Profile 2023]] ===
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(The_Netherlands)|Report: EU Country Cancer Profile 2023]] ===


'''Sponsor, manager or home institution:''' OECD and European Commission.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(The_Netherlands)|Report: EU Country Cancer Profile 2025]] ===
 
'''Primary purpose:''' To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.


'''Type of information:''' National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
=== [[hasReport::Report:_The_Dutch_Cancer_Agenda_(The_Netherlands)|Report: The Dutch Cancer Agenda]] ===
 
'''Data level''': National level.
 
'''Access to information:''' Access Information [https://www.oecd-ilibrary.org/social-issues-migration-health/landenprofiel-voor-kanker-nederland-2023_63930e3b-nl].


=== [[hasInitiative::Initiative:_National_Action_Plan_for_Cancer_&_Life_(The_Netherlands)|Initiative: National Action Plan for Cancer & Life]] ===
=== [[hasInitiative::Initiative:_National_Action_Plan_for_Cancer_&_Life_(The_Netherlands)|Initiative: National Action Plan for Cancer & Life]] ===
'''Sponsor, manager or home institution:''' Cancer Survivorship Care Taskforce.
'''Primary purpose:''' To improve care for individuals living with or after cancer in the physical, psychological, and social aspects.
'''Data level:''' National level.
'''Access to information:''' Access Information [https://iknl.nl/kanker-en-leven/nationaal-actieplan-kanker-leven].
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=== [[hasPatientGuides::Compilation:_ESMO_Patient_Guides_(The_Netherlands)|Compilation: ESMO Patient Guides]] ===
=== [[hasPatientAssociation::Patient Association: Dutch Breast Cancer Association (Europa Donna Netherlands) (The Netherlands)|Patient Association: Dutch Breast Cancer Association (Europa Donna Netherlands)]] ===


'''Sponsor, manager or home institution:''' European Society for Medical Oncology
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (The Netherlands)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Primary purpose:''' To translate complex medical language into understandable information for patients.
=== [[hasPatientResource::Self-help_group:_Dutch_cancer_support_center_“House_by_the_Water”_(The Netherlands)|Self-help group: Dutch cancer support center “House by the Water”]] ===


'''Available guides:''' Bone Health in Cancer; Cancer Care During the COVID-19 Pandemic; Cancer Pain Management; Immunotherapy Side Effects;
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(The_Netherlands)|Quality of Life and Palliative Care Research]] ==
Personalized Cancer Medicine; Survivorship; AML; Biliary Tract Cancer; Bladder Cancer; Bone Sarcoma; Breast Cancer; Cervical Cancer; CML; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancer; Hepatocellular Carcinoma; Multiple Myeloma; Non-Small-Cell Lung Cancer; Oesophageal Cancer; Ovarian Cancer; Pancreatic Cancer; Prostate Cancer; Soft Tissue Sarcoma; Stomach Cancer; Testicular Cancer.


'''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
__NOTOC__
 
<span style="display:none">hasCancerCenter::Netherlands Cancer Institute - Antoni van Leeuwenhoek</span>
'''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-english].
<span style="display:none">hasCancerCenter::The Maastricht UMC+ Comprehensive Cancer Center</span>
</div>
<span style="display:none">hasCancerCenter::University Medical Center Groningen Comprehensive Cancer Center</span>
 
<span style="display:none">hasCancerCenter::Erasmus MC Kanker Instituut</span>
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(The_Netherlands)|Quality of Life and Palliative Care Research]] ==
<span style="display:none">hasCancerCenter::Radboudumc Centre for Oncology</span>
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<span style="display:none">hasCancerCenter::Rijnstate</span>
'''List of Articles:''' Quality of Life [https://pubmed.ncbi.nlm.nih.gov/?term=Quality+of+Life%5BMeSH%5D+AND+The+Netherlands%5BAffiliation%5D+AND+cancer&filter=pubt.clinicaltrial&filter=pubt.meta-analysis&filter=pubt.randomizedcontrolledtrial&filter=pubt.systematicreview] and Palliative Care [https://pubmed.ncbi.nlm.nih.gov/?term=Palliative+Care%5BMeSH%5D+AND+The+Netherlands%5BAffiliation%5D+AND+cancer&filter=pubt.clinicaltrial&filter=pubt.meta-analysis&filter=pubt.randomizedcontrolledtrial&filter=pubt.systematicreview].
<span style="display:none">hasHealthcareSystem::Healthcare_System_(The_Netherlands)|Healthcare System</span>
</div>
<span style="display:none">hasDatabase::Database:_National_Basic_Register_of_Hospital_Care_(LBZ)_(The_Netherlands)|Database: National Basic Register of Hospital Care (LBZ)</span>
<span style="display:none">hasDatabase::Database:_Netherlands_Cancer_Registry_(NKR)_(The_Netherlands)|Database: Netherlands Cancer Registry (NKR)</span>
<span style="display:none">hasDatabase::Database:_Mortality_by_Cause_of_Death_(The_Netherlands)|Database: Mortality by Cause of Death</span>
<span style="display:none">hasDatabase::Database:_Registry_of_Histo_and_Cytopathology_(The_Netherlands)|Database: Registry of Histo and Cytopathology</span>
<span style="display:none">hasDatabase::Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)|Database: Dutch Institute for Clinical Auditing Databases (DICA)</span>
<span style="display:none">hasDatabase::Survey:_National_Population_Surveys:_Screenings_for_breast,_cervical_and_colon_cancer_(The_Netherlands)|Survey: National Population Surveys: Screenings for breast, cervical and colon cancer</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Compilation: IKNL Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines for Palliative Care</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_NHG_Guidelines_(The_Netherlands)|Compilation: NHG Guidelines</span>
<span style="display:none">hasReport::Reports:_IKNL_(The_Netherlands)|Reports: IKNL</span>
<span style="display:none">hasReport::Reports:_Palliaweb_(The_Netherlands)|Reports: Palliaweb</span>
<span style="display:none">hasReport::Report:_Breast_cancer_screening_program_(The_Netherlands)|Report: Breast cancer screening program</span>
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(The_Netherlands)|Report: EU Country Cancer Profile 2023</span>
<span style="display:none">hasReport::Report:_The_Dutch_Cancer_Agenda_(The_Netherlands)|Report: The Dutch Cancer Agenda</span>
<span style="display:none">hasInitiative::Initiative:_National_Action_Plan_for_Cancer_&_Life_(The_Netherlands)|Initiative: National Action Plan for Cancer & Life</span>
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(The_Netherlands)|Compilation: ESMO Patient Guides</span>
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(The_Netherlands)|Quality of Life and Palliative Care Research</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Guidelines: IKNL Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines: Guidelines for Palliative Care</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_NHG_Guidelines_(The_Netherlands)|Guidelines: NHG Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: IKNL Guidelines Compilation (The Netherlands)|Guidelines: IKNL Guidelines Compilation</span>
<span style="display:none">hasClinicalGuidelines::Guidelines: NHG Guidelines Compilation (The Netherlands)|Guidelines: NHG Guidelines Compilation</span>
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (The Netherlands)|Patient Guides: ESMO Patient Guides Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 13:57, 27 January 2026

forresearchers forpatients forproviders forpolicymakers thenetherlandscountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Netherlands Cancer Institute - Antoni van Leeuwenhoek

The Maastricht UMC+ Comprehensive Cancer Center

University Medical Center Groningen Comprehensive Cancer Center

Erasmus MC Kanker Instituut

Radboudumc Centre for Oncology

Rijnstate

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: National Basic Register of Hospital Care (LBZ)[edit | edit source]

Registries[edit | edit source]

Database: Netherlands Cancer Registry (NKR)[edit | edit source]

Database: Mortality by Cause of Death[edit | edit source]

Database: Registry of Histo and Cytopathology[edit | edit source]

Database: Dutch Institute for Clinical Auditing Databases (DICA)[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Survey: National Population Surveys: Screenings for breast, cervical and colon cancer[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: IKNL Guidelines Compilation[edit | edit source]

Guidelines: Guidelines for Palliative Care[edit | edit source]

Guidelines: NHG Guidelines Compilation[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Reports: IKNL[edit | edit source]

Reports: Palliaweb[edit | edit source]

Report: Breast cancer screening program[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: The Dutch Cancer Agenda[edit | edit source]

Initiative: National Action Plan for Cancer & Life[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Association: Dutch Breast Cancer Association (Europa Donna Netherlands)[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Self-help group: Dutch cancer support center “House by the Water”[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]

hasCancerCenter::Netherlands Cancer Institute - Antoni van Leeuwenhoek hasCancerCenter::The Maastricht UMC+ Comprehensive Cancer Center hasCancerCenter::University Medical Center Groningen Comprehensive Cancer Center hasCancerCenter::Erasmus MC Kanker Instituut hasCancerCenter::Radboudumc Centre for Oncology hasCancerCenter::Rijnstate hasHealthcareSystem::Healthcare_System_(The_Netherlands)|Healthcare System hasDatabase::Database:_National_Basic_Register_of_Hospital_Care_(LBZ)_(The_Netherlands)|Database: National Basic Register of Hospital Care (LBZ) hasDatabase::Database:_Netherlands_Cancer_Registry_(NKR)_(The_Netherlands)|Database: Netherlands Cancer Registry (NKR) hasDatabase::Database:_Mortality_by_Cause_of_Death_(The_Netherlands)|Database: Mortality by Cause of Death hasDatabase::Database:_Registry_of_Histo_and_Cytopathology_(The_Netherlands)|Database: Registry of Histo and Cytopathology hasDatabase::Dutch Institute for Clinical Auditing Databases (DICA) (The Netherlands)|Database: Dutch Institute for Clinical Auditing Databases (DICA) hasDatabase::Survey:_National_Population_Surveys:_Screenings_for_breast,_cervical_and_colon_cancer_(The_Netherlands)|Survey: National Population Surveys: Screenings for breast, cervical and colon cancer hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Compilation: IKNL Guidelines hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines for Palliative Care hasClinicalGuidelines::Compilation:_NHG_Guidelines_(The_Netherlands)|Compilation: NHG Guidelines hasReport::Reports:_IKNL_(The_Netherlands)|Reports: IKNL hasReport::Reports:_Palliaweb_(The_Netherlands)|Reports: Palliaweb hasReport::Report:_Breast_cancer_screening_program_(The_Netherlands)|Report: Breast cancer screening program hasReport::Report:_EU_Country_Cancer_Profile_2023_(The_Netherlands)|Report: EU Country Cancer Profile 2023 hasReport::Report:_The_Dutch_Cancer_Agenda_(The_Netherlands)|Report: The Dutch Cancer Agenda hasInitiative::Initiative:_National_Action_Plan_for_Cancer_&_Life_(The_Netherlands)|Initiative: National Action Plan for Cancer & Life hasPatientGuides::Compilation:_ESMO_Patient_Guides_(The_Netherlands)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(The_Netherlands)|Quality of Life and Palliative Care Research hasClinicalGuidelines::Compilation:_IKNL_Guidelines_(The_Netherlands)|Guidelines: IKNL Guidelines Compilation hasClinicalGuidelines::Guidelines_for_Palliative_Care_(The_Netherlands)|Guidelines: Guidelines for Palliative Care hasClinicalGuidelines::Compilation:_NHG_Guidelines_(The_Netherlands)|Guidelines: NHG Guidelines Compilation hasClinicalGuidelines::Guidelines: IKNL Guidelines Compilation (The Netherlands)|Guidelines: IKNL Guidelines Compilation hasClinicalGuidelines::Guidelines: NHG Guidelines Compilation (The Netherlands)|Guidelines: NHG Guidelines Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (The Netherlands)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

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