Estonia: Difference between revisions

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== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">estoniacountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


=== [[North Estonia Medical Centre]] ===
== Cancer Centers ==
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[[East Tallinn Central Hospital]]
[[Tartu University Hospital]]
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== [[Healthcare System]] ==


Estonia’s healthcare system is the Health Insurance System, described as “solidarity-based health insurance” [https://www.haigekassa.ee/en/organisation/annual-reports-0 [1]], and the Estonian Health Insurance Fund (EHIF) is the public law organization responsible for providing the organization of national healthcare services in accordance with the Health Insurance Act, the Health Services Organization Act, and other legislation.
[[hasCancerCenter::Tartu University Hospital]]  


The body responsible for healthcare and all social policies in Estonia is the Ministry of Social Affairs. The Health Board is its child agency. Estonia’s [https://www.riigiteataja.ee/en/eli/514112013001/consolide Public Information Act] details the terms of compliance to request information not already publicly available. The request is exempt from covering expenses if the request is made for research work.
[[hasCancerCenter::North Estonia Medical Centre]]  


== [[Administrative or Claims Data]] ==
[[hasCancerCenter::East Tallinn Central Hospital]]
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====[https://www.haigekassa.ee/en/organisation/about-us Estonian Health Insurance Fund (EHIF) Database]====
== [[hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System]] ==
[https://link.springer.com/chapter/10.1007/978-3-030-51455-6_16 [2]]
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'''Sponsor, manager or home institution:''' Estonian Health Insurance Fund (EHIF); The Ministry of Social Affairs
== Administrative or Claims Data ==
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'''Type of information:''' Medical contacts (physician visit, hospital stay, etc.), including diagnostic tests, prescription medicine, medical devices, and treatment.
=== [[hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database]] ===
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'''Source of Information:''' Based on claims data from all Estonian healthcare providers that have signed a contract with EHIF and deliver EHIF-financed healthcare.
== Registries ==
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'''Data level:''' Patient level.
=== [[hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry]] ===


'''Number of Records:''' 1.3 million people, i.e. 95% of Estonia's population.
=== [[hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry]] ===


'''Date Range:''' 2004 onwards.
=== [[hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death]] ===


'''Link/Contact for data request:''' [https://www.haigekassa.ee/en/organisation/contact-client-service Contact information.]
=== [[hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death]] ===
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== [[Registries]] ==
=== [[hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours]] ===
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=== [https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry Estonian Cancer Registry] ===
== Databases for Clinical Trials, Surveys and Biobanks ==
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'''Primary purpose:''' A complete and reliable registration of incident cancer cases in Estonia.
=== [[hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)]] ===


'''Sponsor, manager, or home institution:''' The [https://en.tai.ee/en/ National Institute for Health Development]; Ministry of Social Affairs.
=== [[hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)]] ===
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'''Available databases:''' The [https://statistika.tai.ee/pxweb/en/Andmebaas/Andmebaas__02Haigestumus__04PahaloomulisedKasvajad/?tablelist=true Health Statistics and Health Research Database] and the [http://pub.stat.ee/px-web.2001/dialog/statfile1.asp Statistics Estonia Database]
== Clinical Practice Guidelines ==
=== [[hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline]] ===


'''Available information:''' Datasets about the incidence of cancer in general and specific types of cancer, sortable by year, sex, site and age group, as well as causes of death and death rates.
== Electronic Health Records ==
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'''Available data level:''' National level. Malignant neoplasms' statistics are submitted by 15 counties.
=== [[hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System]] ===
</div>


'''Collected information:''' patient name, identification number, gender, date of birth, place of birth, residence, marital status, nationality, primary site, date of diagnosis, confirmation methods of diagnosis, tumour morphology and grade, extent of disease, primary treatment (surgery, radiotherapy, cytostatic chemotherapy, hormone therapy, other treatment), follow-up data (date of death or emigration) and cause of death, source of information
== Latest Policymaking Initiatives ==
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'''Number of records:''' Every registered Estonian citizen.
=== [[hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control]] ===


'''Data source:''' “Reporting of cancer cases is compulsory to all physicians working in Estonia who diagnose or treat cancer. Data are submitted to the registry also by forensic pathologists-experts” [https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry [3]].
=== [[hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia]] ===


'''Cancer areas of interest (ICD):''' All sites (C00–C97);
=== [[hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's]] ===
All sites except other skin (C00–C97, except C44);
Lip, oral cavity and pharynx (C00–C14);
Digestive organs (C15–C26);
Respiratory and intrathoracic organs (C30–C39);
Female genital organs (C51–C58);
Male genital organs (C60–C63);
Urinary tract (C64–C68);
Brain and central nervous system (C70–C72);
Leukaemia (C91–C95);
Lymphomas (C81–C85/C96); county-level lymphoma data include Hodgkin’s disease as well as non-Hodgkin lymphomas.


'''Link/contact:''' [https://en.tai.ee/en/r-and-d/registers/estonian-cancer-registry Contact information.]
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023]] ===


== [[Electronic Health Records]] ==
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Estonia)|Report: EU Country Cancer Profile 2025]] ===


=== [https://www.tehik.ee/en/health-information-system Health Information System] ===
=== [[hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival]] ===
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'''Primary Purpose:''' Allowing healthcare service providers to see and share patient information and healthcare data across the country.
== Cancer-related Patient Associations and Resources ==
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'''Sponsor, manager, or home institution:''' Ministry of Social Affairs (sponsor); Health and Welfare Information Systems Centre - TEHIK (manager)
=== [[hasPatientAssociation::Patient Association: Estonian Cancer Society (Europa Donna Estonia) (Estonia)|Patient Association: Estonian Cancer Society (Europa Donna Estonia)]] ===


'''Number of records:''' Any Estonian citizen who used a healthcare service since 2008.
=== [[hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation]] ===


'''Data source:''' Data inserted by healthcare providers.
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Estonia)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Date range:''' 2008 onwards.
=== [[hasPatientGuides::Patient Guides: Ravijuhend Patient Guides (Estonia)|Patient Guides: Ravijuhend Patient Guides]] ===


'''Link/contact:''' [https://www.digilugu.ee/login Contact information.]
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research]] ==
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== [[Clinical Practices Guidelines]] ==
__NOTOC__
 
<span style="display:none">hasCancerCenter::Tartu University Hospital</span>
=== [https://www.tai.ee/et/valjaanded/vahitorje-tegevuskava-2021-2030 Action Plan for Cancer Control] ===
<span style="display:none">hasCancerCenter::North Estonia Medical Centre</span>
 
<span style="display:none">hasCancerCenter::East Tallinn Central Hospital</span>
'''Primary purpose:''' Reducing the number of cancer cases and deaths, and improving the quality of life of cancer patients.
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System</span>
 
<span style="display:none">hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database</span>
'''Sponsor, manager or home institution:''' Ministry of Social Affairs; National Institute of Health Development; Estonian Cancer Society.
<span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry</span>
 
<span style="display:none">hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry</span>
'''Level:''' National level.
<span style="display:none">hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death</span>
 
<span style="display:none">hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death</span>
'''Cancer ares of interest:''' All.
<span style="display:none">hasDatabase::Statistics_Estonia:_Malignant_Tumours_(Estonia)|Statistics Estonia: Malignant Tumours</span>
 
<span style="display:none">hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)</span>
'''Availability in English:''' No.
<span style="display:none">hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU)</span>
 
<span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Palliative Care Treatment Guideline</span>
=== [https://www.ema.europa.eu/en/ich-e6-r2-good-clinical-practice-scientific-guideline Good Practices Guidelines for Clinical Trials] ===
<span style="display:none">hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System</span>
 
<span style="display:none">hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control</span>
'''Primary purpose:''' To ensure the rights, safety and well-being of the participant according to the principles of the [https://www.wma.net/what-we-do/medical-ethics/declaration-of-helsinki/ Declaration of Helsinki].
<span style="display:none">hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia</span>
 
<span style="display:none">hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's</span>
'''Sponsor, manager or home institution:''' European Medicines Agency.
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023</span>
 
<span style="display:none">hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival</span>
'''Level:''' National level.
<span style="display:none">hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation</span>
 
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides</span>
'''Cancer Areas of Interest:''' All.
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research</span>
 
<span style="display:none">hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours</span>
'''Availability in English:''' Yes.
<span style="display:none">hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline</span>
 
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
=== [https://ravimiamet.ee/en/legislation-and-supervision/clinical-trials Other Requirements for Clinical Trials] ===
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
 
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
== [[Latest Policymaking Initiatives]] ==
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
 
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
=== [https://intra.tai.ee//images/prints/documents/161537779082_Tervishoiukulud_2019.pdf Healthcare Costs 2019] ===
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
 
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
'''Institution:''' National Institute for Health Development.
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
 
<span style="display:none">hasCancerType::C50: Breast cancer</span>
'''Primary purpose:''' Provide information about healthcare costs for anyone interested in healthcare.
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
 
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
'''Type of information:''' Total national health expenditure, comparisons to previous years, share of public sector and other details, household expenditures, and healthcare insurance fund expenditures, among others.
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
 
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
'''Level:''' National level.
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
 
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
=== [https://tervis.ut.ee/sites/default/files/inline-files/estonian_handbook_for_guidelines_development_2020.pdf Estonian Handbook for Guideline Development] ===
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
 
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
'''Institution:''' Estonian Health Insurance Fund
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
 
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
'''Primary purpose:''' To serve as an up-to-date practical resource for developing health guidelines.
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
 
<span style="display:none">hasCancerType::unknown</span>
'''Type of information:''' Guideline development process, topic proposals, evidence retrieving, report, dissemination of recommendations, among other topics.
 
'''Level:''' National level
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Latest revision as of 03:17, 21 January 2026

forresearchers forpatients forproviders forpolicymakers estoniacountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Tartu University Hospital

North Estonia Medical Centre

East Tallinn Central Hospital

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: Estonian Health Insurance Fund (EHIF) Database[edit | edit source]

Registries[edit | edit source]

Database: Andmebaas Cancer Screening Registry[edit | edit source]

Database: Andmebaas Cancer Registry[edit | edit source]

Database: Andmebaas Cause of Death[edit | edit source]

Database: Statistics Estonia Cause of Death[edit | edit source]

Database: Statistics Estonia - Malignant Tumours[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)[edit | edit source]

Survey: The Estonian Health Interview Survey (ETeU)[edit | edit source]

Clinical Practice Guidelines[edit | edit source]

Guidelines: Palliative Care Treatment Guideline[edit | edit source]

Electronic Health Records[edit | edit source]

Database: Health Information System[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

National Plan: Action Plan for Cancer Control[edit | edit source]

Report: The State of Healthcare Integration in Estonia[edit | edit source]

Reports: The Health Fund's[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Report: Cancer in Estonia: morbidity and survival[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Association: Estonian Cancer Society (Europa Donna Estonia)[edit | edit source]

Patient Association: "Gift of Life" Foundation[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Patient Guides: Ravijuhend Patient Guides[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]


hasCancerCenter::Tartu University Hospital hasCancerCenter::North Estonia Medical Centre hasCancerCenter::East Tallinn Central Hospital hasHealthcareSystem::Healthcare_System_(Estonia)|Healthcare System hasDatabase::Database:_Estonian_Health_Insurance_Fund_(EHIF)_Database_(Estonia)|Database: Estonian Health Insurance Fund (EHIF) Database hasDatabase::Database:_Andmebaas_Cancer_Screening_Registry_(Estonia)|Database: Andmebaas Cancer Screening Registry hasDatabase::Database:_Andmebaas_Cancer_Registry_(Estonia)|Database: Andmebaas Cancer Registry hasDatabase::Database:_Andmebaas_Cause_of_Death_(Estonia)|Database: Andmebaas Cause of Death hasDatabase::Database:_Statistics_Estonia_Cause_of_Death_(Estonia)|Database: Statistics Estonia Cause of Death hasDatabase::Statistics_Estonia:_Malignant_Tumours_(Estonia)|Statistics Estonia: Malignant Tumours hasDatabase::Survey:_The_Survey_on_Health,_Ageing_and_Retirement_in_Europe_(SHARE)_(Estonia)|Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE) hasDatabase::Survey:_The_Estonian_Health_Interview_Survey_(ETeU)_(Estonia)|Survey: The Estonian Health Interview Survey (ETeU) hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Palliative Care Treatment Guideline hasHealthRecords::Database:_Health_Information_System_(Estonia)|Database: Health Information System hasPolicy::National_Plan:_Action_Plan_for_Cancer_Control_(Estonia)|National Plan: Action Plan for Cancer Control hasReport::Report:_The_State_of_Healthcare_Integration_in_Estonia_(Estonia)|Report: The State of Healthcare Integration in Estonia hasReport::Reports:_The_Health_Funds_(Estonia)|Reports: The Health Fund's hasReport::Report:_EU_Country_Cancer_Profile_2023_(Estonia)|Report: EU Country Cancer Profile 2023 hasReport::Report:_Cancer_in_Estonia:_morbidity_and_survival_(Estonia)|Report: Cancer in Estonia: morbidity and survival hasPatientAssociation::Patient_Association:_"Gift_of_Life"_Foundation_(Estonia)|Patient Association: "Gift of Life" Foundation hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Estonia)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Estonia)|Quality of Life and Palliative Care Research hasDatabase::Database: Statistics Estonia - Malignant Tumours (Estonia)|Database: Statistics Estonia - Malignant Tumours hasClinicalGuidelines::Palliative_Care_Treatment_Guideline_(Estonia)|Guidelines: Palliative Care Treatment Guideline hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

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