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| == [[Cancer Centers]] == | | <span style="display:none">forresearchers</span> |
| | <span style="display:none">forpatients</span> |
| | <span style="display:none">forproviders</span> |
| | <span style="display:none">forpolicymakers</span> |
| | <span style="display:none">portugalcountry</span> |
| | [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] |
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| == [[Healthcare System]] == | | == Cancer Centers == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| Portugal provides universal healthcare to all its residents, including the unemployed and illegal immigrants. There are also health insurance schemes that provide coverage for specific sectors, both public and private. Citizens can also opt for private health insurance schemes. The system providing healthcare in Portugal is called Serviço Nacional de Saúde (SNS), managed by the Ministry of Health, and is mainly funded through general taxation, but a third of its funding comes from the private sector such as out-of-pocket payments via co-funding or direct payment by the patient.
| | [[hasCancerCenter::Instituto Português de Oncologia do Porto Francisco Gentil]] |
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| Primary care in Portugal is delivered through a combination of public and private healthcare providers, with the National Health Service (NHS) primarily offering primary and acute general and specialized hospital care. While dental consultations, diagnostic services, renal dialysis, and rehabilitation services are mostly offered by private healthcare providers, these services are often funded by the government under contractual agreements with the NHS. Secondary and tertiary care is mainly provided in hospitals organized into Hospital Centres based on geographical location.
| | [[hasCancerCenter::Instituto Português de Oncologia de Lisboa Francisco Gentil]] |
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| Portugal's main statistical authority is the Instituto Nacional de Estatística (INE), responsible for the production and dissemination of official statistics that ensure the supervision and the technical and scientific coordination of the National Statistical System.
| | [[hasCancerCenter::Instituto Português de Oncologia de Coimbra Francisco Gentil]] |
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| == [[Administrative or Claims Data]] ==
| | </div> |
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| === Database: Diagnosis Related Groups (GDH) === | | == [[hasHealthcareSystem::Healthcare_System_(Portugal)|Healthcare System]] == |
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| '''Primary purpose:''' Collect and make available information regarding the use of resources related to inpatient care.
| | == Administrative or Claims Data == |
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| '''Sponsor, manager or home institution''': Serviço Nacional de Saúde (SNS) and Administração Central do Sistema de saúde (ACSS).
| | === [[hasDatabase::Database:_Health_Care_Personnel_Statistics_(Portugal)|Database: Health Care Personnel Statistics]] === |
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| '''Type of information''':
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| Patient level data includes the following variables: Hospital code, gender, date of admission, services codes, date of entry into services, date of exit from services, admission diagnosis, main diagnosis, secondary diagnoses, cause of admission, procedures, tumor morphology code, destination after discharge code, birth weight, number of days in preoperative period, type of admission, total days, age, GDH code, major diagnosis category code, date of surgery, transfer reason code, discharge date, area of residence code.
| | == Registries == |
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| Translated with www.DeepL.com/Translator (free version)
| | === [[hasDatabase::Database:_Mortality_by_Malignant_Neoplasms_(Portugal)|Database: Mortality by Malignant Neoplasms]] === |
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| '''Source of information''': Portugal's hospitals.
| | === [[hasDatabase::Database:_Cancer_Screening_Monitoring_(Portugal)|Database: Cancer Screening Monitoring]] === |
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| '''Data level''': Hospital level (open access) and patient level (restricted access).
| | === [[hasDatabase::Database:_National_Cancer_Registry_(RON)_(Portugal)|Database: National Cancer Registry (RON)]] === |
| | </div> |
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| '''Number of Records:''' Unknown.
| | == Databases for Clinical Trials, Surveys and Biobanks == |
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| '''Date range''': 2011 - 2014 (open access), and 1993 onwards (restricted access).
| | === [[hasDatabase::Survey:_National_Health_Interview_Survey_(INS)_(Portugal)|Survey: National Health Interview Survey (INS)]] === |
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| '''Cancer Areas of Interest:'''
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| '''Data access''': Hospital level information can be accessed [https://www2.acss.min-saude.pt/DepartamentoseUnidades/DepartamentoGest%C3%A3oeFinanciamentoPrestSa%C3%BAde/SClassifica%C3%A7%C3%A3oDoentes/GruposdeDiagn%C3%B3sticosHomog%C3%A9neos/Produ%C3%A7%C3%A3oNacional/tabid/922/language/pt-PT/Default.aspx here]. To require access to Patient level data, follow the instructions presented in [https://www.acss.min-saude.pt/2017/09/18/pedido_informacao/ this] website.
| | == Clinical Practices Guidelines == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| '''Information/contact for data request''': [https://www2.acss.min-saude.pt/Institucional/Contactos/tabid/95/language/pt-PT/Default.aspx Contact information].
| | === [[hasClinicalGuidelines::Guidelines: SPED National Guidelines Compilation (Portugal)|Guidelines: SPED National Guidelines Compilation]] === |
| | </div> |
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| == [[Registries]] == | | == Latest Policymaking Initiatives == |
| === [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008461&xlang=pt&contexto=bd&selTab=tab2 Database: Mortality by Malignant Neoplasms] === | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| [https://www.ine.pt/ngt_server/attachfileu.jsp?look_parentBoui=259457183&att_display=n&att_download=y [1]] [https://www.ine.pt/bddXplorer/htdocs/minfo.jsp?var_cd=0008461&lingua=EN [2]]
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| '''Primary purpose:''' Provide information regarding the national mortality and its social and demographic distribution.
| | === [[hasReport::Reports:_National_Health_Statistics_(Portugal)|Reports: National Health Statistics]] === |
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| '''Sponsor, manager or home institution''': Instituto Nacional de Estatística (INE).
| | === [[hasReport::Report:_National_Health_Service_(Portugal)|Report: National Health Service]] === |
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| '''Type of information''': Number of deaths filtered by data reference period, region of residence, sex, age group, and death cause (malignant neoplasms).
| | === [[hasReport::Report:_National_Cancer_Registry_(RON)_(Portugal)|Report: National Cancer Registry (RON)]] === |
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| The following indicators are also available and can be filtered by sex and region of residence:
| | === [[hasReport::Report:_Southern_Regional_Oncology_Registry_(ROR-Sul)_(Portugal)|Report: Southern Regional Oncology Registry (ROR-Sul)]] === |
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| *[https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0003990&xlang=pt&contexto=bd&selTab=tab2 Potential years of life lost by type of cancer].
| | === [[hasReport::Report:_Northern_Regional_Oncology_Registry_(RORENO)_(Portugal)|Report: Northern Regional Oncology Registry (RORENO)]] === |
| *[https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0003824&xlang=pt&contexto=bd&selTab=tab2 Rate of potential years of life lost (per 100 000 inhabitants) by type of cancer].
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| *[https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008709&xlang=pt&contexto=bd&selTab=tab2 Mortality rate (per 100 000 inhabitants or in percentage) by type of cancer].
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| *[https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0003796&xlang=pt&contexto=bd&selTab=tab2 Standardized mortality rate (per 100 000 inhabitants) by type of cancer].
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| *[https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0005069&xlang=pt&contexto=bd&selTab=tab2 Standardized mortality rate (per 100 000 inhabitants) by type of cancer regarding people 65 years of age and older.]
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| *[https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0005043&xlang=pt&contexto=bd&selTab=tab2 Standardized mortality rate (per 100 000 inhabitants) by type of cancer regarding people younger than 65 years of age].
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| | === [[hasReport::Report:_Centro_Regional_Oncology_Registry_(ROR-Centro)_(Portugal)|Report: Centro Regional Oncology Registry (ROR-Centro)]] === |
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| The list of variables included in Patient level data is longer and can be checked in [https://www.ine.pt/xportal/xmain?ine_smenu.boui=161302718&contexto=fct&xpgid=ine_bd_inv_fct&ine_smenu.selected=161302852&xpid=INE&selTab=fct this] website.
| | === [[hasReport::Report:_National_Commission_for_Palliative_Care_(CNCP)_(Portugal)|Report: National Commission for Palliative Care (CNCP)]] === |
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| '''Source of information''': Data collection through the notary offices and registered in the Integrated System for Civil Registration and Identification (SIRIC).
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Portugal)|Report: EU Country Cancer Profile 2023]] === |
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| '''Data level''': Regional level (open access) and Patient level (restricted access).
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Portugal)|Report: EU Country Cancer Profile 2025]] === |
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| '''Number of Records:''' Unknown.
| | === [[hasReport::Report:_National_Strategy_to_Fight_Cancer,_2030_horizon_(Portugal)|Report: National Strategy to Fight Cancer, 2030 horizon]] === |
| | </div> |
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| '''Date range''': Regional level (2002 onwards) and Patient level (1998 onwards).
| | == Cancer-related Patient Associations and Resources == |
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| '''Cancer Areas of Interest:''' To be added.
| | === [[hasPatientAssociation::Patient Association: Liga Portuguesa Contra o Cancro (Europa Donna Portugal) (Portugal)|Patient Association: Liga Portuguesa Contra o Cancro (Europa Donna Portugal)]] === |
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| '''Data access''': Regional level data is openly available [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008461&selTab=tab0 here]. To ask for patient level data, follow the instructions presented in [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_serv_clientes&INST=161301979&ine_smenu.boui=161302718&ine_smenu.selected=161302852 this] webpage.
| | === [[hasPatientAssociation::Patient Association: Patient Associations Compilation (Portugal)|Patient Association: Patient Associations Compilation]] === |
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| '''Information/contact for data request''': [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_cont_inst&ine_smenu.boui=13711615&INST=56501 Contact information].
| | === [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Portugal)|Patient Guides: ESMO Patient Guides Compilation]] === |
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| === Database: National Health Interview Survey (INS)=== | | === [[hasPatientResource::Self-help_Group:_Careca_Power_(Portugal)|Self-help Group: Careca Power]] === |
| [https://www.ine.pt/ngt_server/attachfileu.jsp?look_parentBoui=451800443&att_display=n&att_download=y [3]]
| | </div> |
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| '''Primary purpose:''' Publish statistics on health status, health care and health determinants, and socio-demographic characteristics of the population to enable the study and improvement of these areas.
| | == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Portugal)|Quality of Life and Palliative Care Research]] == |
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| '''Sponsor, manager or home institution''': Instituto Nacional de Estatística (INE).
| | __NOTOC__ |
| | | <span style="display:none">hasCancerCenter::Instituto Português de Oncologia do Porto Francisco Gentil</span> |
| '''Type of information''': Regarding cancer prevention information, contains the percentage of the female resident population aged 50 to 69 years who reported having had mammography done in the 2 years prior to the interview and the female resident population aged 20 to 69 years who reported having had cervical cytology done in the 3 years prior to the interview, both filtered by education level and region of residence.
| | <span style="display:none">hasCancerCenter::Instituto Português de Oncologia de Lisboa Francisco Gentil</span> |
| | | <span style="display:none">hasCancerCenter::Instituto Português de Oncologia de Coimbra Francisco Gentil</span> |
| The list of variables included in Patient level data is longer and can be checked in [https://www.ine.pt/xportal/xmain?ine_smenu.boui=161302718&contexto=fct&xpgid=ine_bd_inv_fct&ine_smenu.selected=161302852&xpid=INE&selTab=fct this website].
| | <span style="display:none">hasHealthcareSystem::Healthcare_System_(Portugal)|Healthcare System</span> |
| | | <span style="display:none">hasDatabase::Database:_Hospital_Morbidity_Database_(Portugal)|Database: Hospital Morbidity Database</span> |
| '''Source of information''': Instituto Nacional de Estatística (INE)
| | <span style="display:none">hasDatabase::Database:_Health_Care_Personnel_Statistics_(Portugal)|Database: Health Care Personnel Statistics</span> |
| | | <span style="display:none">hasDatabase::Database:_Mortality_by_Malignant_Neoplasms_(Portugal)|Database: Mortality by Malignant Neoplasms</span> |
| '''Data level''': National level (open access) and Patient level (restricted access).
| | <span style="display:none">hasDatabase::Database:_Cancer_Screening_Monitoring_(Portugal)|Database: Cancer Screening Monitoring</span> |
| | | <span style="display:none">hasDatabase::Database:_National_Cancer_Registry_(RON)_(Portugal)|Database: National Cancer Registry (RON)</span> |
| '''Number of Records:''' Unknown.
| | <span style="display:none">hasDatabase::Survey:_National_Health_Interview_Survey_(INS)_(Portugal)|Survey: National Health Interview Survey (INS)</span> |
| | | <span style="display:none">hasClinicalGuidelines::Compilation:_SPED_National_Guidelines_(Portugal)|Compilation: SPED National Guidelines</span> |
| '''Date range''': 2005 onwards. It occurs on a five-year basis.
| | <span style="display:none">hasReport::Reports:_National_Health_Statistics_(Portugal)|Reports: National Health Statistics</span> |
| | | <span style="display:none">hasReport::Report:_National_Health_Service_(Portugal)|Report: National Health Service</span> |
| '''Cancer Areas of Interest:''' Breast and cervix neoplasms.
| | <span style="display:none">hasReport::Report:_National_Cancer_Registry_(RON)_(Portugal)|Report: National Cancer Registry (RON)</span> |
| | | <span style="display:none">hasReport::Report:_Southern_Regional_Oncology_Registry_(ROR-Sul)_(Portugal)|Report: Southern Regional Oncology Registry (ROR-Sul)</span> |
| '''Data access''': Mammography examination by [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008934&xlang=pt&contexto=bd&selTab=tab2 education level] and region of residence ([https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008052&xlang=pt&contexto=bd&selTab=tab2 2005] and [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008812&xlang=pt&contexto=bd&selTab=tab2 2014 onwards]); Cervical cytology by [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008925&xlang=pt&contexto=bd&selTab=tab2 education level] and region of residence ([https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008051&xlang=pt&contexto=bd&selTab=tab2 2005] and [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008813&xlang=pt&contexto=bd&selTab=tab2 2014 onwards]).
| | <span style="display:none">hasReport::Report:_Northern_Regional_Oncology_Registry_(RORENO)_(Portugal)|Report: Northern Regional Oncology Registry (RORENO)</span> |
| | | <span style="display:none">hasReport::Report:_Centro_Regional_Oncology_Registry_(ROR-Centro)_(Portugal)|Report: Centro Regional Oncology Registry (ROR-Centro)</span> |
| '''Information/contact for data request''': [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_cont_inst&ine_smenu.boui=13711615&INST=56501 Contact information].
| | <span style="display:none">hasReport::Report:_National_Commission_for_Palliative_Care_(CNCP)_(Portugal)|Report: National Commission for Palliative Care (CNCP)</span> |
| | | <span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Portugal)|Report: EU Country Cancer Profile 2023</span> |
| === [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008465&xlang=pt&contexto=bd&selTab=tab2 Database: Health Care Personnel Statistics] ===
| | <span style="display:none">hasReport::Report:_National_Strategy_to_Fight_Cancer,_2030_horizon_(Portugal)|Report: National Strategy to Fight Cancer, 2030 horizon</span> |
| [https://smi.ine.pt/UploadFile/Download/370 [4]]
| | <span style="display:none">hasPatientAssociation::Patient_Associations_(Portugal)|Patient Associations</span> |
| | | <span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Portugal)|Compilation: ESMO Patient Guides</span> |
| '''Primary purpose:''' Publish statistics on the number of health professionals registered in the professional organizations.
| | <span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Portugal)|Quality of Life and Palliative Care Research</span> |
| | | <span style="display:none">hasClinicalGuidelines::Compilation:_SPED_National_Guidelines_(Portugal)|Guidelines: SPED National Guidelines Compilation</span> |
| '''Sponsor, manager or home institution''': Instituto Nacional de Estatística (INE).
| | <span style="display:none">hasClinicalGuidelines::Guidelines: SPED National Guidelines Compilation (Portugal)|Guidelines: SPED National Guidelines Compilation</span> |
| | | <span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Portugal)|Patient Guides: ESMO Patient Guides Compilation</span> |
| '''Type of information''': Number of medical specialists filtered by place of residence, gender and specialty, subspecialty or competence. Considering cancer area, the database presents information about the number of medical and pediatric oncology professionals.
| | <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> |
| | | <span style="display:none">hasCancerType::C00-C97: All cancer types</span> |
| '''Source of information''': Regarding the information about oncologists, the source is the Medical Association.
| | <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> |
| | | <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> |
| '''Data level''': Regional level.
| | <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> |
| | | <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> |
| '''Number of Records:''' Unknown.
| | <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> |
| | | <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> |
| '''Date range''': 2011 onwards.
| | <span style="display:none">hasCancerType::C50: Breast cancer</span> |
| | | <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> |
| '''Cancer Areas of Interest:''' Unknown.
| | <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> |
| | | <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> |
| '''Data access''': Open access in [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_indicadores&indOcorrCod=0008465&xlang=pt&contexto=bd&selTab=tab2 this] webpage.
| | <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> |
| | | <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> |
| '''Information/contact for data request''': [https://www.ine.pt/xportal/xmain?xpid=INE&xpgid=ine_cont_inst&ine_smenu.boui=13711615&INST=56501 Contact information].
| | <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> |
| | | <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> |
| <!-- === Database: Cancer Screening === | | <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> |
| | | <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> |
| '''Primary purpose:''' Promote the early diagnosis of cancer in order to start treatment early and thus decrease the national cancer mortality rate.
| | <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> |
| | | <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> |
| '''Sponsor, manager or home institution''': Direção Geral da Saúde (DGS).
| | <span style="display:none">hasCancerType::unknown</span> |
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| '''Type of information''': Information regarding breast, cervical, colon and rectal cancer screening. Examples of available data are the screening adherence rate, test positivity rate, geographic coverage rate, coverage rate by region, number of eligible population.
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| '''Source of information''': Forms filled out by the regional Health Administrations and the Autonomous Regions of Portugal.
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| '''Data level''': Regional level.
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| '''Number of Records:'''
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| '''Date range''': The project occurs 1990 onwards. Data is available 2015 onwards.
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| '''Cancer Areas of Interest:''' Breast, cervical, colon and rectal cancer.
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| '''Data access''':
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| '''Information/contact for data request''': [ Contact information].
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| === Database: Cancer Incidence, Survival and Mortality in the Southern Region of Portugal (ISM) === | |
| [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf [5]]
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| '''Primary purpose:''' Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following regions: health regions of Lisboa e Vale do Tejo (LVT), Alentejo, Algarve and the Autonomous Region of Madeira.
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| '''Sponsor, manager or home institution''': National Cancer Registry (RON) and Regional Oncology Registry South (ROR-Sul).
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| '''Type of information''': Survival (by gender and age) and Incidence rates (specific, crude and standardized for age, sex, and tumor location per 100,000 people) with tables and graphs
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| Presents also mortality rates (specific, crude and standardized for age, by malignant tumor and sex) information from INE.
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| Patient level information contains identification fields (example: name, gender, date of birth or age, and address); diagnosis, tumor and treatment fields (diagnosis dates, basis of diagnosis, primary location, histologic type, behavior, stage, treatment start date and treatment sequence); follow-up fields (patient vital status, date and cause of death).
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| '''Source of information''': Data from public and private health institutions of the region.
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| '''Data level''': Regional level (open access) and Patient level (restrict acess).
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| '''Number of Records:''' Unknown.
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| '''Date range''': Regional level is presented from 2002 to 2017, and 1998* - 2000/2001*.
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| Patient level date range is unknown.
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| (*Only includes cancer incidence data) | |
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| '''Cancer Areas of Interest:''' The list can be checked at the page 25 of [https://ron.min-saude.pt/media/2200/ror_sul_ism_2016_17.pdf this] document.
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| '''Data access''': Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website, at [https://ron.min-saude.pt/pt/biblioteca/publicacoes-diversas/nacionais/?page=1 this] link.
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| To access patient level data, it is necessary to fill [https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf this] document and send to the address presented in it.
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| '''Information/contact for data request''': [https://www.dgs.pt/site/contactos.aspx Contact information].
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| === Database: Cancer Survival and Incidence in the Northern Region of Portugal === | |
| [https://ron.min-saude.pt/media/1578/sobreviv%C3%AAncia-2009-2010.pdf [6]] [https://ron.min-saude.pt/media/1576/roreno-2011.pdf [7]]
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| '''Primary purpose:''' Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following districts: Braga, Bragança, Porto, Viana do Castelo and Vila Real.
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| '''Sponsor, manager or home institution''': National Cancer Registry (RON) and Northern Regional Oncology Registry (RORENO).
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| '''Type of information''': Cancer survival (overall, observed, net, standardized, by gender, type of tumor, time since diagnosis, age, and region of residence) for people over 15 years old.
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| Cancer incidence (crude number, crude and standardized rate per 100,000, by sex, age, and tumor location).
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| Patient level information contains identification fields (example: name, gender, date of birth or age, and address); diagnosis, tumor and treatment fields (diagnosis dates, basis of diagnosis, primary location, histologic type, behavior, stage, treatment start date and treatment sequence); follow-up fields (patient vital status, date and cause of death). | |
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| '''Source of information''': Data from public and private health institutions of the region.
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| '''Data level''': Regional level (open access) and Patient level (restrict acess).
| |
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| '''Number of Records:''' Unknown.
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| '''Date range''': Incidence is presented from 1988 to 2011. Survival ranges from 2005 to 2010.
| |
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| '''Cancer Areas of Interest:''' Survival - all tumors except basal cellular and squamous cell tumors of the skin.
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| Incidence - all tumors except basal cell carcinomas and nonspecific tumors of the skin.
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| '''Data access''': Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website, at [https://ron.min-saude.pt/pt/biblioteca/publicacoes-diversas/nacionais/?page=1 this] link.
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| To access patient level data, it is necessary to fill [https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf this] document and send to the address presented in it.
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| '''Information/contact for data request''': [https://www.dgs.pt/site/contactos.aspx Contact information].
| |
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| === Database: Cancer Survival and Incidence in the Central Region of Portugal === | |
| [https://ron.min-saude.pt/media/2073/publica%C3%A7%C3%A3o-2010.pdf [8]]
| |
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| '''Primary purpose:''' Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following districts: Aveiro, Castelo Branco, Coimbra, Guarda, Leiria e Viseu.
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| '''Sponsor, manager or home institution''': National Cancer Registry (RON) and Central zone regional oncology registry (ROR-Centro).
| |
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| '''Type of information''': Cancer incidence (gross number, gross rate, overall and standardized per 100,000, by sex, age and tumor location).
| |
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| Patient level information contains identification fields (example: name, gender, date of birth or age, and address); diagnosis, tumor and treatment fields (diagnosis dates, basis of diagnosis, primary location, histologic type, behavior, stage, treatment start date and treatment sequence); follow-up fields (patient vital status, date and cause of death).
| |
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| '''Source of information''': Data from public and private health institutions of the region.
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| '''Data level''': Regional level (open access) and Patient level (restrict acess).
| |
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| '''Number of Records:''' Unknown.
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| '''Date range''': 1989 - 2010.
| |
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| '''Cancer Areas of Interest:''' List is available at the page 3 of [https://ron.min-saude.pt/media/2073/publicação-2010.pdf this] document.
| |
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| '''Data access''': Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website, at [https://ron.min-saude.pt/pt/biblioteca/publicacoes-diversas/nacionais/?page=1 this] link.
| |
| | |
| To access patient level data, it is necessary to fill [https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf this] document and send to the address presented in it.
| |
| | |
| '''Information/contact for data request''': [https://www.dgs.pt/site/contactos.aspx Contact information].
| |
| | |
| === Database: Cancer Incidence in Portugal === | |
| [https://ron.min-saude.pt/media/2214/ron-2019_new_v8f.pdf [9]]
| |
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| '''Primary purpose:''' Inform about cancer statistics regarding all regions of Portugal.
| |
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| '''Sponsor, manager or home institution''': National Cancer Registry (RON).
| |
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| '''Type of information''': Number of new cancer cases by age, sex, tumor site, and place of residence.
| |
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| Specific, crude and standardized cancer incidence rates per 100,000 persons for age, place of residence, sex and tumor location. Covers the entire territory of Portugal.
| |
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| Patient level information contains identification fields (example: name, gender, date of birth or age, and address); diagnosis, tumor and treatment fields (diagnosis dates, basis of diagnosis, primary location, histologic type, behavior, stage, treatment start date and treatment sequence); follow-up fields (patient vital status, date and cause of death).
| |
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| It also presents mortality data by tumor type, age, sex.
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| '''Source of information''': Data from public and private health institutions in Portugal.
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| '''Data level''': Regional level (open access) and Patient level (restrict acess).
| |
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| '''Number of Records:''' Unknown.
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| '''Date range''': 2001 - 2019.
| |
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| '''Cancer Areas of Interest:'''
| |
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| '''Data access''': Reports with regional data can be accessed through the RON publications section on the National Cancer Registry website, at [https://ron.min-saude.pt/pt/biblioteca/publicacoes-ron/ this] link.
| |
| | |
| To access patient level data, it is necessary to fill [https://ron.min-saude.pt/media/2198/ron_comissao_formulario_v2.pdf this] document and send to the address presented in it.
| |
| | |
| '''Information/contact for data request''': [https://www.dgs.pt/site/contactos.aspx Contact information].
| |
| <!-- | |
| === [ Database: ] ===
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| '''Primary purpose:'''
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| '''Sponsor, manager or home institution''':
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| '''Type of information''':
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| '''Source of information''':
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| '''Data level''':
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| '''Number of Records:'''
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| '''Date range''':
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| '''Cancer Areas of Interest:'''
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| '''Data access''':
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| '''Information/contact for data request''': [ Contact information].
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| -->
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| == [[Databases for Clinical Trials, Surveys and Biobanks]] ==
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| == [[Electronic Health Records]] ==
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| == [[Clinical Practices Guidelines]] ==
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| == [[Latest Policymaking Initiatives]] ==
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| == [[Cancer-related Patient Associations and Resources]] ==
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