Portugal: Difference between revisions
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=== [[hasDatabase::Database:_Hospital_Morbidity_Data_Base_(Portugal)|Database: Hospital Morbidity Data Base]] === | === [[hasDatabase::Database:_Hospital_Morbidity_Data_Base_(Portugal)|Database: Hospital Morbidity Data Base]] === | ||
[https://www2.acss.min-saude.pt/DepartamentoseUnidades/DepartamentoGest%C3%A3oeFinanciamentoPrestSa%C3%BAde/SClassifica%C3%A7%C3%A3oDoentes/GruposdeDiagn%C3%B3sticosHomog%C3%A9neos/tabid/460/language/pt-PT/Default.aspx] | [https://www2.acss.min-saude.pt/DepartamentoseUnidades/DepartamentoGest%C3%A3oeFinanciamentoPrestSa%C3%BAde/SClassifica%C3%A7%C3%A3oDoentes/GruposdeDiagn%C3%B3sticosHomog%C3%A9neos/tabid/460/language/pt-PT/Default.aspx] | ||
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'''Date range''': 1993 onwards (restricted access); 2011-2014 (open access). | '''Date range''': 1993 onwards (restricted access); 2011-2014 (open access). | ||
'''Cancer Areas of Interest:''' | '''Cancer Areas of Interest:''' [[Cancer Areas of Interest:Hospital Morbidity Data Base|Hospital Morbidity Data Base]]. | ||
'''Data access''': Partially publicly available [https://www2.acss.min-saude.pt/DepartamentoseUnidades/DepartamentoGest%C3%A3oeFinanciamentoPrestSa%C3%BAde/SClassifica%C3%A7%C3%A3oDoentes/GruposdeDiagn%C3%B3sticosHomog%C3%A9neos/Produ%C3%A7%C3%A3oNacional/tabid/922/language/pt-PT/Default.aspx]. Instructions to request data for restricted content [https://www.acss.min-saude.pt/2017/09/18/pedido_informacao/]. | '''Data access''': Partially publicly available [https://www2.acss.min-saude.pt/DepartamentoseUnidades/DepartamentoGest%C3%A3oeFinanciamentoPrestSa%C3%BAde/SClassifica%C3%A7%C3%A3oDoentes/GruposdeDiagn%C3%B3sticosHomog%C3%A9neos/Produ%C3%A7%C3%A3oNacional/tabid/922/language/pt-PT/Default.aspx]. Instructions to request data for restricted content [https://www.acss.min-saude.pt/2017/09/18/pedido_informacao/]. | ||
Revision as of 20:25, 21 November 2023
Go back to Cancer Centers list.
Cancer Centers
Instituto Português de Oncologia do Porto Francisco Gentil
Instituto Português de Oncologia de Lisboa Francisco Gentil
Instituto Português de Oncologia de Coimbra Francisco Gentil
Healthcare System
Portugal provides universal healthcare to all its residents, including the unemployed and illegal immigrants. There are also health insurance schemes that provide coverage for specific sectors, both public and private. Citizens can also opt for private health insurance schemes. The system providing healthcare in Portugal is called Serviço Nacional de Saúde (SNS), managed by the Ministry of Health, and is mainly funded through general taxation, but a third of its funding comes from the private sector such as out-of-pocket payments via co-funding or direct payment by the patient.
Primary care in Portugal is delivered through a combination of public and private healthcare providers, with the National Health Service (NHS) primarily offering primary and acute general and specialized hospital care. While dental consultations, diagnostic services, renal dialysis, and rehabilitation services are mostly offered by private healthcare providers, these services are often funded by the government under contractual agreements with the NHS. Secondary and tertiary care is mainly provided in hospitals organized into Hospital Centres based on geographical location.
Portugal's main statistical authority is the Instituto Nacional de Estatística (INE), responsible for the production and dissemination of official statistics that ensure the supervision and the technical and scientific coordination of the National Statistical System.
Administrative or Claims Data
Database: Hospital Morbidity Data Base
Primary purpose: Collect and make available information regarding the use of resources related to inpatient care.
Sponsor, manager or home institution: Serviço Nacional de Saúde (SNS) and Administração Central do Sistema de saúde (ACSS).
Type of information: Data dictionary: Hospital Morbidity Database.
Available type of information: Number of outpatients, equivalent patients, and average delay considering the following variables: Hospitalization, Surgical hospitalization, Medical ICU, Outpatient, Surgical Outpatient, % Outpatient Surgical/Total Scheduled Surgical, and Medical Outpatient.
Source of information: Portugal's hospitals.
Data level: Patient level.
Available data level: Hospital level.
Number of Records: Unknown.
Date range: 1993 onwards (restricted access); 2011-2014 (open access).
Cancer Areas of Interest: Hospital Morbidity Data Base.
Data access: Partially publicly available [2]. Instructions to request data for restricted content [3].
Contact information: Information [4].
Registries
Database: Mortality by Malignant Neoplasms
Primary purpose: Provide information regarding the national mortality and its social and demographic distribution.
Sponsor, manager or home institution: Instituto Nacional de Estatística (INE).
Type of information: Data dictionary - Mortality by malignant neoplasms Portugal.
Available type of information: Number of deaths; Data reference period; Year; Region of residence; Sex; Age group; Death cause; Type of cancer; Potential years of life lost; Rate of potential years of life lost (per 100 000 inhabitants); Mortality rate (per 100 000 inhabitants or in percentage); Standardized mortality rate (per 100 000 inhabitants).
The following indicators are also available and can be filtered by sex and region of residence:
- Potential years of life lost by type of cancer [8].
- Rate of potential years of life lost (per 100 000 inhabitants) by type of cancer [9].
- Mortality rate (per 100 000 inhabitants or in percentage) by type of cancer [10].
- Standardized mortality rate (per 100 000 inhabitants) by type of cancer [11].
- Standardized mortality rate (per 100 000 inhabitants) by type of cancer regarding people 65 years of age and older [12].
- Standardized mortality rate (per 100 000 inhabitants) by type of cancer regarding people younger than 65 years of age [13].
Source of information: Data collection through the notary offices and registered in the Integrated System for Civil Registration and Identification (SIRIC).
Data level: Patient level.
Available data level: Regional level.
Number of Records: Unknown.
Date range: Regional level (2002 onwards) and Patient level (1998 onwards).
Cancer Areas of Interest: Cancer areas of interest - Mortality by malignant neoplasms Portugal.
Data access: Partially publicly available [14]. Instructions to request data for restricted content [15].
Contact information: Information [16].
Database: Health Care Personnel Statistics
Primary purpose: Publish statistics on the number of health professionals registered in professional organizations.
Sponsor, manager or home institution: Instituto Nacional de Estatística (INE).
Type of information: Number of medical specialists filtered by place of residence, gender and specialty, subspecialty or competence. Considering the cancer area, the database presents information about the number of medical and pediatric oncology professionals.
Source of information: Regarding the information about oncologists, the source is the Medical Association.
Data level: Regional level.
Number of Records: Unknown.
Date range: 2011 onwards.
Cancer Areas of Interest: Unknown.
Data access: Publicly available [19].
Contact information: Information [20].
Database: Cancer Screening Monitoring
Primary purpose: Promote the early diagnosis of cancer in order to start treatment early and thus decrease the national cancer mortality rate.
Sponsor, manager or home institution: Direção Geral da Saúde (DGS).
Type of information: Information regarding breast, cervical, colon, and rectal cancer screening. Examples of available data are the screening adherence rate, test positivity rate, geographic coverage rate, coverage rate by region, and number of eligible populations.
Source of information: Forms filled out by the regional Health Administrations and the Autonomous Regions of Portugal.
Data level: Regional level.
Number of Records: Unknown.
Date range: The project occurs since 1990. Regional-level data is available from 2014 onwards.
Cancer Areas of Interest: Breast, cervical, colon, and rectal cancer.
Data access: Publicly available [22]. Monitoring reports are available at the General Health Directorate (DGS) [23]. The 2015 report information [24].
Contact information: Information [25].
Database: Cancer Incidence, Survival and Mortality in the Southern Region of Portugal (ISM)
Primary purpose: Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following regions: health regions of Lisboa e Vale do Tejo (LVT), Alentejo, Algarve and the Autonomous Region of Madeira.
Sponsor, manager or home institution: National Cancer Registry (RON) and Regional Oncology Registry South (ROR-Sul).
Type of information: Survival; Age; Year; Gender; Incidence rates; Tumor location; Mortality rates; Patient name; Date of birth; Address; Diagnosis; Tumor; Treatment fields; Diagnosis dates; Basis of diagnosis; Primary location; Histologic type; Behavior; Stage; Treatment start date; Treatment sequence; Patient vital status; Date of death and cause of death.
Source of information: Data from public and private health institutions of the region.
Data level: Patient level.
Available data level: Regional level.
Number of Records: Unknown.
Date range: Regional level is presented from 2002 to 2017, and 1998 - 2000/2001. The patient level date range is unknown.
Cancer Areas of Interest: The list can be checked on page 25 of the document [27].
Data access: Partially publicly available. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website [28]. Instructions to request data for restricted content [29].
Contact information: Information [30].
Database: Cancer Survival and Incidence in the Northern Region of Portugal
Primary purpose: Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following districts: Braga, Bragança, Porto, Viana do Castelo and Vila Real.
Sponsor, manager or home institution: National Cancer Registry (RON) and Northern Regional Oncology Registry (RORENO).
Type of information: Cancer survival; Gender; Type of tumor; Time since diagnosis; Age; Year; Region; Cancer incidence; Tumor location. Patient name; Date of birth; Address; Diagnosis; Tumor; Treatment fields; Diagnosis dates; Basis of diagnosis; Primary location; Histologic type; Behavior; Stage; Treatment start date; Treatment sequence; Patient vital status; Date of death and cause of death.
Source of information: Data from public and private health institutions of the region.
Data level: Patient level.
Available data level: Regional level.
Number of Records: Unknown.
Date range: Incidence is presented from 1988 to 2011. Survival ranges from 2005 to 2010.
Cancer Areas of Interest: Survival - all tumors except basal cellular and squamous cell tumors of the skin. Incidence - all tumors except basal cell carcinomas and nonspecific tumors of the skin.
Data access: Partially publicly available. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website [33]. Instructions to request data for restricted content [34].
Contact information: Information [35].
Database: Cancer Survival and Incidence in the Central Region of Portugal
Primary purpose: Inform about cancer statistics regarding the south region of Portugal. Gathers information about the following districts: Aveiro, Castelo Branco, Coimbra, Guarda, Leiria e Viseu.
Sponsor, manager or home institution: National Cancer Registry (RON) and Central zone regional oncology registry (ROR-Centro).
Type of information: Cancer incidence; Sex, Age; Year; Tumor location; Patient name; Date of birth; Address; Diagnosis; Tumor; Treatment fields; Diagnosis dates; Basis of diagnosis; Primary location; Histologic type; Behavior; Stage; Treatment start date; Treatment sequence; Patient vital status; Date of death and cause of death.
Source of information: Data from public and private health institutions of the region.
Data level: Patient level.
Available data level: Regional level.
Number of Records: Unknown.
Date range: 1989 - 2010.
Cancer Areas of Interest: List is available on page 3 of the document [37].
Data access: Partially publicly available. Reports with regional data can be accessed through the national miscellaneous publications section on the National Cancer Registry website [38]. Instructions to request data for restricted content [39].
Contact information: Information [40].
Database: Cancer Incidence in Portugal
Primary purpose: Inform about cancer statistics regarding all regions of Portugal.
Sponsor, manager or home institution: National Cancer Registry (RON).
Type of information: Number of new cancer cases; Age; Sex; Tumor site; Place of residence; Cancer incidence rates per 100,000 persons; Mortality; Tumor type; Patient name; Date of birth; Address; Diagnosis; Tumor; Treatment fields; Diagnosis dates; Basis of diagnosis; Primary location; Histologic type; Behavior; Stage; Treatment start date; Treatment sequence; Patient vital status; Date of death and cause of death.
Source of information: Data from public and private health institutions in Portugal.
Data level: Patient level.
Available data level: Regional level.
Number of Records: Unknown.
Date range: 2001 - 2019.
Cancer Areas of Interest: Oral cavity and pharynx; Peritoneum and digestive organs; Respiratory system and intrathoracic organs; Hematopoietic system and endothelial reticulum; Genito-urinary organs; Breast; Eye and lacrimal gland; Nervous system; Endocrine glands; Soft tissue; Lymph nodes; bones and joints; Primary of unknown origin; Skin melanoma; Other tumors.
Data access: Reports with regional data can be accessed through the RON publications section on the National Cancer Registry website [42]. Instructions to request data for restricted content [43].
Contact information: Information [44].
Databases for Clinical Trials, Surveys and Biobanks
Survey: National Health Interview Survey (INS)
Primary purpose: Publish statistics on health status, health care and health determinants, and socio-demographic characteristics of the population to enable the study and improvement of these areas.
Sponsor, manager or home institution: Instituto Nacional de Estatística (INE).
Available type of information: Regarding cancer prevention information, contains the percentage of the female resident population aged 50 to 69 years who reported having had mammography done in the 2 years prior to the interview and the female resident population aged 20 to 69 years who reported having had cervical cytology done in the 3 years prior to the interview, both filtered by education level and region of residence.
Type of information: Data Dictionary - INS Portugal.
Source of information: Instituto Nacional de Estatística (INE).
Data level: Patient level.
Available data level: National level.
Number of Records: Unknown.
Date range: 2005 onwards. It occurs on a five-year basis.
Cancer Areas of Interest: Breast and cervix neoplasms.
Data access: Partially publicly available. Mammography examination information [46], [47], [48]; Cervical cytology information [49], [50], [51]. Instructions to request data for restricted content [52].
Contact information: Information [53].
Latest Policymaking Initiatives
Reports: National Institute of Statistics
Sponsor, manager or home institution: Instituto Nacional de Estatística.
Primary purpose: To present health statistics for Portugal, covering various health-related topics with geographic breakdown, including health status, hospitals, pharmacy, healthcare personnel, births, mortality, and more.
Type of information: Cancer mortality; Cancer diseases; Percent distribution of deaths from malignant tumors.
Data level: National level.
Access to information: Access Information [54].
Report: National Health Service
Sponsor, manager or home institution: Programa Nacional de Saúde.
Primary purpose: To synthesize available information on oncological diseases in Portugal, utilizing data from various documentary sources within the National Health Service (SNS).
Type of information: Mortality from Malignant Tumors; Incidence of Malignant Tumors; Coverage of breast, cervical and colorectal screenings; Hospital production with Main Diagnosis of Malignant Neoplasia; Number of cancer patients undergoing treatment with radiotherapy; Number of Surgeries for Malignant Neoplasms; Surgical activity in malignant neoplasms.
Data level: National level.
Access to information: Access Information [55].
Report: National Oncology Registry
Sponsor, manager or home institution: Registro Oncológico Nacional.
Primary purpose: To disseminate information regarding cancer incidence and mortality in Portugal, including data on tumor distribution, quality assessment, and comparison with previous years' incidences.
Type of information: Cancer incidence and mortality; Tumor distribution; Number and rate of cancer diseases; Most frequent tumors.
Data level: National and regional level.
Access to information: Access Information [56].
Report: National Commission for Palliative Care (CNCP)
Sponsor, manager or home institution: Comissão Nacional de Cuidados Paliativos (CNCP).
Primary purpose: To establish the strategic plan for the development of Palliative Care (CP) in Portugal, based on the National Palliative Care Network (RNCP) and the responsibilities of the National Commission for Palliative Care (CNCP).
Type of information: Estimate of the number of patients in need of palliative care; Estimate of required resources; Estimation of the need for palliative care beds; Palliative Care Units in Portugal.
Data level: National level.
Access to information: Access Information [57].
Report: EU Country Cancer Profile 2023
Sponsor, manager or home institution: OECD and European Commission.
Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
Data level: National level.
Access to information: Access Information [58].
Patient Associations
Sponsor, manager or home institution: Various institutions.
Primary purpose: To enhance oncology patient care by fostering collaboration, active participation, and communication, allowing users to influence healthcare strategies and priorities, with the associations serving as key intermediaries for user concerns.
Access to information: Information [59].
Compilation: ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology.
Primary purpose: To translate complex medical language into understandable information for patients.
Available guides: Colorectal Cancer.
Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
Access to information: List of guides [60].
Quality of Life and Palliative Care Research
List of Articles: Quality of Life [61] and Palliative Care [62].
