Data Dictionary: Finnish Cancer Registry

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prefLabel	technicalName	description	partOfGroup
Identification number	personnummer eller annat forskningsnummer	personal identification number or research number	Basic variables
Sex	sex	The sex of the patient	Basic variables
Date of diagnosis	dg_date	Date of cancer diagnosis	Basic variables
Age at diagnosis	dg_age	Age at the time of diagnosis, years rounded to one decimal place	Basic variables
The primary organ of the tumour	topo	Topographic code according to the ICD-O-3 classification	Basic variables
Cytological or histological diagnosis of the tumour	morpho	Morphological code according to the ICD-O-3 classification	Basic variables
Cancer malignancy	beh	Behavior code according to the ICD-O-3 classification	Basic variables
Cancer laterality	later	Cancer laterality	Basic variables
Basis of diagnosis	basis	The surest basis of diagnosis	Basic variables
Clinical spread of the tumour	stage	Finnish Cancer Registry’s classification	Basic variables
Type of cancer	cancertype	The name of the cancer, Finnish Cancer Registry’s classification	Basic variables
Date of exit from follow-up	ex_date	Cancer follow-up end date	Basic variables
Follow-up/survival status at registry close date	exit_status	Is the person alive, dead, or living abroad at the end of follow-up	Basic variables
Home municipality on the year of finding	dg_munic_staty	Home municipality for the person who fell ill with cancer in the year of the finding according to the municipal division for the statistical year. Will not be disclosed if the person has prohibited the disclosure of his/her data.	Basic variables
Hospital district on the year of finding	dg_hosp_staty	Hospital district of diagnosis based on municipality code from statistical year. Will not be disclosed if the person has prohibited the disclosure of his/her data.	Basic variables
University hospital district of diagnosis	dg_uni_staty	University hospital district of diagnosis based on municipality code from statistical year.Will not be disclosed if the person has prohibited the disclosure of his/her data.	Basic variables
The date of birth	bi_date	Patient's birthday. The THL permit should mention the retrieval of the date of birth or social security number.	Permit specific variables
Follow-up/survival status at registry close date, unmodified	status_close	Alive, dead of this cancer, dead of causes other than this cancer, living abroad. A permit from Statistics Finland for cause of death data.	Permit specific variables
Pathology laboratory sample identifier	lab_sample_id	Laboratory-specific designation that identifies the sample. The THL permit should mention the pathology laboratory sample number.	Permit specific variables
Tumour grade	gradus	The degree of tumour differentiation (gradus) is recorded directly according to the reports. The degree is recorded primarily from the surgical specimen. The grade given for the preoperative needle sample/biopsy is always preliminary, and the grade for the surgical preparation always replaces the information for the previous needle sample.	Special variables
Spread category basis	met_def_type	TNM: TNM rating of the Cancer Registry clinical report within 4 months of diagnosis. May also be based on information provided in the pathology report in the case of a surgical specimen. Stage / Ann Arbor: A stage described in a cancer registry clinical report within 4 months of diagnosis if TNM data is missing. Verbal staging: The spread is described verbally in a clinical report within 4 months of detection if TNM and stage are missing.	Special variables
Spread category, tumour	met_tumor	See met_def_type, what information the variable includes	Special variables
Spread category, lymph node	met_lymph_node	See met_def_type, what information the variable includes	Special variables
Spread category, metastasis	met_metastases	See met_def_type, what information the variable includes	Special variables
Pathology laboratory organization identifier	org_name	Pathology laboratory organization identifier. Will not be disclosed if the person has prohibited the disclosure of his/her data.	Special variables
Diagnosis of pathology sample	pad, morpho_text, topo_text	Sample-specific, one cancer diagnosis may be associated with multiple pathological diagnoses.	Special variables
Multiple primary rank	multi	Multiple primary rank. Will be supplied upon request, definition to be agreed separately.	Special variables
Childhood cancer classification (ICCC3)	iccc3	Intern. Class. of Childhood Cancer, 3rd ed. Will be disclosed if specifically requested.	Special variables
ICD-10	iarccrtools_icd10	ICD-10 code produced by the ICD-O-3 -> ICD-10 programme of IARC CRG Tools. Automatically generated ICD-10 classes may be illogical due to changes in registration practices.	Special variables
Municipality at exit from follow-up	ex_munic_staty	Home municipality for the person who fell ill with cancer in the year of the finding according to the municipal division for the statistical year. Will not be disclosed if the person has prohibited the disclosure of his/her data.	Special variables
Hospital district at exit from follow-up	ex_hosp_staty	Hospital district of diagnosis based on municipality code from statistical year. Will not be disclosed if the person has prohibited the disclosure of his/her data.	Special variables
University hospital district at exit from follow-up	ex_uni_staty	University hospital district of diagnosis based on municipality code from statistical year.Will not be disclosed if the person has prohibited the disclosure of his/her data.	Special variables