The Netherlands: Difference between revisions

Available guides: Bone Health in Cancer; Cancer Care During the COVID-19 Pandemic; Cancer Pain Management; Immunotherapy Side Effects; Personalized Cancer Medicine; Survivorship; AML; Biliary Tract Cancer; Bladder Cancer; Bone Sarcoma; Breast Cancer; Cervical Cancer; CML; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancer; Hepatocellular Carcinoma; Multiple Myeloma; Non-Small-Cell Lung Cancer; Oesophageal Cancer; Ovarian Cancer; Pancreatic Cancer; Prostate Cancer; Soft Tissue Sarcoma; Stomach Cancer; Testicular Cancer.

Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.

Access to information: List of guides [1].

Quality of Life and Palliative Care Research

List of Articles: Quality of Life [2] and Palliative Care [3].

@@ Line 57: / Line 57: @@
 === [[hasReports::Reports:_IKNL_(The_Netherlands)|Reports: IKNL]] ===
-'''Sponsor, manager or home institution:''' Integraal Kankercentrum Nederland.
-'''Primary purpose:''' To provide reliable data on all cancer patients for research to improve healthcare.
-'''Type of information:''' Cancer in the Netherlands, trends and forecasts; Oncology networks; Cancer in young adults; Meningiomas in the Netherlands; Stomach and esophageal cancer; Pancreatic cancer in the Netherlands; Prostate cancer in the Netherlands; Hemato-oncological care in the Netherlands; Imaging metastatic cancer; Sarcoma care in the Netherlands; Report on Primary Tumor Unknown; Skin cancer in the Netherlands; Breast cancer in the Netherlands; Figures on bladder cancer; Cancer care in the picture: about living with and after cancer; Rare cancers; Quality of life of cancer patients; Cancer treatments.
-'''Data level:''' National level.
-'''Access to information:''' Access Information [https://iknl.nl/onderzoek/rapporten].
 === [[hasReport::Reports:_Palliaweb_(The_Netherlands)|Reports: Palliaweb]] ===
-'''Sponsor, manager or home institution:''' Integraal Kankercentrum Nederland; Fibula Foundation; Palliative Care Netherlands (PZNL).
-'''Primary purpose:''' To focus on the organization of palliative care and facilitate partnerships to provide everyone with the best possible palliative care.
-'''Type of information:''' Palliative care consulting; Consultants; Quality indicators; Infograph of consultation services in palliative care; The roles and functions of specialized healthcare; The future of palliative care.
-'''Data level:''' National and Regional level.
-'''Access to information:''' Access Information [https://palliaweb.nl/publicaties?searchText=&publicatietype=Verslag#submit-scroll-anchor].
 === [[hasReport::Report:_Breast_cancer_screening_program_(The_Netherlands)|Report: Breast cancer screening program]] ===
-'''Sponsor, manager or home institution:''' Integraal Kankercentrum Nederland.
-'''Primary purpose:''' To detect breast cancer early, leading to better prognosis, and it is coordinated by the RIVM, with annual monitoring by IKNL to ensure program quality and identify trends and bottlenecks.
-'''Type of information:''' The number screened in the reporting year; Invitations, participation rate and referrals; Incidence and mortality rates.
-'''Data level:''' National level.
-'''Access to information:''' Access Information [https://iknl.nl/getmedia/b9e6bc9b-a5d8-4b25-a915-9e6b1d1d67bd/national-monitoring-breast-cancer-screening-in-the-Netherlands-2020-2021.pdf].
 === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(The_Netherlands)|Report: EU Country Cancer Profile 2023]] ===
-'''Sponsor, manager or home institution:''' OECD and European Commission.
-'''Primary purpose:''' To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
-'''Type of information:''' National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
-'''Data level''': National level.
-'''Access to information:''' Access Information [https://www.oecd-ilibrary.org/social-issues-migration-health/landenprofiel-voor-kanker-nederland-2023_63930e3b-nl].
 === [[hasInitiative::Initiative:_National_Action_Plan_for_Cancer_&_Life_(The_Netherlands)|Initiative: National Action Plan for Cancer & Life]] ===
-'''Sponsor, manager or home institution:''' Cancer Survivorship Care Taskforce.
-'''Primary purpose:''' To improve care for individuals living with or after cancer in the physical, psychological, and social aspects.
-'''Data level:''' National level.
-'''Access to information:''' Access Information [https://iknl.nl/kanker-en-leven/nationaal-actieplan-kanker-leven].
 </div>

The Netherlands: Difference between revisions

Revision as of 21:31, 25 April 2024

Contents

Cancer Centers

Healthcare System

Administrative or Claims Data

Database: National Basic Register of Hospital Care (LBZ)

Registries

Database: Netherlands Cancer Registry (NKR)

Database: Mortality by Cause of Death

Database: Registry of Histo and Cytopathology

Databases for Clinical Trials, Surveys and Biobanks

Survey: National Population Surveys: Screenings for breast, cervical and colon cancer

Clinical Practices Guidelines

Compilation: IKNL Guidelines

Guidelines for Palliative Care

Latest Policymaking Initiatives

Reports: IKNL

Reports: Palliaweb

Report: Breast cancer screening program

Report: EU Country Cancer Profile 2023

Initiative: National Action Plan for Cancer & Life

Cancer-related Patient Associations and Resources

Compilation: ESMO Patient Guides

Quality of Life and Palliative Care Research