Czech Republic
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Cancer Centers
Healthcare System
Administrative or Claims Data
Database: ÚZIS National register of hospitalized patients
Database: National Register of Reimbursed Health Services (NRHZS)
Registries
Database: ÚZIS National Cancer Registry
Database: ÚZIS Cause of Death Register
Database: Register of Medical Devices
Databases for Clinical Trials, Surveys and Biobanks
Clinical Practices Guidelines
KDP Guidelines
Sponsor, manager or home institution: Agency for Health Research of the Czech Republic (AZV ČR).
Primary purpose: To propose a standardized system for creating and updating KDP (Key Disease Proposals) in the Czech Republic, aiming to improve the availability, quality, and efficiency of health services through the establishment of governing bodies, methodological frameworks, and educational initiatives.
Type of information: Guidelines about diagnoses, treatments, follow up, quality of life measures, prevention and care of many types of cancer.
Access to information: List of guidelines [1].
Latest Policymaking Initiatives
Compilation: ÚZIS Statistical Outputs
Sponsor, manager or home institution: Ústav zdravotnických informací a statistiky ČR.
Primary purpose: Provide compiled statistical information based on databases managed by the institute.
Type of information: Reports on cancer incidence, hospitalizations, pharmacy care, and medical equipment, among other information.
Data Level: National level.
Access to information: Reports information [2].
Compilation: SVOD Reports
Sponsor, manager or home institution: Ústav zdravotnických informací a statistiky ČR; Ministry of Health of the Czech Republic.
Primary purpose: To offer accessible and comprehensive tumor epidemiology data for users in the Czech Republic and abroad, providing updated information, interactive analyses, and relevant presentations.
Type of information: Cancer incidence, prevalence, and the number of cancer patients treated with anti-tumor therapy; Cancer mortality; Cancer survival.
Data level: National level.
Access to information: Access Information [3].
Report: EU Country Cancer Profile 2023
Sponsor, manager or home institution: OECD and European Commission.
Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
Data level: National level.
Access to information: Access Information [4].
Compilation: ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology
Primary purpose: To translate complex medical language into understandable information for patients.
Available guides: Pancreatic Carcinoma.
Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
Access to information: List of guides [5].
Patient Association: Asociace mužů sobě
Primary purpose: To support men with prostate cancer through discussions, expert guidance, and reconditioning programs to improve their treatment outcomes and quality of life.
Contact Information: Information [6].
Patient Association: Amelie
Primary purpose: To provide psychosocial support and promote social integration for oncology patients and their families in the Czech Republic through various advisory, therapeutic, and motivational activities while complementing medical care.
Contact Information: Information [7].
Patient Association: Český občanský spolek proti plicním nemocem - ČOPN
Primary purpose: To raise awareness of lung diseases, improve the quality of life for patients with lung conditions, promote modern treatment trends, enhance mutual awareness among professionals and the public, and advocate for the interests of pulmonary patients with other organizations and institutions.
Contact Information: Information [8].
Patient Association: Diagnóza leukemie
Primary purpose: To represent the views and opinions of patients with malignant blood diseases, improve conditions for treatment, provide educational programs, and advocate for patients' interests in dealings with medical societies and healthcare institutions.
Contact Information: Information [9].
Patient Association: Klub pacientů mnohočetný myelom
Primary purpose: To provide quality information, facilitate communication, and support patients diagnosed with multiple myeloma and their loved ones, aiming to improve their understanding and management of this rare disease.
Contact Information: Information [10].
Patient Association: Lymphom Help
Primary purpose: To unite individuals affected by malignant lymphoma, including patients, their families, healthcare professionals, and friends, to enhance information sharing, visibility of the disease, and support for those dealing with lymphoma.
Contact Information: Information [11].
Patient Association: Maminy s Rakovinou
Primary purpose: To provide support, information, and a sense of community for mothers battling cancer and their families, addressing both their emotional and practical needs during this challenging period.
Contact Information: Information [12].
Patient Association: Veronica
Primary purpose: To unite and support patients with gynecological cancers and BRCA genetic mutations, raise awareness about cancer prevention and treatment, and provide education and resources through various campaigns and initiatives.
Contact Information: Information [13].
Patient Association: Alen – ženy s rakovinou prsu
Primary purpose: To provide guidance, psychological support, and a sense of community for women diagnosed with breast cancer, assisting them in their journey to recovery and active life through various activities and support programs.
Contact Information: Information [14].
Patient Association: Klubu ŽAP
Primary purpose: To enhance the quality of life for women with cancer, raise awareness about cancer, provide assistance with health and social issues, offer guidance on prosthetic devices and insurance claims, and improve mental and physical well-being through education and support.
Contact Information: Information [15].
Patient Association: Liga proti rakovině Praha
Primary purpose: To reduce the death rate from cancer in the Czech Republic through continuous information, improving the quality of life for cancer patients, and supporting oncology research and modernization.
Contact Information: Information [16].
Patient Association: České ILCO
Primary purpose: To advocate for the rights of ostomies, alleviate their fears, and address health, social, and psychological challenges associated with living with an ostomy.
Contact Information: Information [17].
Quality of Life and Palliative Care Research
List of Articles: Quality of Life [18] and Palliative Care [19].
