Estonia

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Cancer Centers

Healthcare System

Administrative or Claims Data

Registries

Databases for Clinical Trials, Surveys and Biobanks

Electronic Health Records

Clinical Practices Guidelines

Latest Policymaking Initiatives

National Plan: Action Plan for Cancer Control

Report: The State of Healthcare Integration in Estonia

Guideline: Estonian Handbook for Guideline Development

Policy: Marketing Authorization for a Drug

Sponsor, manager or home institution: Medicines Board

Primary purpose: Legislation and Forms to inform the marketing authorization for drugs.

Type of information: Medicine-related laws, regulations, conditions, requirements and statutes related to the authorization of drug marketing, guides, and manuals to inform the process as well as forms that are required to be authorized.

Data level: National level.

Information access: Information access [1].

Policy: Handling of Medicine

Sponsor, manager or home institution: Medicines Board

Primary purpose: Legislation and Forms to inform the handling of drugs.

Type of information: Medicine-related laws, regulations, conditions, requirements and statutes related to the handling of drugs, guides to inform the handling of drugs as well as forms that are required to be authorized to handle drugs.

Data level: National level.

Information access: Information access [2].

Reports: The Health Fund's

Report: EU Country Cancer Profile 2023

Report: Cancer in Estonia: morbidity and survival

Compilation: Other Estonian Health Legislation

Information access: Information access [3].

Cancer-related Patient Associations and Resources

Patient Association: "Gift of Life" Foundation

Primary purpose: To support cancer treatment not covered by the Estonian Health Insurance Fund.

Data level: National level.

Information access: Information access [4].

Compilation: ESMO Patient Guides

Sponsor, manager or home institution: European Society for Medical Oncology

Primary purpose: To translate complex medical language into understandable information for patients.

Available guides: Cancer Care During the COVID-19 Pandemic; Bone Sarcoma; Colorectal Cancer; Non-Small-Cell Lung Cancer; Soft Tissue Sarcomas.

Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, and care after treatment, among others.

Access to information: List of guides [5].

Quality of Life and Palliative Care Research

List of Articles: Quality of Life [6] and Palliative Care [7].