The Netherlands
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Cancer Centers
Netherlands Cancer Institute - Antoni van Leeuwenhoek
The Maastricht UMC+ Comprehensive Cancer Center
University Medical Center Groningen Comprehensive Cancer Center
Healthcare System
Administrative or Claims Data
Registries
Database: Netherlands Cancer Registry (NKR)
Database: Mortality by Cause of Death
Database: Registry of Histo and Cytopathology
Databases for Clinical Trials, Surveys and Biobanks
Clinical Practices Guidelines
Compilation: IKNL Guidelines
Sponsor, manager or home institution: Integraal Kankercentrum Nederland.
Primary purpose: To provide access to oncological guidelines, stored in various databases according to professional groups, aiming to support optimal clinical decision-making, ensure up-to-date treatment advice, and improve the quality of cancer care in the Netherlands.
Type of information: Epidemiology, diagnostics, treatments and follow up of various types of cancer.
Access to information: List of guidelines [1].
Guidelines for Palliative Care
Sponsor, manager or home institution: Integrated Cancer Center Netherlands.
Primary purpose: To provide the latest evidence-based insights on diagnosis and treatment in palliative care, with input from professionals nationwide.
Type of information: Quality framework for pediatric palliative care; Depression; Fever; Nausea and vomiting; Pain in cancer patients, among other.
Access to information: List of guidelines [2].
Latest Policymaking Initiatives
Reports: IKNL
Sponsor, manager or home institution: Integraal Kankercentrum Nederland.
Primary purpose: To provide reliable data on all cancer patients for research to improve healthcare.
Type of information: Cancer in the Netherlands, trends and forecasts; Oncology networks; Cancer in young adults; Meningiomas in the Netherlands; Stomach and esophageal cancer; Pancreatic cancer in the Netherlands; Prostate cancer in the Netherlands; Hemato-oncological care in the Netherlands; Imaging metastatic cancer; Sarcoma care in the Netherlands; Report on Primary Tumor Unknown; Skin cancer in the Netherlands; Breast cancer in the Netherlands; Figures on bladder cancer; Cancer care in the picture: about living with and after cancer; Rare cancers; Quality of life of cancer patients; Cancer treatments.
Data level: National level.
Access to information: Access Information [3].
Reports: Palliaweb
Sponsor, manager or home institution: Integraal Kankercentrum Nederland; Fibula Foundation; Palliative Care Netherlands (PZNL).
Primary purpose: To focus on the organization of palliative care and facilitate partnerships to provide everyone with the best possible palliative care.
Type of information: Palliative care consulting; Consultants; Quality indicators; Infograph of consultation services in palliative care; The roles and functions of specialized healthcare; The future of palliative care.
Data level: National and Regional level.
Access to information: Access Information [4].
Report: Breast cancer screening program
Sponsor, manager or home institution: Integraal Kankercentrum Nederland.
Primary purpose: To detect breast cancer early, leading to better prognosis, and it is coordinated by the RIVM, with annual monitoring by IKNL to ensure program quality and identify trends and bottlenecks.
Type of information: The number screened in the reporting year; Invitations, participation rate and referrals; Incidence and mortality rates.
Data level: National level.
Access to information: Access Information [5].
Report: EU Country Cancer Profile 2023
Sponsor, manager or home institution: OECD and European Commission.
Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
Data level: National level.
Access to information: Access Information [6].
Initiative: National Action Plan for Cancer & Life
Sponsor, manager or home institution: Cancer Survivorship Care Taskforce.
Primary purpose: To improve care for individuals living with or after cancer in the physical, psychological, and social aspects.
Data level: National level.
Access to information: Access Information [7].
Compilation: ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology
Primary purpose: To translate complex medical language into understandable information for patients.
Available guides: Bone Health in Cancer; Cancer Care During the COVID-19 Pandemic; Cancer Pain Management; Immunotherapy Side Effects; Personalized Cancer Medicine; Survivorship; AML; Biliary Tract Cancer; Bladder Cancer; Bone Sarcoma; Breast Cancer; Cervical Cancer; CML; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancer; Hepatocellular Carcinoma; Multiple Myeloma; Non-Small-Cell Lung Cancer; Oesophageal Cancer; Ovarian Cancer; Pancreatic Cancer; Prostate Cancer; Soft Tissue Sarcoma; Stomach Cancer; Testicular Cancer.
Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
Access to information: List of guides [8].
