Estonia
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Cancer Centers
Healthcare System
Administrative or Claims Data
Registries
Database: Andmebaas Cancer Screening Registry
Database: Andmebaas Cancer Registry
Database: Andmebaas Cause of Death
Database: Statistics Estonia Cause of Death
Statistics Estonia: Malignant Tumors
Databases for Clinical Trials, Surveys and Biobanks
Survey: The Survey on Health, Ageing and Retirement in Europe (SHARE)
Survey: The Estonian Health Interview Survey (ETeU)
Electronic Health Records
Clinical Practices Guidelines
Latest Policymaking Initiatives
National Plan: Action Plan for Cancer Control
Report: The State of Healthcare Integration in Estonia
Guideline: Estonian Handbook for Guideline Development
Sponsor, manager or home institution: Estonian Health Insurance Fund.
Primary purpose: To serve as an up-to-date practical resource for developing health guidelines.
Type of information: Guideline development process, topic proposals, evidence retrieving, report, dissemination of recommendations, among other topics.
Data level: National level.
Information access: Information access [1].
Policy: Marketing Authorization for a Drug
Sponsor, manager or home institution: Medicines Board
Primary purpose: Legislation and Forms to inform the marketing authorization for drugs.
Type of information: Medicine-related laws, regulations, conditions, requirements and statutes related to the authorization of drug marketing, guides, and manuals to inform the process as well as forms that are required to be authorized.
Data level: National level.
Information access: Information access [2].
Policy: Handling of Medicine
Sponsor, manager or home institution: Medicines Board
Primary purpose: Legislation and Forms to inform the handling of drugs.
Type of information: Medicine-related laws, regulations, conditions, requirements and statutes related to the handling of drugs, guides to inform the handling of drugs as well as forms that are required to be authorized to handle drugs.
Data level: National level.
Information access: Information access [3].
Reports: The Health Fund's
Sponsor, manager or home institution: Tervisekassa.
Primary purpose: To outline the vision, mission, and strategic goals of the Health Insurance Fund in Estonia, focusing on ensuring the availability of health insurance benefits and improving healthcare services through prevention, early intervention, and better-coordinated treatment.
Type of information: Health care costs; Medicine costs; Costs of disease prevention; total health costs in general.
Data level: National level.
Access to information: Access Information [4].
Report: EU Country Cancer Profile 2023
Sponsor, manager or home institution: OECD and European Commission.
Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
Data level: National level.
Access to information: Access Information [5].
Report: Cancer in Estonia: morbidity and survival
Sponsor, manager or home institution: Tervise Arengu Instituut.
Primary purpose: To provide comprehensive and up-to-date cancer incidence statistics in Estonia, based on data from the cancer registry, enabling analysis of cancer survival and scientific research.
Type of information: More common cancer sites; Cancer incidence and morbidity; Distribution of primary cases by cancer site and spread at diagnosis; Cancer prevalence and survival.
Data level: National level.
Access to information: Access Information [6].
Compilation: Other Estonian Health Legislation
Information access: Information access [7].
Patient Association: "Gift of Life" Foundation
Primary purpose: To support cancer treatment not covered by the Estonian Health Insurance Fund.
Data level: National level.
Information access: Information access [8].
Compilation: ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology
Primary purpose: To translate complex medical language into understandable information for patients.
Available guides: Cancer Care During the COVID-19 Pandemic; Bone Sarcoma; Colorectal Cancer; Non-Small-Cell Lung Cancer; Soft Tissue Sarcomas.
Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, and care after treatment, among others.
Access to information: List of guides [9].
Quality of Life and Palliative Care Research
List of Articles: Quality of Life [10] and Palliative Care [11].
