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| | <span style="display:none">forresearchers</span> |
| | <span style="display:none">forpatients</span> |
| | <span style="display:none">forproviders</span> |
| | <span style="display:none">forpolicymakers</span> |
| | <span style="display:none">spaincountry</span> |
| [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] | | [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] |
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| [[dct:relation::Fundación Instituto Valenciano de Oncología IVO]] | | [[hasCancerCenter::Fundación Instituto Valenciano de Oncología IVO]] |
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| [[dct:relation::Vall d’Hebron Barcelona Hospital Campus]] | | [[hasCancerCenter::Vall d'Hebron Barcelona Hospital Campus]] |
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| [[dct:relation::Catalan Institute of Oncology]] | | [[hasCancerCenter::Catalan Institute of Oncology]] |
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| == [[hasHealthcareSystem::Healthcare_System_(Spain)|Healthcare System]] == | | == [[hasHealthcareSystem::Healthcare_System_(Spain)|Healthcare System]] == |
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| [[dct:title::Spain]]'s healthcare system is the Sistema Nacional de Salud (SNS), a universal health system that covers 99% of the Spanish population and is funded by general taxation. The administration is divided at the national and regional level, with the national level managed by the Ministry of Health, Consumer Affairs and Social Welfare, whereas the 17 regional health departments manage the regional level. Both collaborate through the SNS Interterritorial Council in order to implement policy at the regional and national level.
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| The General Secretariat of Digital Health, Information and Innovation of the SNS is the body responsible for implementing the Digital Health Strategy of the SNS, which aims to improve the health of every Spanish citizen through the increased adoption of digital health solutions for healthcare and the development of infrastructures that allow providers to use data to help their patients.
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| The Instituto de Salud Carlos III (ISCIII) is a public research agency integrated with the Ministry of Science and Innovation and the Ministry of Health, and is responsible for conducting health research that aims to improve the health of the people, offer scientific and technical advice for policymaking, as well as develop educational programs for the entire SNS system.
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| The Spanish Network of Cancer Registries (REDECAN) was created in 2010 to assure the quality of information related to the incidence, survival, and prevalence of cancer in Spain and improve collection and analysis of this data, originally collected by the individual communities' cancer registries of Spain. It monitors plenty variables including cancer trends, geographic distribution, impact of cancer prevention and treatments.
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| Other major institutions related to healthcare and health research include the National Institute of Statistics and the National Drug Agency.
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| </div> | | </div> |
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| === [[hasDatabase::Database:_The_Registry_of_Specialized_Health_Care_Activity_(RAE-CMBD)_(Spain)|Database: The Registry of Specialized Health Care Activity (RAE-CMBD)]] === | | === [[hasDatabase::Database:_The_Registry_of_Specialized_Health_Care_Activity_(RAE-CMBD)_(Spain)|Database: The Registry of Specialized Health Care Activity (RAE-CMBD)]] === |
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| [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/rae-cmbd] | | === [[hasDatabase::Database:_The_Specialized_Care_Information_System_(SIAE)_(Spain)|Database: The Specialized Care Information System (SIAE)]] === |
| [https://www.boe.es/buscar/act.php?id=BOE-A-2015-1235] [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/D/rae-cmbd/serie-historica/glosario-de-terminos-y-definiciones/glosario-de-terminos-y-definiciones]
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
| | === [[hasDatabase::Database:_Primary_Care_Clinical_Data_Base_(BDCAP)_(Spain)|Database: Primary Care Clinical Data Base (BDCAP)]] === |
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| '''Type of information''': Presents administrative and clinical information on patients treated in the different Specialized Care and outpatient care modalities in the public or private sector. Includes hospitalization, home hospitalization care modalities, medical day hospital, outpatient surgery, outpatient procedures of special complexity and emergencies. General information about the hospitalization; morbidity data (main and secondary diagnosis registered using CIE9MC and CIE10ES, and age-adjusted hospitalization rates); procedures performed (registered using CCS).
| | === [[hasDatabase::Database:_Hospital_Morbidity_Survey_(EMH)_(Spain)|Database: Hospital Morbidity Survey (EMH)]] === |
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| '''Available type of information''': Year; Age; Sex, Region of residence, Hospital region, Type of patient admission, Type of patient discharge, Financing system, Performed service at discharge in hospitalization, Group of hospitals, Type of hospital (public or private), Size of the hospital by number of beds [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/D/rae-cmbd/serie-historica/glosario-de-terminos-y-definiciones/glosario-de-terminos-y-definiciones].
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| '''Source of information''': Reports from the providers that are sent to the Ministry of health.
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| '''Data level''': Patient level.
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| '''Available data level''': Regional level.
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| '''Date range''': Varies accordingly to the category of care. Hospitalization (1997 onwards), acute care (1997 onwards), ambulatory care (2004 onwards). Information regarding the private sector are available from 2005 onwards.
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| '''Data access''': Partially publicly available [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/rae-cmbd], [https://icmbd.sanidad.gob.es/icmbd/login-success]. Instructions to request data for restricted content [https://sanidad.gob.es/estadEstudios/estadisticas/estadisticas/estMinisterio/SolicitudCMBD.htm].
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| '''Contact information''': Information [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm].
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| </div> | | </div> |
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| === [[hasDatabase::Database:_Main_indicators_of_The_National_Health_System_(INCLASNS)_(Spain)|Database: Main indicators of The National Health System (INCLASNS)]] === | | === [[hasDatabase::Database: Death Statistics by Cause of Death (INE) (Spain)|Database: Death Statistics by Cause of Death (INE)]] === |
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| [http://inclasns.msssi.es/main.html]
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| [http://inclasns.msssi.es/doc/Metodologia_INCLASNS_V2.pdf]
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| '''Primary purpose:''' Facilitates access to information that is already individually presented by official statistical institutions. The database does so by reuniting important indicators to research healthcare functioning and general health quality.
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
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| '''Type of information''': Cancer mortality tax (premature and non-premature adjusted by age, per 100 000 hab.) and pertinence of conservative surgery in breast cancer in percentage [http://inclasns.msssi.es/sheets.html].
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| '''Source of information''': El Sistema de Información del Sistema Nacional de Salud and other sources (Instituto Nacional de
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| Estadística, Centro Nacional de Epidemiología, Agencia Española de Medicamentos y Productos Sanitarios, etc.)
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| '''Data level''': Regional level.
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| '''Number of Records:''' Includes 247 indicators.
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| '''Date range''': 1990 onwards.
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| '''Cancer Areas of Interest:''' Unknown.
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| '''Data access''': Publicly available [http://inclasns.msssi.es/main.html].
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| '''Contact information''': Information [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm].
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| === [[hasDatabase::Database:_Spanish_Registry_of_Pediatric_Tumors_(RETI-SEHOP)_(Spain)|Database: Spanish Registry of Pediatric Tumors (RETI-SEHOP)]] ===
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| [https://www.uv.es/rnti/pdfs/Informe_RETI-SEHOP_1980-2021.pdf]
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| '''Primary purpose:''' Collects data and produces epidemiology research about childhood cancer.
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| '''Sponsor, manager or home institution''': Sociedad Española de Hematología y Oncología Pediátricas (SEHOP) and Universitat de València (UV).
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| '''Type of information''': Survival (3 and 5 years after diagnosis); Incidence; Medical treatment coverage in percentage; Region; Sex; Year.
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| '''Source of information''': Reports from all Spanish pediatric oncologic and hematologic hospital unities [https://www.uv.es/rnti/pdfs/Listado%20CI.pdf].
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| '''Data level''': Regional level.
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| '''Number of Records:''' Covers more than 90% of national children cases. Between 1980-2021 there were 31.275 incidence cases registered.
| | === [[hasDatabase::Database:_Spanish_Registry_of_Pediatric_Tumours_(RETI-SEHOP)_(Spain)|Database: Spanish Registry of Pediatric Tumours (RETI-SEHOP)]] === |
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| '''Date range''': Varies accordingly to selected indicators: survival (1980-2004), incidence (1983-2002), medical treatment coverage (1980-2012).
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| '''Cancer Areas of Interest:''' [[Cancer Areas of Interest: Spanish Registry of Pediatric Tumors (RETI-SEHOP)|Spanish Registry of Pediatric Tumors (RETI-SEHOP)]]. The list can be checked on pages XXXII - XXXV of this document [https://www.uv.es/rnti/pdfs/Informe_RETI-SEHOP_1980-2021.pdf].
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| '''Data access''': Publicly available [https://www.uv.es/rnti/informes.html].
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| '''Contact information''': Information [https://www.sehop.org/quienes-somos/].
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| === [[hasDatabase::Database:_Annual_Report_of_the_National_Health_System_(Spain)|Database: Annual Report of the National Health System]] === | | === [[hasDatabase::Database:_Annual_Report_of_the_National_Health_System_(Spain)|Database: Annual Report of the National Health System]] === |
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| [https://www.sanidad.gob.es/estadEstudios/estadisticas/sisInfSanSNS/tablasEstadisticas/InfAnSNSAnosanteriores.htm]
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| '''Primary purpose:''' Provides information about the health of the Spanish population and details about the operation and results of the National Health System (SNS).
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
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| '''Type of information''': Population information, health status (well-being, morbidity, mortality), social determinants of health (socioeconomic determinant factors, lifestyles), and sanitary system (health care, accessibility, experience, patient, physical resources, human resources, and expenses). Some of the information in the reports is related to cancer diagnosis. The 2020-2021 report also includes information on the response of health services to COVID-19 (capacity of care, care activity related to COVID-19, impact on accessibility to the health system, impact on ordinary care activity, experience of the population, covid vaccination, diagnostic capacity, and pharmaceutical service).
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| '''Source of information''': Data collected from the Councils of Health of the autonomous communities, the National Institute of Health Management and Surveys.
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| '''Data level''': Regional level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': 2003 onwards.
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| '''Cancer Areas of Interest:''' Unknown.
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| '''Data access''': Publicly available [https://www.sanidad.gob.es/estadEstudios/estadisticas/sisInfSanSNS/tablasEstadisticas/InfAnSNS.htm].
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| '''Contact information''': Information [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm].
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| === [[hasDatabase::Database:_Mortality_by_cause_of_death_(Spain)|Database: Mortality by cause of death]] === | | === [[hasDatabase::Database:_Mortality_by_cause_of_death_(Spain)|Database: Mortality by cause of death]] === |
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| [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/mortalidad-por-causa-de-muerte]
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| [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/D/mortalidad-fetal-tardia-e-infantil/anexos/notas-metodologicas]
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| '''Primary purpose:''' Provides death statistics to enable monitoring and health measures to be taken.
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
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| '''Type of information''': Crude mortality rates; Age-adjusted mortality rates; Age-adjusted premature mortality rates; Sex, Cause of death (including cancer diagnosis); Year, and geographic region.
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| '''Source of information''': Mortality register by cause of death, made by the National Statistics Institute (INE) form the Medical Certificate of Death/Death Statistical Bulletin (CMD/BED) and the Birth Statistical Bulletin (BEP).
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| '''Data level''': Patient level.
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| '''Available data level''' Regional level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': 1981 onwards.
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| '''Cancer Areas of Interest:''' (C00-D48): Tumors; (C00-C14): Malignant tumors of lip, oral cavity and pharynx; (C15-C26): Malignant tumors of digestive organs; (C30-C39): Malignant tumors of respiratory and intrathoracic organs; (C40-C41): Malignant tumors of bone and articular cartilage; (C43-C44): Melanoma and other malignant tumors of the skin; (C45-C49): Malignant tumors of mesothelial tissues and soft tissues; (C50): Malignant tumors of breast; (C51-C58): Malignant tumors of female genital organs; (C60-C63): Malignant tumors of male genital organs; (C64-C68): Malignant tumors of urinary tract; (C69-C72): Malignant tumors of eye, brain and other parts of the central nervous system; (C73-C75): Malignant tumors of thyroid and other endocrine glands; (C76-C80): Malignant tumors of ill-defined, secondary and unspecified sites; (C81-C96): Primary malignant tumors of lymphatic tissue, hematopoietic organs, and related tissues; (C97): Primary malignant tumors of multiple independent sites; (D00-D09): Neoplasms in situ; (D10-D36): Benign tumors; (D37-D48): Tumors of uncertain or unknown behavior.
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| '''Data access''': Partially publicly available [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/mortalidad-por-causa-de-muerte]. Instructions to request data for restricted content [https://www.ine.es/dyngs/INEbase/es/operacion.htm?c=Estadistica_C&cid=1254736176780&menu=resultados&idp=1254735573175#!tabs-1254736195294].
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| '''Contact information''': Information [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm].
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| === [[hasDatabase::Database:_Late_Fetal_and_Infant_Mortality_(Spain)|Database: Late Fetal and Infant Mortality]] === | | === [[hasDatabase::Database:_Late_Fetal_and_Infant_Mortality_(Spain)|Database: Late Fetal and Infant Mortality]] === |
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| [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/mortalidad-fetal-tardia-e-infantil]
| | === [[hasDatabase::Databases: Cancer Registries of Autonomous Communities Compilation (Spain)|Databases: Cancer Registries of Autonomous Communities Compilation]] === |
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| '''Primary purpose:''' Contains statistical information about national children's death.
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
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| '''Type of information''': Number of late fetal mortality and infant mortality; Age; Sex; Geographic region; Year and basic cause of death (including cancer diagnosis). It is possible to analyze the rates of late fetal mortality, infant mortality and perinatal mortality.
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| '''Source of information''': The Birth Statistical Bulletin and in the Medical Certificate of Death/Death Statistical Bulletin.
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| '''Data level''': Regional level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': 1981 onwards.
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| '''Cancer Areas of Interest:''' Neoplasms (C00-D48).
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| '''Data access''': Publicly available [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/mortalidad-fetal-tardia-e-infantil].
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| '''Contact information''': Information [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm].
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| === [[hasDatabase::Database:_The_Specialized_Care_Information_System_(SIAE)_(Spain)|Database: The Specialized Care Information System (SIAE)]] === | |
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| [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/siae]
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| [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/D/siae/escri/ayuda/glosario-de-terminos-y-definiciones-escri]
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| '''Primary purpose:''' Provide statistical information about affiliation, dependency and purpose of care, staffing, human resources, activity and economic information of both public and private hospitals nationwide.
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
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| '''Type of information''': Radiotherapeutic exams; Interventional radiology exams; Biopsies; Mammograms; Year, Type of hospital (public or private); Assistance purpose; Legal form, and geographic region.
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| '''Source of information''': Unknown.
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| '''Data level''': Regional level and Patient level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': 1997 onwards.
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| '''Cancer Areas of Interest:''' Unknown.
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| '''Data access''': Publicly avaiable. Regional data information [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/siae]. Patient data information [https://www.sanidad.gob.es/estadisticas/microdatos.do].
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| '''Contact information''': Information [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm].
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| === [[hasDatabase::Database:_Primary_Care_Clinical_Data_Base_(BDCAP)_(Spain)|Database: Primary Care Clinical Data Base (BDCAP)]] ===
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| [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/base-de-datos-de-clinicos-de-atencion-primaria-bdcap]
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| [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/D/base-de-datos-de-clinicos-de-atencion-primaria-bdcap/aspectos-practicos/aspectos-practicos]
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| '''Primary purpose:''' Make statistics on primary level care available.
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
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| '''Type of information''': Active health problems in the year of study; Interconsultations; Visits; Procedures; Prescribed medications; Clinic parameters; Comorbidity; Year; Sex; Age; Birth country; Geographic region; Region's extent by the number of inhabitants; Annual income of patients; The employment situation of the patients; Subpopulation by type of health problem; Year of disease initiation; Subpopulation by prescribed medication.
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| '''Source of information''': Electronic medical records.
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| '''Data level''': Patient level.
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| '''Available ata level''': Regional level.
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| '''Number of Records:''' Around 4,900,00 people per year.
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| '''Date range''': 2011 onwards.
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| '''Cancer Areas of Interest:''' Neoplasms (C00-D49). Cancer areas of interest list [https://www.sanidad.gob.es/estadEstudios/estadisticas/estadisticas/estMinisterio/SIAP/map_cie9mc_cie10_ciap2.htm].
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| '''Data access''': Partially publicly available [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/base-de-datos-de-clinicos-de-atencion-primaria-bdcap]. Monographic and didactic reports information [https://www.sanidad.gob.es/estadEstudios/estadisticas/estadisticas/estMinisterio/SIAP/home.htm]. Instructions to request data for restricted content [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm], [https://sanidad.gob.es/estadEstudios/estadisticas/estadisticas/estMinisterio/solicitudBDCAP.htm].
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| '''Contact information''': Information [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm].
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| === [[hasDatabase::Database:_Hospital_Morbidity_Survey_(EMH)_(Spain)|Database: Hospital Morbidity Survey (EMH)]] ===
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| [https://www.ine.es/dyngs/INEbase/es/operacion.htm?c=Estadistica_C&cid=1254736176778&menu=resultados&idp=1254735573175]
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| [https://www.ine.es/dynt3/metadatos/es/RespuestaPrint.html?oper=147]
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| '''Primary purpose:''' To determine the geographic distribution of morbidity attended in hospitals according to the main diagnosis associated with average hospital stay and hospital discharge.
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| '''Sponsor, manager or home institution''': Instituto Nacional de Estadística (INE).
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| '''Type of information''': Available variables are the number of hospital discharges and hospital stays. Main diagnosis (including cancer); Type of hospital admission; Reason for discharge and province of hospitalization; Age; Sex, and place of residence.
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| '''Source of information''': Hospital's patient register, files, and surveys.
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| '''Data level''': Patient level.
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| '''Available data level''': Regional level.
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| '''Number of Records:''' Covers 90% of the hospitals and 98% of the discharges in Spain.
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| '''Date range''': 1978 onwards (restricted) and 1997 onwards (publicly available).
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| '''Cancer Areas of Interest:''' Neoplasms (C00-D49). Cancer areas of interest list [https://www.ine.es/daco/daco42/sanitarias/cie_mc_emh.xls].
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| '''Data access''': Partially publicly available [https://www.ine.es/dyngs/INEbase/es/operacion.htm?c=Estadistica_C&cid=1254736176778&menu=resultados&idp=1254735573175]. Reports information [https://www.ine.es/dyngs/INEbase/es/operacion.htm?c=Estadistica_C&cid=1254736176778&menu=publi&idp=1254735573175]. Instructions to request data for restricted content [https://www.ine.es/ss/Satellite?L=es_ES&c=Page&cid=1259953312408&p=1259953312408&pagename=ProductosYServicios%2FPYSLayout].
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| '''Contact information''': Information [https://www.ine.es/infoine/].
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| === [[hasDatabase::Compilation:_Cancer_Registries_of_Autonomous_Communities_(Spain)|Compilation: Cancer Registries of Autonomous Communities]] ===
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| '''Primary purpose:''' Compile information and addresses concerning regional cancer registries in Spain.
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| '''Sponsor, manager or home institution''': Regarding the compilation of information, Red española de registros de cáncer (REDECAN) is the responsible. Each registry has its own responsible authority.
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| '''Type of information''': Cancer registries from the Spanish provinces containing incidence, mortality, survival, prevalence and other cancer information. All registries included [https://redecan.org/es/registros-de-cancer].
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| '''Source of information''': Generally, the regional registries collect information from medical records, but other sources can be present accordingly to each registry [https://redecan.org/en/working-methods].
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| '''Data level''': Regional level is publicly available. Access to patient-level data varies.
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| '''Available Data level''': Regional level.
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| '''Number of Records:''' Varies.
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| '''Date range''': Varies.
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| '''Cancer Areas of Interest:''' Varies.
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| '''Data access''': Partially publicly available [https://redecan.org/es/registros-de-cancer].
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| '''Contact information''': Information [https://redecan.org/es/contacto].
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| === [[hasDatabase::Public_Health_Surveillance_(RENAVE)_(Spain)|Public Health Surveillance (RENAVE)]] ===
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| [https://www.isciii.es/QueHacemos/Servicios/VigilanciaSaludPublicaRENAVE/Paginas/default.aspx] | | === [[hasDatabase::Public_Health_Surveillance_(RENAVE)_(Spain)|Database: Public Health Surveillance (RENAVE)]] === |
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| '''Primary purpose:''' Provides information in several formats on cancer mortality.
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| '''Sponsor, manager or home institution''': Centro Nacional de Epidemiología (CNE) from Instituto de Salud Carlos III.
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| '''Type of information''':
| |
| *Raziel [http://raziel.cne.isciii.es/] - Presents maps and graphics containing mortality data filtered by sex, type of tumor, age, territory and year. Available indicators are number of deaths, crude/specific rate, potential years of life lost, rate of potential years of life lost, mean age at death, rate adjusted to the European population, adjusted rate of potential years of life lost (world and European population), rate adjusted to world population.
| |
|
| |
| *Ariadna [http://ariadna.cne.isciii.es/] - Presents maps, rankings, trends and tables of data showing cancer mortality filtered by sex and province/county. Available indicators are crude rate, European population-adjusted rate, world population-adjusted rate, truncated rate, cumulative risk, comparative mortality index, and number of deaths.
| |
|
| |
| *Reports on the situation of cancer in Spain [https://www.isciii.es/QueHacemos/Servicios/VigilanciaSaludPublicaRENAVE/EnfermedadesCronicas/Paginas/Informes.aspx] - Presents data on mortality, incidence, risk factors and survival filtered by sex, region and type of cancer. Provides discussions on this matter.
| |
|
| |
| *Atlas of Cancer Mortality [https://www.isciii.es/QueHacemos/Servicios/VigilanciaSaludPublicaRENAVE/EnfermedadesCronicas/Paginas/Atlas.aspx].
| |
|
| |
| *Data tables [https://www.isciii.es/QueHacemos/Servicios/VigilanciaSaludPublicaRENAVE/EnfermedadesCronicas/Paginas/Tablas-de-datos.aspx] - Presents number of deaths, average age at death, European population-adjusted rate x 100,000, standard error of the adjusted rate, world population-adjusted rate x 100,000, truncated adjusted rate x 100,000, cumulative risk 0-74 years (in percent), and crude rate x 100,000 filtered by type of cancer (cause of death).
| |
|
| |
| *AMICAES: Mobile app [https://www.isciii.es/QueHacemos/Servicios/VigilanciaSaludPublicaRENAVE/EnfermedadesCronicas/Paginas/apps.aspx] - Presents colorful maps to show municipal cancer mortality in Spain.
| |
| '''Data level:''' Regional level.
| |
|
| |
| '''Access to information:''' Access information [https://www.isciii.es/QueHacemos/Servicios/VigilanciaSaludPublicaRENAVE/Paginas/default.aspx].
| |
| </div> | | </div> |
|
| |
|
| Line 313: |
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|
| |
|
| === [[hasDatabase::Database:_National_Health_Survey_(ENSE)_(Spain)|Database: National Health Survey (ENSE)]] === | | === [[hasDatabase::Database:_National_Health_Survey_(ENSE)_(Spain)|Database: National Health Survey (ENSE)]] === |
|
| |
| [https://www.sanidad.gob.es/estadEstudios/estadisticas/encuestaNacional/home.htm]
| |
| [https://www.ine.es/metodologia/t15/ense_inf_meto_17.pdf]
| |
|
| |
| '''Primary purpose:''' It is an essential tool for the knowledge of citizens' health, which collaborates with health research and planning of policy making.
| |
|
| |
| '''Sponsor, manager or home institution''': Ministerio de Sanidad and Instituto Nacional de Estadística (INE).
| |
|
| |
| '''Type of information''': Contains information about health status, comprising the occurrence of malign tumors, access to health care, and measure of determinants of health. Monographic reports are also published, including reports on early cancer detection in the nation. All the indicators and variables used in the surveys can be checked in this document [https://www.ine.es/metodologia/t15/ense_inf_meto_17.pdf].
| |
|
| |
| '''Source of information''': Populational surveys.
| |
|
| |
| '''Data level''': Regional level and Patient level.
| |
|
| |
| '''Number of Records:''' Varies accordingly to the year. Information about the amount of data can be found within the methodology document for each year [https://www.ine.es/dyngs/INEbase/es/operacion.htm?c=Estadistica_C&cid=1254736176783&menu=metodologia&idp=1254735573175].
| |
|
| |
| '''Date range''': 2017, 2011/2012, 2006, 2003, 2001, 1997, 1995, 1993, and 1987. Since 2009, it takes place on a 5-year basis.
| |
|
| |
| '''Cancer Areas of Interest:''' Cervical, vaginal, and breast cancer. Other indicators present in the study can be related to different types of cancer.
| |
|
| |
| '''Data access''': Partially publicly available [https://www.sanidad.gob.es/estadEstudios/estadisticas/encuestaNacional/home.htm], [https://www.sanidad.gob.es/estadEstudios/estadisticas/solicitud.htm].
| |
|
| |
| '''Contact information''': Information [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm].
| |
|
| |
|
| === [[hasDatabase::Survey:_Oncobarómetro_(Spain)|Survey: Oncobarómetro]] === | | === [[hasDatabase::Survey:_Oncobarómetro_(Spain)|Survey: Oncobarómetro]] === |
|
| |
| '''Primary purpose:''' To gather comprehensive information on various aspects of health, including subjective health assessments, lifestyle, health advice, disease expectations, research priorities, cancer awareness, healthcare preferences, and personal demographics in Spain.
| |
|
| |
| '''Sponsor, manager or home institution:''' Foundation of the Spanish Association Against Cancer (AECC).
| |
|
| |
| '''Type of information:''' [[Data Dictionary: Oncobarómetro]]. Questionnaire information [https://www.cis.es/cis/export/sites/default/-Archivos/Marginales/2840_2859/2848/cues2848.pdf]. More information [https://www.cis.es/cis/opencm/ES/1_encuestas/estudios/ver.jsp?estudio=12124&cuestionario=14298&muestra=20139].
| |
|
| |
| '''Data level:''' Respondent level.
| |
|
| |
| '''Available data level:''' National level.
| |
|
| |
| '''Number of Records:''' 7.938 interviews.
| |
|
| |
| '''Date Range:''' 2010.
| |
|
| |
| '''Cancer Areas of Interest:''' All.
| |
|
| |
| '''Data access:''' Publicly available [https://www.cis.es/cis/export/sites/default/-Archivos/Marginales/2840_2859/2848/ES2848.pdf].
| |
|
| |
| '''Contact information:''' Information [https://www.cis.es/cis/opencms/ES/10_contactar/].
| |
| </div> | | </div> |
|
| |
|
| Line 363: |
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| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| === [[hasClinicalGuidelines::SEOM_Guidelines_(Spain)|SEOM Guidelines]] === | | === [[hasClinicalGuidelines::SEOM_Guidelines_(Spain)|Guidelines: SEOM Guidelines]] === |
|
| |
|
| '''Sponsor, manager or home institution:''' Sociedad Española de Oncología Médica (SEOM) and other intitutions.
| | === [[hasClinicalGuidelines::GEICAM_Guidelines_(Spain)|Guidelines: GEICAM Guidelines]] === |
| | |
| '''Primary purpose:''' To improve the prevention, diagnosis, treatment, and follow-up of cancer through multidisciplinary approaches by promoting studies, educational activities, research, and dissemination of information for professionals, patients, and the general public.
| |
| | |
| '''Type of information:''' Diagnosis and staging, treatments, and recommendations of various types of cancer.
| |
| | |
| '''Access to information:''' List of guidelines [https://seom.org/publicaciones/guias-clinicas/105418-guias-clinicas-seom].
| |
| </div>
| |
|
| |
|
| == Latest Policymaking Initiatives == | | == Latest Policymaking Initiatives == |
| Line 378: |
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|
| |
|
| === [[hasReport::Reports:_Ministry_of_Health_(Spain)|Reports: Ministry of Health]] === | | === [[hasReport::Reports:_Ministry_of_Health_(Spain)|Reports: Ministry of Health]] === |
|
| |
| '''Sponsor, manager or home institution:''' Ministerio de Sanidad; Encuesta Nacional de Salud de España (ENSE).
| |
|
| |
| '''Primary purpose:''' To provide data and insights on the population's health and the public healthcare system, guiding and improving health policies and strategies.
| |
|
| |
| '''Type of information:''' Tumors prevalence and incidence; Most frequent tumors; Mortality rate; Coverage of the breast, cervical and colorectal cancer screening program; Time since last screening.
| |
|
| |
| '''Data level:''' National and regional level.
| |
|
| |
| '''Access to information:''' Access Information [https://www.sanidad.gob.es/estadEstudios/estadisticas/sisInfSanSNS/tablasEstadisticas/InfAnualSNS2020_21/INFORME_ANUAL_2020_21.pdf]. Screening programs [https://www.sanidad.gob.es/estadEstudios/estadisticas/encuestaNacional/encuestaNac2017/DETECCION_PRECOZ_CANCER.pdf].
| |
|
| |
|
| === [[hasReport::Report:_Spanish_Association_Against_Cancer_(Spain)|Report: Spanish Association Against Cancer]] === | | === [[hasReport::Report:_Spanish_Association_Against_Cancer_(Spain)|Report: Spanish Association Against Cancer]] === |
|
| |
| '''Sponsor, manager or home institution:''' Asociación Española Contra el Cáncer.
| |
|
| |
| '''Primary purpose:''' To address the current challenges and future prospects of palliative care and end-of-life support for the oncology population in Spain, focusing on multidisciplinary perspectives and biopsychosocial approaches.
| |
|
| |
| '''Type of information:''' Estimation of the population with palliative needs; Evolution of the percentage of deaths of cancer patients; Number of palliative resources for adults; Social variables that hinder access to palliative care; Percentage of patients who receive radiotherapy; Percentage of patients who consume some pharmaceutical product directly derived from their treatment; Radiotherapy costs.
| |
|
| |
| '''Data level:''' National and regional level.
| |
|
| |
| '''Access to information:''' Access Information [https://observatorio.contraelcancer.es/sites/default/files/informes/Observatorio%20Informe%20Paliativos_v6.pdf]; Radiotherapy information [https://seor.es/wp-content/uploads/2020/07/Informe_AECC_radioterapia.pdf].
| |
|
| |
|
| === [[hasReport::Report:_Spanish_Group_of_Cancer_Patients_(Spain)|Report: Spanish Group of Cancer Patients]] === | | === [[hasReport::Report:_Spanish_Group_of_Cancer_Patients_(Spain)|Report: Spanish Group of Cancer Patients]] === |
|
| |
| '''Sponsor, manager or home institution:''' Grupo Español de Pacientes con Cáncer.
| |
|
| |
| '''Primary purpose:''' To address the specific needs and challenges faced by cancer survivors and advocate for effective measures and plans to support their well-being, reintegration into daily life, and overall quality of life after cancer treatments.
| |
|
| |
| '''Type of information:''' Type of cancer and the treatment received; Time elapsed since the end of the treatments; Social, emotional and physical impacts on cancer patients.
| |
|
| |
| '''Data level:''' National level.
| |
|
| |
| '''Access to information:''' Access Information [https://www.gepac.es/docs/informe_supervivientes.pdf].
| |
|
| |
|
| === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Spain)|Report: EU Country Cancer Profile 2023]] === | | === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Spain)|Report: EU Country Cancer Profile 2023]] === |
|
| |
|
| '''Sponsor, manager or home institution:''' OECD and European Commission.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Spain)|Report: EU Country Cancer Profile 2025]] === |
| | |
| '''Primary purpose:''' To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
| |
| | |
| '''Type of information:''' National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
| |
|
| |
|
| '''Data level''': National level.
| | === [[hasReport::Report:_Euskadi_Oncology_Plan_2018-2023_(Spain)|Report: Euskadi Oncology Plan 2018-2023]] === |
|
| |
|
| '''Access to information:''' Access Information [https://www.oecd-ilibrary.org/social-issues-migration-health/perfiles-nacionales-de-cancer-espana-2023_bab6e2e3-es].
| | === [[hasReport::Report:_All.Can_Spain_—_Optimising_Cancer_Diagnosis_Recommendations_(Spain)|Report: All.Can Spain — Optimising Cancer Diagnosis Recommendations]] === |
| </div>
| |
|
| |
|
| == Cancer-related Patient Associations and Resources == | | == Cancer-related Patient Associations and Resources == |
| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| === [[hasPatientAssociation::Patient_Associations_(Spain)|Patient Associations]] === | | === [[hasPatientAssociation::Patient Association: Federación Española de Cáncer de Mama (Europa Donna Spain) (Spain)|Patient Association: Federación Española de Cáncer de Mama (Europa Donna Spain)]] === |
|
| |
|
| '''Sponsor, manager or home institution:''' Various institutions.
| | === [[hasPatientAssociation::Patient_Associations_and_Foundations_(Spain)|Patient Associations and Foundations]] === |
|
| |
|
| '''Primary purpose:''' These associations primarily focus on cancer prevention, support, and research to improve the well-being of affected individuals and their families.
| | === [[hasPatientAssociation::Regional_Breast_Patient_Associations_(Spain)|Regional Breast Patient Associations]] === |
|
| |
|
| '''Access to information:''' Information [https://canalsalut.gencat.cat/ca/salut-a-z/c/cancer/recursos/associacions-pacients/].
| | === [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Spain)|Patient Guides: ESMO Patient Guides Compilation]] === |
|
| |
|
| === [[hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Spain)|Compilation: ESMO Patient Guides]] === | | === [[hasPatientResource::Self-help_Group:_Alivia_Oncology_Foundation_Spain_(Spain)|Self-help Group: Alivia Oncology Foundation Spain]] === |
| | |
| '''Sponsor, manager or home institution:''' European Society for Medical Oncology.
| |
| | |
| '''Primary purpose:''' To translate complex medical language into understandable information for patients.
| |
| | |
| '''Available guides:''' Cancer Care During the COVID-19 Pandemic; Cancer-Related Pain; Immunotherapy-Related Side Effects and Their Management;
| |
| Survivorship; Personalized Medicine; Colorectal Cancer; Head and Neck Cancer; Cervical Cancer; Endometrial Cancer; Glioma; Hepatocellular Carcinoma; LMA; CML; Follicular Lymphoma; Breast Cancer; Multiple Myeloma; Ovarian Cancer; Pancreatic Cancer; Non-Small Cell Lung Cancer; Testicular Cancer; Soft Tissue Sarcomas; Bone Sarcomas.
| |
| | |
| '''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
| |
| | |
| '''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-spanish].
| |
| </div> | | </div> |
|
| |
|
| == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Spain)|Quality of Life and Palliative Care Research]] == | | == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Spain)|Quality of Life and Palliative Care Research]] == |
| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| '''List of Articles:''' Quality of Life [https://pubmed.ncbi.nlm.nih.gov/?term=Quality+of+Life%5BMeSH%5D+AND+Spain%5BAffiliation%5D+AND+cancer&filter=pubt.clinicaltrial&filter=pubt.meta-analysis&filter=pubt.randomizedcontrolledtrial&filter=pubt.systematicreview] and Palliative Care [https://pubmed.ncbi.nlm.nih.gov/?term=Palliative+Care%5BMeSH%5D+AND+Spain%5BAffiliation%5D+AND+cancer&filter=pubt.clinicaltrial&filter=pubt.meta-analysis&filter=pubt.randomizedcontrolledtrial&filter=pubt.systematicreview]. | | |
| </div> | | __NOTOC__ |
| | <span style="display:none">hasCancerCenter::Fundación Instituto Valenciano de Oncología IVO</span> |
| | <span style="display:none">hasCancerCenter::Vall d'Hebron Barcelona Hospital Campus</span> |
| | <span style="display:none">hasCancerCenter::Catalan Institute of Oncology</span> |
| | <span style="display:none">hasHealthcareSystem::Healthcare_System_(Spain)|Healthcare System</span> |
| | <span style="display:none">hasDatabase::Database:_The_Registry_of_Specialized_Health_Care_Activity_(RAE-CMBD)_(Spain)|Database: The Registry of Specialized Health Care Activity (RAE-CMBD)</span> |
| | <span style="display:none">hasDatabase::Database:_The_Specialized_Care_Information_System_(SIAE)_(Spain)|Database: The Specialized Care Information System (SIAE)</span> |
| | <span style="display:none">hasDatabase::Database:_Primary_Care_Clinical_Data_Base_(BDCAP)_(Spain)|Database: Primary Care Clinical Data Base (BDCAP)</span> |
| | <span style="display:none">hasDatabase::Database:_Hospital_Morbidity_Survey_(EMH)_(Spain)|Database: Hospital Morbidity Survey (EMH)</span> |
| | <span style="display:none">hasDatabase::Database: Death Statistics by Cause of Death (INE) (Spain)|Database: Death Statistics by Cause of Death (INE)</span> |
| | <span style="display:none">hasDatabase::Database:_Spanish_Registry_of_Pediatric_Tumours_(RETI-SEHOP)_(Spain)|Database: Spanish Registry of Pediatric Tumours (RETI-SEHOP)</span> |
| | <span style="display:none">hasDatabase::Database:_Annual_Report_of_the_National_Health_System_(Spain)|Database: Annual Report of the National Health System</span> |
| | <span style="display:none">hasDatabase::Database:_Mortality_by_cause_of_death_(Spain)|Database: Mortality by cause of death</span> |
| | <span style="display:none">hasDatabase::Database:_Late_Fetal_and_Infant_Mortality_(Spain)|Database: Late Fetal and Infant Mortality</span> |
| | <span style="display:none">hasDatabase::Compilation:_Cancer_Registries_of_Autonomous_Communities_(Spain)|Compilation: Cancer Registries of Autonomous Communities</span> |
| | <span style="display:none">hasDatabase::Public_Health_Surveillance_(RENAVE)_(Spain)|Public Health Surveillance (RENAVE)</span> |
| | <span style="display:none">hasDatabase::Database:_National_Health_Survey_(ENSE)_(Spain)|Database: National Health Survey (ENSE)</span> |
| | <span style="display:none">hasDatabase::Survey:_Oncobarómetro_(Spain)|Survey: Oncobarómetro</span> |
| | <span style="display:none">hasClinicalGuidelines::SEOM_Guidelines_(Spain)|SEOM Guidelines</span> |
| | <span style="display:none">hasClinicalGuidelines::GEICAM_Guidelines_(Spain)|GEICAM Guidelines</span> |
| | <span style="display:none">hasReport::Reports:_Ministry_of_Health_(Spain)|Reports: Ministry of Health</span> |
| | <span style="display:none">hasReport::Report:_Spanish_Association_Against_Cancer_(Spain)|Report: Spanish Association Against Cancer</span> |
| | <span style="display:none">hasReport::Report:_Spanish_Group_of_Cancer_Patients_(Spain)|Report: Spanish Group of Cancer Patients</span> |
| | <span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Spain)|Report: EU Country Cancer Profile 2023</span> |
| | <span style="display:none">hasReport::Report:_Euskadi_Oncology_Plan_2018-2023_(Spain)|Report: Euskadi Oncology Plan 2018-2023</span> |
| | <span style="display:none">hasPatientAssociation::Patient_Associations_and_Foundations_(Spain)|Patient Associations and Foundations</span> |
| | <span style="display:none">hasPatientAssociation::Regional_Breast_Patient_Associations_(Spain)|Regional Breast Patient Associations</span> |
| | <span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Spain)|Compilation: ESMO Patient Guides</span> |
| | <span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Spain)|Quality of Life and Palliative Care Research</span> |
| | <span style="display:none">hasClinicalGuidelines::SEOM_Guidelines_(Spain)|Guidelines: SEOM Guidelines</span> |
| | <span style="display:none">hasClinicalGuidelines::GEICAM_Guidelines_(Spain)|Guidelines: GEICAM Guidelines</span> |
| | <span style="display:none">hasDatabase::Databases: Cancer Registries of Autonomous Communities Compilation (Spain)|Databases: Cancer Registries of Autonomous Communities Compilation</span> |
| | <span style="display:none">hasDatabase::Public_Health_Surveillance_(RENAVE)_(Spain)|Database: Public Health Surveillance (RENAVE)</span> |
| | <span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Spain)|Patient Guides: ESMO Patient Guides Compilation</span> |
| | <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> |
| | <span style="display:none">hasCancerType::C00-C97: All cancer types</span> |
| | <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> |
| | <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> |
| | <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> |
| | <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> |
| | <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> |
| | <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> |
| | <span style="display:none">hasCancerType::C50: Breast cancer</span> |
| | <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> |
| | <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> |
| | <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> |
| | <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> |
| | <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> |
| | <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> |
| | <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> |
| | <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> |
| | <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> |
| | <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> |
| | <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> |
| | <span style="display:none">hasCancerType::unknown</span> |
