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| == [[Cancer Centers]] == | | <span style="display:none">forresearchers</span> |
| | <span style="display:none">forpatients</span> |
| | <span style="display:none">forproviders</span> |
| | <span style="display:none">forpolicymakers</span> |
| | <span style="display:none">spaincountry</span> |
| | [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] |
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| == [[Healthcare System]] == | | == Cancer Centers == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| Spain's healthcare system is the Sistema Nacional de Salud (SNS), a universal health system that covers 99% of the Spanish population and is funded by general taxation. The administration is divided at the national and regional level, with the national level managed by the Ministry of Health, Consumer Affairs and Social Welfare, whereas the 17 regional health departments manage the regional level. Both collaborate through the SNS Interterritorial Council in order to implement policy at the regional and national level.
| | [[hasCancerCenter::Fundación Instituto Valenciano de Oncología IVO]] |
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| The General Secretariat of Digital Health, Information and Innovation of the SNS is the body responsible for implementing the Digital Health Strategy of the SNS, which aims to improve the health of every Spanish citizen through the increased adoption of digital health solutions for healthcare and the development of infrastructures that allow providers to use data to help their patients.
| | [[hasCancerCenter::Vall d'Hebron Barcelona Hospital Campus]] |
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| The Instituto de Salud Carlos III (ISCIII) is a public research agency integrated with the Ministry of Science and Innovation and the Ministry of Health, and is responsible for conducting health research that aims to improve the health of the people, offer scientific and technical advice for policymaking, as well as develop educational programs for the entire SNS system.
| | [[hasCancerCenter::Catalan Institute of Oncology]] |
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| The Spanish Network of Cancer Registries (REDECAN) was created in 2010 to assure the quality of information related to the incidence, survival, and prevalence of cancer in Spain and improve collection and analysis of this data, originally collected by the individual communities' cancer registries of Spain. It monitors plenty variables including cancer trends, geographic distribution, impact of cancer prevention and treatments.
| | </div> |
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| Other major institutions related to healthcare and health research include the National Institute of Statistics and the National Drug Agency.
| | == [[hasHealthcareSystem::Healthcare_System_(Spain)|Healthcare System]] == |
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| == [[Administrative or Claims Data]] == | | == Administrative or Claims Data == |
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| === [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/rae-cmbd Database: The Registry of Specialized Health Care Activity (RAE-CMBD)] === | | === [[hasDatabase::Database:_The_Registry_of_Specialized_Health_Care_Activity_(RAE-CMBD)_(Spain)|Database: The Registry of Specialized Health Care Activity (RAE-CMBD)]] === |
| [https://www.boe.es/buscar/act.php?id=BOE-A-2015-1235 [1]] [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/D/rae-cmbd/serie-historica/glosario-de-terminos-y-definiciones/glosario-de-terminos-y-definiciones [2]]
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
| | === [[hasDatabase::Database:_The_Specialized_Care_Information_System_(SIAE)_(Spain)|Database: The Specialized Care Information System (SIAE)]] === |
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| '''Type of information''': Presents administrative and clinical information on patients treated in the different Specialized Care and outpatient care modalities in the public or private sector. Includes hospitalization, home hospitalization care modalities, medical day hospital, outpatient surgery, outpatient procedures of special complexity and emergencies.
| | === [[hasDatabase::Database:_Primary_Care_Clinical_Data_Base_(BDCAP)_(Spain)|Database: Primary Care Clinical Data Base (BDCAP)]] === |
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| General information about the hospitalization; morbidity data (main and secondary diagnosis registered using CIE9MC and CIE10ES, and age-adjusted hospitalization rates); procedures performed (registered using CCS).
| | === [[hasDatabase::Database:_Hospital_Morbidity_Survey_(EMH)_(Spain)|Database: Hospital Morbidity Survey (EMH)]] === |
| | </div> |
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| The available variables are year, age, sex, region of residence, hospital region, type of patient admission, type of patient discharge, financing system, performed service at discharge in hospitalization, group of hospitals, type of hospital (public or private), size of the hospital by number of beds.
| | == Registries == |
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| Detailed information about the information contained in the register can be checked [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/D/rae-cmbd/serie-historica/glosario-de-terminos-y-definiciones/glosario-de-terminos-y-definiciones here].
| | === [[hasDatabase::Database: Death Statistics by Cause of Death (INE) (Spain)|Database: Death Statistics by Cause of Death (INE)]] === |
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| '''Source of information''': Reports from the providers that are sent to the Ministry of health.
| | === [[hasDatabase::Database:_Spanish_Registry_of_Pediatric_Tumours_(RETI-SEHOP)_(Spain)|Database: Spanish Registry of Pediatric Tumours (RETI-SEHOP)]] === |
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| '''Data level''': Regional level (openly available) and Patient level (restricted access).
| | === [[hasDatabase::Database:_Annual_Report_of_the_National_Health_System_(Spain)|Database: Annual Report of the National Health System]] === |
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| '''Date range''': Varies accordingly to the category of care. Hospitalization (1997 onwards), acute care (1997 onwards), ambulatory care (2004 onwards). Informations regarding the private sector are available from 2005 onwards.
| | === [[hasDatabase::Database:_Mortality_by_cause_of_death_(Spain)|Database: Mortality by cause of death]] === |
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| '''Data access''': The openly available content can be accessed [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/rae-cmbd here]. To request data extraction, follow the instructions presented [https://sanidad.gob.es/estadEstudios/estadisticas/estadisticas/estMinisterio/SolicitudCMBD.htm here].
| | === [[hasDatabase::Database:_Late_Fetal_and_Infant_Mortality_(Spain)|Database: Late Fetal and Infant Mortality]] === |
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| '''Information/contact for data request''': [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm Contact information].
| | === [[hasDatabase::Databases: Cancer Registries of Autonomous Communities Compilation (Spain)|Databases: Cancer Registries of Autonomous Communities Compilation]] === |
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| <!--
| | === [[hasDatabase::Public_Health_Surveillance_(RENAVE)_(Spain)|Database: Public Health Surveillance (RENAVE)]] === |
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
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| '''Type of information''':
| | == Databases for Clinical Trials, Surveys and Biobanks == |
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| '''Source of information''':
| | === [[hasDatabase::Database:_National_Health_Survey_(ENSE)_(Spain)|Database: National Health Survey (ENSE)]] === |
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| '''Data level''':
| | === [[hasDatabase::Survey:_Oncobarómetro_(Spain)|Survey: Oncobarómetro]] === |
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| '''Date range''':
| | == Clinical Practices Guidelines == |
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| '''Data access''':
| | === [[hasClinicalGuidelines::SEOM_Guidelines_(Spain)|Guidelines: SEOM Guidelines]] === |
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| '''Information/contact for data request''': [ Contact information].
| | === [[hasClinicalGuidelines::GEICAM_Guidelines_(Spain)|Guidelines: GEICAM Guidelines]] === |
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| == [[Registries]] == | | == Latest Policymaking Initiatives == |
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| === [http://inclasns.msssi.es/main.html Database: Main indicators of The National Health System (INCLASNS)] === | | === [[hasReport::Reports:_Ministry_of_Health_(Spain)|Reports: Ministry of Health]] === |
| [http://inclasns.msssi.es/doc/Metodologia_INCLASNS_V2.pdf [3]]
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| '''Primary purpose:''' Facilitates access to information that is already individually presented by official statistical institutions. The database does so by reuniting important indicators to research healthcare functioning and general health quality.
| | === [[hasReport::Report:_Spanish_Association_Against_Cancer_(Spain)|Report: Spanish Association Against Cancer]] === |
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
| | === [[hasReport::Report:_Spanish_Group_of_Cancer_Patients_(Spain)|Report: Spanish Group of Cancer Patients]] === |
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| '''Type of information''': Cancer mortality tax (premature and non-premature adjusted by age, per 100 000 hab) and pertinence of conservative surgery in breast cancer in percentage. Full list of indicators can be checked [http://inclasns.msssi.es/sheets.html here].
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Spain)|Report: EU Country Cancer Profile 2023]] === |
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| '''Source of information''': El Sistema de Información del Sistema Nacional de Salud and other sources (Instituto Nacional de
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Spain)|Report: EU Country Cancer Profile 2025]] === |
| Estadística, Centro Nacional de Epidemiología, Agencia Española de Medicamentos y Productos Sanitarios, etc.)
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| '''Data level''': Regional level.
| | === [[hasReport::Report:_Euskadi_Oncology_Plan_2018-2023_(Spain)|Report: Euskadi Oncology Plan 2018-2023]] === |
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| '''Number of Records:''' Includes 247 indicators.
| | === [[hasReport::Report:_All.Can_Spain_—_Optimising_Cancer_Diagnosis_Recommendations_(Spain)|Report: All.Can Spain — Optimising Cancer Diagnosis Recommendations]] === |
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| '''Date range''': 1990 onwards.
| | == Cancer-related Patient Associations and Resources == |
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| '''Cancer Areas of Interest:''' Unknown.
| | === [[hasPatientAssociation::Patient Association: Federación Española de Cáncer de Mama (Europa Donna Spain) (Spain)|Patient Association: Federación Española de Cáncer de Mama (Europa Donna Spain)]] === |
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| '''Data access''': Openly available [http://inclasns.msssi.es/main.html here].
| | === [[hasPatientAssociation::Patient_Associations_and_Foundations_(Spain)|Patient Associations and Foundations]] === |
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| '''Information/contact for data request''': [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm Contact information].
| | === [[hasPatientAssociation::Regional_Breast_Patient_Associations_(Spain)|Regional Breast Patient Associations]] === |
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| === Database: Spanish Registry of Pediatric Tumors (RETI-SEHOP) === | | === [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Spain)|Patient Guides: ESMO Patient Guides Compilation]] === |
| [https://www.uv.es/rnti/pdfs/Informe_RETI-SEHOP_1980-2021.pdf [4]]
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| '''Primary purpose:''' Collects data and produces epidemiology research about childhood cancer.
| | === [[hasPatientResource::Self-help_Group:_Alivia_Oncology_Foundation_Spain_(Spain)|Self-help Group: Alivia Oncology Foundation Spain]] === |
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| '''Sponsor, manager or home institution''': Sociedad Española de Hematología y Oncología Pediátricas (SEHOP) and Universitat de València (UV).
| | == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Spain)|Quality of Life and Palliative Care Research]] == |
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| '''Type of information''': Survival (3 and 5 years after diagnosis), incidence, medical treatment coverage in percentage, and cancer causes filtered by region, sex, and year.
| | __NOTOC__ |
| | | <span style="display:none">hasCancerCenter::Fundación Instituto Valenciano de Oncología IVO</span> |
| '''Source of information''': Reports from all Spanish pediatric oncologic and hematologic hospital unities. The list of institutions can be checked [https://www.uv.es/rnti/pdfs/Listado%20CI.pdf here].
| | <span style="display:none">hasCancerCenter::Vall d'Hebron Barcelona Hospital Campus</span> |
| | | <span style="display:none">hasCancerCenter::Catalan Institute of Oncology</span> |
| '''Data level''': Regional level.
| | <span style="display:none">hasHealthcareSystem::Healthcare_System_(Spain)|Healthcare System</span> |
| | | <span style="display:none">hasDatabase::Database:_The_Registry_of_Specialized_Health_Care_Activity_(RAE-CMBD)_(Spain)|Database: The Registry of Specialized Health Care Activity (RAE-CMBD)</span> |
| '''Number of Records:''' Covers more than 90% of national children cases. Between 1980-2021 there were 31.275 incidence cases registered.
| | <span style="display:none">hasDatabase::Database:_The_Specialized_Care_Information_System_(SIAE)_(Spain)|Database: The Specialized Care Information System (SIAE)</span> |
| | | <span style="display:none">hasDatabase::Database:_Primary_Care_Clinical_Data_Base_(BDCAP)_(Spain)|Database: Primary Care Clinical Data Base (BDCAP)</span> |
| '''Date range''': Varies accordingly to selected indicators: survival (1980-2004), incidence (1983-2002), medical treatment coverage (1980-2012).
| | <span style="display:none">hasDatabase::Database:_Hospital_Morbidity_Survey_(EMH)_(Spain)|Database: Hospital Morbidity Survey (EMH)</span> |
| | | <span style="display:none">hasDatabase::Database: Death Statistics by Cause of Death (INE) (Spain)|Database: Death Statistics by Cause of Death (INE)</span> |
| '''Cancer Areas of Interest:''' The list can be checked at the pages XXXII - XXXV of [https://www.uv.es/rnti/pdfs/Informe_RETI-SEHOP_1980-2021.pdf this] document.
| | <span style="display:none">hasDatabase::Database:_Spanish_Registry_of_Pediatric_Tumours_(RETI-SEHOP)_(Spain)|Database: Spanish Registry of Pediatric Tumours (RETI-SEHOP)</span> |
| | | <span style="display:none">hasDatabase::Database:_Annual_Report_of_the_National_Health_System_(Spain)|Database: Annual Report of the National Health System</span> |
| '''Data access''': By the RETI annual report, available [https://www.uv.es/rnti/informes.html here].
| | <span style="display:none">hasDatabase::Database:_Mortality_by_cause_of_death_(Spain)|Database: Mortality by cause of death</span> |
| | | <span style="display:none">hasDatabase::Database:_Late_Fetal_and_Infant_Mortality_(Spain)|Database: Late Fetal and Infant Mortality</span> |
| '''Information/contact for data request''': Can be acquired at the SEHOP [https://www.sehop.org/quienes-somos/ website].
| | <span style="display:none">hasDatabase::Compilation:_Cancer_Registries_of_Autonomous_Communities_(Spain)|Compilation: Cancer Registries of Autonomous Communities</span> |
| | | <span style="display:none">hasDatabase::Public_Health_Surveillance_(RENAVE)_(Spain)|Public Health Surveillance (RENAVE)</span> |
| === [https://www.sanidad.gob.es/estadEstudios/estadisticas/sisInfSanSNS/tablasEstadisticas/InfAnSNSAnosanteriores.htm Database: Annual Report of the National Health System] ===
| | <span style="display:none">hasDatabase::Database:_National_Health_Survey_(ENSE)_(Spain)|Database: National Health Survey (ENSE)</span> |
| | | <span style="display:none">hasDatabase::Survey:_Oncobarómetro_(Spain)|Survey: Oncobarómetro</span> |
| '''Primary purpose:''' Provides information about the health of the Spanish population and details about the operation and results of the National Health System (SNS).
| | <span style="display:none">hasClinicalGuidelines::SEOM_Guidelines_(Spain)|SEOM Guidelines</span> |
| | | <span style="display:none">hasClinicalGuidelines::GEICAM_Guidelines_(Spain)|GEICAM Guidelines</span> |
| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
| | <span style="display:none">hasReport::Reports:_Ministry_of_Health_(Spain)|Reports: Ministry of Health</span> |
| | | <span style="display:none">hasReport::Report:_Spanish_Association_Against_Cancer_(Spain)|Report: Spanish Association Against Cancer</span> |
| '''Type of information''': Population information, health status (well-being, morbidity, mortality), social determinants of health (socioeconomic determinant factors, lifestyles), and sanitary system (health care, accessibility, experience, patient, physical resources, human resources, and expenses). Some of the information in the reports is related to cancer diagnosis.
| | <span style="display:none">hasReport::Report:_Spanish_Group_of_Cancer_Patients_(Spain)|Report: Spanish Group of Cancer Patients</span> |
| | | <span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Spain)|Report: EU Country Cancer Profile 2023</span> |
| The 2020-2021 report also includes information on the response of health services to COVID-19 (capacity of care, care activity related to COVID-19, impact on accessibility to the health system, impact on ordinary care activity, experience of the population, covid vaccination, diagnostic capacity, and pharmaceutical service). | | <span style="display:none">hasReport::Report:_Euskadi_Oncology_Plan_2018-2023_(Spain)|Report: Euskadi Oncology Plan 2018-2023</span> |
| | | <span style="display:none">hasPatientAssociation::Patient_Associations_and_Foundations_(Spain)|Patient Associations and Foundations</span> |
| '''Source of information''': Data collected from the Councils of Health of the autonomous communities, the National Institute of Health Management and surveys.
| | <span style="display:none">hasPatientAssociation::Regional_Breast_Patient_Associations_(Spain)|Regional Breast Patient Associations</span> |
| | | <span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Spain)|Compilation: ESMO Patient Guides</span> |
| '''Data level''': Regional level.
| | <span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Spain)|Quality of Life and Palliative Care Research</span> |
| | | <span style="display:none">hasClinicalGuidelines::SEOM_Guidelines_(Spain)|Guidelines: SEOM Guidelines</span> |
| '''Number of Records:''' Unknown.
| | <span style="display:none">hasClinicalGuidelines::GEICAM_Guidelines_(Spain)|Guidelines: GEICAM Guidelines</span> |
| | | <span style="display:none">hasDatabase::Databases: Cancer Registries of Autonomous Communities Compilation (Spain)|Databases: Cancer Registries of Autonomous Communities Compilation</span> |
| '''Date range''': 2003 onwards.
| | <span style="display:none">hasDatabase::Public_Health_Surveillance_(RENAVE)_(Spain)|Database: Public Health Surveillance (RENAVE)</span> |
| | | <span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Spain)|Patient Guides: ESMO Patient Guides Compilation</span> |
| '''Cancer Areas of Interest:''' Unknown.
| | <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> |
| | | <span style="display:none">hasCancerType::C00-C97: All cancer types</span> |
| '''Data access''': Openly available [https://www.sanidad.gob.es/estadEstudios/estadisticas/sisInfSanSNS/tablasEstadisticas/InfAnSNS.htm here].
| | <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> |
| | | <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> |
| '''Information/contact for data request''': [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm Contact information].
| | <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> |
| | | <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> |
| === [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/mortalidad-por-causa-de-muerte Database: Mortality by cause of death] ===
| | <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> |
| [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/D/mortalidad-fetal-tardia-e-infantil/anexos/notas-metodologicas [5]]
| | <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> |
| | | <span style="display:none">hasCancerType::C50: Breast cancer</span> |
| '''Primary purpose:''' Provides death statistics to enable monitoring and health measures to be taken.
| | <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> |
| | | <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> |
| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
| | <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> |
| | | <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> |
| '''Type of information''': Crude mortality rates, age-adjusted mortality rates, and age-adjusted premature mortality rates. Those can be filtered by sex, cause of death (including cancer diagnosis), year, and geographic region.
| | <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> |
| | | <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> |
| '''Source of information''': Mortality register by cause of death, made by the National Statistics Institute (INE) form the Medical Certificate of Death/Death Statistical Bulletin (CMD/BED) and the Birth Statistical Bulletin (BEP).
| | <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> |
| | | <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> |
| '''Data level''': Regional level.
| | <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> |
| | | <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> |
| '''Number of Records:''' Unknown.
| | <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> |
| | | <span style="display:none">hasCancerType::unknown</span> |
| '''Date range''': 1981 onwards.
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| '''Cancer Areas of Interest:''' (C00-D48) Tumors. (C00-C14) Malignant tumors of lip, oral cavity and pharynx, (C15-C26) Malignant tumors of digestive organs, (C30-C39) Malignant tumors of respiratory and intrathoracic organs, (C40-C41) Malignant tumors of bone and articular cartilage, (C43-C44) Melanoma and other malignant tumors of the skin, (C45- C49) Malignant tumors of mesothelial tissues and soft tissues, (C50) Malignant tumors of breast, (C51-C58) Malignant tumors of female genital organs, (C60-C63) Malignant tumors of male genital organs, (C64-C68) Malignant tumors of urinary tract, (C69-C72) Malignant tumors of eye, brain and other parts of central nervous system, (C73-C75) Malignant tumors of thyroid and other endocrine glands, (C76-C80) Malignant tumors of ill-defined, secondary and unspecified sites, (C81-C96) Primary malignant tumors of lymphatic tissue, hematopoietic organs and related tissues, (C97) Primary malignant tumors of multiple independent sites, (D00-D09) Neoplasms in situ, (D10-D36) Benign tumors, (D37-D48) Tumors of uncertain or unknown behavior.
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| '''Data access''': Openly available [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/mortalidad-por-causa-de-muerte here].
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| '''Information/contact for data request''': [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm Contact information].
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| === [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/mortalidad-fetal-tardia-e-infantil Database: Late Fetal and Infant Mortality] === | |
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| '''Primary purpose:''' Contains statistical information about national children death.
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
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| '''Type of information''': Number of late fetal mortality and infant mortality filtered by age, sex, geographic region, year and basic cause of death (including cancer diagnosis). Considering infant mortality, age of the deceased is also a filter. It is possible to analyze the rates of late fetal mortality, infant mortality and perinatal mortality.
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| '''Source of information''': The Birth Statistical Bulletin and in the Medical Certificate of Death/Death Statistical Bulletin.
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| '''Data level''': Regional level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': 1981 onwards.
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| '''Cancer Areas of Interest:''' Tumors in the C00-D48 range of the ICD10.
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| '''Data access''': Openly available [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/mortalidad-fetal-tardia-e-infantil here].
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| '''Information/contact for data request''': [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm Contact information].
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| === [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/siae Database: The Specialized Care Information System (SIAE)] === | |
| [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/D/siae/escri/ayuda/glosario-de-terminos-y-definiciones-escri [6]]
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| '''Primary purpose:''' Provide statistical information about affiliation, dependency and purpose of care, staffing, human resources, activity and economic information of both public and private hospitals nationwide.
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
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| '''Type of information''': Regarding cancer, there are data on the number of radiotherapeutic exams, interventional radiology exams, biopsies, and mammograms filtered by year, type of hospital (public or private), assistance purpose, legal form, and geographic region.
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| '''Source of information''': Unknown.
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| '''Data level''': Regional level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': 1997 onwards.
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| '''Cancer Areas of Interest:''' Unknown.
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| '''Data access''': Openly avaiable [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/siae here].
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| '''Information/contact for data request''': [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm Contact information].
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| === [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/base-de-datos-de-clinicos-de-atencion-primaria-bdcap Database: Primary Care Clinical Data Base (BDCAP)] === | |
| [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/D/base-de-datos-de-clinicos-de-atencion-primaria-bdcap/aspectos-practicos/aspectos-practicos [7]]
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| '''Primary purpose:''' Make statistics on primary level care available
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad.
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| '''Type of information''': Active health problems in the year of study, interconsultations, visits, procedures (per 1,000 persons served, per 1,000 assigned persons, absolute number of records), prescribed medications (eDfined Daily Dose -DDDD- per 1000 persons assigned/served per day), clinic parameters, comorbidity.
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| Filters available are year, sex, age, birth country, geographic region, region's extent by the number of inhabitants, annual income of patients, the employment situation of the patients, subpopulation by type of health problem, year of disease initiation, subpopulation by prescribed medication.
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| '''Source of information''': Electronic medical records.
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| '''Data level''': Regional level (openly available) and Patient level (restricted access).
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| '''Number of Records:''' Around 4,900,00 people per year.
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| '''Date range''': 2011 onwards.
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| '''Cancer Areas of Interest:''' The list can be checked in [https://www.sanidad.gob.es/estadEstudios/estadisticas/estadisticas/estMinisterio/SIAP/map_cie9mc_cie10_ciap2.htm this] website.
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| '''Data access''': Openly available [https://pestadistico.inteligenciadegestion.sanidad.gob.es/publicoSNS/S/base-de-datos-de-clinicos-de-atencion-primaria-bdcap here]. Monographic and didactic reports are also available [https://www.sanidad.gob.es/estadEstudios/estadisticas/estadisticas/estMinisterio/SIAP/home.htm here]. Access to patient level data can be required by contacting the [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm Health ministry] or by accessing [https://sanidad.gob.es/estadEstudios/estadisticas/estadisticas/estMinisterio/solicitudBDCAP.htm this] website.
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| '''Information/contact for data request''': [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm Contact information].
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| === [https://www.ine.es/dyngs/INEbase/es/operacion.htm?c=Estadistica_C&cid=1254736176778&menu=resultados&idp=1254735573175 Database: Hospital Morbidity Survey (EMH)] === | |
| [https://www.ine.es/dynt3/metadatos/es/RespuestaPrint.html?oper=147 [8]]
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| '''Primary purpose:''' To determine the geographic distribution of morbidity attended in hospitals according to the main diagnosis associated with average hospital stay and hospital discharge.
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| '''Sponsor, manager or home institution''': Instituto Nacional de Estadística (INE).
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| '''Type of information''': Available variables are the number of hospital discharges and hospital stay.
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| Filters include the main diagnosis (including cancer), type of hospital admission, reason for discharge and province of hospitalization, age, sex, and place of residence.
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| '''Source of information''': Hospital's patient register, files, and surveys.
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| '''Data level''': Regional level is openly available. Patient level requires restricted access.
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| '''Number of Records:''' Covers 90% of the hospitals and 98% of the discharges in all of Spain.
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| '''Date range''': 1978 onwards (restricted) and 1997 onwards (openly available).
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| '''Cancer Areas of Interest:''' The list can be checked in the following [https://www.ine.es/daco/daco42/sanitarias/cie_mc_emh.xls document].
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| '''Data access''': Regional data openly available [https://www.ine.es/dyngs/INEbase/es/operacion.htm?c=Estadistica_C&cid=1254736176778&menu=resultados&idp=1254735573175 here]. Reports can also be accessed [https://www.ine.es/dyngs/INEbase/es/operacion.htm?c=Estadistica_C&cid=1254736176778&menu=publi&idp=1254735573175 here]. For patient level information, follow instructions presented [https://www.ine.es/ss/Satellite?L=es_ES&c=Page&cid=1259953312408&p=1259953312408&pagename=ProductosYServicios%2FPYSLayout here].
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| '''Information/contact for data request''': [https://www.ine.es/infoine/ Contact information].
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| === [http://raziel.cne.isciii.es/ Database: Mortality Surveillance (RAZIEL)] === | |
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| '''Primary purpose:''' Provides various information related to cancer epidemiology.
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| '''Sponsor, manager or home institution''': Centro Nacional de Epidemiología (CNE) del Instituto de Salud Carlos III.
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| '''Type of information''': Maps and graphics containing mortality data filtered by sex, type of tumor, age, territory and year.
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| Available indicators are number of deaths, crude/specific rate, potential years of life lost, rate of potential years of life lost, mean age at death, rate adjusted to the European population, adjusted rate of potential years of life lost (world and European population), rate adjusted to world population.
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| '''Source of information''': Hospital reports.
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| '''Data level''': Regional level.
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| '''Number of Records:''' Unknown.
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| '''Date range''': 1980 onwards.
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| '''Cancer Areas of Interest:''' The list can be checked in the following [http://raziel.cne.isciii.es/file/wlista_cie10.htm link].
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| '''Data access''': Openly available [http://raziel.cne.isciii.es/ here].
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| '''Information/contact for data request''': [https://www.isciii.es/QuienesSomos/CentrosPropios/CNE/Paginas/Contacto.aspx Contact information].
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| === [https://www.sanidad.gob.es/estadEstudios/estadisticas/encuestaNacional/home.htm Database: National Health Survey (ENSE)] === | |
| [https://www.ine.es/metodologia/t15/ense_inf_meto_17.pdf [9]]
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| '''Primary purpose:''' It is an essential tool for the knowledge of citizens' health, which collaborates with health research and planning of policy making.
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| '''Sponsor, manager or home institution''': Ministerio de Sanidad and Instituto Nacional de Estadística (INE).
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| '''Type of information''': Contains information about health status, comprising the occurrence of malign tumors, access to health care, and measure of determinants of health. Monographic reports are also published, including reports on early cancer detection in the nation. All the indicators and variables used in the surveys can be checked [https://www.ine.es/metodologia/t15/ense_inf_meto_17.pdf here].
| |
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| '''Source of information''': Populational surveys.
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| '''Data level''': Regional level.
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| '''Number of Records:''' Varies accordingly to the year. information about the amount of data can be found within the methodology document for each year, available [ here]
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| '''Date range''': 2017, 2011 / 12, 2006, 2003, 2001, 1997, 1995, 1993, and 1987. Since 2009, it takes place on a 5-year basis.
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| '''Cancer Areas of Interest:''' When it comes to cancer diagnoses, there is a classification for cervical, vaginal, and breast cancer. Other indicators present in the study can be related to different types of cancer.
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| '''Data access''': Openly available [https://www.sanidad.gob.es/estadEstudios/estadisticas/encuestaNacional/home.htm here]. Microdata can be checked [https://www.sanidad.gob.es/estadEstudios/estadisticas/solicitud.htm here].
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| '''Information/contact for data request''': [https://www.sanidad.gob.es/servCiudadanos/contactar/home.htm Contact information].
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| <!-- | |
| == [[Databases for Clinical Trials, Surveys and Biobanks]] == | |
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| == [[Electronic Health Records]] ==
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| == [[Clinical Practices Guidelines]] ==
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| == [[Latest Policymaking Initiatives]] ==
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| == [[Cancer-related Patient Associations and Resources]] ==
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| -->
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