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| == [[Cancer Centers]] == | | <span style="display:none">forresearchers</span> |
| | <span style="display:none">forpatients</span> |
| | <span style="display:none">forproviders</span> |
| | <span style="display:none">forpolicymakers</span> |
| | <span style="display:none">finlandcountry</span> |
| | [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] |
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| == [[Healthcare System]] == | | == Cancer Centers == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| Finland has a universal healthcare system funded by taxes. The Ministry of Social Affairs and Health is responsible for health regulations and assessment countrywide, while municipalities are responsible for providing access to health services at all levels of care. From the public health expenditure, what isn't covered by the national and local taxes is funded by the National Health Insurance and managed by Kela (in English: The Social Insurance Institution (SII)).
| | [[hasCancerCenter::Helsinki University Hospital Comprehensive Cancer Center]] |
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| == [[Administrative or Claims Data]] ==
| | [[hasCancerCenter::Turku University Hospital Cancer Centre]] |
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| === Database: Kelasto - Medical Benefits ===
| | [[hasCancerCenter::TAYS Cancer Centre Tampere University Hospital]] |
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| '''Primary purpose:''' Promote the use and exchange of information by compiling key statistical information, in this case information about insurance claims.
| | [[hasCancerCenter::Cancer Center of Kuopio University Hospital]] |
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| '''Sponsor, manager or home institution:''' Kela (in English: The Social Insurance Institution (SII)); Parliament.
| | [[hasCancerCenter::Oulu University Hospital]] |
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| '''Type of information:''' The number of persons who received compensation from specialists' fees; The number of reimbursed specialist visits. The figures also include the number of doctor's opinions and prescriptions (not made through pharmacies); Euro amounts of fees collected from specialist visits and medical reimbursements paid for them; Compensation percentage. The number tells the percentage paid to the insured as health insurance compensation of the collected medical fees; Ratio cost (=charges collected) per visit.
| | == [[hasHealthcareSystem::Healthcare_System_(Finland)|Healthcare System]] == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| | </div> |
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| '''Source of Information:''' Healthcare customers send data from claims for benefits and job applications.
| | == Administrative or Claims Data == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| '''Data level:''' National, regional and hospital district level.
| | === [[hasDatabase::Database:_Care_Register_for_Health_Care_(Finland)|Database: Care Register for Health Care]] === |
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| '''Number of Records:''' Unknown.
| | === [[hasDatabase::Database:_Register_of_Primary_Health_Care_Visits_(Finland)|Database: Register of Primary Health Care Visits]] === |
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| '''Date Range:''' 2016 onwards.
| | </div> |
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| '''Open data access:''' Data is partially publicly available. [https://raportit.kela.fi/ibi_apps/WFServlet?IBIF_ex=NIT129AL&YKIELI=S Information can be found here.]
| | == Registries == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| '''Information/Contact for data request:''' [https://www.kela.fi/data-protection Information on how to access the data can be found here.]
| | === [[hasDatabase::Database:_Finnish_Cancer_Registry_(Finland)|Database: Finnish Cancer Registry]] === |
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| == [[Registries]] == | | === [[hasDatabase::Database:_Statistics_Finland_-_Cause_of_Death_(Finland)|Database: Statistics Finland - Cause of Death]] === |
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| === Database: Finnish Cancer Registry === | | === [[hasDatabase::Database:_Sotkanet_Indicator_Bank_(Finland)|Database: Sotkanet Indicator Bank]] === |
| | </div> |
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| '''Primary purpose:''' Assess the causes and impacts of cancer burden and the effectiveness of cancer screening programmes in the population.
| | == Databases for Clinical Trials, Surveys and Biobanks == |
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| '''Sponsor, manager or home institution:''' Cancer Society of Finland.
| | === [[hasDatabase::Survey/Biobank:_FINRISK_(Finland)|Survey/Biobank: FINRISK]] === |
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| '''Type of information:''' Data on cancer screenings, cancer incidence, deaths due to cancer, risk of developing cancer, persons alive with past diagnosis, prognosis of cancer patients.
| | === [[hasDatabase::Survey/Biobank:_National_FinHealth_2017_Study_(Finland)|Survey/Biobank: National FinHealth 2017 Study]] === |
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| [[Data Dictionary: Finnish Cancer Registry]] | | === [[hasDatabase::Survey/Biobank:_Finnish_Mobile_Clinic_Examination_(Finland)|Survey/Biobank: Finnish Mobile Clinic Examination]] === |
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| [[Data Dictionary: Cervical Cancer Screening]] | | === [[hasDatabase::Survey/Biobank:_Health_2000_and_2011_(Finland)|Survey/Biobank: Health 2000 and 2011]] === |
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| [[Data Dictionary: Breast Cancer Screening]] | | === [[hasDatabase::Study/Biobank:_ATBC_Study_(Finland)|Biobank: ATBC Study]] === |
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| [https://aineistokatalogi.fi/catalog/studies/21085403-7be8-4f93-bf05-231518c642a0 More information about the data contained in the database can be found here.]
| | </div> |
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| '''Available type of information:''' Cancer incidence, deaths due to cancer, risk of developing cancer, persons alive with past diagnosis, prognosis of cancer patients; sorted by sex, region, cancer site, year and values.
| | == Clinical Practice Guidelines == |
| | === [[hasClinicalGuidelines::Finnish_Medical_Association_Duodecim_Guidelines_(Finland)|Guidelines: Finnish Medical Association Duodecim Guidelines]] === |
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| '''Source of Information:''' Health organizations provide information on every case or strong suspicion of cancer detected in Finland to the Cancer Registry of the National Institute for Health and Welfare, which is maintained by the Finnish Cancer Society.
| | === [[hasClinicalGuidelines::Finnish_Breast_Cancer_Association_Guideline_(Finland)|Guidelines: Finnish Breast Cancer Association Guideline]] === |
| | </div> |
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| '''Data level:''' Patient level.
| | == Latest Policymaking Initiatives == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| | === [[hasReport::Report:_Finnish_Cancer_Registry_(Finland)|Report: Finnish Cancer Registry]] === |
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| '''Available data level:''' Regional level.
| | === [[hasReport::Report:_National_Cancer_Strategy_2026–2035_(FICAN)_(Finland)|Report: National Cancer Strategy 2026–2035 (FICAN)]] === |
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| '''Number of Records:''' Unknown.
| | === [[hasReport::Report:_Ministry_of_Social_Affairs_and_Health_(Finland)|Report: Ministry of Social Affairs and Health]] === |
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| '''Date Range:''' 1953 onwards.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Finland)|Report: EU Country Cancer Profile 2023]] === |
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| '''Cancer Areas of Interest:''' All sites (C00-96, D09.0-1, D32-33, D41-41, D45-47, D76); malignant neoplasm of lip (C00); tongue (C02); Salivary glands (C07-08); mouth, other or unspecified (C03-06); pharynx (C01, 09-14); oesophagus (C15); stomach (C16); small intestine (C17); colon (C18); Rectum, rectosigmoid (C19-20); anus (C21); primary malignant neoplasm of liver and intrahepatic bile ducts (C22); malignant neoplasm of gallbladder, bile ducts (C23-24); pancreas (C25); digestive organs, other and unspecified (C26); nose, sinuses (C30-C31); larynx, epiglottis (C32); lung, trachea (C33-C34); other or unspecified respiratory or intrathoracic organs (C37-C39); bone (C40-41); melanoma of the skin (C43); skin, squamous cell carcinoma (C44); skin, other (C44); mesothelioma (C45); peripheral nerves, autonomic nervous systems (C47); soft tissues (C48-49); breast (C50); vulva (C51); vagina (C52); cervix uteri (C53); corpus uteri (C54); ovary etc. (C56, C57.0-4, C48.1-2 Serous); placenta (C58); female genital, other and unspecified (C55, C57.5-9); penis (C60); prostate (C61); testis (C62); male genital, other and unspecified (C63); kidney (C64); bladder and urinary tract (C65-68, D09.0-1, D41.1-9); eye (C69); brain, meninges and central nervous system (C70-72, D32-33, D42-43); thyroid gland (C73); adrenal gland (C74); other endocrine glands (C75); ill defined or unknown (C76, C80); hodkin lymphoma (C81); follicular B lymphoma (C82); chronic mantle cell lymphoma (C83.1); diffuse B lymphoma (C83.3); burkitt's lymphoma/leukemia (C83.7); marginal zone lymphoma (C83.8); mature T-cell neoplasias of the skin (C84.0-1); other T and NK cell lymphomas/leukemias (C84.3-5); non-hodgkin lymphoma, other or unspecified (C85); malignant immunoproliferative diseases (C88); myeloma and other plasma cell tumors (C90); acute lymphoblastic leukemia/lymphoma (C91.0); lymphatic leukaemia (C91.1); acute myeloid leukaemia (C92.0); chronic myeloid leukaemia (C92.1); leukaemia, other or unspecified (C95); histiocytic and denritic cell neoplasms (C96.1, D76); mastocystosis (C96.2); other, unspecified or mixed hematological disease (C96.7-9); other mature B-cell neoplasms (D45-47, D76).
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Finland)|Report: EU Country Cancer Profile 2025]] === |
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| '''Open data access:''' Partially publicly available data. [https://cancerregistry.fi/statistics/cancer-statistics/ Available data can be found here.]
| | === [[hasReport::Report:_The_development_of_cancer_prevention,_early_detection_and_rehabilitation_assistance_for_the_period_2014-2025_(Finland)|Report: The development of cancer prevention, early detection and rehabilitation assistance for the period 2014-2025]] === |
| | </div> |
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| '''Information/Contact for data request:''' [https://cancerregistry.fi/research/come-carry-research-us/ Information on how to access the database can be found here.]
| | == Cancer-related Patient Associations and Resources == |
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| === Database: Statistics Finland - Cause of Death === | | === [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Finland)|Patient Guides: ESMO Patient Guides Compilation]] === |
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| '''Primary purpose:''' Provide publicly available information on causes of death.
| | === [[hasPatientAssociation::Patient_Association:_Finnish_Prostate_Cancer_Association_(Finland)|Patient Association: Finnish Prostate Cancer Association]] === |
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| '''Sponsor, manager or home institution:''' Statistics Finland; Ministry of Finance.
| | === [[hasPatientAssociation::Patient_Association:_Colores,_the_Finnish_Colorectal_Cancer_Association_(Finland)|Patient Association: Colores, the Finnish Colorectal Cancer Association]] === |
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| '''Type of information:''' [https://aineistokatalogi.fi/catalog/studies/778c33bf-aceb-423f-89d9-e5abb5a0585c/datasets/fcc7f03d-3f83-49df-973d-f2d94b3742a6 Information about the data contained in the database can be found here.]
| | === [[hasPatientAssociation::Patient_Association:_Sylva_Ry_(Finland)|Patient Association: Sylva Ry]] === |
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| '''Available type of information:''' Deaths by underlying cause of death, age, sex, and county.
| | === [[hasPatientAssociation::Patient_Association:_The_Breast_Cancer_Association_-_Europa_Donna_Finland_(Finland)|Patient Association: The Breast Cancer Association - Europa Donna Finland]] === |
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| '''Source of Information:''' Death certificates and data from the Population Information System.
| | === [[hasPatientAssociation::Patient_Association:_Suomen_Söpäpotilaat_(Finland)|Patient Association: Suomen Söpäpotilaat]] === |
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| '''Data level:''' Patient level.
| | === [[hasPatientGuides::Patient_Guides:_The_Finnish_Cancer_Patients_(Finland)|Patient Guides: The Finnish Cancer Patients]] === |
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| '''Available data level:''' Regional level.
| | === [[hasPatientResource::Self-help_Group:_Cancer_Society_Finland_—_Peer_Support_Networks_(Finland)|Self-help Group: Cancer Society of Finland — Peer Support Networks]] === |
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| '''Number of Records:''' Unknown.
| | </div> |
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| '''Date Range:''' From 1969 onwards.
| | == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Finland)|Quality of Life and Palliative Care Research]] == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| | </div> |
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| '''Cancer Areas of Interest (ICD-10):''' Neoplasms (C00-D48); malignant neoplasms (C00-C97); malignant neoplasm of lip, oral cavity and pharynx (C00-C14); oesophagus (C15); stomach (C16); colon (C18, C19); rectum, anus and anal canal (C20-C21); primary malignant neoplasm of liver and intrahepatic bile ducts (C22); malignant neoplasm of pancreas (C25); larynx, trachea, bronchus and lung (C32-C34); malignant melanoma of skin (C43); breast (C50); cervix uteri (C53); uterus (C54-C55); ovary (C56); prostate (C61); kidney (C64); bladder (C67); lymphoid, haematopoietic and related tissue (C81-C96), other malignant neoplasms; other neoplasms (D00-D48)
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| | | <span style="display:none">hasCancerCenter::Helsinki University Hospital Comprehensive Cancer Center</span> |
| '''Open data access:''' Partially publicly available data. [https://pxdata.stat.fi/PXWeb/pxweb/en/StatFin/StatFin__ksyyt/?tablelist=true Information can be found here.]
| | <span style="display:none">hasCancerCenter::Turku University Hospital Cancer Centre</span> |
| | | <span style="display:none">hasCancerCenter::TAYS Cancer Centre Tampere University Hospital</span> |
| '''Information/Contact for data request:''' [https://findata.fi/en/ Information on how to access the data can be found here.]
| | <span style="display:none">hasCancerCenter::Cancer Center of Kuopio University Hospital</span> |
| | | <span style="display:none">hasCancerCenter::Oulu University Hospital</span> |
| === Database: Register of Primary Health Care Visits === | | <span style="display:none">hasHealthcareSystem::Healthcare_System_(Finland)|Healthcare System</span> |
| | | <span style="display:none">hasDatabase::Database:_Care_Register_for_Health_Care_(Finland)|Database: Care Register for Health Care</span> |
| '''Primary purpose:''' Provide data on outpatient primary care for statistics, research, development and planning, and also to monitor infectious diseases, injuries, and health examinations.
| | <span style="display:none">hasDatabase::Database:_Register_of_Primary_Health_Care_Visits_(Finland)|Database: Register of Primary Health Care Visits</span> |
| | | <span style="display:none">hasDatabase::Database:_Finnish_Cancer_Registry_(Finland)|Database: Finnish Cancer Registry</span> |
| '''Sponsor, manager or home institution:''' Finnish Institute of Health and Welfare.
| | <span style="display:none">hasDatabase::Database:_Statistics_Finland_-_Cause_of_Death_(Finland)|Database: Statistics Finland - Cause of Death</span> |
| | | <span style="display:none">hasDatabase::Database:_Sotkanet_Indicator_Bank_(Finland)|Database: Sotkanet Indicator Bank</span> |
| '''Type of information:''' Service provider in the service event; client contact by client; assessment of the need for treatment; appointment data; data on the content of the service event, such as reason for visit, procedures, and follow-up care. [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/register-descriptions/register-of-primary-health-care-visits More information about the data contained in the dataset can be found here.]
| | <span style="display:none">hasDatabase::Survey/Biobank:_FINRISK_(Finland)|Survey/Biobank: FINRISK</span> |
| | | <span style="display:none">hasDatabase::Survey/Biobank:_National_FinHealth_2017_Study_(Finland)|Survey/Biobank: National FinHealth 2017 Study</span> |
| '''Source of Information:''' Data is sent by healthcare providers nationwide.
| | <span style="display:none">hasDatabase::Survey/Biobank:_Finnish_Mobile_Clinic_Examination_(Finland)|Survey/Biobank: Finnish Mobile Clinic Examination</span> |
| | | <span style="display:none">hasDatabase::Survey/Biobank:_Health_2000_and_2011_(Finland)|Survey/Biobank: Health 2000 and 2011</span> |
| '''Data level:''' Patient level.
| | <span style="display:none">hasDatabase::Study/Biobank:_ATBC_Study_(Finland)|Study/Biobank: ATBC Study</span> |
| | | <span style="display:none">hasClinicalGuidelines::Finnish_Medical_Association_Duodecim_Guidelines_(Finland)|Finnish Medical Association Duodecim Guidelines</span> |
| '''Number of Records:''' Unknown.
| | <span style="display:none">hasClinicalGuidelines::Finnish_Breast_Cancer_Association_Guideline_(Finland)|Finnish Breast Cancer Association Guideline</span> |
| | | <span style="display:none">hasReport::Report:_Finnish_Cancer_Registry_(Finland)|Report: Finnish Cancer Registry</span> |
| '''Date Range:''' 2008 onwards.
| | <span style="display:none">hasReport::Report:_Ministry_of_Social_Affairs_and_Health_(Finland)|Report: Ministry of Social Affairs and Health</span> |
| | | <span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Finland)|Report: EU Country Cancer Profile 2023</span> |
| '''Cancer Areas of Interest:''' Unknown.
| | <span style="display:none">hasReport::The_development_of_cancer_prevention,_early_detection_and_rehabilitation_assistance_for_the_period_2014-2025_(Finland)|Report: The development of cancer prevention, early detection and rehabilitation assistance for the period 2014-2025</span> |
| | | <span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Finland)|Compilation: ESMO Patient Guides</span> |
| '''Open data access:''' Data is not publicly available. [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/register-descriptions/register-of-primary-health-care-visits More information can be found here.]
| | <span style="display:none">hasPatientAssociation::Patient_Association:_Finnish_Prostate_Cancer_Association_(Finland)|Patient Association: Finnish Prostate Cancer Association</span> |
| | | <span style="display:none">hasPatientAssociation::Patient_Association:_Colores,_the_Finnish_Colorectal_Cancer_Association_(Finland)|Patient Association: Colores, the Finnish Colorectal Cancer Association</span> |
| '''Information/Contact for data request:''' [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/research-use-and-data-permits Information on how to access data can be found here.]
| | <span style="display:none">hasPatientAssociation::Patient_Association:_Sylva_Ry_(Finland)|Patient Association: Sylva Ry</span> |
| | | <span style="display:none">hasPatientAssociation::Patient_Association:_The_Breast_Cancer_Association_-_Europa_Donna_Finland_(Finland)|Patient Association: The Breast Cancer Association - Europa Donna Finland</span> |
| === Database: Care Register for Health Care === | | <span style="display:none">hasPatientAssociation::Patient_Association:_Suomen_Söpäpotilaat_(Finland)|Patient Association: Suomen Söpäpotilaat</span> |
| | | <span style="display:none">hasPatientGuides::Patient_Guides:_The_Finnish_Cancer_Patients_(Finland)|Patient Guides: The Finnish Cancer Patients</span> |
| '''Primary purpose:''' Collect data on the activities of health centres, hospitals and other institutions providing inpatient care and on the clients treated in them as well as on home-nursing clients for the purposes of statistics, research and planning.
| | <span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Finland)|Quality of Life and Palliative Care Research</span> |
| | | <span style="display:none">hasDatabase::Study/Biobank:_ATBC_Study_(Finland)|Biobank: ATBC Study</span> |
| '''Sponsor, manager or home institution:''' Finnish Institute of Health and Welfare.
| | <span style="display:none">hasClinicalGuidelines::Finnish_Medical_Association_Duodecim_Guidelines_(Finland)|Guidelines: Finnish Medical Association Duodecim Guidelines</span> |
| | | <span style="display:none">hasClinicalGuidelines::Finnish_Breast_Cancer_Association_Guideline_(Finland)|Guidelines: Finnish Breast Cancer Association Guideline</span> |
| '''Type of information:''' patients discharged from inpatient care; count of patients in inpatient care in health centres and hospitals on 31 December; day surgeries; specialised outpatient care. [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/register-descriptions/care-register-for-health-care More information about the data contained in the dataset can be found here.]
| | <span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Finland)|Patient Guides: ESMO Patient Guides Compilation</span> |
| | | <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> |
| '''Source of Information:''' Data is sent by healthcare providers nationwide.
| | <span style="display:none">hasCancerType::C00-C97: All cancer types</span> |
| | | <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> |
| '''Data level:''' Patient level.
| | <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> |
| | | <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> |
| '''Number of Records:''' Unknown.
| | <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> |
| | | <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> |
| '''Date Range:''' 1969-1993.
| | <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> |
| | | <span style="display:none">hasCancerType::C50: Breast cancer</span> |
| '''Cancer Areas of Interest:''' Unknown.
| | <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> |
| | | <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> |
| '''Open Data Access:''' Data is not publicly available. [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/register-descriptions/care-register-for-health-care More information can be found here.]
| | <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> |
| | | <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> |
| '''Information/Contact for data request:''' [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/research-use-and-data-permits Information on how to access data can be found here.]
| | <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> |
| | | <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> |
| === Database: Sotkanet Indicator Bank === | | <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> |
| | | <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> |
| '''Primary purpose:''' Offer information about key population welfare and health data.
| | <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> |
| | | <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> |
| '''Sponsor, manager or home institution:''' Finnish Institute of Health and Welfare.
| | <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> |
| | | <span style="display:none">hasCancerType::unknown</span> |
| '''Type of information:''' The database contains the following indicators related to cancer: Cancer index, age-standardised info ind. 245
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| Cancer index, not age-standardised; Entitled to special refunds on medicines for cancer 31.12., age-standardised population share(%); Entitled to special refunds on medicines for cancer 31.12., as % of total population; Five-year relative survival rate of bowel cancer patients, %; Five-year relative survival rate of breast cancer patients, %; Five-year relative survival rate of cervical cancer patients, %; Proportion of women invited to breast cancer screening (mammography) who attended, %; Proportion of women invited to cervical cancer screening (smear test) who attended, %.
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| '''Source of Information:''' Unknown.
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| '''Data level:''' Hospital level.
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| '''Number of Records:''' Unknown.
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| '''Date Range:''' 1990 onwards.
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| '''Cancer Areas of Interest:''' Unknown.
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| '''Open data access:''' [https://sotkanet.fi/sotkanet/en/haku?q=cancer The data is openly available.]
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/research-use-and-data-permits Information on how to access data can be found here.]
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| == [[Databases for Clinical Trials, Surveys and Biobanks]] == | |
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| === Survey/Biobank: FINRISK ===
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| '''Primary purpose:''' Store the sample collection and data information of participants from the FINRISK survey. The purpose of the survey was to assess the risk factors of chronic diseases, including cancer.
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| '''Sponsor, manager or home institution:''' THL Biobank.
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| '''Type of information:''' Survey answers about cancer diagnosis and smoking habits or exposure, as well as many other survey answers for risk factors. There's also a sample collection from the participants at the THL Biobank. [https://thl.fi/en/web/thlfi-en/research-and-development/research-and-projects/the-national-finrisk-study/questionnaires Questionnaires can be found here.]
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| '''Data level:''' Respondent level.
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| '''Number of Records:''' About 35,000.
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| '''Date Range:''' 1972-2012.
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| '''Cancer Areas of Interest:''' Unknown.
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| '''Open data access:''' Data is not publicly available. [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/the-national-finrisk-study-1992-2012 More information and variable descriptions can be found here.]
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thl-biobank/for-researchers/application-process Information on how to access data can be found here.]
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| === Survey/Biobank: National FinHealth 2017 Study === | |
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| '''Primary purpose:''' Store the sample collection and data information of participants from the National FinHealth 2017 Study survey. The purpose of the survey was to produce up-to-date information on health, health behavior, functional capacity and well-being of adults.
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| '''Sponsor, manager or home institution:''' THL Biobank.
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| '''Type of information:''' Survey answers about cancer diagnosis and smoking habits or exposure, as well as many other survey answers for health information and behavior. There's also a sample collection from the participants at the THL Biobank. [https://thl.fi/en/web/thlfi-en/research-and-development/research-and-projects/national-finhealth-study/questionnaires/finhealth2017 More information can be found here.]
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| '''Data level:''' Respondent level.
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| '''Number of Records:''' About 6,600.
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| '''Date Range:''' 2017.
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| '''Open data access:''' Data is not publicly available. [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/national-finhealth-study More information and variable descriptions can be found here.]
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thl-biobank/for-researchers/application-process Information on how to access data can be found here.]
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| === Survey/Biobank: Finnish Mobile Clinic Examination === | |
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| '''Primary purpose:''' Store the sample collection and data information of participants from the Finnish Mobile Clinic Examination survey. The purpose of the survey was to monitor population health, need for treatment, functional abilities, and collect data for epidemiological search.
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| '''Sponsor, manager or home institution:''' THL Biobank.
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| '''Type of information:''' Medical history, smoking habits, and other health information. There's also a sample collection from the participants at the THL Biobank.
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| '''Data level:''' Respondent level.
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| '''Number of Records:''' About 60,000.
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| '''Date Range:''' 1965-1980.
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| '''Cancer Areas of Interest:''' Unknown.
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| '''Open data access:''' Data is not publicly available. [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/finnish-mobile-clinic-collections-1966-1980-autoklinikka- More information can be found here.]
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thl-biobank/for-researchers/application-process Information on how to access data can be found here.]
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| === Survey/Biobank: Health 2000 and 2011 === | |
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| '''Primary purpose:''' Store the sample collection and data information of participants from the Health 2000 and 2011 survey. The purpose of the survey was to gather data on the most important public health problems in working-aged and aged population, their causes and treatment as well as on the population’s functional capacity and working capacity.
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| '''Sponsor, manager or home institution:''' THL Biobank
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| '''Type of information:''' Medical history, smoking habits, and other health information. There's also a sample collection from the participants at the THL Biobank. [https://thl.fi/en/web/thlfi-en/research-and-development/research-and-projects/health-2000-2011/forms Forms can be found here.]
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| '''Data level:''' Respondent level.
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| '''Number of Records:''' About 13,000.
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| '''Date Range:''' 2000 and 2011.
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| '''Cancer Areas of Interest:''' Unknown.
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| '''Open data access:''' Data is not publicly available. [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/health-2000-and-2011-surveys More information can be found here.]
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thl-biobank/for-researchers/application-process Information on how to access data can be found here.]
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| === Study/Biobank: ATBC Study === | |
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| '''Primary purpose:''' Store the sample collection and data information of participants from the study "The alpha-tocopherol, beta-carotene lung cancer prevention study: Design, methods, participant characteristics, and compliance".
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| '''Sponsor, manager or home institution:''' THL Biobank.
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| '''Type of information:''' Detailed information about participants, including physical description, smoking habits, health record, and others. There's also a sample collection from the participants at the THL Biobank. [https://atbcstudy.cancer.gov/documentation/#diet All variables can be found here.]
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| '''Data level:''' Patient level.
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| '''Number of Records:''' About 29,000.
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| '''Date Range:''' 1985-1993
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| '''Cancer Areas of Interest:''' Lung cancer.
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| '''Open data access:''' Data is not publicly available. [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/atbc-study More information can be found here.]
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thl-biobank/for-researchers/application-process Information on how to access data can be found here.]
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| == [[Electronic Health Records]] == | |
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| == [[Clinical Practices Guidelines]] ==
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| == [[Latest Policymaking Initiatives]] ==
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| === Survey: FinSote - Lifestyle and Risk Factors ===
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| '''Sponsor, manager or home institution:''' Finnish Institute for Health and Welfare
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| '''Primary purpose:'''' The FinSote National health survey aims to monitor the changes in the population's well-being and health.
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| '''Type of information:''' Proportion of daily smokers, proportion of daily users of e-cigarettes containing nicotine, and Proportion of daily users of tobacco products or e-cigarettes containing nicotine.
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| '''Level:''' National level.
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| '''Access to information:''' [https://terveytemme.fi/finsote/2020/elintavat.html Information can be found here.]
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| <!-- == [[Cancer-related Patient Associations and Resources]] == | |
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| <!-- https://cancerregistry.fi/information/data-protection-notice/ on the header there is info about patient associations --> | |
