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| == [[Cancer Centers]] == | | <span style="display:none">forresearchers</span> |
| | <span style="display:none">forpatients</span> |
| | <span style="display:none">forproviders</span> |
| | <span style="display:none">forpolicymakers</span> |
| | <span style="display:none">finlandcountry</span> |
| | [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] |
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| == [[Healthcare System]] == | | == Cancer Centers == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| Finland has a universal healthcare system funded by taxes. The Ministry of Social Affairs and Health is responsible for health regulations and assessment countrywide, while municipalities are responsible for providing access to health services at all levels of care. From the public health expenditure, what isn't covered by the national and local taxes is funded by the National Health Insurance and managed by Kela (in English: The Social Insurance Institution (SII)).
| | [[hasCancerCenter::Helsinki University Hospital Comprehensive Cancer Center]] |
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| == [[Administrative or Claims Data]] ==
| | [[hasCancerCenter::Turku University Hospital Cancer Centre]] |
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| === Database: Care Register for Health Care ===
| | [[hasCancerCenter::TAYS Cancer Centre Tampere University Hospital]] |
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| '''Primary purpose:''' Collect data on the activities of health centres, hospitals and other institutions providing inpatient care and on the clients treated in them as well as on home-nursing clients for the purposes of statistics, research and planning.
| | [[hasCancerCenter::Cancer Center of Kuopio University Hospital]] |
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| '''Sponsor, manager or home institution:''' Finnish Institute of Health and Welfare.
| | [[hasCancerCenter::Oulu University Hospital]] |
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| '''Type of information:''' Data content of the register: patients discharged from inpatient care; count of patients in inpatient care in health centres and hospitals on 31 December; day surgeries; specialised outpatient care. Basic data in a care notification - Service provider: Code; Code extension; Service branch; Speciality. Data on the patient/client: Personal identity number; Municipality of residence; Country code for non-Finnish residents. Data on start of care: Referring party; Code and code extension of the institution that referred the patient; Waiting list entry date and date of admission; Type of admission; Route of admission; Code of the place of discharge (if the person was admitted from another institution). Data on the treatment received by the patient/client and on the grounds for a client relationship: Reason for seeking care; Diagnoses; External cause; Type of accident; Need for care on date of admission/discharge/count; Procedures and interventions; Decision on long-term care (yes/no); Patient has an advanced cardiac condition (yes/no); Patient is a psychiatric patient (yes/no); Number of home days.
| | == [[hasHealthcareSystem::Healthcare_System_(Finland)|Healthcare System]] == |
| Data on discharge from care: Date of discharge; Further treatment/which services; Code and code extension of the institution of further treatment. Additional data on procedures involving patients with advanced cardiac condition: Type of procedure; Class of procedure; Functional capacity (NYHA); Risk score; Complications; Level of urgency. Additional data on psychiatric patients: Route of admission to psychiatric inpatient care; Length of involuntary care as care days; Number of admissions to psychiatric inpatient care; GAS at admission and discharge; Medication; Coercive measures; Meetings with relatives or others. [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/register-descriptions/care-register-for-health-care More information about the data contained in the dataset can be found here.]
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| | </div> |
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| '''Source of Information:''' Data is sent by healthcare providers nationwide.
| | == Administrative or Claims Data == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| '''Data level:''' Patient level.
| | === [[hasDatabase::Database:_Care_Register_for_Health_Care_(Finland)|Database: Care Register for Health Care]] === |
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| '''Number of Records:''' Unknown.
| | === [[hasDatabase::Database:_Register_of_Primary_Health_Care_Visits_(Finland)|Database: Register of Primary Health Care Visits]] === |
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| '''Date Range:''' 1969-1993.
| | </div> |
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| '''Cancer Areas of Interest:''' Unknown.
| | == Registries == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| '''Open Data Access:''' Data is not publicly available. [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/register-descriptions/care-register-for-health-care More information can be found here.]
| | === [[hasDatabase::Database:_Finnish_Cancer_Registry_(Finland)|Database: Finnish Cancer Registry]] === |
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/research-use-and-data-permits Information on how to access data can be found here.]
| | === [[hasDatabase::Database:_Statistics_Finland_-_Cause_of_Death_(Finland)|Database: Statistics Finland - Cause of Death]] === |
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| === Database: Kelasto - Medical Benefits === | | === [[hasDatabase::Database:_Sotkanet_Indicator_Bank_(Finland)|Database: Sotkanet Indicator Bank]] === |
| | </div> |
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| '''Primary purpose:''' Promote the use and exchange of information by compiling key statistical information, in this case information about insurance claims.
| | == Databases for Clinical Trials, Surveys and Biobanks == |
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| '''Sponsor, manager or home institution:''' Kela (in English: The Social Insurance Institution (SII)); Parliament.
| | === [[hasDatabase::Survey/Biobank:_FINRISK_(Finland)|Survey/Biobank: FINRISK]] === |
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| '''Type of information:''' The number of persons who received compensation from specialists' fees; The number of reimbursed specialist visits. The figures also include the number of doctor's opinions and prescriptions (not made through pharmacies); Euro amounts of fees collected from specialist visits and medical reimbursements paid for them; Compensation percentage. The number tells the percentage paid to the insured as health insurance compensation of the collected medical fees; Ratio cost (=charges collected) per visit; Medical Specialties, Reference period and geographical focus.
| | === [[hasDatabase::Survey/Biobank:_National_FinHealth_2017_Study_(Finland)|Survey/Biobank: National FinHealth 2017 Study]] === |
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| '''Source of Information:''' Healthcare customers send data from claims for benefits and job applications.
| | === [[hasDatabase::Survey/Biobank:_Finnish_Mobile_Clinic_Examination_(Finland)|Survey/Biobank: Finnish Mobile Clinic Examination]] === |
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| '''Data level:''' National, regional and hospital district level.
| | === [[hasDatabase::Survey/Biobank:_Health_2000_and_2011_(Finland)|Survey/Biobank: Health 2000 and 2011]] === |
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| '''Number of Records:''' Unknown.
| | === [[hasDatabase::Study/Biobank:_ATBC_Study_(Finland)|Biobank: ATBC Study]] === |
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| '''Date Range:''' 2016 onwards.
| | </div> |
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| '''Open data access:''' Data is partially publicly available. [https://raportit.kela.fi/ibi_apps/WFServlet?IBIF_ex=NIT129AL&YKIELI=S Information can be found here.]
| | == Clinical Practice Guidelines == |
| | === [[hasClinicalGuidelines::Finnish_Medical_Association_Duodecim_Guidelines_(Finland)|Guidelines: Finnish Medical Association Duodecim Guidelines]] === |
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| '''Information/Contact for data request:''' [https://www.kela.fi/data-protection Information on how to access the data can be found here.]
| | === [[hasClinicalGuidelines::Finnish_Breast_Cancer_Association_Guideline_(Finland)|Guidelines: Finnish Breast Cancer Association Guideline]] === |
| | </div> |
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| == [[Registries]] == | | == Latest Policymaking Initiatives == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| | === [[hasReport::Report:_Finnish_Cancer_Registry_(Finland)|Report: Finnish Cancer Registry]] === |
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| === Database: Finnish Cancer Registry === | | === [[hasReport::Report:_National_Cancer_Strategy_2026–2035_(FICAN)_(Finland)|Report: National Cancer Strategy 2026–2035 (FICAN)]] === |
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| '''Primary purpose:''' Assess the causes and impacts of cancer burden and the effectiveness of cancer screening programmes in the population.
| | === [[hasReport::Report:_Ministry_of_Social_Affairs_and_Health_(Finland)|Report: Ministry of Social Affairs and Health]] === |
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| '''Sponsor, manager or home institution:''' Cancer Society of Finland.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Finland)|Report: EU Country Cancer Profile 2023]] === |
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| '''Type of information:''' Data on cancer screenings, cancer incidence, deaths due to cancer, risk of developing cancer, persons alive with past diagnosis, prognosis of cancer patients.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Finland)|Report: EU Country Cancer Profile 2025]] === |
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| [[Data Dictionary: Finnish Cancer Registry]] | | === [[hasReport::Report:_The_development_of_cancer_prevention,_early_detection_and_rehabilitation_assistance_for_the_period_2014-2025_(Finland)|Report: The development of cancer prevention, early detection and rehabilitation assistance for the period 2014-2025]] === |
| | </div> |
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| [[Data Dictionary: Cervical Cancer Screening]]
| | == Cancer-related Patient Associations and Resources == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
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| [[Data Dictionary: Breast Cancer Screening]] | | === [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Finland)|Patient Guides: ESMO Patient Guides Compilation]] === |
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| [https://aineistokatalogi.fi/catalog/studies/21085403-7be8-4f93-bf05-231518c642a0 More information about the data contained in the database can be found here.] | | === [[hasPatientAssociation::Patient_Association:_Finnish_Prostate_Cancer_Association_(Finland)|Patient Association: Finnish Prostate Cancer Association]] === |
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| '''Available type of information:''' Cancer incidence, deaths due to cancer, risk of developing cancer, persons alive with past diagnosis, prognosis of cancer patients; sorted by sex, region, cancer site, year and values.
| | === [[hasPatientAssociation::Patient_Association:_Colores,_the_Finnish_Colorectal_Cancer_Association_(Finland)|Patient Association: Colores, the Finnish Colorectal Cancer Association]] === |
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| '''Source of Information:''' Health organizations provide information on every case or strong suspicion of cancer detected in Finland to the Cancer Registry of the National Institute for Health and Welfare, which is maintained by the Finnish Cancer Society.
| | === [[hasPatientAssociation::Patient_Association:_Sylva_Ry_(Finland)|Patient Association: Sylva Ry]] === |
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| '''Data level:''' Patient level.
| | === [[hasPatientAssociation::Patient_Association:_The_Breast_Cancer_Association_-_Europa_Donna_Finland_(Finland)|Patient Association: The Breast Cancer Association - Europa Donna Finland]] === |
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| '''Available data level:''' Regional level.
| | === [[hasPatientAssociation::Patient_Association:_Suomen_Söpäpotilaat_(Finland)|Patient Association: Suomen Söpäpotilaat]] === |
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| '''Number of Records:''' Unknown.
| | === [[hasPatientGuides::Patient_Guides:_The_Finnish_Cancer_Patients_(Finland)|Patient Guides: The Finnish Cancer Patients]] === |
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| '''Date Range:''' 1953 onwards.
| | === [[hasPatientResource::Self-help_Group:_Cancer_Society_Finland_—_Peer_Support_Networks_(Finland)|Self-help Group: Cancer Society of Finland — Peer Support Networks]] === |
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| '''Cancer Areas of Interest:''' All sites (C00-96, D09.0-1, D32-33, D41-41, D45-47, D76); malignant neoplasm of lip (C00); tongue (C02); Salivary glands (C07-08); mouth, other or unspecified (C03-06); pharynx (C01, 09-14); oesophagus (C15); stomach (C16); small intestine (C17); colon (C18); Rectum, rectosigmoid (C19-20); anus (C21); primary malignant neoplasm of liver and intrahepatic bile ducts (C22); malignant neoplasm of gallbladder, bile ducts (C23-24); pancreas (C25); digestive organs, other and unspecified (C26); nose, sinuses (C30-C31); larynx, epiglottis (C32); lung, trachea (C33-C34); other or unspecified respiratory or intrathoracic organs (C37-C39); bone (C40-41); melanoma of the skin (C43); skin, squamous cell carcinoma (C44); skin, other (C44); mesothelioma (C45); peripheral nerves, autonomic nervous systems (C47); soft tissues (C48-49); breast (C50); vulva (C51); vagina (C52); cervix uteri (C53); corpus uteri (C54); ovary etc. (C56, C57.0-4, C48.1-2 Serous); placenta (C58); female genital, other and unspecified (C55, C57.5-9); penis (C60); prostate (C61); testis (C62); male genital, other and unspecified (C63); kidney (C64); bladder and urinary tract (C65-68, D09.0-1, D41.1-9); eye (C69); brain, meninges and central nervous system (C70-72, D32-33, D42-43); thyroid gland (C73); adrenal gland (C74); other endocrine glands (C75); ill defined or unknown (C76, C80); hodkin lymphoma (C81); follicular B lymphoma (C82); chronic mantle cell lymphoma (C83.1); diffuse B lymphoma (C83.3); burkitt's lymphoma/leukemia (C83.7); marginal zone lymphoma (C83.8); mature T-cell neoplasias of the skin (C84.0-1); other T and NK cell lymphomas/leukemias (C84.3-5); non-hodgkin lymphoma, other or unspecified (C85); malignant immunoproliferative diseases (C88); myeloma and other plasma cell tumors (C90); acute lymphoblastic leukemia/lymphoma (C91.0); lymphatic leukaemia (C91.1); acute myeloid leukaemia (C92.0); chronic myeloid leukaemia (C92.1); leukaemia, other or unspecified (C95); histiocytic and denritic cell neoplasms (C96.1, D76); mastocystosis (C96.2); other, unspecified or mixed hematological disease (C96.7-9); other mature B-cell neoplasms (D45-47, D76).
| | </div> |
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| '''Open data access:''' Partially publicly available data. [https://cancerregistry.fi/statistics/cancer-statistics/ Available data can be found here.]
| | == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Finland)|Quality of Life and Palliative Care Research]] == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| | </div> |
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| '''Information/Contact for data request:''' [https://cancerregistry.fi/research/come-carry-research-us/ Information on how to access the database can be found here.]
| | __NOTOC__ |
| | | <span style="display:none">hasCancerCenter::Helsinki University Hospital Comprehensive Cancer Center</span> |
| === Database: Statistics Finland - Cause of Death === | | <span style="display:none">hasCancerCenter::Turku University Hospital Cancer Centre</span> |
| | | <span style="display:none">hasCancerCenter::TAYS Cancer Centre Tampere University Hospital</span> |
| '''Primary purpose:''' Provide publicly available information on causes of death.
| | <span style="display:none">hasCancerCenter::Cancer Center of Kuopio University Hospital</span> |
| | | <span style="display:none">hasCancerCenter::Oulu University Hospital</span> |
| '''Sponsor, manager or home institution:''' Statistics Finland; Ministry of Finance.
| | <span style="display:none">hasHealthcareSystem::Healthcare_System_(Finland)|Healthcare System</span> |
| | | <span style="display:none">hasDatabase::Database:_Care_Register_for_Health_Care_(Finland)|Database: Care Register for Health Care</span> |
| '''Type of information:''' [[Data Dictionary: Causes of death - research data]]
| | <span style="display:none">hasDatabase::Database:_Register_of_Primary_Health_Care_Visits_(Finland)|Database: Register of Primary Health Care Visits</span> |
| | | <span style="display:none">hasDatabase::Database:_Finnish_Cancer_Registry_(Finland)|Database: Finnish Cancer Registry</span> |
| [https://aineistokatalogi.fi/catalog/studies/778c33bf-aceb-423f-89d9-e5abb5a0585c/datasets/fcc7f03d-3f83-49df-973d-f2d94b3742a6 Information about the data contained in the database can be found here.]
| | <span style="display:none">hasDatabase::Database:_Statistics_Finland_-_Cause_of_Death_(Finland)|Database: Statistics Finland - Cause of Death</span> |
| | | <span style="display:none">hasDatabase::Database:_Sotkanet_Indicator_Bank_(Finland)|Database: Sotkanet Indicator Bank</span> |
| '''Available type of information:''' Deaths by underlying cause of death, age, sex, and county.
| | <span style="display:none">hasDatabase::Survey/Biobank:_FINRISK_(Finland)|Survey/Biobank: FINRISK</span> |
| | | <span style="display:none">hasDatabase::Survey/Biobank:_National_FinHealth_2017_Study_(Finland)|Survey/Biobank: National FinHealth 2017 Study</span> |
| '''Source of Information:''' Death certificates and data from the Population Information System.
| | <span style="display:none">hasDatabase::Survey/Biobank:_Finnish_Mobile_Clinic_Examination_(Finland)|Survey/Biobank: Finnish Mobile Clinic Examination</span> |
| | | <span style="display:none">hasDatabase::Survey/Biobank:_Health_2000_and_2011_(Finland)|Survey/Biobank: Health 2000 and 2011</span> |
| '''Data level:''' Patient level.
| | <span style="display:none">hasDatabase::Study/Biobank:_ATBC_Study_(Finland)|Study/Biobank: ATBC Study</span> |
| | | <span style="display:none">hasClinicalGuidelines::Finnish_Medical_Association_Duodecim_Guidelines_(Finland)|Finnish Medical Association Duodecim Guidelines</span> |
| '''Available data level:''' Regional level.
| | <span style="display:none">hasClinicalGuidelines::Finnish_Breast_Cancer_Association_Guideline_(Finland)|Finnish Breast Cancer Association Guideline</span> |
| | | <span style="display:none">hasReport::Report:_Finnish_Cancer_Registry_(Finland)|Report: Finnish Cancer Registry</span> |
| '''Number of Records:''' Unknown.
| | <span style="display:none">hasReport::Report:_Ministry_of_Social_Affairs_and_Health_(Finland)|Report: Ministry of Social Affairs and Health</span> |
| | | <span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Finland)|Report: EU Country Cancer Profile 2023</span> |
| '''Date Range:''' From 1969 onwards.
| | <span style="display:none">hasReport::The_development_of_cancer_prevention,_early_detection_and_rehabilitation_assistance_for_the_period_2014-2025_(Finland)|Report: The development of cancer prevention, early detection and rehabilitation assistance for the period 2014-2025</span> |
| | | <span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Finland)|Compilation: ESMO Patient Guides</span> |
| '''Cancer Areas of Interest (ICD-10):''' Neoplasms (C00-D48); malignant neoplasms (C00-C97); malignant neoplasm of lip, oral cavity and pharynx (C00-C14); oesophagus (C15); stomach (C16); colon (C18, C19); rectum, anus and anal canal (C20-C21); primary malignant neoplasm of liver and intrahepatic bile ducts (C22); malignant neoplasm of pancreas (C25); larynx, trachea, bronchus and lung (C32-C34); malignant melanoma of skin (C43); breast (C50); cervix uteri (C53); uterus (C54-C55); ovary (C56); prostate (C61); kidney (C64); bladder (C67); lymphoid, haematopoietic and related tissue (C81-C96), other malignant neoplasms; other neoplasms (D00-D48)
| | <span style="display:none">hasPatientAssociation::Patient_Association:_Finnish_Prostate_Cancer_Association_(Finland)|Patient Association: Finnish Prostate Cancer Association</span> |
| | | <span style="display:none">hasPatientAssociation::Patient_Association:_Colores,_the_Finnish_Colorectal_Cancer_Association_(Finland)|Patient Association: Colores, the Finnish Colorectal Cancer Association</span> |
| '''Open data access:''' Partially publicly available data. [https://pxdata.stat.fi/PXWeb/pxweb/en/StatFin/StatFin__ksyyt/?tablelist=true Information can be found here.]
| | <span style="display:none">hasPatientAssociation::Patient_Association:_Sylva_Ry_(Finland)|Patient Association: Sylva Ry</span> |
| | | <span style="display:none">hasPatientAssociation::Patient_Association:_The_Breast_Cancer_Association_-_Europa_Donna_Finland_(Finland)|Patient Association: The Breast Cancer Association - Europa Donna Finland</span> |
| '''Information/Contact for data request:''' [https://findata.fi/en/ Information on how to access the data can be found here.]
| | <span style="display:none">hasPatientAssociation::Patient_Association:_Suomen_Söpäpotilaat_(Finland)|Patient Association: Suomen Söpäpotilaat</span> |
| | | <span style="display:none">hasPatientGuides::Patient_Guides:_The_Finnish_Cancer_Patients_(Finland)|Patient Guides: The Finnish Cancer Patients</span> |
| === Database: Register of Primary Health Care Visits ===
| | <span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Finland)|Quality of Life and Palliative Care Research</span> |
| | | <span style="display:none">hasDatabase::Study/Biobank:_ATBC_Study_(Finland)|Biobank: ATBC Study</span> |
| '''Primary purpose:''' Provide data on outpatient primary care for statistics, research, development and planning, and also to monitor infectious diseases, injuries, and health examinations.
| | <span style="display:none">hasClinicalGuidelines::Finnish_Medical_Association_Duodecim_Guidelines_(Finland)|Guidelines: Finnish Medical Association Duodecim Guidelines</span> |
| | | <span style="display:none">hasClinicalGuidelines::Finnish_Breast_Cancer_Association_Guideline_(Finland)|Guidelines: Finnish Breast Cancer Association Guideline</span> |
| '''Sponsor, manager or home institution:''' Finnish Institute of Health and Welfare.
| | <span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Finland)|Patient Guides: ESMO Patient Guides Compilation</span> |
| | | <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> |
| '''Type of information:''' Data content of the register: Service provider in the service event; client contact by client; assessment of the need for treatment; appointment data; data on the content of the service event, such as reason for visit, procedures, and follow-up care. Data content of the care notification to the Register of Primary Health Care Visits - Basic data about the service event: Client's personal identity number (encrypted in the register); Client's municipality of residence; Postcode of the client's place of residence; Service provider; Service unit of the service provider; Event record code. Data on contact type and assessment of the need for treatment: Date and time of contact; Date and time of assessment of the need for treatment; Occupation (person assessing the need for treatment); Urgency of care; Type of visit; Outcome of assessment of the need for treatment. Appointment data: Date and time of appointment booking; Date and time of booked appointment; Occupation; Service type; Contact type. Service event data: Date and time, service event starting time; Date and time, service event closing time; Occupation (person delivering care); Service type; Contact type; Client group; Urgency; Type of visit; First visit; Reasons for visit/diagnoses; External cause (accidents); Type of accident; Procedures and interventions; Vaccination data and medication data; Dental health care, DMFT index; Dental health care, CPI index. Follow-up care: Service event cancellation; Reason for service event cancellation.
| | <span style="display:none">hasCancerType::C00-C97: All cancer types</span> |
| | | <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> |
| [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/register-descriptions/register-of-primary-health-care-visits More information about the data contained in the dataset can be found here.]
| | <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> |
| | | <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> |
| '''Source of Information:''' Data is sent by healthcare providers nationwide.
| | <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> |
| | | <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> |
| '''Data level:''' Patient level.
| | <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> |
| | | <span style="display:none">hasCancerType::C50: Breast cancer</span> |
| '''Number of Records:''' Unknown.
| | <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> |
| | | <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> |
| '''Date Range:''' 2008 onwards.
| | <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> |
| | | <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> |
| '''Cancer Areas of Interest:''' Unknown.
| | <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> |
| | | <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> |
| '''Open data access:''' Data is not publicly available. [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/register-descriptions/register-of-primary-health-care-visits More information can be found here.]
| | <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> |
| | | <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> |
| '''Information/Contact for data request:''' [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/research-use-and-data-permits Information on how to access data can be found here.]
| | <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> |
| | | <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> |
| === Database: Sotkanet Indicator Bank === | | <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> |
| | | <span style="display:none">hasCancerType::unknown</span> |
| '''Primary purpose:''' Offer information about key population welfare and health data.
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| '''Sponsor, manager or home institution:''' Finnish Institute of Health and Welfare.
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| '''Type of information:''' The database contains the following indicators related to cancer: Cancer index, age-standardised info ind. 245
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| Cancer index, not age-standardised; Entitled to special refunds on medicines for cancer 31.12., age-standardised population share(%); Entitled to special refunds on medicines for cancer 31.12., as % of total population; Five-year relative survival rate of bowel cancer patients, %; Five-year relative survival rate of breast cancer patients, %; Five-year relative survival rate of cervical cancer patients, %; Proportion of women invited to breast cancer screening (mammography) who attended, %; Proportion of women invited to cervical cancer screening (smear test) who attended, %.
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| '''Source of Information:''' Unknown.
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| '''Data level:''' Hospital level.
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| '''Number of Records:''' Unknown.
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| '''Date Range:''' 1990 onwards.
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| '''Cancer Areas of Interest:''' Unknown.
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| '''Open data access:''' [https://sotkanet.fi/sotkanet/en/haku?q=cancer The data is openly available.]
| |
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/research-use-and-data-permits Information on how to access data can be found here.]
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| == [[Databases for Clinical Trials, Surveys and Biobanks]] == | |
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| === Survey/Biobank: FINRISK ===
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| '''Primary purpose:''' Store the sample collection and data information of participants from the FINRISK survey. The purpose of the survey was to assess the risk factors of chronic diseases, including cancer.
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| '''Sponsor, manager or home institution:''' THL Biobank.
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| '''Type of information:''' Survey answers about cancer diagnosis and smoking habits or exposure, as well as many other survey answers for risk factors. There's also a sample collection from the participants at the THL Biobank. [https://thl.fi/en/web/thlfi-en/research-and-development/research-and-projects/the-national-finrisk-study/questionnaires Questionnaires can be found here.]
| |
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| '''Data level:''' Respondent level.
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| '''Number of Records:''' About 35,000.
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| '''Date Range:''' 1972-2012.
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| '''Cancer Areas of Interest:''' Unknown.
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| '''Open data access:''' Data is not publicly available. [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/the-national-finrisk-study-1992-2012 More information and variable descriptions can be found here.]
| |
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thl-biobank/for-researchers/application-process Information on how to access data can be found here.]
| |
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| === Survey/Biobank: National FinHealth 2017 Study === | |
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| '''Primary purpose:''' Store the sample collection and data information of participants from the National FinHealth 2017 Study survey. The purpose of the survey was to produce up-to-date information on health, health behavior, functional capacity and well-being of adults.
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| '''Sponsor, manager or home institution:''' THL Biobank.
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| '''Type of information:''' Survey answers about cancer diagnosis and smoking habits or exposure, as well as many other survey answers for health information and behavior. There's also a sample collection from the participants at the THL Biobank. [https://thl.fi/en/web/thlfi-en/research-and-development/research-and-projects/national-finhealth-study/questionnaires/finhealth2017 More information can be found here.]
| |
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| '''Data level:''' Respondent level.
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| '''Number of Records:''' About 6,600.
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| '''Date Range:''' 2017.
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| '''Open data access:''' Data is not publicly available. [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/national-finhealth-study More information and variable descriptions can be found here.]
| |
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thl-biobank/for-researchers/application-process Information on how to access data can be found here.]
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| === Survey/Biobank: Finnish Mobile Clinic Examination === | |
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| '''Primary purpose:''' Store the sample collection and data information of participants from the Finnish Mobile Clinic Examination survey. The purpose of the survey was to monitor population health, need for treatment, functional abilities, and collect data for epidemiological search.
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| '''Sponsor, manager or home institution:''' THL Biobank.
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| '''Type of information:''' Medical history, smoking habits, and other health information. There's also a sample collection from the participants at the THL Biobank.
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| '''Data level:''' Respondent level.
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| '''Number of Records:''' About 60,000.
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| '''Date Range:''' 1965-1980.
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| '''Cancer Areas of Interest:''' Unknown.
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| '''Open data access:''' Data is not publicly available. [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/finnish-mobile-clinic-collections-1966-1980-autoklinikka- More information can be found here.]
| |
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thl-biobank/for-researchers/application-process Information on how to access data can be found here.]
| |
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| === Survey/Biobank: Health 2000 and 2011 === | |
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| '''Primary purpose:''' Store the sample collection and data information of participants from the Health 2000 and 2011 survey. The purpose of the survey was to gather data on the most important public health problems in working-aged and aged population, their causes and treatment as well as on the population’s functional capacity and working capacity.
| |
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| '''Sponsor, manager or home institution:''' THL Biobank
| |
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| '''Type of information:''' Medical history, smoking habits, and other health information. There's also a sample collection from the participants at the THL Biobank. [https://thl.fi/en/web/thlfi-en/research-and-development/research-and-projects/health-2000-2011/forms Forms can be found here.]
| |
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| '''Data level:''' Respondent level.
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| '''Number of Records:''' About 13,000.
| |
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| '''Date Range:''' 2000 and 2011.
| |
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| '''Cancer Areas of Interest:''' Unknown.
| |
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| '''Open data access:''' Data is not publicly available. [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/health-2000-and-2011-surveys More information can be found here.]
| |
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thl-biobank/for-researchers/application-process Information on how to access data can be found here.]
| |
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| === Study/Biobank: ATBC Study ===
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| '''Primary purpose:''' Store the sample collection and data information of participants from the study "The alpha-tocopherol, beta-carotene lung cancer prevention study: Design, methods, participant characteristics, and compliance".
| |
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| '''Sponsor, manager or home institution:''' THL Biobank.
| |
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| '''Type of information:''' Detailed information about participants, including physical description, smoking habits, health record, and others. There's also a sample collection from the participants at the THL Biobank. [https://atbcstudy.cancer.gov/documentation/#diet All variables can be found here.]
| |
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| '''Data level:''' Patient level.
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| '''Number of Records:''' About 29,000.
| |
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| '''Date Range:''' 1985-1993
| |
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| '''Cancer Areas of Interest:''' Lung cancer.
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| '''Open data access:''' Data is not publicly available. [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/atbc-study More information can be found here.]
| |
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| '''Information/Contact for data request:''' [https://thl.fi/en/web/thl-biobank/for-researchers/application-process Information on how to access data can be found here.]
| |
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| == [[Electronic Health Records]] == | |
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| == [[Clinical Practices Guidelines]] ==
| |
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| == [[Latest Policymaking Initiatives]] ==
| |
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| === Survey: FinSote - Lifestyle and Risk Factors ===
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| '''Sponsor, manager or home institution:''' Finnish Institute for Health and Welfare
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| '''Primary purpose:'''' The FinSote National health survey aims to monitor the changes in the population's well-being and health.
| |
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| '''Type of information:''' Proportion of daily smokers, proportion of daily users of e-cigarettes containing nicotine, and Proportion of daily users of tobacco products or e-cigarettes containing nicotine.
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| '''Level:''' National level.
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| '''Access to information:''' [https://terveytemme.fi/finsote/2020/elintavat.html Information can be found here.]
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| <!-- == [[Cancer-related Patient Associations and Resources]] == | |
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| <!-- https://cancerregistry.fi/information/data-protection-notice/ on the header there is info about patient associations --> | |
