|
|
| (135 intermediate revisions by 5 users not shown) |
| Line 1: |
Line 1: |
| | <span style="display:none">forresearchers</span> |
| | <span style="display:none">forpatients</span> |
| | <span style="display:none">forproviders</span> |
| | <span style="display:none">forpolicymakers</span> |
| | <span style="display:none">finlandcountry</span> |
| | [https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.] |
| | |
| == Cancer Centers == | | == Cancer Centers == |
| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| == Healthcare System ==
| | [[hasCancerCenter::Helsinki University Hospital Comprehensive Cancer Center]] |
| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
| | |
| | [[hasCancerCenter::Turku University Hospital Cancer Centre]] |
|
| |
|
| Finland operates a decentralized, tax-funded universal healthcare system. The system is primarily managed by the Ministry of Social Affairs and Health at a national level, but about 300 municipalities hold significant responsibility for organizing and providing health services to their residents.
| | [[hasCancerCenter::TAYS Cancer Centre Tampere University Hospital]] |
|
| |
|
| All Finnish citizens and permanent residents have access to comprehensive healthcare services through the municipal health care services and the National Health Insurance (NHI) scheme, managed by the Social Insurance Institution (SII). The municipal health care services cover all necessary health services at all levels, while the NHI funds healthcare-related travel costs, outpatient medications, and certain private sector services. Certain groups, such as asylum seekers without a residence permit, undocumented immigrants, and foreign temporary workers, have access to essential emergency care.
| | [[hasCancerCenter::Cancer Center of Kuopio University Hospital]] |
|
| |
|
| Healthcare benefits under the Finnish system include preventative care, primary and specialized medical care, mental health services, dental care, and rehabilitation services. Access to these services requires residency in Finland, with some services having waiting times for non-emergency cases.
| | [[hasCancerCenter::Oulu University Hospital]] |
|
| |
|
| Finland maintains a robust system of electronic health records (EHR), managed by healthcare providers and integrated into a national data repository known as Kanta. Health registries and claims data provide comprehensive, anonymized data on health conditions and health services utilization. Approximately 75% of health expenditure is publicly funded, and ongoing reforms aim to streamline sector structures and financing. | | == [[hasHealthcareSystem::Healthcare_System_(Finland)|Healthcare System]] == |
| | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| </div> | | </div> |
|
| |
|
| Line 17: |
Line 26: |
| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| === Database: Care Register for Health Care === | | === [[hasDatabase::Database:_Care_Register_for_Health_Care_(Finland)|Database: Care Register for Health Care]] === |
|
| |
|
| '''Primary purpose:''' Collect data on the activities of health centers, hospitals, and other institutions providing inpatient care and on the clients treated in them as well as on home-nursing clients for the purposes of statistics, research, and planning.
| | === [[hasDatabase::Database:_Register_of_Primary_Health_Care_Visits_(Finland)|Database: Register of Primary Health Care Visits]] === |
|
| |
|
| '''Sponsor, manager or home institution:''' Finnish Institute of Health and Welfare.
| |
|
| |
| '''Type of information:''' [[Data Dictionary: Care Register for Health Care]]. More information about the data contained in the dataset [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/register-descriptions/care-register-for-health-care].
| |
|
| |
| '''Source of Information:''' Data is sent by healthcare providers nationwide.
| |
|
| |
| '''Data level:''' Patient level.
| |
|
| |
| '''Number of Records:''' Unknown.
| |
|
| |
| '''Date Range:''' 1969-1993.
| |
|
| |
| '''Cancer Areas of Interest:''' Unknown.
| |
|
| |
| '''Open Data Access:''' Partially publicly available [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/register-descriptions/care-register-for-health-care]. Instructions to request data for restricted content [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/research-use-and-data-permits].
| |
|
| |
| '''Information/Contact for data request:''' Contact information [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/research-use-and-data-permits/contact-details].
| |
|
| |
| === Database: Kelasto - Medical Benefits ===
| |
|
| |
| '''Primary purpose:''' Promote the use and exchange of information by compiling key statistical information, in this case, information about insurance claims.
| |
|
| |
| '''Sponsor, manager or home institution:''' Kela (in English: The Social Insurance Institution (SII)); Parliament.
| |
|
| |
| '''Type of information:''' The number of persons who received compensation from specialists' fees; The number of reimbursed specialist visits. The figures also include the number of doctor's opinions and prescriptions (not made through pharmacies); Euro amounts of fees collected from specialist visits and medical reimbursements paid for them; Compensation percentage. The number tells the percentage paid to the insured as health insurance compensation of the collected medical fees; Ratio cost (=charges collected) per visit; Medical Specialties, Reference period, and geographical focus.
| |
|
| |
| '''Source of Information:''' Healthcare customers send data from claims for benefits and job applications.
| |
|
| |
| '''Data level:''' National, regional, and hospital district level.
| |
|
| |
| '''Number of Records:''' Unknown.
| |
|
| |
| '''Date Range:''' 2016 onwards.
| |
|
| |
| '''Open data access:''' Partially publicly available [https://raportit.kela.fi/ibi_apps/WFServlet?IBIF_ex=NIT129AL&YKIELI=S]. Instructions to request data for restricted content [https://www.kela.fi/data-protection].
| |
|
| |
| '''Information/Contact for data request:''' Contact information [https://www.kela.fi/data-protection].
| |
| </div> | | </div> |
|
| |
|
| Line 63: |
Line 35: |
| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| === Database: Finnish Cancer Registry === | | === [[hasDatabase::Database:_Finnish_Cancer_Registry_(Finland)|Database: Finnish Cancer Registry]] === |
| | |
| '''Primary purpose:''' Assess the causes and impacts of cancer burden and the effectiveness of cancer screening programmes in the population.
| |
| | |
| '''Sponsor, manager or home institution:''' Cancer Society of Finland.
| |
| | |
| '''Type of information:''' Data on cancer screenings, cancer incidence, deaths due to cancer, risk of developing cancer, persons alive with past diagnosis, prognosis of cancer patients.
| |
| | |
| [[Data Dictionary: Finnish Cancer Registry]]
| |
| | |
| [[Data Dictionary: Cervical Cancer Screening]]
| |
| | |
| [[Data Dictionary: Breast Cancer Screening]]
| |
| | |
| More information about the data is contained in the database [https://aineistokatalogi.fi/catalog/studies/21085403-7be8-4f93-bf05-231518c642a0].
| |
| | |
| '''Available type of information:''' Cancer incidence, deaths due to cancer, risk of developing cancer, persons alive with past diagnosis, prognosis of cancer patients; sorted by sex, region, cancer site, year, and values.
| |
| | |
| '''Source of Information:''' Health organizations provide information on every case or strong suspicion of cancer detected in Finland to the Cancer Registry of the National Institute for Health and Welfare, which is maintained by the Finnish Cancer Society.
| |
| | |
| '''Data level:''' Patient level.
| |
|
| |
|
| '''Available data level:''' Regional level.
| | === [[hasDatabase::Database:_Statistics_Finland_-_Cause_of_Death_(Finland)|Database: Statistics Finland - Cause of Death]] === |
|
| |
|
| '''Number of Records:''' Unknown.
| | === [[hasDatabase::Database:_Sotkanet_Indicator_Bank_(Finland)|Database: Sotkanet Indicator Bank]] === |
| | |
| '''Date Range:''' 1953 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' [[Cancer Areas of Interest: Finnish Cancer Registry]].
| |
| | |
| '''Open data access:''' Partially publicly available [https://cancerregistry.fi/statistics/cancer-statistics/]. Instructions to request data for restricted content [https://cancerregistry.fi/research/come-carry-research-us/].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://cancerregistry.fi/information/contacts/].
| |
| | |
| === Database: Statistics Finland - Cause of Death === | |
| | |
| '''Primary purpose:''' Provide publicly available information on causes of death.
| |
| | |
| '''Sponsor, manager or home institution:''' Statistics Finland; Ministry of Finance.
| |
| | |
| '''Type of information:''' [[Data Dictionary: Causes of death - research data]].
| |
| | |
| More information about the data contained in the database [https://aineistokatalogi.fi/catalog/studies/778c33bf-aceb-423f-89d9-e5abb5a0585c/datasets/fcc7f03d-3f83-49df-973d-f2d94b3742a6].
| |
| | |
| '''Available type of information:''' Deaths by underlying cause of death, age, sex, and county.
| |
| | |
| '''Source of Information:''' Death certificates and data from the Population Information System.
| |
| | |
| '''Data level:''' Patient level.
| |
| | |
| '''Available data level:''' Regional level.
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date Range:''' From 1969 onwards.
| |
| | |
| '''Cancer Areas of Interest (ICD-10):''' Neoplasms (C00-D48); malignant neoplasms (C00-C97); malignant neoplasm of lip, oral cavity and pharynx (C00-C14); oesophagus (C15); stomach (C16); colon (C18, C19); rectum, anus and anal canal (C20-C21); primary malignant neoplasm of liver and intrahepatic bile ducts (C22); malignant neoplasm of pancreas (C25); larynx, trachea, bronchus and lung (C32-C34); malignant melanoma of skin (C43); breast (C50); cervix uteri (C53); uterus (C54-C55); ovary (C56); prostate (C61); kidney (C64); bladder (C67); lymphoid, haematopoietic and related tissue (C81-C96), other malignant neoplasms; other neoplasms (D00-D48).
| |
| | |
| '''Open data access:''' Partially publicly available [https://pxdata.stat.fi/PXWeb/pxweb/en/StatFin/StatFin__ksyyt/?tablelist=true]. Instructions to request data for restricted content [https://findata.fi/sv/faq/informationsledning/].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://findata.fi/sv/faq/informationsledning/].
| |
| | |
| === Database: Register of Primary Health Care Visits ===
| |
| | |
| '''Primary purpose:''' Provide data on outpatient primary care for statistics, research, development and planning, and also to monitor infectious diseases, injuries, and health examinations.
| |
| | |
| '''Sponsor, manager or home institution:''' Finnish Institute of Health and Welfare.
| |
| | |
| '''Type of information:''' Data content of the register: Service provider in the service event; client contact by client; assessment of the need for treatment; appointment data; data on the content of the service event, such as reason for visit, procedures, and follow-up care. Data content of the care notification to the Register of Primary Health Care Visits - Basic data about the service event: Client's personal identity number (encrypted in the register); Client's municipality of residence; Postcode of the client's place of residence; Service provider; Service unit of the service provider; Event record code. Data on contact type and assessment of the need for treatment: Date and time of contact; Date and time of assessment of the need for treatment; Occupation (person assessing the need for treatment); Urgency of care; Type of visit; Outcome of assessment of the need for treatment. Appointment data: Date and time of appointment booking; Date and time of booked appointment; Occupation; Service type; Contact type. Service event data: Date and time, service event starting time; Date and time, service event closing time; Occupation (person delivering care); Service type; Contact type; Client group; Urgency; Type of visit; First visit; Reasons for visit/diagnoses; External cause (accidents); Type of accident; Procedures and interventions; Vaccination data and medication data; Dental health care, DMFT index; Dental health care, CPI index. Follow-up care: Service event cancellation; Reason for service event cancellation. More information about the data contained in the dataset [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/register-descriptions/register-of-primary-health-care-visits].
| |
| | |
| '''Source of Information:''' Data is sent by healthcare providers nationwide.
| |
| | |
| '''Data level:''' Patient level.
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date Range:''' 2008 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' Unknown.
| |
| | |
| '''Open data access:''' Partially publicly available [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/register-descriptions/register-of-primary-health-care-visits]. Instructions to request data for restricted content [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/research-use-and-data-permits].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/research-use-and-data-permits/contact-details].
| |
| | |
| === Database: Sotkanet Indicator Bank ===
| |
| | |
| '''Primary purpose:''' Offer information about key population welfare and health data.
| |
| | |
| '''Sponsor, manager or home institution:''' Finnish Institute of Health and Welfare.
| |
| | |
| '''Type of information:''' The database contains the following indicators related to cancer: Cancer index, age-standardized info ind. 245
| |
| Cancer index, not age-standardized; Entitled to special refunds on medicines for cancer 31.12., age-standardized population share(%); Entitled to special refunds on medicines for cancer 31.12., as % of total population; Five-year relative survival rate of bowel cancer patients, %; Five-year relative survival rate of breast cancer patients, %; Five-year relative survival rate of cervical cancer patients, %; Proportion of women invited to breast cancer screening (mammography) who attended, %; Proportion of women invited to cervical cancer screening (smear test) who attended, %.
| |
| | |
| '''Source of Information:''' Unknown.
| |
| | |
| '''Data level:''' Hospital level.
| |
| | |
| '''Number of Records:''' Unknown.
| |
| | |
| '''Date Range:''' 1990 onwards.
| |
| | |
| '''Cancer Areas of Interest:''' Unknown.
| |
| | |
| '''Open data access:''' Publicly available [https://sotkanet.fi/sotkanet/en/haku?q=cancer].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://thl.fi/en/web/thlfi-en/statistics-and-data/data-and-services/research-use-and-data-permits/contact-details].
| |
| </div> | | </div> |
|
| |
|
| Line 174: |
Line 45: |
| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| === Survey/Biobank: FINRISK === | | === [[hasDatabase::Survey/Biobank:_FINRISK_(Finland)|Survey/Biobank: FINRISK]] === |
|
| |
|
| '''Primary purpose:''' Store the sample collection and data information of participants from the FINRISK survey. The purpose of the survey was to assess the risk factors of chronic diseases, including cancer.
| | === [[hasDatabase::Survey/Biobank:_National_FinHealth_2017_Study_(Finland)|Survey/Biobank: National FinHealth 2017 Study]] === |
|
| |
|
| '''Sponsor, manager or home institution:''' THL Biobank.
| | === [[hasDatabase::Survey/Biobank:_Finnish_Mobile_Clinic_Examination_(Finland)|Survey/Biobank: Finnish Mobile Clinic Examination]] === |
|
| |
|
| '''Type of information:''' Survey answers about cancer diagnosis and smoking habits or exposure, as well as many other survey answers for risk factors. There's also a sample collection from the participants at the THL Biobank. Questionnaires information [https://thl.fi/en/web/thlfi-en/research-and-development/research-and-projects/the-national-finrisk-study/questionnaires].
| | === [[hasDatabase::Survey/Biobank:_Health_2000_and_2011_(Finland)|Survey/Biobank: Health 2000 and 2011]] === |
|
| |
|
| '''Data level:''' Respondent level.
| | === [[hasDatabase::Study/Biobank:_ATBC_Study_(Finland)|Biobank: ATBC Study]] === |
|
| |
|
| '''Number of Records:''' About 35,000.
| | </div> |
|
| |
|
| '''Date Range:''' 1972-2012.
| | == Clinical Practice Guidelines == |
| | === [[hasClinicalGuidelines::Finnish_Medical_Association_Duodecim_Guidelines_(Finland)|Guidelines: Finnish Medical Association Duodecim Guidelines]] === |
|
| |
|
| '''Cancer Areas of Interest:''' Unknown.
| | === [[hasClinicalGuidelines::Finnish_Breast_Cancer_Association_Guideline_(Finland)|Guidelines: Finnish Breast Cancer Association Guideline]] === |
| | </div> |
|
| |
|
| '''Open data access:''' Partially publicly available [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/the-national-finrisk-study-1992-2012]. Instructions to request data for restricted content [https://thl.fi/en/web/thl-biobank/for-researchers/application-process].
| | == Latest Policymaking Initiatives == |
| | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| '''Information/Contact for data request:''' Contact information [https://thl.fi/en/web/thl-biobank/contact-information].
| | === [[hasReport::Report:_Finnish_Cancer_Registry_(Finland)|Report: Finnish Cancer Registry]] === |
| | |
| === Survey/Biobank: National FinHealth 2017 Study === | |
| | |
| '''Primary purpose:''' Store the sample collection and data information of participants from the National FinHealth 2017 Study survey. The purpose of the survey was to produce up-to-date information on health, health behavior, functional capacity and well-being of adults.
| |
| | |
| '''Sponsor, manager or home institution:''' THL Biobank.
| |
| | |
| '''Type of information:''' Survey answers about cancer diagnosis and smoking habits or exposure, as well as many other survey answers for health information and behavior. There's also a sample collection from the participants at the THL Biobank. More information [https://thl.fi/en/web/thlfi-en/research-and-development/research-and-projects/national-finhealth-study/questionnaires/finhealth2017].
| |
| | |
| '''Data level:''' Respondent level.
| |
| | |
| '''Number of Records:''' About 6,600.
| |
| | |
| '''Date Range:''' 2017.
| |
| | |
| '''Open data access:''' Data is not publicly available [https://thl.fi/en/web/thlfi-en/research-and-development/research-and-projects/national-finhealth-study/questionnaires/finhealth2017]. Instructions to request data for restricted content [https://thl.fi/en/web/thl-biobank/for-researchers/application-process].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://thl.fi/en/web/thlfi-en/research-and-development/research-and-projects/national-finhealth-study/contact-details].
| |
| | |
| === Survey/Biobank: Finnish Mobile Clinic Examination === | |
| | |
| '''Primary purpose:''' Store the sample collection and data information of participants from the Finnish Mobile Clinic Examination survey. The purpose of the survey was to monitor population health, need for treatment, functional abilities, and collect data for epidemiological search.
| |
| | |
| '''Sponsor, manager or home institution:''' THL Biobank.
| |
| | |
| '''Type of information:''' Medical history, smoking habits, and other health information. There's also a sample collection from the participants at the THL Biobank.
| |
| | |
| '''Data level:''' Respondent level.
| |
| | |
| '''Number of Records:''' About 60,000.
| |
| | |
| '''Date Range:''' 1965-1980.
| |
| | |
| '''Cancer Areas of Interest:''' Unknown.
| |
| | |
| '''Open data access:''' Partially publicly available [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/finnish-mobile-clinic-collections-1966-1980-autoklinikka-]. Instructions to request data for restricted content [https://thl.fi/en/web/thl-biobank/for-researchers/application-process].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/finnish-mobile-clinic-collections-1966-1980-autoklinikka-].
| |
| | |
| === Survey/Biobank: Health 2000 and 2011 === | |
| | |
| '''Primary purpose:''' Store the sample collection and data information of participants from the Health 2000 and 2011 survey. The purpose of the survey was to gather data on the most important public health problems in working-aged and aged population, their causes and treatment as well as on the population’s functional capacity and working capacity.
| |
| | |
| '''Sponsor, manager or home institution:''' THL Biobank
| |
| | |
| '''Type of information:''' Medical history, smoking habits, and other health information. There's also a sample collection from the participants at the THL Biobank [https://thl.fi/en/web/thlfi-en/research-and-development/research-and-projects/health-2000-2011/forms].
| |
| | |
| '''Data level:''' Respondent level.
| |
| | |
| '''Number of Records:''' About 13,000.
| |
| | |
| '''Date Range:''' 2000 and 2011.
| |
| | |
| '''Cancer Areas of Interest:''' Unknown.
| |
| | |
| '''Open data access:''' Partially publicly available [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/health-2000-and-2011-surveys]. Instructions to request data for restricted content [https://thl.fi/en/web/thl-biobank/for-researchers/application-process].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/health-2000-and-2011-surveys].
| |
| | |
| === Study/Biobank: ATBC Study ===
| |
| | |
| '''Primary purpose:''' Store the sample collection and data information of participants from the study "The alpha-tocopherol, beta-carotene lung cancer prevention study: Design, methods, participant characteristics, and compliance.
| |
| | |
| '''Sponsor, manager or home institution:''' THL Biobank.
| |
| | |
| '''Type of information:''' Detailed information about participants, including physical description, smoking habits, health record, and others. There's also a sample collection from the participants at the THL Biobank [https://atbcstudy.cancer.gov/documentation/#diet].
| |
| | |
| '''Data level:''' Patient level.
| |
| | |
| '''Number of Records:''' About 29,000.
| |
| | |
| '''Date Range:''' 1985-1993
| |
| | |
| '''Cancer Areas of Interest:''' Lung cancer.
| |
| | |
| '''Open data access:''' Partially publicly available [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/atbc-study]. Instructions to request data for restricted content [https://thl.fi/en/web/thl-biobank/for-researchers/application-process].
| |
| | |
| '''Information/Contact for data request:''' Contact information [https://thl.fi/en/web/thl-biobank/for-researchers/sample-collections/atbc-study].
| |
| | |
| === Survey: FinSote - Lifestyle and Risk Factors ===
| |
|
| |
|
| '''Sponsor, manager or home institution:''' Finnish Institute for Health and Welfare
| | === [[hasReport::Report:_National_Cancer_Strategy_2026–2035_(FICAN)_(Finland)|Report: National Cancer Strategy 2026–2035 (FICAN)]] === |
|
| |
|
| '''Primary purpose:''' The FinSote National health survey aims to monitor the changes in the population's well-being and health.
| | === [[hasReport::Report:_Ministry_of_Social_Affairs_and_Health_(Finland)|Report: Ministry of Social Affairs and Health]] === |
|
| |
|
| '''Type of information:''' Proportion of daily smokers, the proportion of daily users of e-cigarettes containing nicotine, and Proportion of daily users of tobacco products or e-cigarettes containing nicotine.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Finland)|Report: EU Country Cancer Profile 2023]] === |
|
| |
|
| '''Level:''' National level.
| | === [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Finland)|Report: EU Country Cancer Profile 2025]] === |
|
| |
|
| '''Access to information:''' Access information [https://terveytemme.fi/finsote/2020/elintavat.html].
| | === [[hasReport::Report:_The_development_of_cancer_prevention,_early_detection_and_rehabilitation_assistance_for_the_period_2014-2025_(Finland)|Report: The development of cancer prevention, early detection and rehabilitation assistance for the period 2014-2025]] === |
| <!-- https://cancerregistry.fi/information/data-protection-notice/ on the header there is info about patient associations -->
| |
| </div> | | </div> |
|
| |
|
| Line 289: |
Line 81: |
| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
|
| |
|
| === Compilation: ESMO Patient Guides === | | === [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Finland)|Patient Guides: ESMO Patient Guides Compilation]] === |
|
| |
|
| '''Sponsor, manager or home institution:''' European Society for Medical Oncology
| | === [[hasPatientAssociation::Patient_Association:_Finnish_Prostate_Cancer_Association_(Finland)|Patient Association: Finnish Prostate Cancer Association]] === |
|
| |
|
| '''Primary purpose:''' To translate complex medical language into understandable information for patients.
| | === [[hasPatientAssociation::Patient_Association:_Colores,_the_Finnish_Colorectal_Cancer_Association_(Finland)|Patient Association: Colores, the Finnish Colorectal Cancer Association]] === |
|
| |
|
| '''Available guides:''' Coping: A patient's guide.
| | === [[hasPatientAssociation::Patient_Association:_Sylva_Ry_(Finland)|Patient Association: Sylva Ry]] === |
|
| |
|
| '''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
| | === [[hasPatientAssociation::Patient_Association:_The_Breast_Cancer_Association_-_Europa_Donna_Finland_(Finland)|Patient Association: The Breast Cancer Association - Europa Donna Finland]] === |
|
| |
|
| '''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-finnish].
| | === [[hasPatientAssociation::Patient_Association:_Suomen_Söpäpotilaat_(Finland)|Patient Association: Suomen Söpäpotilaat]] === |
|
| |
|
| == Latest Policymaking Initiatives ==
| | === [[hasPatientGuides::Patient_Guides:_The_Finnish_Cancer_Patients_(Finland)|Patient Guides: The Finnish Cancer Patients]] === |
| <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
| |
| === Finnish Cancer Registry Reports === | |
|
| |
|
| '''Sponsor, manager or home institution:''' Finnish Cancer Registry.
| | === [[hasPatientResource::Self-help_Group:_Cancer_Society_Finland_—_Peer_Support_Networks_(Finland)|Self-help Group: Cancer Society of Finland — Peer Support Networks]] === |
|
| |
|
| '''Primary purpose:''' To maintain a comprehensive national registry of all diagnosed cancer cases and serve as a statistical and epidemiological research institute.
| | </div> |
|
| |
|
| '''Type of information:''' Screenings programs, annual cancer reports with new cancer cases, the number of cancer deaths, cancer prevalence and patient survival.
| | == [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Finland)|Quality of Life and Palliative Care Research]] == |
| | | <div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide"> |
| '''Data level:''' National level.
| |
| | |
| '''Access to information:''' Access Information [https://cancerregistry.fi/reports-and-publications/].
| |
| </div> | | </div> |
|
| |
|
| == Quality of Life and Palliative Care Research == | | __NOTOC__ |
| | | <span style="display:none">hasCancerCenter::Helsinki University Hospital Comprehensive Cancer Center</span> |
| '''List of Articles:''' Quality of Life [https://pubmed.ncbi.nlm.nih.gov/?term=Quality+of+Life%5BMeSH%5D+AND+Finland%5BAffiliation%5D+AND+cancer&filter=pubt.clinicaltrial&filter=pubt.meta-analysis&filter=pubt.randomizedcontrolledtrial&filter=pubt.systematicreview] and Palliative Care [https://pubmed.ncbi.nlm.nih.gov/?term=Palliative+Care%5BMeSH%5D+AND+Finland%5BAffiliation%5D+AND+cancer&filter=pubt.clinicaltrial&filter=pubt.meta-analysis&filter=pubt.randomizedcontrolledtrial&filter=pubt.systematicreview].
| | <span style="display:none">hasCancerCenter::Turku University Hospital Cancer Centre</span> |
| <!-- | | <span style="display:none">hasCancerCenter::TAYS Cancer Centre Tampere University Hospital</span> |
| == Electronic Health Records == | | <span style="display:none">hasCancerCenter::Cancer Center of Kuopio University Hospital</span> |
| | | <span style="display:none">hasCancerCenter::Oulu University Hospital</span> |
| == Clinical Practices Guidelines == | | <span style="display:none">hasHealthcareSystem::Healthcare_System_(Finland)|Healthcare System</span> |
| | | <span style="display:none">hasDatabase::Database:_Care_Register_for_Health_Care_(Finland)|Database: Care Register for Health Care</span> |
| == Latest Policymaking Initiatives == | | <span style="display:none">hasDatabase::Database:_Register_of_Primary_Health_Care_Visits_(Finland)|Database: Register of Primary Health Care Visits</span> |
| | | <span style="display:none">hasDatabase::Database:_Finnish_Cancer_Registry_(Finland)|Database: Finnish Cancer Registry</span> |
| -->
| | <span style="display:none">hasDatabase::Database:_Statistics_Finland_-_Cause_of_Death_(Finland)|Database: Statistics Finland - Cause of Death</span> |
| </div> | | <span style="display:none">hasDatabase::Database:_Sotkanet_Indicator_Bank_(Finland)|Database: Sotkanet Indicator Bank</span> |
| | <span style="display:none">hasDatabase::Survey/Biobank:_FINRISK_(Finland)|Survey/Biobank: FINRISK</span> |
| | <span style="display:none">hasDatabase::Survey/Biobank:_National_FinHealth_2017_Study_(Finland)|Survey/Biobank: National FinHealth 2017 Study</span> |
| | <span style="display:none">hasDatabase::Survey/Biobank:_Finnish_Mobile_Clinic_Examination_(Finland)|Survey/Biobank: Finnish Mobile Clinic Examination</span> |
| | <span style="display:none">hasDatabase::Survey/Biobank:_Health_2000_and_2011_(Finland)|Survey/Biobank: Health 2000 and 2011</span> |
| | <span style="display:none">hasDatabase::Study/Biobank:_ATBC_Study_(Finland)|Study/Biobank: ATBC Study</span> |
| | <span style="display:none">hasClinicalGuidelines::Finnish_Medical_Association_Duodecim_Guidelines_(Finland)|Finnish Medical Association Duodecim Guidelines</span> |
| | <span style="display:none">hasClinicalGuidelines::Finnish_Breast_Cancer_Association_Guideline_(Finland)|Finnish Breast Cancer Association Guideline</span> |
| | <span style="display:none">hasReport::Report:_Finnish_Cancer_Registry_(Finland)|Report: Finnish Cancer Registry</span> |
| | <span style="display:none">hasReport::Report:_Ministry_of_Social_Affairs_and_Health_(Finland)|Report: Ministry of Social Affairs and Health</span> |
| | <span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Finland)|Report: EU Country Cancer Profile 2023</span> |
| | <span style="display:none">hasReport::The_development_of_cancer_prevention,_early_detection_and_rehabilitation_assistance_for_the_period_2014-2025_(Finland)|Report: The development of cancer prevention, early detection and rehabilitation assistance for the period 2014-2025</span> |
| | <span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Finland)|Compilation: ESMO Patient Guides</span> |
| | <span style="display:none">hasPatientAssociation::Patient_Association:_Finnish_Prostate_Cancer_Association_(Finland)|Patient Association: Finnish Prostate Cancer Association</span> |
| | <span style="display:none">hasPatientAssociation::Patient_Association:_Colores,_the_Finnish_Colorectal_Cancer_Association_(Finland)|Patient Association: Colores, the Finnish Colorectal Cancer Association</span> |
| | <span style="display:none">hasPatientAssociation::Patient_Association:_Sylva_Ry_(Finland)|Patient Association: Sylva Ry</span> |
| | <span style="display:none">hasPatientAssociation::Patient_Association:_The_Breast_Cancer_Association_-_Europa_Donna_Finland_(Finland)|Patient Association: The Breast Cancer Association - Europa Donna Finland</span> |
| | <span style="display:none">hasPatientAssociation::Patient_Association:_Suomen_Söpäpotilaat_(Finland)|Patient Association: Suomen Söpäpotilaat</span> |
| | <span style="display:none">hasPatientGuides::Patient_Guides:_The_Finnish_Cancer_Patients_(Finland)|Patient Guides: The Finnish Cancer Patients</span> |
| | <span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Finland)|Quality of Life and Palliative Care Research</span> |
| | <span style="display:none">hasDatabase::Study/Biobank:_ATBC_Study_(Finland)|Biobank: ATBC Study</span> |
| | <span style="display:none">hasClinicalGuidelines::Finnish_Medical_Association_Duodecim_Guidelines_(Finland)|Guidelines: Finnish Medical Association Duodecim Guidelines</span> |
| | <span style="display:none">hasClinicalGuidelines::Finnish_Breast_Cancer_Association_Guideline_(Finland)|Guidelines: Finnish Breast Cancer Association Guideline</span> |
| | <span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Finland)|Patient Guides: ESMO Patient Guides Compilation</span> |
| | <span style="display:none">hasCancerType::C00-D48: All neoplasms</span> |
| | <span style="display:none">hasCancerType::C00-C97: All cancer types</span> |
| | <span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span> |
| | <span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span> |
| | <span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span> |
| | <span style="display:none">hasCancerType::C40-C41: Bone cancers</span> |
| | <span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span> |
| | <span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span> |
| | <span style="display:none">hasCancerType::C50: Breast cancer</span> |
| | <span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span> |
| | <span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span> |
| | <span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span> |
| | <span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span> |
| | <span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span> |
| | <span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span> |
| | <span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span> |
| | <span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span> |
| | <span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span> |
| | <span style="display:none">hasCancerType::D10-D36: Benign tumour</span> |
| | <span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span> |
| | <span style="display:none">hasCancerType::unknown</span> |