Sweden: Difference between revisions

Available guides: Bone Health in Cancer; Cancer Care During the COVID-19 Pandemic; Cancer Pain Management; Immunotherapy Side Effects; Personalized Cancer Medicine; Survivorship; AML; Biliary Tract Cancer; Bladder Cancer; Bone Sarcoma; Breast Cancer; Cervical Cancer; CML; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancer; Hepatocellular Carcinoma; Multiple Myeloma; Non-Small-Cell Lung Cancer; Oesophageal Cancer; Ovarian Cancer; Pancreatic Cancer; Prostate Cancer; Soft Tissue Sarcoma; Stomach Cancer; Testicular Cancer.

Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.

Access to information: List of guides [1].

Quality of Life and Palliative Care Research

List of Articles: Quality of Life [2] and Palliative Care [3].

@@ Line 66: / Line 66: @@
 === [[hasReport::Reports:_Socialstyrelsen_(Sweden)|Reports: Socialstyrelsen]] ===
-'''Sponsor, manager or home institution:''' Socialstyrelsen - The National Board of Health and Welfare.
-'''Primary purpose:''' To publish annual statistics on newly discovered cancer cases in Sweden, including various types of cancers and, starting from 2009, basal cell cancer, as part of the country's official statistics.
-'''Type of information:''' Cancer diagnostics and prognostics; Most commons cancer in Sweden; Cancer survival and mortality.
-'''Data level:''' National level.
-'''Access to information:''' Access Information [https://www.socialstyrelsen.se/statistik-och-data/statistik/alla-statistikamnen/cancer/]; Cancer incidence in 2021 [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/statistik/2022-12-8308.pdf]; Treatments information [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/ovrigt/2019-4-7.pdf].
 === [[hasReport::Report:_Cancer_Fonden_(Sweden)|Report: Cancer Fonden]] ===
-'''Sponsor, manager or home institution:''' Cancer Fonden.
-'''Primary purpose:''' To collaborate with healthcare organizations to map and evaluate methods for increasing participation in cancer screening programs.
-'''Type of information:''' Participation in the national screening programs;  New cases of cervical, breast and colon cancer; Participation cancer screenings; Municipalities with the highest and lowest participation in cancer screenings;  Income differences and participation in cancer screenings.
-'''Data level:''' National and regional level.
-'''Access to information:''' Access Information [https://static-files.cancerfonden.se/CFrapport-vard-2021.pdf].
 === [[hasReport::Reports:_Swedish_Palliative_Registry_(Sweden)|Reports: Swedish Palliative Registry]] ===
-'''Sponsor, manager or home institution:''' Svenska Palliativ Registret.
-'''Primary purpose:''' To improve end-of-life care for patients and their relatives by collecting data on care quality, identifying areas for improvement, and providing knowledge support for healthcare professionals, with research based on the registry's results.
-'''Type of information:''' General and specialized palliative care; Quality assurance; National care plan; Indicators; Coverage; Survival and death interview; Care in numbers.
-'''Data level:''' National level.
-'''Access to information:''' Access Information [https://www.palliativregistret.se/arkiv/arsrapporter/].
 === [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Sweden)|Report: EU Country Cancer Profile 2023]] ===
-'''Sponsor, manager or home institution:''' OECD and European Commission.
-'''Primary purpose:''' To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
-'''Type of information:''' National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
-'''Data level''': National level.
-'''Access to information:''' Access Information [https://www.oecd-ilibrary.org/social-issues-migration-health/landsprofiler-om-cancer-sverige-2023_4caa4294-sv].
 </div>

Sweden: Difference between revisions

Revision as of 14:28, 19 May 2024

Contents

Cancer Centers

Healthcare System

Administrative or Claims Data

Database: Socialstyrelsen National Patient Register

Registry: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case

Registries

Database: Socialstyrelsen Cancer Registry

Database: Socialstyrelsen Cause of Death Registry

Database: Medicines Registry

Database: National Quality Register for Cervical Cancer Prevention

Compilation: Swedish National Data Service (SND)

Databases for Clinical Trials, Surveys and Biobanks

Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls

Survey: Malmö Diet Cancer

Survey: Family Studies of Childhood Cancer - Genealogy Database

Survey: Cohort of Swedish men (COSM) - 2019 health

Survey: Swedish mammography cohort (SMC) 2019 lifestyle

Biobank/Database: Breast cancer - a metastasis study

Clinical Practices Guidelines

The National Clinical Cancer Care Guidelines

Latest Policymaking Initiatives

Reports: Socialstyrelsen

Report: Cancer Fonden

Reports: Swedish Palliative Registry

Report: EU Country Cancer Profile 2023

Cancer-related Patient Associations and Resources

Compilation: ESMO Patient Guides

Quality of Life and Palliative Care Research