France
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Cancer Centers
hasCancerCenter:Léon Bérard Center
University Cancer Institute Toulouse-Oncopole
APHP - Sorbonne Université - Institut Universitaire de Cancérologie(IUC)
Institut de Cancérologie de l'Ouest (ICO) - Integrated Center for Oncology
Cancer Institute Strasbourg Europe
Comprehensive Cancer Center Jean Perrin
Institut du Cancer de Montpellier
Georges-François Leclerc Cancer Center
Healthcare System
France operates a Statutory Health Insurance (SHI) system, providing universal coverage to its residents through two main schemes: one primarily for the agricultural sector and another more general one. The system is financed mainly through employee and employer contributions, along with earmarked taxes on various revenues.
The healthcare system is overseen by the Ministry of Health, with the SHI managed by the Caisse Nationale de l'Assurance Maladie (CNAM). The central government retains significant control over the healthcare system, despite some decentralization to regional health agencies.
SHI covers a broad range of services, such as preventive care, specialist consultations, hospitalizations, prescription drugs, and maternity care, financing about 83% of total health expenditure. However, SHI doesn't fully cover some goods like dental and optical devices. Hospital care is covered over 90% by SHI, but it only covers 44% of costs for non-pharmaceutical medical goods in ambulatory (outpatient) care.
Supplementary private insurance (mutuelle) or Voluntary Health Insurance (VHI) plays a significant role, with almost 95% of the population having some form of VHI. Certain services not fully covered by SHI, like dental and optical care, often rely on this VHI or out-of-pocket payments.
All residents in France, including long-term foreign residents, contribute to the SHI and can access its benefits. The Assurance Maladie issues a health insurance card, the Carte Vitale, to beneficiaries. This card electronically submits claims data for reimbursement. Electronic health records (Dossier Médical Partagé) are also maintained for each patient, enabling efficient information exchange among healthcare providers. France has recently been placing more emphasis on prevention, health promotion, and patient empowerment.
Administrative or Claims Data
SNIIRAM
Echantillon généraliste de bénéficiaires (EGB)
PMSI
Open Damir: Complete Database on Health Insurance Expenditure
National data on health insurance expenditure for community care
National health insurance expenditure data for private health facilities
Data by CPAM on health insurance expenditure relating to city care
Data by CPAM on health insurance expenditure relating to private health establishments
Open Medic: complete database on drug expenditure
Open Medic: additional databases on drug expenditure
Open PHMEV: complete database on hospital prescriptions for drugs delivered in the community
Open PHMEV: regional database on hospital prescriptions for drugs delivered in towns
Open Statins: comprehensive database on statin spending
Open Statins: additional bases on statin expenditure
Registries
Databases for Clinical Trials, Surveys and Biobanks
Clinical Practices Guidelines
Institut National du Cancer Guidelines
Sponsor, manager or home institution: Institut National du Cancer.
Primary purpose: To define good practices and ensure the quality of care for cancer patients by producing and labeling national benchmarks and recommendations for healthcare professionals.
Type of information: Common good practices for the management of all cancers, pain and therapeutic management, diagnostics, treatments and care recommendations.
Access to information: List of guidelines [1].
Latest Policymaking Initiatives
CNAM Studies and Data
Primary purpose: Offer access to publicly available databases and reports made by CNAM.
Sponsor, manager or home institution: Caisse Nationale de l'Assurance Maladie (CNAM) [2].
Type of information: Health reports and databases that include but are not limited to cancer reports and databases.
Data access: Publicly available [3].
Contact information: Information [4].
Report: Cancer Panorama in France
Sponsor, manager or home institution: Institut National du Cancer.
Primary purpose: To provide a concise overview of the latest essential data on major cancers in France, including incidence, mortality, survival, etc., as well as preventive and treatment actions that can be taken before, during, and after the disease.
Type of information: Cancer incidence; New cases of cancer; Cancer annual evolution; Numbers of deaths due cancer; Survival rete; Cancer prevalence; Risk factors; Participation in organized cancer screenings; Number of cancers detected by screenings; Number of hospitalizations in connection with the diagnosis, treatment or monitoring of cancer.
Data level: National level.
Access to information: Access Information [5].
Report: EU Country Cancer Profile 2023
Sponsor, manager or home institution: OECD and European Commission.
Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
Data level: National level.
Access to information: Access Information [6].
Patient Association: The Léon Bérard Center Volunteers Association
Primary purpose: To provide support, comfort, and companionship to patients and their families through various activities such as welcoming, listening, offering refreshments, and being present during hospitalization.
Contact information: Information [7].
Patient Association: ELLyE - Ensemble Leucémies Lymphomas Espoir
Primary purpose: To represent and support patients and their relatives affected by lymphomas, chronic lymphocytic leukemia, and Waldenström's disease, while actively participating in regulatory bodies and building a national network for advocacy and action.
Contact information: Information [8].
Patient Association: Belle et Bien
Primary purpose: To enhance the well-being and quality of life of individuals throughout France by providing beauty services and support through the dedicated work of their professional volunteers.
Contact information: Information [9].
Patient Association: Vivre comme avant
Primary purpose: To ensure that no woman faces breast cancer without support, providing companionship, encouragement, and hope throughout the course of hospitalization, treatment, and beyond, with the aim of helping them achieve a satisfactory quality of life after the illness.
Contact information: Information [10].
Patient Association: The IAS du Lyonnais
Primary purpose: To support ostomates and their loved ones, promote equitable care, provide information and assistance regarding ostomy and appliances, raise awareness about the challenges faced by ostomates to healthcare decision-makers, and support prevention and screening efforts.
Contact information: Information [11].
Patient Association: Les Mutilés de la voix
Primary purpose: To provide support, assistance, and reassurance to laryngectomees, while challenging the perception of being mutilated, through activities such as visiting patients, training healthcare professionals, and creating a welcoming environment at their premises.
Contact information: Information [12].
Patient Association: Lymphedema Rhône-Alpes
Primary purpose: To establish a network of support, information, and sharing among individuals affected by primary or secondary lymphedema, with the involvement of health professionals and lymphedema specialists.
Contact information: Information [13].
Patient Association: HNPCC Lynch
Primary purpose: To support families affected by Lynch syndrome by promoting research, disseminating research findings, advocating for prevention measures, providing support and information to families, and raising awareness among the public and healthcare professionals about this hereditary predisposition.
Contact information: Information [14].
Patient Association: Le Comité du Rhône de la Ligue nationale contre le cancer et les comités départementaux
Primary purpose: To fight against cancer on multiple fronts by conducting research, promoting prevention, providing support and accompaniment to patients and their loved ones, and mobilizing society for the cause.
Contact information: Information [15].
Patient Association: Mon Réseau Cancer
Primary purpose: To provide a social network platform for patients with breast, lung, colorectal, or gynecological cancer, and to raise awareness and promote the network's benefits when requested.
Contact information: Information [16].
Patient Association: Europa Donna Lyon
Primary purpose: To bring together women affected by breast cancer, their loved ones, and healthcare professionals, providing support, communication, information, and an exchange platform to share experiences and promote awareness of their actions and initiatives.
Contact information: Information [17].
Patient Association: JAMALV
Primary purpose: To provide a volunteer companion who offers attentive and respectful support to individuals in pain, acting as a valuable intermediary for caregivers and family members through their availability, active listening, and non-judgmental approach towards the patient.
Contact information: Information [18].
Patient Association: On est là
Primary purpose: To create spaces for exchange and support among young people affected by cancer, fostering connections and breaking isolation through meetings, sponsorship programs, discussion groups, participation in events like the Heroes' race, collaborations with the Cheer-Up Federation, anniversary celebrations, and providing training to healthcare teams focused on young adult adolescents.
Contact information: Information [19].
Patient Association: The Neurofibromatosis and Recklinghausen Association
Primary purpose: To provide support and listen to patients and their loved ones, guide them towards medical teams, inform them about the latest research developments, disseminate information to the medical field and the general public, raise funds for information and research, and support research by participating in studies and funding projects.
Contact information: Information [20].
Patient Association: CERHOM
Primary purpose: To bridge the gap between the medical field and patients by utilizing the firsthand experiences of patients or former patients to provide support, guidance, and empathy to new patients, with the aim of making their burdens lighter through exchanges, contacts, and meetings.
Contact information: Information [21].
Patient Association: HOPE
Primary purpose: To support and accompany women throughout their cancer journey by providing equine therapy, artistic workshops, and Discovery Days that help them explore their emotions, rebuild their paths, and regain a sense of empowerment.
Contact information: Information [22].
Patient Association: Lyonnes de Tatooine
Primary purpose: To improve the quality of life for women with cancer through various actions, including physical activities, mind-body practices, and social support, aiming to get them moving again and promoting their physical and emotional well-being.
Contact information: Information [23].
Patient Association: TGCT Support France
Primary purpose: To gather and disseminate accurate and up-to-date information about the pathologies "tumeurs ténosynoviales à cellules géantes" (giant cell tumors of the tendon sheath) and related conditions. They aim to provide guidance, assistance, and support to diagnosed patients and promote initiatives to improve their quality of life, research, participation in clinical trials, and other actions benefiting the patients.
Contact information: Information [24].
Compilation: ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology.
Primary purpose: To translate complex medical language into understandable information for patients.
Available guides: Cancer Treatment During the COVID-19 Pandemic; Immunotherapy Side Effects and Their Management; Personalized Medicine; Survival; Colorectal Cancer; Endometrial Cancer; Stomach Cancer; Gliomas; AML; CML; Follicular Lymphoma; Bone Sarcomas; Non-Small Cell Lung Cancer (NSCLC); Head and Neck Cancer; Soft Tissue Sarcomas.
Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
Access to information: List of guides [25].
Quality of Life and Palliative Care Research
List of Articles: Quality of Life [26] and Palliative Care [27].
