Sweden
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Cancer Centers
Karolinska Institute and University Hospital
Skåne University Hospital Cancer Centre
Healthcare System
Administrative or Claims Data
Database: Socialstyrelsen National Patient Register
Registry: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case
Registries
Database: Socialstyrelsen Cancer Registry
Database: Socialstyrelsen Cause of Death Registry
Database: Medicines Registry
Database: National Quality Register for Cervical Cancer Prevention (Sweden)
Compilation: Swedish National Data Service (SND)
Databases for Clinical Trials, Surveys and Biobanks
Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls
Survey: Malmö Diet Cancer
Survey: Family Studies of Childhood Cancer - Genealogy Database
Survey: Cohort of Swedish men (COSM) - 2019 health
Survey: Swedish mammography cohort (SMC) 2019 lifestyle
Biobank/Database: Breast cancer - a metastasis study
Clinical Practices Guidelines
The National Clinical Cancer Care Guidelines
Sponsor, manager or home institution: The National Clinical Cancer Care.
Primary purpose: To ensure equal and high-quality care for all patients by providing evidence-based recommendations on the investigation, treatment, nursing, rehabilitation, and follow-up of patients with cancer.
Type of information: Recommendations, treatments, rehabilitation, palliative care, quality of life and follow-up of patients with various types of cancer.
Access to information: List of guidelines [1].
Latest Policymaking Initiatives
Reports: Socialstyrelsen
Sponsor, manager or home institution: Socialstyrelsen - The National Board of Health and Welfare.
Primary purpose: To publish annual statistics on newly discovered cancer cases in Sweden, including various types of cancers and, starting from 2009, basal cell cancer, as part of the country's official statistics.
Type of information: Cancer diagnostics and prognostics; Most commons cancer in Sweden; Cancer survival and mortality.
Data level: National level.
Access to information: Access Information [2]; Cancer incidence in 2021 [3]; Treatments information [4].
Report: Cancer Fonden
Sponsor, manager or home institution: Cancer Fonden.
Primary purpose: To collaborate with healthcare organizations to map and evaluate methods for increasing participation in cancer screening programs.
Type of information: Participation in the national screening programs; New cases of cervical, breast and colon cancer; Participation cancer screenings; Municipalities with the highest and lowest participation in cancer screenings; Income differences and participation in cancer screenings.
Data level: National and regional level.
Access to information: Access Information [5].
Reports: Swedish Palliative Registry
Sponsor, manager or home institution: Svenska Palliativ Registret.
Primary purpose: To improve end-of-life care for patients and their relatives by collecting data on care quality, identifying areas for improvement, and providing knowledge support for healthcare professionals, with research based on the registry's results.
Type of information: General and specialized palliative care; Quality assurance; National care plan; Indicators; Coverage; Survival and death interview; Care in numbers.
Data level: National level.
Access to information: Access Information [6].
Report: EU Country Cancer Profile 2023
Sponsor, manager or home institution: OECD and European Commission.
Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
Data level: National level.
Access to information: Access Information [7].
Compilation: ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology.
Primary purpose: To translate complex medical language into understandable information for patients.
Available guides: Bone Health in Cancer; Cancer Care During the COVID-19 Pandemic; Cancer Pain Management; Immunotherapy Side Effects; Personalized Cancer Medicine; Survivorship; AML; Biliary Tract Cancer; Bladder Cancer; Bone Sarcoma; Breast Cancer; Cervical Cancer; CML; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancer; Hepatocellular Carcinoma; Multiple Myeloma; Non-Small-Cell Lung Cancer; Oesophageal Cancer; Ovarian Cancer; Pancreatic Cancer; Prostate Cancer; Soft Tissue Sarcoma; Stomach Cancer; Testicular Cancer.
Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
Access to information: List of guides [8].
