Finland

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Cancer Centers

Helsinki University Hospital Comprehensive Cancer Center

Turku University Hospital Cancer Centre

TAYS Cancer Centre Tampere University Hospital

Cancer Center of Kuopio University Hospital

Oulu University Hospital

Healthcare System

Administrative or Claims Data

Registries

Databases for Clinical Trials, Surveys and Biobanks

Clinical Practice Guidelines

Finnish Medical Association Duodecim Guidelines

Sponsor, manager or home institution: Duodecim of the Finnish Medical Society and other institutions.

Primary purpose: To provide independent national treatment recommendations based on research evidence.

Type of information: Treatment recommendations; Epidemiology and etiology; Prevalence classification and histological classification; Diagnostics; Monitoring; Quality of life of patients of prostate, lung, oral cancer and palliative care and hospice care recommendations.

Access to information: List of guidelines [1].

Latest Policymaking Initiatives

Report: Finnish Cancer Registry

Sponsor, manager or home institution: Finnish Cancer Registry; Finnish Institute for Health and Welfare.

Primary purpose: To maintain a comprehensive national registry of all diagnosed cancer cases and serve as a statistical and epidemiological research institute.

Type of information: Screenings programs, annual cancer reports with new cancer cases, the number of cancer deaths, cancer prevalence and patient survival.

Data level: National level.

Access to information: Access Information [2].

Report: Ministry of Social Affairs and Health

Sponsor, manager or home institution: Ministry of Social Affairs and Health.

Primary purpose: To conduct a preliminary investigation for establishing a national quality registry for palliative care and end-of-life care in Finland.

Type of information: Information about the preliminary investigation for establishing a national quality registry for palliative care and end-of-life care in social and healthcare settings.

Data level: National level.

Access to information: Access Information [3].

Report: EU Country Cancer Profile 2023

Sponsor, manager or home institution: OECD and European Commission.

Primary purpose: To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.

Type of information: National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.

Data level: National level.

Access to information: Access Information [4].

Cancer-related Patient Associations and Resources

Compilation: ESMO Patient Guides

Sponsor, manager or home institution: European Society for Medical Oncology

Primary purpose: To translate complex medical language into understandable information for patients.

Available guides: Coping: A patient's guide.

Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.

Access to information: List of guides [5].

Patient Association: Finnish Prostate Cancer Association

Primary purpose: To support and advocate for prostate cancer patients and their families, offering information, counseling, and peer support while striving to improve their quality of life and treatment outcomes.

Contact information: Information [6].

Patient Association: Finnish Throat and Mouth Cancer Association

Primary purpose: To provide support, rehabilitation, and information to individuals with throat and mouth cancer and their families, including adaptation training, peer support, speech rehabilitation, and financial assistance.

Contact information: Information [7].

Patient Association: Colores, the Finnish Colorectal Cancer Association

Primary purpose: To provide support, information, and advocacy for colorectal cancer patients and their families, as well as to collaborate with healthcare organizations, promote preventive efforts, research, and improvements in the situation of colorectal cancer patients.

Contact information: Information [8].

Patient Association: Sylva Ry

Primary purpose: To provide practical information, support, a community of peers, and professional assistance to children, teenagers, young adults, and their loved ones affected by cancer, as well as to serve as an advocacy organization influencing policy and providing research information on the situation of cancer patients and their families.

Contact information: Information [9].

Patient Association: The Breast Cancer Association - Europa Donna Finland

Primary purpose: To enhance the well-being and quality of life, both physically and psychologically, for individuals affected by breast cancer, while providing information, advocacy, and support for breast cancer patients.

Contact information: Information [10].

Patient Association: Suomen Söpäpotilaat

Primary purpose: To advocate for the interests of cancer patients, secure support during treatment and rehabilitation, and reduce the societal impact of cancer while providing reliable information about cancer diseases and their treatment.

Contact information: Information [11].

Quality of Life and Palliative Care Research

List of Articles: Quality of Life [12] and Palliative Care [13].