Sweden
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Cancer Centers
Karolinska Institute and University Hospital
Skåne University Hospital Cancer Centre
Healthcare System
Administrative or Claims Data
Database: Socialstyrelsen National Patient Register
Registry: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case
Registries
Database: Socialstyrelsen Cancer Registry
Database: Socialstyrelsen Cause of Death Registry
Database: Medicines Registry
Database: National Quality Register for Cervical Cancer Prevention
Compilation: Swedish National Data Service (SND)
Databases for Clinical Trials, Surveys and Biobanks
Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls
Survey: Malmö Diet Cancer
Survey: Family Studies of Childhood Cancer - Genealogy Database
Survey: Cohort of Swedish men (COSM) - 2019 health
Survey: Swedish mammography cohort (SMC) 2019 lifestyle
Biobank/Database: Breast cancer - a metastasis study
Clinical Practices Guidelines
Latest Policymaking Initiatives
Reports: Socialstyrelsen
Report: Cancer Fonden
Reports: Swedish Palliative Registry
Report: EU Country Cancer Profile 2023
Compilation: ESMO Patient Guides
Sponsor, manager or home institution: European Society for Medical Oncology.
Primary purpose: To translate complex medical language into understandable information for patients.
Available guides: Bone Health in Cancer; Cancer Care During the COVID-19 Pandemic; Cancer Pain Management; Immunotherapy Side Effects; Personalized Cancer Medicine; Survivorship; AML; Biliary Tract Cancer; Bladder Cancer; Bone Sarcoma; Breast Cancer; Cervical Cancer; CML; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancer; Hepatocellular Carcinoma; Multiple Myeloma; Non-Small-Cell Lung Cancer; Oesophageal Cancer; Ovarian Cancer; Pancreatic Cancer; Prostate Cancer; Soft Tissue Sarcoma; Stomach Cancer; Testicular Cancer.
Type of information: Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
Access to information: List of guides [1].
