Sweden: Difference between revisions

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<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">swedencountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


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[[dct:relation::Karolinska Institute and University Hospital]]
[[hasCancerCenter::Karolinska Institute and University Hospital]]


[[dct:relation::Skåne University Hospital Cancer Centre]]
[[hasCancerCenter::Skåne University Hospital Cancer Centre]]


[[dct:relation::Sahlgrenska University Hospital]]
[[hasCancerCenter::Sahlgrenska University Hospital]]


[[dct:relation::Uppsala University Hospital]]
[[hasCancerCenter::Uppsala University Hospital]]
 
[[hasCancerCenter::University Hospital of Umeå - Norrland University Hospital]]


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== [[hasHealthcareSystem::Healthcare_System_(Sweden)|Healthcare System]] ==
== [[hasHealthcareSystem::Healthcare_System_(Sweden)|Healthcare System]] ==
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[[dct:title::Sweden]] operates a universal healthcare system, providing coverage for all residents, irrespective of nationality, and emergency care for EU/EEA patients and countries with bilateral agreements. The system is mainly funded through local taxes and national government contributions via general grants and specific programmes.
The healthcare responsibility is decentralized between the national government, 21 regions, and 290 municipalities. The Ministry of Health and Social Affairs sets the overall health policies, while healthcare delivery is managed by the regions and municipalities. Regions oversee primary, specialist, and psychiatric care, and public and private hospitals. Municipalities handle elder care, care for the physically and mentally disabled, rehabilitation, school healthcare, home care, and social care.
Residents receive a wide range of benefits including preventive care, check-ups, immunization, medication, hospitalization, maternity, mental health services, and children's dental care. About 15% of health spending comes from out-of-pocket payments, mainly for pharmaceuticals, dental care, and other outpatient care.
To access these benefits, one must be a resident of Sweden. The system also offers the choice of primary care provider, either public or private, accredited by the local county council. There's a patient fee for certain services but it's capped annually, and certain groups receive completely free healthcare.
Sweden's healthcare data management uses electronic health record systems, with data interoperable across different providers. National health data registries are used for monitoring care quality, resource planning, and research while ensuring patient privacy is protected by law.
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== Administrative or Claims Data ==
== Administrative or Claims Data ==
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=== [[hasDatabase::Database:_Socialstyrelsen_National_Patient_Register_(Sweden)|Database: Socialstyrelsen National Patient Register]] ===
=== [[hasDatabase::Database:_Socialstyrelsen_National_Patient_Register_(Sweden)|Database: Socialstyrelsen National Patient Register]] ===


{{#subobject:Socialstyrelsen National Patient Register
=== [[hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Database: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case]] ===
|dct:title=Socialstyrelsen National Patient Register
|datatype=administrative
}}
 
'''Sponsor, manager or home institution:''' Socialstyrelsen.
 
'''Primary purpose:''' The patient register serves multiple purposes. One of its main functions is to track the health development of the population over an extended period. In doing so, it helps to improve the possibilities of preventing and treating diseases. Additionally, the patient register contributes to the overall development of healthcare by providing valuable data and insights. It also enables healthcare providers to monitor the quality of their operations and identify areas where improvements may be needed.
 
'''Type of information:''' [[Data Dictionary: Socialstyrelsen National Patient Register]]. Full list of variables [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/ovrigt/register-variabelforteckning-patientregistret.xlsx].
 
'''Source of Information:''' Healthcare providers must submit patient information to the patient register monthly, including hospital code and medical area. Data is submitted via a reporting portal or register service.
 
'''Data level:''' Patient level.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' 1964 onwards.
 
'''Cancer Areas of Interest:''' Unknown.


'''Data access:''' Not publicly available. Instructions to request data for restricted content [https://bestalladata.socialstyrelsen.se/].
'''Contact information:''' Information [https://www.socialstyrelsen.se/statistik-och-data/register/patientregistret/].
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=== [[Database: Socialstyrelsen Cancer Registry (Sweden)]] ===
=== [[hasDatabase::Database:_Socialstyrelsen_Cancer_Registry_(Sweden)|Database: Socialstyrelsen Cancer Registry]] ===


{{#subobject:Socialstyrelsen Cancer Registry
=== [[hasDatabase::Database:_Socialstyrelsen_Cause_of_Death_Registry_(Sweden)|Database: Socialstyrelsen Cause of Death Registry]] ===
|dct:title=Socialstyrelsen Cancer Registry
|datatype=registry
}}


'''Sponsor, manager or home institution:''' Socialstyrelsen.
=== [[hasDatabase::Database:_Medicines_Registry_(Sweden)|Database: Medicines Registry]] ===


'''Primary purpose:'''  To map the occurrence and change of cancer diseases over time.
=== [[hasDatabase::Database:_National_Quality_Register_for_Cervical_Cancer_Prevention_(Sweden)|Database: National Quality Register for Cervical Cancer Prevention]] ===


'''Type of information:''' [[Data Dictionary: Socialstyrelsen Cancer Registry]]. Full list of variables [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/statistik/register-variabelforteckning-cancerregistret.xls].
=== [[hasDatabase::Database: Swedish National Data Service (SND) Compilation (Sweden)|Database: Swedish National Data Service (SND) Compilation]] ===
 
'''Available type of information''': Number of new cases; Cases per 100,000; Incidence; Age; Sex; Cancer area, and year.
 
'''Source of Information:''' The data is sent from hospitals to six regional cancer centers for coding and registration. Once the material has been verified, it is then transmitted to the National Board of Health and Welfare to become part of the cancer registry. The registry is updated annually.
 
'''Data level:''' Patient level.
 
'''Available data level:''' Regional and national level.
 
'''Number of Records:''' 60,000 cases registered every year [https://www.healthinformationportal.eu/health-information-sources/swedish-national-cancer-register].
 
'''Date Range:''' 1970 onwards.
 
'''Cancer Areas of Interest:''' All.
 
'''Data access:''' Partially publicly available [https://sdb.socialstyrelsen.se/if_can/val.aspx]. Instructions to request data for restricted content [https://bestalladata.socialstyrelsen.se/].
 
'''Contact information:''' Information [https://www.socialstyrelsen.se/statistik-och-data/register/cancerregistret/].
 
=== Database: Socialstyrelsen Cause of Death Registry ===
 
{{#subobject:Socialstyrelsen Cause of Death Registry
|dct:title=Socialstyrelsen Cause of Death Registry
|datatype=registry
}}
 
'''Sponsor, manager or home institution:''' Socialstyrelsen.
 
'''Primary purpose:''' To describe the causes of death and track mortality trends in Sweden.
 
'''Type of information:''' [[Data Dictionary: Socialstyrelsen Cause of Death Registry]]. Full list of variables [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/statistik/register-dodsorsaksregistret-variabelforteckning.xls].
 
'''Available type of information:''' Number of deaths; Deaths rates and deaths by 100,000 people; Diagnosis; Age; Sex and region.
 
'''Source of Information:''' The death certificates are sent by doctors to the Tax Agency or the Police, and then are sent to the Socialstyrelsen.
 
'''Data level: '''Patient level.
 
'''Available data level: ''' Regional and national level.
 
'''Number of Records:''' Around 90,000 people per year.
 
'''Date Range:''' 1969 onwards.
 
'''Cancer Areas of Interest:''' All.
 
'''Data access:''' Partially publicly available. Data from 1969 to 1996 information [https://www.statistikdatabasen.scb.se/goto/sv/ssd/DodaOrsak] and data from 1997 onwards information [https://sdb.socialstyrelsen.se/if_dor/val.aspx]. Instructions to request data for restricted content [https://bestalladata.socialstyrelsen.se/].
 
'''Contact information:''' Information [https://www.socialstyrelsen.se/statistik-och-data/register/dodsorsaksregistret/].
 
=== Database: Medicines Registry ===
 
{{#subobject:Medicines Registry
|dct:title=Medicines Registry
|datatype=registry
}}
 
'''Sponsor, manager or home institution:''' Socialstyrelsen.
 
'''Primary purpose:''' The objective of the pharmaceutical registry is to enhance patient safety within the pharmaceutical industry.
 
'''Type of information:''' [[Data Dictionary: Medicines Registry]]. Data dictionary information [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/statistik/register-variabelforteckning-lakemedelsregistret.xlsx].
 
'''Available type of information:''' Drug groups and ATC codes for all ages, drug groups for children 0-17 children; filtered by annual data, monthly data divided by age, monthly data divided by region, drug groups, ATC codes, regions, sex, measure, year and month.
 
'''Source of Information:''' The pharmaceutical register exclusively obtains data from the E-health authority, which requires all pharmaceutical trades to report their sales data. When a prescribed medication is dispensed, pharmacies must also furnish supplementary information to the E-health authority. The E-health authority, in turn, forwards information regarding prescription-based shipments to the National Board of Health and Welfare.
 
'''Data level:''' Patient level.
 
'''Available data level:''' National and regional level.
 
'''Number of Records:''' About 100 million per year.
 
'''Date Range:''' 2005 onwards.
 
'''Cancer Areas of Interest:''' Unknown.
 
'''Data access:''' Partially publicly available [https://sdb.socialstyrelsen.se/if_lak/val.aspx]. Instructions to request data for restricted content [https://bestalladata.socialstyrelsen.se/].
 
'''Contact information:''' Information [https://www.socialstyrelsen.se/statistik-och-data/register/dodsorsaksregistret/].
 
=== Compilation: Swedish National Data Service (SND) ===
 
'''Sponsor, manager or home institution:''' Varies.
 
'''Primary purpose:''' Offers a wide range of surveys, registries, datasets, biobanks and studies in the field of oncology.
 
'''Type of databases:''' Databases that include information about biobanks, screenings, cancer incidence, cancer risks, health surveys, etc.
 
'''Source of information:''' Varies according to the study.
 
'''Data level:''' Regional level; National level.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' Varies according to the study.
 
'''Cancer Areas of Interest:''' Varies according to the study.
 
'''Data access:''' Publicly available [https://snd.gu.se/sv/catalogue/search/cancer#dataset_page=NaN&dataset_page=NaN&dataset_page=NaN].
 
'''Contact information:''' Information [https://snd.gu.se/sv/kontakt].


== Databases for Clinical Trials, Surveys and Biobanks ==
== Databases for Clinical Trials, Surveys and Biobanks ==
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=== Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls ===
=== [[hasBiobank::Biobank:_Biobank_for_individuals_with_prostate_cancer_-_Biobank_for_prostate_cancer_controls_(Sweden)|Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls]] ===
 
'''Primary purpose:''' Store the sample collection and data information to study risk factors for prostate cancer.
 
'''Sponsor, manager or home institution:''' Lund University.
 
'''Type of information:''' The participants had to submit a blood sample and answer questions regarding previous medication, height, weight, alcohol and smoking consumption. More information [https://snd.gu.se/sv/catalogue/dataset/ext0138-2].


'''Data level:''' Patient level.
=== [[hasDatabase::Survey:_Malmö_Diet_Cancer_(Sweden)|Survey: Malmö Diet Cancer]] ===


'''Number of Records:''' 1000.
=== [[hasDatabase::Survey:_Family_Studies_of_Childhood_Cancer_-_Genealogy_Database_(Sweden)|Survey: Family Studies of Childhood Cancer - Genealogy Database]] ===


'''Date Range:''' 2007 onwards.
=== [[hasDatabase::Survey:_Cohort_of_Swedish_men_(COSM)_-_2019_health_(Sweden)|Survey: Cohort of Swedish men (COSM) - 2019 health]] ===


'''Cancer Areas of Interest:''' Malignant neoplasm of the prostate (C61).
=== [[hasDatabase::Survey:_Swedish_mammography_cohort_(SMC)_2019_lifestyle_(Sweden)|Survey: Swedish mammography cohort (SMC) 2019 lifestyle]] ===


'''Data access:''' Not publicly available. Instructions to request data for restricted content [https://snd.gu.se/sv/hitta-data/forskningsdatakatalogen/tillganglighetsnivaer-hos-snd] and contact to request [mailto:hakan.olsson@med.lu.se].
=== [[hasDatabase::Biobank/Database:_Breast_cancer_-_a_metastasis_study_(Sweden)|Biobank/Database: Breast cancer - a metastasis study]] ===
 
'''Contact information:''' Information [mailto:hakan.olsson@med.lu.se].
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=== The National Clinical Cancer Care Guidelines ===
=== [[hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|Guidelines: The National Clinical Cancer Care Guidelines]] ===
 
{{#subobject:The National Clinical Cancer Care Guidelines
|dct:title=The National Clinical Cancer Care Guidelines
|datatype=guideline
}}
 
'''Sponsor, manager or home institution:''' The National Clinical Cancer Care.


'''Primary purpose:''' To ensure equal and high-quality care for all patients by providing evidence-based recommendations on the investigation, treatment, nursing, rehabilitation, and follow-up of patients with cancer.
=== [[hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Guidelines: National Board of Health and Welfare Guidelines]] ===


'''Type of information:''' Recommendations, treatments, rehabilitation, palliative care, quality of life and follow-up of patients with  various types of cancer.
'''Access to information:''' List of guidelines [https://kunskapsbanken.cancercentrum.se/vardprogram/].
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=== Reports: Socialstyrelsen ===
=== [[hasReport::Reports:_Socialstyrelsen_(Sweden)|Reports: Socialstyrelsen]] ===
 
{{#subobject:Socialstyrelsen
|dct:title=Socialstyrelsen
|datatype=policymaking
}}
 
'''Sponsor, manager or home institution:''' Socialstyrelsen - The National Board of Health and Welfare.
 
'''Primary purpose:''' To publish annual statistics on newly discovered cancer cases in Sweden, including various types of cancers and, starting from 2009, basal cell cancer, as part of the country's official statistics.
 
'''Type of information:''' Cancer diagnostics and prognostics; Most commons cancer in Sweden; Cancer survival and mortality.
 
'''Data level:''' National level.
 
'''Access to information:''' Access Information [https://www.socialstyrelsen.se/statistik-och-data/statistik/alla-statistikamnen/cancer/]; Cancer incidence in 2021 [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/statistik/2022-12-8308.pdf]; Treatments information [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/artikelkatalog/ovrigt/2019-4-7.pdf].
 
=== Report: Cancer Fonden ===


{{#subobject:Cancer Fonden
=== [[hasReport::Report:_Cancer_Fonden_(Sweden)|Report: Cancer Fonden]] ===
|dct:title=Cancer Fonden
|datatype=policymaking
}}


'''Sponsor, manager or home institution:''' Cancer Fonden.
=== [[hasReport::Reports:_Swedish_Palliative_Registry_(Sweden)|Reports: Swedish Palliative Registry]] ===


'''Primary purpose:''' To collaborate with healthcare organizations to map and evaluate methods for increasing participation in cancer screening programs.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Sweden)|Report: EU Country Cancer Profile 2023]] ===


'''Type of information:''' Participation in the national screening programs;  New cases of cervical, breast and colon cancer; Participation cancer screenings; Municipalities with the highest and lowest participation in cancer screenings;  Income differences and participation in cancer screenings.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Sweden)|Report: EU Country Cancer Profile 2025]] ===


'''Data level:''' National and regional level.
'''Access to information:''' Access Information [https://static-files.cancerfonden.se/CFrapport-vard-2021.pdf].
=== Reports: Swedish Palliative Registry ===
{{#subobject:Swedish Palliative Registry
|dct:title=Swedish Palliative Registry
|datatype=policymaking
}}
'''Sponsor, manager or home institution:''' Svenska Palliativ Registret.
'''Primary purpose:''' To improve end-of-life care for patients and their relatives by collecting data on care quality, identifying areas for improvement, and providing knowledge support for healthcare professionals, with research based on the registry's results.
'''Type of information:''' General and specialized palliative care; Quality assurance; National care plan; Indicators; Coverage; Survival and death interview; Care in numbers.
'''Data level:''' National level.
'''Access to information:''' Access Information [https://www.palliativregistret.se/arkiv/arsrapporter/].
=== Report: EU Country Cancer Profile 2023 ===
{{#subobject:EU Country Cancer Profile 2023
|dct:title=EU Country Cancer Profile 2023
|datatype=policymaking
}}
'''Sponsor, manager or home institution:''' OECD and European Commission.
'''Primary purpose:''' To provide reliable data on cancer prevention and care, identifying trends, disparities, and inequalities among EU Member States and regions to guide interventions under Europe's Beating Cancer Plan.
'''Type of information:''' National cancer burden; Cancer incidence and mortality; Risk factors for cancer; Early detection programs (screenings); Cancer care performance, The impact of COVID-19 on cancer care.
'''Data level''': National level.
'''Access to information:''' Access Information [https://www.oecd-ilibrary.org/social-issues-migration-health/landsprofiler-om-cancer-sverige-2023_4caa4294-sv].
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=== Compilation: ESMO Patient Guides ===
=== [[hasPatientAssociation::Patient Association: Swedish Breast Cancer Association (Europa Donna Sweden) (Sweden)|Patient Association: Swedish Breast Cancer Association (Europa Donna Sweden)]] ===


{{#subobject:ESMO Patient Guides
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Sweden)|Patient Guides: ESMO Patient Guides Compilation]] ===
|dct:title=ESMO Patient Guides
|datatype=group
}}


'''Sponsor, manager or home institution:''' European Society for Medical Oncology.
=== [[hasPatientResource::Self-help_Group:_Swedish_Network_Against_Cancer_(Sweden)|Self-help Group: Swedish Network Against Cancer]] ===
 
</div>
'''Primary purpose:''' To translate complex medical language into understandable information for patients.
 
'''Available guides:''' Bone Health in Cancer; Cancer Care During the COVID-19 Pandemic; Cancer Pain Management; Immunotherapy Side Effects; Personalized Cancer Medicine; Survivorship; AML; Biliary Tract Cancer; Bladder Cancer; Bone Sarcoma; Breast Cancer; Cervical Cancer; CML; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancer; Hepatocellular Carcinoma; Multiple Myeloma; Non-Small-Cell Lung Cancer; Oesophageal Cancer; Ovarian Cancer; Pancreatic Cancer; Prostate Cancer; Soft Tissue Sarcoma; Stomach Cancer; Testicular Cancer.
 
'''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.


'''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-english].
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Sweden)|Quality of Life and Palliative Care Research]] ==
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== Quality of Life and Palliative Care Research ==
__NOTOC__
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<span style="display:none">hasCancerCenter::Karolinska Institute and University Hospital</span>
'''List of Articles:''' Quality of Life [https://pubmed.ncbi.nlm.nih.gov/?term=Quality+of+Life%5BMeSH%5D+AND+Sweden%5BAffiliation%5D+AND+cancer&filter=pubt.clinicaltrial&filter=pubt.meta-analysis&filter=pubt.randomizedcontrolledtrial&filter=pubt.systematicreview] and Palliative Care [https://pubmed.ncbi.nlm.nih.gov/?term=Palliative+Care%5BMeSH%5D+AND+Sweden%5BAffiliation%5D+AND+cancer&filter=pubt.clinicaltrial&filter=pubt.meta-analysis&filter=pubt.randomizedcontrolledtrial&filter=pubt.systematicreview].
<span style="display:none">hasCancerCenter::Skåne University Hospital Cancer Centre</span>
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<span style="display:none">hasCancerCenter::Sahlgrenska University Hospital</span>
<span style="display:none">hasCancerCenter::Uppsala University Hospital</span>
<span style="display:none">hasCancerCenter::University Hospital of Umeå - Norrland University Hospital</span>
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Sweden)|Healthcare System</span>
<span style="display:none">hasDatabase::Database:_Socialstyrelsen_National_Patient_Register_(Sweden)|Database: Socialstyrelsen National Patient Register</span>
<span style="display:none">hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Registry: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case</span>
<span style="display:none">hasDatabase::Database:_Socialstyrelsen_Cancer_Registry_(Sweden)|Database: Socialstyrelsen Cancer Registry</span>
<span style="display:none">hasDatabase::Database:_Socialstyrelsen_Cause_of_Death_Registry_(Sweden)|Database: Socialstyrelsen Cause of Death Registry</span>
<span style="display:none">hasDatabase::Database:_Medicines_Registry_(Sweden)|Database: Medicines Registry</span>
<span style="display:none">hasDatabase::Database:_National_Quality_Register_for_Cervical_Cancer_Prevention_(Sweden)|Database: National Quality Register for Cervical Cancer Prevention</span>
<span style="display:none">hasDatabase::Compilation:_Swedish_National_Data_Service_(SND)_(Sweden)|Compilation: Swedish National Data Service (SND)</span>
<span style="display:none">hasBiobank::Biobank:_Biobank_for_individuals_with_prostate_cancer_-_Biobank_for_prostate_cancer_controls_(Sweden)|Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls</span>
<span style="display:none">hasDatabase::Survey:_Malmö_Diet_Cancer_(Sweden)|Survey: Malmö Diet Cancer</span>
<span style="display:none">hasDatabase::Survey:_Family_Studies_of_Childhood_Cancer_-_Genealogy_Database_(Sweden)|Survey: Family Studies of Childhood Cancer - Genealogy Database</span>
<span style="display:none">hasDatabase::Survey:_Cohort_of_Swedish_men_(COSM)_-_2019_health_(Sweden)|Survey: Cohort of Swedish men (COSM) - 2019 health</span>
<span style="display:none">hasDatabase::Survey:_Swedish_mammography_cohort_(SMC)_2019_lifestyle_(Sweden)|Survey: Swedish mammography cohort (SMC) 2019 lifestyle</span>
<span style="display:none">hasDatabase::Biobank/Database:_Breast_cancer_-_a_metastasis_study_(Sweden)|Biobank/Database: Breast cancer - a metastasis study</span>
<span style="display:none">hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|The National Clinical Cancer Care Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Compilation: National Board of Health and Welfare Guidelines</span>
<span style="display:none">hasReport::Reports:_Socialstyrelsen_(Sweden)|Reports: Socialstyrelsen</span>
<span style="display:none">hasReport::Report:_Cancer_Fonden_(Sweden)|Report: Cancer Fonden</span>
<span style="display:none">hasReport::Reports:_Swedish_Palliative_Registry_(Sweden)|Reports: Swedish Palliative Registry</span>
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Sweden)|Report: EU Country Cancer Profile 2023</span>
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Sweden)|Compilation: ESMO Patient Guides</span>
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Sweden)|Quality of Life and Palliative Care Research</span>
<span style="display:none">hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Database: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case</span>
<span style="display:none">hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|Guidelines: The National Clinical Cancer Care Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Guidelines: National Board of Health and Welfare Guidelines</span>
<span style="display:none">hasDatabase::Database: Swedish National Data Service (SND) Compilation (Sweden)|Database: Swedish National Data Service (SND) Compilation</span>
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Sweden)|Patient Guides: ESMO Patient Guides Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 13:47, 23 January 2026

forresearchers forpatients forproviders forpolicymakers swedencountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Karolinska Institute and University Hospital

Skåne University Hospital Cancer Centre

Sahlgrenska University Hospital

Uppsala University Hospital

University Hospital of Umeå - Norrland University Hospital

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: Socialstyrelsen National Patient Register[edit | edit source]

Database: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case[edit | edit source]

Registries[edit | edit source]

Database: Socialstyrelsen Cancer Registry[edit | edit source]

Database: Socialstyrelsen Cause of Death Registry[edit | edit source]

Database: Medicines Registry[edit | edit source]

Database: National Quality Register for Cervical Cancer Prevention[edit | edit source]

Database: Swedish National Data Service (SND) Compilation[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls[edit | edit source]

Survey: Malmö Diet Cancer[edit | edit source]

Survey: Family Studies of Childhood Cancer - Genealogy Database[edit | edit source]

Survey: Cohort of Swedish men (COSM) - 2019 health[edit | edit source]

Survey: Swedish mammography cohort (SMC) 2019 lifestyle[edit | edit source]

Biobank/Database: Breast cancer - a metastasis study[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: The National Clinical Cancer Care Guidelines[edit | edit source]

Guidelines: National Board of Health and Welfare Guidelines[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Reports: Socialstyrelsen[edit | edit source]

Report: Cancer Fonden[edit | edit source]

Reports: Swedish Palliative Registry[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Association: Swedish Breast Cancer Association (Europa Donna Sweden)[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Self-help Group: Swedish Network Against Cancer[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]

hasCancerCenter::Karolinska Institute and University Hospital hasCancerCenter::Skåne University Hospital Cancer Centre hasCancerCenter::Sahlgrenska University Hospital hasCancerCenter::Uppsala University Hospital hasCancerCenter::University Hospital of Umeå - Norrland University Hospital hasHealthcareSystem::Healthcare_System_(Sweden)|Healthcare System hasDatabase::Database:_Socialstyrelsen_National_Patient_Register_(Sweden)|Database: Socialstyrelsen National Patient Register hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Registry: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case hasDatabase::Database:_Socialstyrelsen_Cancer_Registry_(Sweden)|Database: Socialstyrelsen Cancer Registry hasDatabase::Database:_Socialstyrelsen_Cause_of_Death_Registry_(Sweden)|Database: Socialstyrelsen Cause of Death Registry hasDatabase::Database:_Medicines_Registry_(Sweden)|Database: Medicines Registry hasDatabase::Database:_National_Quality_Register_for_Cervical_Cancer_Prevention_(Sweden)|Database: National Quality Register for Cervical Cancer Prevention hasDatabase::Compilation:_Swedish_National_Data_Service_(SND)_(Sweden)|Compilation: Swedish National Data Service (SND) hasBiobank::Biobank:_Biobank_for_individuals_with_prostate_cancer_-_Biobank_for_prostate_cancer_controls_(Sweden)|Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls hasDatabase::Survey:_Malmö_Diet_Cancer_(Sweden)|Survey: Malmö Diet Cancer hasDatabase::Survey:_Family_Studies_of_Childhood_Cancer_-_Genealogy_Database_(Sweden)|Survey: Family Studies of Childhood Cancer - Genealogy Database hasDatabase::Survey:_Cohort_of_Swedish_men_(COSM)_-_2019_health_(Sweden)|Survey: Cohort of Swedish men (COSM) - 2019 health hasDatabase::Survey:_Swedish_mammography_cohort_(SMC)_2019_lifestyle_(Sweden)|Survey: Swedish mammography cohort (SMC) 2019 lifestyle hasDatabase::Biobank/Database:_Breast_cancer_-_a_metastasis_study_(Sweden)|Biobank/Database: Breast cancer - a metastasis study hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|The National Clinical Cancer Care Guidelines hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Compilation: National Board of Health and Welfare Guidelines hasReport::Reports:_Socialstyrelsen_(Sweden)|Reports: Socialstyrelsen hasReport::Report:_Cancer_Fonden_(Sweden)|Report: Cancer Fonden hasReport::Reports:_Swedish_Palliative_Registry_(Sweden)|Reports: Swedish Palliative Registry hasReport::Report:_EU_Country_Cancer_Profile_2023_(Sweden)|Report: EU Country Cancer Profile 2023 hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Sweden)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Sweden)|Quality of Life and Palliative Care Research hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Database: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|Guidelines: The National Clinical Cancer Care Guidelines hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Guidelines: National Board of Health and Welfare Guidelines hasDatabase::Database: Swedish National Data Service (SND) Compilation (Sweden)|Database: Swedish National Data Service (SND) Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Sweden)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

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