Sweden: Difference between revisions

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== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">swedencountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


== [[Healthcare System]] ==
== Cancer Centers ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


Sweden provides universal healthcare for all its residents, and emergency care covers any patient from the EEA/EU. The system is mostly funded by local taxes, but responsibility for the healthcare system is divided between national, regional, and municipal level. The national government is responsible for regulation and supervision, counties are responsible for providing and financing healthcare products and services, and municipalities are responsible for other healthcare services such as elderly care, school and home healthcare, among others.
[[hasCancerCenter::Karolinska Institute and University Hospital]]


Most healthcare needs are covered by the universal healthcare system, with only 15% of health spending being out-of-pocket. Those are mostly for services that are not fully covered by the system such as pharmaceuticals, dental care and other outpatient care.
[[hasCancerCenter::Skåne University Hospital Cancer Centre]]


It is important to note that reporting for the 110 regional registries covering a variety of diseases is not mandatory.
[[hasCancerCenter::Sahlgrenska University Hospital]]


== [[Administrative or Claims Data]] ==
[[hasCancerCenter::Uppsala University Hospital]]


== [[Registries]] ==
[[hasCancerCenter::University Hospital of Umeå - Norrland University Hospital]]


=== Database: Socialstyrelsen Cancer Registry ===
</div>


'''Sponsor, manager or home institution:''' Socialstyrelsen.
== [[hasHealthcareSystem::Healthcare_System_(Sweden)|Healthcare System]] ==


'''Primary purpose:'''  To map the occurrence and change of cancer diseases over time.
== Administrative or Claims Data ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Type of information:''' A full list of variables can be found [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/statistik/register-variabelforteckning-cancerregistret.xls here].
=== [[hasDatabase::Database:_Socialstyrelsen_National_Patient_Register_(Sweden)|Database: Socialstyrelsen National Patient Register]] ===


''' Available type of information''': Number of new cases, cases per 100,000, and incidence sorted by age, sex, cancer area and year.
=== [[hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Database: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case]] ===


'''Source of Information:''' The data is sent from hospitals to six regional cancer centers for coding and registration. Once the material has been verified, it is then transmitted to the National Board of Health and Welfare to become part of the cancer registry. The registry is updated annually.
</div>


'''Data level:''' Patient level.
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Available data level:''' Regional and national level.
=== [[hasDatabase::Database:_Socialstyrelsen_Cancer_Registry_(Sweden)|Database: Socialstyrelsen Cancer Registry]] ===


'''Number of Records:''' 60,000 cases registered every year [https://www.healthinformationportal.eu/health-information-sources/swedish-national-cancer-register [1]]
=== [[hasDatabase::Database:_Socialstyrelsen_Cause_of_Death_Registry_(Sweden)|Database: Socialstyrelsen Cause of Death Registry]] ===


'''Date Range:''' 1970 onwards.
=== [[hasDatabase::Database:_Medicines_Registry_(Sweden)|Database: Medicines Registry]] ===


'''Cancer Areas of Interest:''' All.
=== [[hasDatabase::Database:_National_Quality_Register_for_Cervical_Cancer_Prevention_(Sweden)|Database: National Quality Register for Cervical Cancer Prevention]] ===


'''Open data access:''' Data is partially publicly available. The data can be accessed [https://sdb.socialstyrelsen.se/if_can/val.aspx here]. Information on how to access the full database can be found [https://bestalladata.socialstyrelsen.se/ here].
=== [[hasDatabase::Database: Swedish National Data Service (SND) Compilation (Sweden)|Database: Swedish National Data Service (SND) Compilation]] ===


'''Information/Contact for data request:''' Contact information can be found [https://www.socialstyrelsen.se/statistik-och-data/register/cancerregistret/ here].
== Databases for Clinical Trials, Surveys and Biobanks ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


=== Database: Socialstyrelsen Cause of Death Registry ===
=== [[hasBiobank::Biobank:_Biobank_for_individuals_with_prostate_cancer_-_Biobank_for_prostate_cancer_controls_(Sweden)|Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls]] ===


'''Sponsor, manager or home institution:''' Socialstyrelsen.
=== [[hasDatabase::Survey:_Malmö_Diet_Cancer_(Sweden)|Survey: Malmö Diet Cancer]] ===


'''Primary purpose:''' To describe the causes of death and track mortality trends in Sweden.
=== [[hasDatabase::Survey:_Family_Studies_of_Childhood_Cancer_-_Genealogy_Database_(Sweden)|Survey: Family Studies of Childhood Cancer - Genealogy Database]] ===


'''Type of information:''' Age at death in years at the time of death, year of death, clinical or forensic autopsy information, examination before death in hospital information, external autopsy information, date of death, place of death, multiple causes of death according to the ICD, including ULORSAK and KAP19/KAP17 combinations, date of any eventual operation, whether surgery was performed within 4 weeks before death, underlying cause of death according to ICD, among other information. A full list of variables can be found [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/statistik/register-dodsorsaksregistret-variabelforteckning.xls here].
=== [[hasDatabase::Survey:_Cohort_of_Swedish_men_(COSM)_-_2019_health_(Sweden)|Survey: Cohort of Swedish men (COSM) - 2019 health]] ===


'''Available type of information:''' Number of deaths, deaths rates and deaths by 100,000 people sorted by diagnosis, age, sex and region.
=== [[hasDatabase::Survey:_Swedish_mammography_cohort_(SMC)_2019_lifestyle_(Sweden)|Survey: Swedish mammography cohort (SMC) 2019 lifestyle]] ===


'''Source of Information:''' The death certificates are sent by doctors to the Tax Agency or the Police, and then are sent to the Socialstyrelsen.
=== [[hasDatabase::Biobank/Database:_Breast_cancer_-_a_metastasis_study_(Sweden)|Biobank/Database: Breast cancer - a metastasis study]] ===
</div>


'''Data level:'''Patient level.
== Clinical Practices Guidelines ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Available data level:''' Regional and national level.
=== [[hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|Guidelines: The National Clinical Cancer Care Guidelines]] ===


'''Number of Records:'''
=== [[hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Guidelines: National Board of Health and Welfare Guidelines]] ===


'''Date Range:''' 1969 onwards.
</div>


'''Cancer Areas of Interest:''' All.
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Open data access:''' Data is partially publicly available. Data from 1969 to 1996 can be accessed [https://www.statistikdatabasen.scb.se/goto/sv/ssd/DodaOrsak here] and data from 1997 onwards can be accessed [https://sdb.socialstyrelsen.se/if_dor/val.aspx here]. Information on how to access the full database can be found [https://bestalladata.socialstyrelsen.se/ here].
=== [[hasReport::Reports:_Socialstyrelsen_(Sweden)|Reports: Socialstyrelsen]] ===


'''Information/Contact for data request:''' Contact information can be found [https://www.socialstyrelsen.se/statistik-och-data/register/dodsorsaksregistret/ here].
=== [[hasReport::Report:_Cancer_Fonden_(Sweden)|Report: Cancer Fonden]] ===


== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
=== [[hasReport::Reports:_Swedish_Palliative_Registry_(Sweden)|Reports: Swedish Palliative Registry]] ===


== [[Electronic Health Records]] ==
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Sweden)|Report: EU Country Cancer Profile 2023]] ===


== [[Clinical Practices Guidelines]] ==
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Sweden)|Report: EU Country Cancer Profile 2025]] ===


== [[Latest Policymaking Initiatives]] ==
</div>


== [[Cancer-related Patient Associations and Resources]] ==
== Cancer-related Patient Associations and Resources ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
 
=== [[hasPatientAssociation::Patient Association: Swedish Breast Cancer Association (Europa Donna Sweden) (Sweden)|Patient Association: Swedish Breast Cancer Association (Europa Donna Sweden)]] ===
 
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Sweden)|Patient Guides: ESMO Patient Guides Compilation]] ===
 
=== [[hasPatientResource::Self-help_Group:_Swedish_Network_Against_Cancer_(Sweden)|Self-help Group: Swedish Network Against Cancer]] ===
</div>
 
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Sweden)|Quality of Life and Palliative Care Research]] ==
 
__NOTOC__
<span style="display:none">hasCancerCenter::Karolinska Institute and University Hospital</span>
<span style="display:none">hasCancerCenter::Skåne University Hospital Cancer Centre</span>
<span style="display:none">hasCancerCenter::Sahlgrenska University Hospital</span>
<span style="display:none">hasCancerCenter::Uppsala University Hospital</span>
<span style="display:none">hasCancerCenter::University Hospital of Umeå - Norrland University Hospital</span>
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Sweden)|Healthcare System</span>
<span style="display:none">hasDatabase::Database:_Socialstyrelsen_National_Patient_Register_(Sweden)|Database: Socialstyrelsen National Patient Register</span>
<span style="display:none">hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Registry: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case</span>
<span style="display:none">hasDatabase::Database:_Socialstyrelsen_Cancer_Registry_(Sweden)|Database: Socialstyrelsen Cancer Registry</span>
<span style="display:none">hasDatabase::Database:_Socialstyrelsen_Cause_of_Death_Registry_(Sweden)|Database: Socialstyrelsen Cause of Death Registry</span>
<span style="display:none">hasDatabase::Database:_Medicines_Registry_(Sweden)|Database: Medicines Registry</span>
<span style="display:none">hasDatabase::Database:_National_Quality_Register_for_Cervical_Cancer_Prevention_(Sweden)|Database: National Quality Register for Cervical Cancer Prevention</span>
<span style="display:none">hasDatabase::Compilation:_Swedish_National_Data_Service_(SND)_(Sweden)|Compilation: Swedish National Data Service (SND)</span>
<span style="display:none">hasBiobank::Biobank:_Biobank_for_individuals_with_prostate_cancer_-_Biobank_for_prostate_cancer_controls_(Sweden)|Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls</span>
<span style="display:none">hasDatabase::Survey:_Malmö_Diet_Cancer_(Sweden)|Survey: Malmö Diet Cancer</span>
<span style="display:none">hasDatabase::Survey:_Family_Studies_of_Childhood_Cancer_-_Genealogy_Database_(Sweden)|Survey: Family Studies of Childhood Cancer - Genealogy Database</span>
<span style="display:none">hasDatabase::Survey:_Cohort_of_Swedish_men_(COSM)_-_2019_health_(Sweden)|Survey: Cohort of Swedish men (COSM) - 2019 health</span>
<span style="display:none">hasDatabase::Survey:_Swedish_mammography_cohort_(SMC)_2019_lifestyle_(Sweden)|Survey: Swedish mammography cohort (SMC) 2019 lifestyle</span>
<span style="display:none">hasDatabase::Biobank/Database:_Breast_cancer_-_a_metastasis_study_(Sweden)|Biobank/Database: Breast cancer - a metastasis study</span>
<span style="display:none">hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|The National Clinical Cancer Care Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Compilation: National Board of Health and Welfare Guidelines</span>
<span style="display:none">hasReport::Reports:_Socialstyrelsen_(Sweden)|Reports: Socialstyrelsen</span>
<span style="display:none">hasReport::Report:_Cancer_Fonden_(Sweden)|Report: Cancer Fonden</span>
<span style="display:none">hasReport::Reports:_Swedish_Palliative_Registry_(Sweden)|Reports: Swedish Palliative Registry</span>
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Sweden)|Report: EU Country Cancer Profile 2023</span>
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Sweden)|Compilation: ESMO Patient Guides</span>
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Sweden)|Quality of Life and Palliative Care Research</span>
<span style="display:none">hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Database: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case</span>
<span style="display:none">hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|Guidelines: The National Clinical Cancer Care Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Guidelines: National Board of Health and Welfare Guidelines</span>
<span style="display:none">hasDatabase::Database: Swedish National Data Service (SND) Compilation (Sweden)|Database: Swedish National Data Service (SND) Compilation</span>
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Sweden)|Patient Guides: ESMO Patient Guides Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 13:47, 23 January 2026

forresearchers forpatients forproviders forpolicymakers swedencountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Karolinska Institute and University Hospital

Skåne University Hospital Cancer Centre

Sahlgrenska University Hospital

Uppsala University Hospital

University Hospital of Umeå - Norrland University Hospital

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Database: Socialstyrelsen National Patient Register[edit | edit source]

Database: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case[edit | edit source]

Registries[edit | edit source]

Database: Socialstyrelsen Cancer Registry[edit | edit source]

Database: Socialstyrelsen Cause of Death Registry[edit | edit source]

Database: Medicines Registry[edit | edit source]

Database: National Quality Register for Cervical Cancer Prevention[edit | edit source]

Database: Swedish National Data Service (SND) Compilation[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls[edit | edit source]

Survey: Malmö Diet Cancer[edit | edit source]

Survey: Family Studies of Childhood Cancer - Genealogy Database[edit | edit source]

Survey: Cohort of Swedish men (COSM) - 2019 health[edit | edit source]

Survey: Swedish mammography cohort (SMC) 2019 lifestyle[edit | edit source]

Biobank/Database: Breast cancer - a metastasis study[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Guidelines: The National Clinical Cancer Care Guidelines[edit | edit source]

Guidelines: National Board of Health and Welfare Guidelines[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Reports: Socialstyrelsen[edit | edit source]

Report: Cancer Fonden[edit | edit source]

Reports: Swedish Palliative Registry[edit | edit source]

Report: EU Country Cancer Profile 2023[edit | edit source]

Report: EU Country Cancer Profile 2025[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Patient Association: Swedish Breast Cancer Association (Europa Donna Sweden)[edit | edit source]

Patient Guides: ESMO Patient Guides Compilation[edit | edit source]

Self-help Group: Swedish Network Against Cancer[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]

hasCancerCenter::Karolinska Institute and University Hospital hasCancerCenter::Skåne University Hospital Cancer Centre hasCancerCenter::Sahlgrenska University Hospital hasCancerCenter::Uppsala University Hospital hasCancerCenter::University Hospital of Umeå - Norrland University Hospital hasHealthcareSystem::Healthcare_System_(Sweden)|Healthcare System hasDatabase::Database:_Socialstyrelsen_National_Patient_Register_(Sweden)|Database: Socialstyrelsen National Patient Register hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Registry: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case hasDatabase::Database:_Socialstyrelsen_Cancer_Registry_(Sweden)|Database: Socialstyrelsen Cancer Registry hasDatabase::Database:_Socialstyrelsen_Cause_of_Death_Registry_(Sweden)|Database: Socialstyrelsen Cause of Death Registry hasDatabase::Database:_Medicines_Registry_(Sweden)|Database: Medicines Registry hasDatabase::Database:_National_Quality_Register_for_Cervical_Cancer_Prevention_(Sweden)|Database: National Quality Register for Cervical Cancer Prevention hasDatabase::Compilation:_Swedish_National_Data_Service_(SND)_(Sweden)|Compilation: Swedish National Data Service (SND) hasBiobank::Biobank:_Biobank_for_individuals_with_prostate_cancer_-_Biobank_for_prostate_cancer_controls_(Sweden)|Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls hasDatabase::Survey:_Malmö_Diet_Cancer_(Sweden)|Survey: Malmö Diet Cancer hasDatabase::Survey:_Family_Studies_of_Childhood_Cancer_-_Genealogy_Database_(Sweden)|Survey: Family Studies of Childhood Cancer - Genealogy Database hasDatabase::Survey:_Cohort_of_Swedish_men_(COSM)_-_2019_health_(Sweden)|Survey: Cohort of Swedish men (COSM) - 2019 health hasDatabase::Survey:_Swedish_mammography_cohort_(SMC)_2019_lifestyle_(Sweden)|Survey: Swedish mammography cohort (SMC) 2019 lifestyle hasDatabase::Biobank/Database:_Breast_cancer_-_a_metastasis_study_(Sweden)|Biobank/Database: Breast cancer - a metastasis study hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|The National Clinical Cancer Care Guidelines hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Compilation: National Board of Health and Welfare Guidelines hasReport::Reports:_Socialstyrelsen_(Sweden)|Reports: Socialstyrelsen hasReport::Report:_Cancer_Fonden_(Sweden)|Report: Cancer Fonden hasReport::Reports:_Swedish_Palliative_Registry_(Sweden)|Reports: Swedish Palliative Registry hasReport::Report:_EU_Country_Cancer_Profile_2023_(Sweden)|Report: EU Country Cancer Profile 2023 hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Sweden)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Sweden)|Quality of Life and Palliative Care Research hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Database: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|Guidelines: The National Clinical Cancer Care Guidelines hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Guidelines: National Board of Health and Welfare Guidelines hasDatabase::Database: Swedish National Data Service (SND) Compilation (Sweden)|Database: Swedish National Data Service (SND) Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Sweden)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown

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