France: Difference between revisions

hasCancerCenter::Léon Bérard Center hasCancerCenter::Institut Curie hasCancerCenter::APHP-CARPEM Institute hasCancerCenter::Gustave Roussy hasCancerCenter::Institut Godinot hasCancerCenter::Centre Henri Becquerel hasDatabase::SNIIRAM_(France)|SNIIRAM hasDatabase::PMSI_(France)|PMSI hasCancerType::C00-D48: All neoplasms hasCancerType::C40-C41: Bone cancers hasCancerType::C50: Breast cancer hasCancerType::D10-D36: Benign tumour hasCancerType::unknown

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+<span style="display:none">forresearchers</span>
+<span style="display:none">forpatients</span>
+<span style="display:none">forproviders</span>
+<span style="display:none">forpolicymakers</span>
+<span style="display:none">francecountry</span>
+[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
 == Cancer Centers ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-== [[Healthcare System]] ==
+[[hasCancerCenter::Léon Bérard Center]]
-France operates a Statutory Health Insurance (SHI) system, providing universal coverage to its residents through two main schemes: one primarily for the agricultural sector and another more general one. The system is financed mainly through employee and employer contributions, along with earmarked taxes on various revenues.
-The healthcare system is overseen by the Ministry of Health, with the SHI managed by the Caisse Nationale de l'Assurance Maladie (CNAM). The central government retains significant control over the healthcare system, despite some decentralization to regional health agencies.
-SHI covers a broad range of services, such as preventive care, specialist consultations, hospitalizations, prescription drugs, and maternity care, financing about 83% of total health expenditure. However, SHI doesn't fully cover some goods like dental and optical devices. Hospital care is covered over 90% by SHI, but it only covers 44% of costs for non-pharmaceutical medical goods in ambulatory (outpatient) care.
-Supplementary private insurance (mutuelle) or Voluntary Health Insurance (VHI) plays a significant role, with almost 95% of the population having some form of VHI. Certain services not fully covered by SHI, like dental and optical care, often rely on this VHI or out-of-pocket payments.
-All residents in France, including long-term foreign residents, contribute to the SHI and can access its benefits. The Assurance Maladie issues a health insurance card, the Carte Vitale, to beneficiaries. This card electronically submits claims data for reimbursement. Electronic health records (Dossier Médical Partagé) are also maintained for each patient, enabling efficient information exchange among healthcare providers. France has recently been placing more emphasis on prevention, health promotion, and patient empowerment.
-== [[Administrative or Claims Data]] ==
-=== SNIIRAM ===
-[https://pubmed.ncbi.nlm.nih.gov/28544284/]
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
-'''Type of information:''' All health care expenses, including outpatient visits, dispensed medication, procedures, chronic conditions, hospital admission diagnoses and procedures, date of death, date and nature of lab tests without results, as well as other information.
-'''Source of Information:''' Includes data from  3 main claims systems (CNAMTS, RSI, and MSA) and almost all the smaller systems.
-'''Data level:''' Patient level.
-'''Number of Records:''' 98.8% of the French population as of 2017.
-'''Date Range:''' 2003 onwards.
-'''Open data access''': Not publicly available. Instructions to request data for restricted content [https://www.health-data-hub.fr/demarches-reglementaires].
-'''Information/Contact for data request:''' Contact information [https://www.health-data-hub.fr/contact].
-=== Echantillon généraliste de bénéficiaires (EGB) ===
-[https://pubmed.ncbi.nlm.nih.gov/28544284/]
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
-'''Type of information:''' Identical to SNIIRAM, but on a smaller scale to be more manageable. The data structure is streamlined and simplified in the EGB.
-'''Source of Information:''' Includes data from  3 main claims systems (CNAMTS, RSI, and MSA) and almost all the smaller systems.
-'''Data level:''' Patient level.
-'''Number of Records:''' 1/97 random permanent sample from the SNIIRAM database.
-'''Date Range:''' 2004 onwards.
-'''Data access''': Not publicly available. Instructions to request data for restricted content [https://www.health-data-hub.fr/demarches-reglementaires].
-'''Information/Contact for data request:''' Contact information [https://www.health-data-hub.fr/contact].
-=== PMSI ===
-[https://pubmed.ncbi.nlm.nih.gov/28544284/]
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/], and Agence technique de l'information sur l'hospitalisation (ATIH) [https://www.atih.sante.fr/].
-'''Type of information:''' Admission date, duration of stay,  main, related, and associate diagnoses coded in ICD-10, hospital admissions for medical, surgical, and obstetrical wards, and other information. All of that information is for both public and private hospitals.
-'''Source of information:'''  Recording of standardized medico-administrative data in a standard collection of information.
-'''Data level:''' Patient level.
-'''Number of Records:''' 98.8% of the French population as of 2017.
-'''Data access''': Not publicly available. Instructions to request data for restricted content [https://www.atih.sante.fr/acces-aux-donnees-pour-les-bureaux-d-etudes-ou-laboratoires-de-recherche].
-'''Information/Contact for data request:''' Contact information [https://www.atih.sante.fr/nous-contacter].
-=== Open Damir: Complete Database on Health Insurance Expenditure ===
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
-'''Type of information:''' Six axes of analysis: period, benefit, care organization, care recipient, performing healthcare professional, prescribing health professional. Four amount indicators: total expenditure, health insurance reimbursement basis, amount reimbursed, and excess fees for health professionals. Three volume indicators: enumeration, amount, and coefficient.
-'''Source of Information:''' Système National des Données de Santé (SNDS) [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds].
-'''Data level:''' Regional level.
-'''Date Range:''' 2009 to 2021.
-'''Open data access''': Publicly available [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-damir-depenses-sante-interregimes].
-'''Information/Contact for data request:''' Contact information [https://assurance-maladie.ameli.fr/etudes-et-donnees/en-savoir-plus-snds/utilisation-accompagnement-donnees-snds].
-=== National data on health insurance expenditure for community care  ===
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
-'''Type of information:''' Type of expense item, type of benefit (care and cash benefits), type of performer (doctors by specialty, dental surgeons, medical auxiliaries, analysis laboratories, pharmacists, etc.), type of prescriber, date of treatment, repayment rate, type of risk covered (sickness, maternity, accident at work and occupational disease). The expenditure indicators are: the reimbursement base of the Health Insurance, the amount reimbursed, excess fees for healthcare professionals, the count of acts performed, and coefficients invoiced.
-'''Source of Information:''' Système National des Données de Santé (SNDS) [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds].
-'''Data level:''' National level.
-'''Date Range:''' 2010 to 2022.
-'''Open data access''': Publicly available [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-data-depenses-sante-soins-ville].
-'''Information/Contact for data request:''' Contact information [https://assurance-maladie.ameli.fr/etudes-et-donnees/en-savoir-plus-snds/utilisation-accompagnement-donnees-snds].
-=== National health insurance expenditure data for private health facilities  ===
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
-'''Type of information:''' Department and region of residence of the beneficiary, type of expense item, type of service, type of establishment, establishment category, benefit discipline, date of treatment, repayment rate. The expenditure indicators are: the reimbursement base of the Health Insurance, and the amount refunded.
-'''Source of Information:''' Système National des Données de Santé (SNDS) [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds].
-'''Data level:''' National level.
-'''Date Range:''' 2009 to 2022
-'''Open data access''': Publicly available [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-data-depenses-sante-etablissements-prives].
-'''Information/Contact for data request:''' Contact information [https://assurance-maladie.ameli.fr/etudes-et-donnees/en-savoir-plus-snds/utilisation-accompagnement-donnees-snds].
-=== Data by CPAM on health insurance expenditure relating to city care ===
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
-'''Type of information:''' Health insurance fund (CPAM), type of expense item, type of benefit (care and cash benefits), type of performer (doctors by specialty, dental surgeons, medical auxiliaries, analysis laboratories, pharmacists, etc.), type of prescriber, date of treatment, repayment rate, type of risk covered (illness, maternity, accident at work and occupational disease). The expenditure indicators are: the reimbursement base of the Health Insurance, the amount reimbursed, excess fees for healthcare professionals, the count of acts carried out and the coefficients invoiced.
-'''Source of Information:''' Système National des Données de Santé (SNDS) [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds].
-'''Data level:''' CPAM level.
-'''Date Range:''' 2010 to 2021.
-'''Open data access''': Publicly available [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-data-depenses-sante-soins-ville-cpam].
-'''Information/Contact for data request:''' Contact information [https://www.atih.sante.fr/nous-contacter].
-=== Data by CPAM on health insurance expenditure relating to private health establishments ===
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
-'''Type of information:''' Health insurance fund (CPAM), department and region of residence of the beneficiary, type of expense item, type of service, type of establishment, establishment category, benefit discipline, date of treatment, repayment rate. The expenditure indicators are: the reimbursement base of the Health Insurance, the amount refunded.
-'''Source of Information:''' Système National des Données de Santé (SNDS) [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds].
-'''Data level:''' CPAM level.
-'''Date Range:''' 2010 to 2022.
-'''Open data access''' Publicly available [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-data-depenses-sante-etablissements-prives-cpam].
-'''Information/Contact for data request:''' Contact information [https://assurance-maladie.ameli.fr/etudes-et-donnees/en-savoir-plus-snds/utilisation-accompagnement-donnees-snds].
-=== Open Medic: complete database on drug expenditure ===
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
-'''Type of information:''' Main Anatomical Group, Therapeutic Subgroup, Pharmacological Subgroup, Chemical Subgroup, Chemical Subgroup, Pharmaceutical Specialty Identification Code, Top Generic, Generic Group, Age at the time of care, Sex, Region of Residence of the Beneficiary, Prescriber, Amount reimbursed, Refund Basis, Number of boxes delivered, Number of consumers (available only in NB_ type bases).
-'''Source of Information:''' Système National des Données de Santé (SNDS) [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds].
-'''Data level:''' Regional level.
-'''Date Range:''' 2014 to 2021
-'''Open data access''': Publicly available [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-medic-base-complete-depenses-medicaments].
-'''Information/Contact for data request:''' Contact information [https://assurance-maladie.ameli.fr/etudes-et-donnees/en-savoir-plus-snds/utilisation-accompagnement-donnees-snds].
-=== Open Medic: additional databases on drug expenditure ===
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
-'''Type of information:''' Main Anatomical Group, Therapeutic Subgroup, Pharmacological Subgroup, Chemical Subgroup, Chemical Subgroup, Pharmaceutical Specialty Identification Code, Top Generic, Generic Group, Age at the time of care, Sex, Region of Residence of the Beneficiary, Prescriber, Amount reimbursed, Refund Basis, Number of boxes delivered, Number of consumers (available only in NB_ type bases).
-'''Source of Information:''' Système National des Données de Santé (SNDS) [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds].
-'''Data level:''' Regional level.
-'''Date Range:''' 2014 to 2021.
-'''Open data access''': Publicly available [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-medic-depenses-beneficiaires-medicaments].
-'''Information/Contact for data request:''' Contact information [https://assurance-maladie.ameli.fr/etudes-et-donnees/en-savoir-plus-snds/utilisation-accompagnement-donnees-snds].
-=== Open PHMEV: complete database on hospital prescriptions for drugs delivered in the community ===
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
-'''Type of information:''' Main Anatomical Group, Label ATC1, Therapeutic Subgroup, ATC2 label, Pharmacological Subgroup, ATC4 label, Chemical Subgroup, ATC3 label, Chemical Subgroup, ATC3 label, Label CIP13, Top Generic/Biosimilar/Princeps/Reference, Generic Group, Age range, Sex, Establishment Category, Region of establishment of the AP-HP and the Red Cross; Region of establishment of the managing establishment otherwise, Geographic Finess number for the AP-HP and the Red Cross; No legal Finess otherwise, Top establishment according to availability Age group: 0 no; 1 yes, Top establishment according to availability Gender: 0 no; 1 yes, Number of boxes, Amount reimbursed, Refundable Amount
-'''Source of Information:''' Système National des Données de Santé (SNDS) [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds].
-'''Data level:''' Regional level.
-'''Date Range:''' 2014 to 2021.
-'''Open data access''': Publicly available [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-phmev-base-complete].
-'''Information/Contact for data request:''' Contact information [https://assurance-maladie.ameli.fr/etudes-et-donnees/en-savoir-plus-snds/utilisation-accompagnement-donnees-snds].
-=== Open PHMEV: regional database on hospital prescriptions for drugs delivered in towns ===
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
-'''Type of information:''' Information about reimbursement of drugs prescribed by public establishments and Espic (private health establishments of collective interest) and dispensed in community pharmacies.
-'''Source of Information:''' Système National des Données de Santé (SNDS) [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds].
-'''Data level:''' Regional level.
-'''Date Range:''' 2014 to 2021.
-'''Open data access''': Publicly available [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-phmev-base-regionale].
+[[hasCancerCenter::Institut Curie]]
-'''Information/Contact for data request:''' Contact information [https://assurance-maladie.ameli.fr/etudes-et-donnees/en-savoir-plus-snds/utilisation-accompagnement-donnees-snds].
+[[hasCancerCenter::Institut Paoli-Calmettes]]
-=== Open Statins: comprehensive database on statin spending ===
+[[hasCancerCenter::University Cancer Institute Toulouse-Oncopole]]
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
+[[hasCancerCenter::Centre François Baclesse]]
-'''Type of information:''' Main Anatomical Group, Therapeutic Subgroup, Pharmacological Subgroup, Chemical Subgroup, Chemical Subgroup, Pharmaceutical Specialty Identification Code, Top Generic, Generic Group, Age at the time of care, Sex, Region of Residence of the Beneficiary, Prescriber, Amount reimbursed, Refund Basis, Number of boxes delivered, Number of consumers (available only in NB_ type bases).
+[[hasCancerCenter::APHP-CARPEM Institute]]
-'''Source of Information:''' Système National des Données de Santé (SNDS) [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds].
+[[hasCancerCenter::APHP - Sorbonne Université - Institut Universitaire de Cancérologie(IUC)]]
-'''Data level:''' Regional level.
+[[hasCancerCenter::Institut de Cancérologie de l'Ouest (ICO) - Integrated Center for Oncology]]
-'''Date Range:''' 2014 to 2021.
+[[hasCancerCenter::Eugène Marquis Cancer Centre]]
-'''Open data access''': Publicly available [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-statines-base-complete-depenses-statines].
+[[hasCancerCenter::Gustave Roussy]]
-'''Information/Contact for data request:''' Contact information [https://assurance-maladie.ameli.fr/etudes-et-donnees/en-savoir-plus-snds/utilisation-accompagnement-donnees-snds].
+[[hasCancerCenter::Cancer Institute Strasbourg Europe]]
-=== Open Statins: additional bases on statin expenditure ===
+[[hasCancerCenter::Comprehensive Cancer Center Jean Perrin]]
-'''Sponsor, manager or home institution:''' Caisse Nationale de l'Assurance Maladie (CNAM) [https://assurance-maladie.ameli.fr/].
+[[hasCancerCenter::Institut du Cancer de Montpellier]]
-'''Type of information:''' Main Anatomical Group, Therapeutic Subgroup, Pharmacological Subgroup, Chemical Subgroup, Chemical Subgroup, Pharmaceutical Specialty Identification Code, Top Generic, Generic Group, Age at the time of care, Sex, Region of Residence of the Beneficiary, Prescriber, Amount reimbursed, Refund Basis, Number of boxes delivered, Number of consumers (available only in NB_ type bases).
+[[hasCancerCenter::Institut Godinot]]
-'''Source of Information:''' Système National des Données de Santé (SNDS) [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds].
+[[hasCancerCenter::Georges-François Leclerc Cancer Center]]
-'''Data level:''' Regional level.
+[[hasCancerCenter::Cancer Institute AP-HP. Nord - Université de Paris]]
-'''Date Range:''' 2014 to 2021
+[[hasCancerCenter::Centre Henri Becquerel]]
-'''Open data access''': Publicly available [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-statines-depenses-beneficiaires-statines].
+[[hasCancerCenter::Institut Sainte Catherine]]
-'''Information/Contact for data request:''' Contact information [https://assurance-maladie.ameli.fr/etudes-et-donnees/en-savoir-plus-snds/utilisation-accompagnement-donnees-snds].
+</div>
-== [[Registries]] ==
+== [[hasHealthcareSystem::Healthcare_System_(France)|Healthcare System]] ==
-=== Death registry (CepiDC) ===
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
+</div>
-'''Primary purpose:''' A complete registry of medical causes of death in France.
+== Administrative or Claims Data ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Sponsor, manager, or home institution:''' Center for Epidemiology on the Medical Causes of Death (CépiDC) [https://www.cepidc.inserm.fr/qui-sommes-nous/le-cepidc].
+=== [[hasDatabase::Database: SNIIRAM_(France)|Database: SNIIRAM]] ===
-'''Data level:''' Patient level. Open data is available at the Regional and National level.
+=== [[hasDatabase::Echantillon_généraliste_de_bénéficiaires_(EGB)_(France)|Database: Echantillon généraliste de bénéficiaires (EGB)]] ===
-'''Collected information:''' Complete database: Patient name, address, date of birth, sex, date and time of death, medical component that includes the sequence of morbid events that led to death from the immediate cause to the underlying cause of death as well as the comorbidities, factors or physiological conditions that contributed to the death but not directly involved in the sequence of events described before. Open database: Sex, age, and cause of death.
+=== [[hasDatabase::PMSI_(France)|Database: PMSI]] ===
-'''Number of records:''' Unknown.
+=== [[hasDatabase::Open_Damir:_Complete_Database_on_Health_Insurance_Expenditure_(France)|Database: Complete Database on Health Insurance Expenditure]] ===
-'''Data source:''' Death certificates issued in the country.
+=== [[hasDatabase::National_data_on_health_insurance_expenditure_for_community_care_(France)|Database: National data on health insurance expenditure for community care]] ===
-'''Cancer areas of interest:''' Malignant tumor of the lip, malignant tumor oral cavity and pharynx; malignant tumor of the esophagus; of the stomach; malignant colon tumor; malignant tumor of the rectum and anus; malignant neoplasm of the liver and intrahepatic bile ducts; malignant tumor of the pancreas; malignant tumor of the larynx, trachea, bronchi, and lung; malignant melanoma of the skin; malignant breast tumor; malignant tumor of the cervix; malignant tumor of other parts of the uterus; malignant tumor of the ovary; malignant tumor of the prostate; kidney malignancy; malignant bladder tumor; malignant neoplasm of lymphatic and hematopoietic tissues; other malignant tumors; other tumors.
+=== [[hasDatabase::National_health_insurance_expenditure_data_for_private_health_facilities_(France)|Database: National health insurance expenditure data for private health facilities]] ===
-'''Open data access:''' Partially publicly available [http://cepidc-data.inserm.fr/cgi-bin/broker.exe]. Instructions to request data for restricted content [https://www.cepidc.inserm.fr/le-snds/les-conditions-dacces-aux-donnees-du-snds].
+=== [[hasDatabase::Data_by_CPAM_on_health_insurance_expenditure_relating_to_private_health_establishments_(France)|Database: Data by CPAM on health insurance expenditure relating to private health establishments]] ===
-'''Information/Contact for data request:''' Contact information [https://www.cepidc.inserm.fr/node/add/f_contact].
+=== [[hasDatabase::Open_Medic:_complete_database_on_drug_expenditure_(France)|Database: Complete database on drug expenditure]] ===
-== [[Databases for Clinical Trials, Surveys and Biobanks]] ==
+=== [[hasDatabase::Open_Medic:_additional_databases_on_drug_expenditure_(France)|Database: Additional databases on drug expenditure]] ===
-=== Epidemiology Portal of France ===
+=== [[hasDatabase::Open_PHMEV:_complete_database_on_hospital_prescriptions_for_drugs_delivered_in_the_community_(France)|Database: Complete database on hospital prescriptions for drugs delivered in the community]] ===
-[https://epidemiologie-france.aviesan.fr/epidemiologie-france/pages/le-portail-epidemiologie-france].
-'''Primary purpose:''' Catalog of individual French health databases to facilitate the development of research and public health.
+=== [[hasDatabase::Open_PHMEV:_regional_database_on_hospital_prescriptions_for_drugs_delivered_in_towns_(France)|Database: Regional database on hospital prescriptions for drugs delivered in towns]] ===
+</div>
-'''Sponsor, manager or home institution:''' Inserm [https://www.inserm.fr/].
+== Registries ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Type of databases:''' Administrative bases, morbidity registries, cohort studies, longitudinal studies, case-control studies, cross-sectional studies. Includes but is not limited to cancer databases.
+=== [[hasDatabase::Death_registry_(CepiDC)_(France)|Database: Death registry (CepiDC)]] ===
-'''Database information:''' Identification, medical domain, health determinants, scientific manager, collaborations, funding, database governance, database type, origin of participation recruitment, primary objective, type of population, year of first and last collection, database size, base activity, type of data collected, clinical trials details, administrative details, methodology, validation, and access.
+=== [[hasDatabase::Database:_French_Epidemiological_Strategy_and_Medical_Economics_Metastatic_Breast_Cancer_(ESME-MBC)_(France)|Database: French Epidemiological Strategy and Medical Economics Metastatic Breast Cancer (ESME-MBC)]] ===
-'''Open data access:''' Partially publicly available. Check "Type of bases" [https://epidemiologie-france.aviesan.fr/epidemiologie-france/catalogue]. Instructions to request data for restricted content [https://epidemiologie-france.aviesan.fr/epidemiologie-france/catalogue], search for the relevant database and check "Valuation and Access" section.
+=== [[hasDatabase::Database:_DESCAR-T_(France)|Database: DESCAR-T]] ===
-'''Information/Contact for data request''': Contact information [https://epidemiologie-france.aviesan.fr/epidemiologie-france/accueil].
-<!-- Victor, este link abaixo não funciona, mas ajeitei os de cima:
+</div>
-'''Link to specific query:''' [https://epidemiologie-france.aviesan.fr/ezfind/research/(offset)/24/(search)/Canc%C3%A9rologie/(hsearch)/attr_domaines_de_pathologies_tv_s:*-4-*/(sources)/all/(facet)/catalogue/(sort)/attr_datemodiffre-FR_tv_s%7Cdesc Cancer-related databases].
-== [[Electronic Health Records]] ==
+== Databases for Clinical Trials, Surveys and Biobanks ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-== [[Clinical Practices Guidelines]] ==
+=== [[hasDatabase::Database: Epidemiology Portal of France Compilation (France)|Database: Epidemiology Portal of France Compilation]] ===
--->
+</div>
-== [[Cancer-related Patient Associations and Resources]] ==
+== Clinical Practices Guidelines ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
+=== [[hasClinicalGuidelines::The_French_Society_of_Radiology_Guidelines_(France)|Guideline: The French Society of Radiology Guidelines]] ===
-=== Compilation: ESMO Patient Guides ===
+=== [[hasClinicalGuidelines::Guidelines: HAS Guidelines Compilation (France)|Guidelines: HAS Guidelines Compilation]] ===
+</div>
-'''Sponsor, manager or home institution:''' European Society for Medical Oncology
+== Latest Policymaking Initiatives ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
+=== [[hasPolicyData::CNAM_Studies_and_Data_(France)|Report: CNAM Studies and Data]] ===
-'''Primary purpose:''' To translate complex medical language into understandable information for patients.
+=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(France)|Report: EU Country Cancer Profile 2023]] ===
-'''Available guides:''' Cancer Treatment During the COVID-19 Pandemic; Immunotherapy Side Effects and Their Management; Personalized Medicine; Survival; Colorectal Cancer; Endometrial Cancer; Stomach Cancer; Gliomas; AML; CML; Follicular Lymphoma; Bone Sarcomas; Non-Small Cell Lung Cancer (NSCLC); Head and Neck Cancer; Soft Tissue Sarcomas.
+=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(France)|Report: EU Country Cancer Profile 2025]] ===
-'''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
+=== [[hasReport::Report:_Overview_of_cancers_in_France_–_2024_(France)|Report: Overview of cancers in France – 2024]] ===
-'''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-french].
+=== [[hasReport::Report:_Ten-year_strategy_to_combat_cancer_2021-2030_(France)|Report: Ten-year strategy to combat cancer 2021-2030]] ===
-== [[Latest Policymaking Initiatives]] ==
+=== [[hasPolicyData::Studies_and_Data:_Reference_documents_from_the_National_Cancer_Institute_(France)|Studies and Data: Reference documents from the National Cancer Institute]] ===
-=== CNAM Studies and Data ===
+</div>
-'''Primary purpose:''' Offer access to publicly available databases and reports made by CNAM.
+== Cancer-related Patient Associations and Resources ==
+<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
-'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
+=== [[hasPatientAssociation::Patient_Association:_The_Léon_Bérard_Center_Volunteers_Association_(France)|Patient Association: The Léon Bérard Center Volunteers Association]] ===
+=== [[hasPatientAssociation::Patient_Association:_ELLyE_-_Ensemble_Leucémies_Lymphomas_Espoir_(France)|Patient Association: ELLyE - Ensemble Leucémies Lymphomas Espoir]] ===
+=== [[hasPatientAssociation::Patient_Association:_Belle_et_Bien_(France)|Patient Association: Belle et Bien]] ===
+=== [[hasPatientAssociation::Patient_Association:_Vivre_comme_avant_(France)|Patient Association: Vivre comme avant]] ===
+=== [[hasPatientAssociation::Patient_Association:_The_IAS_du_Lyonnais_(France)|Patient Association: The IAS du Lyonnais]] ===
+=== [[hasPatientAssociation::Patient_Association:_Les_Mutilés_de_la_voix_(France)|Patient Association: Les Mutilés de la voix]] ===
+=== [[hasPatientAssociation::Patient_Association:_Lymphedema_Rhône-Alpes_(France)|Patient Association: Lymphedema Rhône-Alpes]] ===
+=== [[hasPatientAssociation::Patient_Association:_HNPCC_Lynch_(France)|Patient Association: HNPCC Lynch]] ===
+=== [[hasPatientAssociation::Patient_Association:_Le_Comité_du_Rhône_de_la_Ligue_nationale_contre_le_cancer_et_les_comités_départementaux_(France)|Patient Association: Le Comité du Rhône de la Ligue nationale contre le cancer et les comités départementaux]] ===
+=== [[hasPatientAssociation::Patient_Association:_Mon_Réseau_Cancer_(France)|Patient Association: Mon Réseau Cancer]] ===
+=== [[hasPatientAssociation::Patient_Association:_Europa_Donna_Lyon_(France)|Patient Association: Europa Donna Lyon]] ===
+=== [[hasPatientAssociation::Patient_Association:_JAMALV_(France)|Patient Association: JAMALV]] ===
+=== [[hasPatientAssociation::Patient_Association:_On_est_là_(France)|Patient Association: On est là]] ===
+=== [[hasPatientAssociation::Patient_Association:_CERHOM_(France)|Patient Association: CERHOM]] ===
+=== [[hasPatientAssociation::Patient_Association:_HOPE_(France)|Patient Association: HOPE]] ===
+=== [[hasPatientAssociation::Patient_Association:_Lyonnes_de_Tatooine_(France)|Patient Association: Lyonnes de Tatooine]] ===
+=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (France)|Patient Guides: ESMO Patient Guides Compilation]] ===
+=== [[hasPatientGuides::Patient Guides: Patient Guides Compilation (France)|Patient Guides: Patient Guides Compilation]] ===
+=== [[hasPatientResource::Self-help_Group:_French_Cancer_League_(France)|Self-help Group: French Cancer League]] ===
+</div>
-'''Type of information:''' Health reports and databases that include but are not limited to cancer reports and databases.
+== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(France)|Quality of Life and Palliative Care Research]] ==
-'''Link to specific query:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/recherche?search=cancer&f%5B%5D=ed_category%3A%C3%89tudes+%2F+publications&f%5B%5D=ed_period_start%3A2006&f%5B%5D=ed_period_end%3A2022&email-honey= Cancer-related reports]
+__NOTOC__
-<!--
+<span style="display:none">hasCancerCenter::Léon Bérard Center</span>
-== [[Cancer-related Patient Associations and Resources]] ==
+<span style="display:none">hasCancerCenter::Institut Curie</span>
--->
+<span style="display:none">hasCancerCenter::Institut Paoli-Calmettes</span>
+<span style="display:none">hasCancerCenter::University Cancer Institute Toulouse-Oncopole</span>
+<span style="display:none">hasCancerCenter::Centre François Baclesse</span>
+<span style="display:none">hasCancerCenter::APHP-CARPEM Institute</span>
+<span style="display:none">hasCancerCenter::APHP - Sorbonne Université - Institut Universitaire de Cancérologie(IUC)</span>
+<span style="display:none">hasCancerCenter::Institut de Cancérologie de l'Ouest (ICO) - Integrated Center for Oncology</span>
+<span style="display:none">hasCancerCenter::Eugène Marquis Cancer Centre</span>
+<span style="display:none">hasCancerCenter::Gustave Roussy</span>
+<span style="display:none">hasCancerCenter::Cancer Institute Strasbourg Europe</span>
+<span style="display:none">hasCancerCenter::Comprehensive Cancer Center Jean Perrin</span>
+<span style="display:none">hasCancerCenter::Institut du Cancer de Montpellier</span>
+<span style="display:none">hasCancerCenter::Institut Godinot</span>
+<span style="display:none">hasCancerCenter::Georges-François Leclerc Cancer Center</span>
+<span style="display:none">hasCancerCenter::Cancer Institute AP-HP. Nord - Université de Paris</span>
+<span style="display:none">hasCancerCenter::Centre Henri Becquerel</span>
+<span style="display:none">hasCancerCenter::Institut Sainte Catherine</span>
+<span style="display:none">hasHealthcareSystem::Healthcare_System_(France)|Healthcare System</span>
+<span style="display:none">hasDatabase::SNIIRAM_(France)|SNIIRAM</span>
+<span style="display:none">hasDatabase::Echantillon_généraliste_de_bénéficiaires_(EGB)_(France)|Echantillon généraliste de bénéficiaires (EGB)</span>
+<span style="display:none">hasDatabase::PMSI_(France)|PMSI</span>
+<span style="display:none">hasDatabase::Open_Damir:_Complete_Database_on_Health_Insurance_Expenditure_(France)|Open Damir: Complete Database on Health Insurance Expenditure</span>
+<span style="display:none">hasDatabase::National_data_on_health_insurance_expenditure_for_community_care_(France)|National data on health insurance expenditure for community care</span>
+<span style="display:none">hasDatabase::National_health_insurance_expenditure_data_for_private_health_facilities_(France)|National health insurance expenditure data for private health facilities</span>
+<span style="display:none">hasDatabase::Data_by_CPAM_on_health_insurance_expenditure_relating_to_private_health_establishments_(France)|Data by CPAM on health insurance expenditure relating to private health establishments</span>
+<span style="display:none">hasDatabase::Open_Medic:_complete_database_on_drug_expenditure_(France)|Open Medic: complete database on drug expenditure</span>
+<span style="display:none">hasDatabase::Open_Medic:_additional_databases_on_drug_expenditure_(France)|Open Medic: additional databases on drug expenditure</span>
+<span style="display:none">hasDatabase::Open_PHMEV:_complete_database_on_hospital_prescriptions_for_drugs_delivered_in_the_community_(France)|Open PHMEV: complete database on hospital prescriptions for drugs delivered in the community</span>
+<span style="display:none">hasDatabase::Open_PHMEV:_regional_database_on_hospital_prescriptions_for_drugs_delivered_in_towns_(France)|Open PHMEV: regional database on hospital prescriptions for drugs delivered in towns</span>
+<span style="display:none">hasDatabase::Death_registry_(CepiDC)_(France)|Death registry (CepiDC)</span>
+<span style="display:none">hasDatabase::Compilation:_Epidemiology_Portal_of_France|Compilation: Epidemiology Portal of France</span>
+<span style="display:none">hasClinicalGuidelines::Institut_National_du_Cancer_Guidelines_(France)|Institut National du Cancer Guidelines</span>
+<span style="display:none">hasClinicalGuidelines::The_French_Society_of_Radiology_Guidelines_(France)|The French Society of Radiology Guidelines</span>
+<span style="display:none">hasClinicalGuidelines::Compilation:_HAS_Guidelines_(France)|Compilation: HAS Guidelines</span>
+<span style="display:none">hasPolicyData::CNAM_Studies_and_Data_(France)|CNAM Studies and Data</span>
+<span style="display:none">hasReport::Report:_Cancer_Panorama_in_France_(France)|Report: Cancer Panorama in France</span>
+<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(France)|Report: EU Country Cancer Profile 2023</span>
+<span style="display:none">hasReport::Report:_Ten-year_strategy_to_combat_cancer_2021-2030_(France)|Report: Ten-year strategy to combat cancer 2021-2030</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_The_Léon_Bérard_Center_Volunteers_Association_(France)|Patient Association: The Léon Bérard Center Volunteers Association</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_ELLyE_-_Ensemble_Leucémies_Lymphomas_Espoir_(France)|Patient Association: ELLyE - Ensemble Leucémies Lymphomas Espoir</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_Belle_et_Bien_(France)|Patient Association: Belle et Bien</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_Vivre_comme_avant_(France)|Patient Association: Vivre comme avant</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_The_IAS_du_Lyonnais_(France)|Patient Association: The IAS du Lyonnais</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_Les_Mutilés_de_la_voix_(France)|Patient Association: Les Mutilés de la voix</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_Lymphedema_Rhône-Alpes_(France)|Patient Association: Lymphedema Rhône-Alpes</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_HNPCC_Lynch_(France)|Patient Association: HNPCC Lynch</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_Le_Comité_du_Rhône_de_la_Ligue_nationale_contre_le_cancer_et_les_comités_départementaux_(France)|Patient Association: Le Comité du Rhône de la Ligue nationale contre le cancer et les comités départementaux</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_Mon_Réseau_Cancer_(France)|Patient Association: Mon Réseau Cancer</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_Europa_Donna_Lyon_(France)|Patient Association: Europa Donna Lyon</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_JAMALV_(France)|Patient Association: JAMALV</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_On_est_là_(France)|Patient Association: On est là</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_CERHOM_(France)|Patient Association: CERHOM</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_HOPE_(France)|Patient Association: HOPE</span>
+<span style="display:none">hasPatientAssociation::Patient_Association:_Lyonnes_de_Tatooine_(France)|Patient Association: Lyonnes de Tatooine</span>
+<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(France)|Compilation: ESMO Patient Guides</span>
+<span style="display:none">hasPatientGuides::Patient_Guides_(France)|Patient Guides</span>
+<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(France)|Quality of Life and Palliative Care Research</span>
+<span style="display:none">hasDatabase::Database: SNIIRAM_(France)|Database: SNIIRAM</span>
+<span style="display:none">hasDatabase::Echantillon_généraliste_de_bénéficiaires_(EGB)_(France)|Database: Echantillon généraliste de bénéficiaires (EGB)</span>
+<span style="display:none">hasDatabase::PMSI_(France)|Database: PMSI</span>
+<span style="display:none">hasDatabase::Open_Damir:_Complete_Database_on_Health_Insurance_Expenditure_(France)|Database: Complete Database on Health Insurance Expenditure</span>
+<span style="display:none">hasDatabase::National_data_on_health_insurance_expenditure_for_community_care_(France)|Database: National data on health insurance expenditure for community care</span>
+<span style="display:none">hasDatabase::National_health_insurance_expenditure_data_for_private_health_facilities_(France)|Database: National health insurance expenditure data for private health facilities</span>
+<span style="display:none">hasDatabase::Data_by_CPAM_on_health_insurance_expenditure_relating_to_private_health_establishments_(France)|Database: Data by CPAM on health insurance expenditure relating to private health establishments</span>
+<span style="display:none">hasDatabase::Open_Medic:_complete_database_on_drug_expenditure_(France)|Database: Complete database on drug expenditure</span>
+<span style="display:none">hasDatabase::Open_Medic:_additional_databases_on_drug_expenditure_(France)|Database: Additional databases on drug expenditure</span>
+<span style="display:none">hasDatabase::Open_PHMEV:_complete_database_on_hospital_prescriptions_for_drugs_delivered_in_the_community_(France)|Database: Complete database on hospital prescriptions for drugs delivered in the community</span>
+<span style="display:none">hasDatabase::Open_PHMEV:_regional_database_on_hospital_prescriptions_for_drugs_delivered_in_towns_(France)|Database: Regional database on hospital prescriptions for drugs delivered in towns</span>
+<span style="display:none">hasDatabase::Death_registry_(CepiDC)_(France)|Database: Death registry (CepiDC)</span>
+<span style="display:none">hasClinicalGuidelines::Institut_National_du_Cancer_Guidelines_(France)|Guideline: Institut National du Cancer Guidelines</span>
+<span style="display:none">hasClinicalGuidelines::The_French_Society_of_Radiology_Guidelines_(France)|Guideline: The French Society of Radiology Guidelines</span>
+<span style="display:none">hasPolicyData::CNAM_Studies_and_Data_(France)|Report: CNAM Studies and Data</span>
+<span style="display:none">hasPatientGuides::Patient_Guides_(France)|Patient Guide: Compilation</span>
+<span style="display:none">hasDatabase::Database: Epidemiology Portal of France Compilation (France)|Database: Epidemiology Portal of France Compilation</span>
+<span style="display:none">hasClinicalGuidelines::Guidelines: HAS Guidelines Compilation (France)|Guidelines: HAS Guidelines Compilation</span>
+<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (France)|Patient Guides: ESMO Patient Guides Compilation</span>
+<span style="display:none">hasPatientGuides::Patient Guides: Patient Guides Compilation (France)|Patient Guides: Patient Guides Compilation</span>
+<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
+<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
+<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
+<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
+<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
+<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
+<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
+<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
+<span style="display:none">hasCancerType::C50: Breast cancer</span>
+<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
+<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
+<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
+<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
+<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
+<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
+<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
+<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
+<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
+<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
+<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
+<span style="display:none">hasCancerType::unknown</span>