France: Difference between revisions

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== [[Cancer Centers]] ==
<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">francecountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]


== [[Healthcare System]] ==
== Cancer Centers ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


Universal public healthcare in France is one of the branches of the system of [https://www.cleiss.fr/docs/regimes/regime_france/an_index.html Social Security System for Salaried Workers]. Each citizen must pay for compulsory health insurance, and each doctor or dentist's fee is reimbursed partially or fully to the citizen. The system is managed by the [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]. The CNAM, along with the [https://www.health-data-hub.fr/demarches-reglementaires Health Data Hub], also manages the [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds Système National des Données de Santé (SNDS)], France's national health data system, in which the following information can be found: health insurance data (Sniiram), hospital-discharge data (PMSI), medical causes of death databases (CépiDc de l’Inserm) and disability data (CNSA). Any request to access data from the SNDS can be made to the Health Data Hub.
[[hasCancerCenter::Léon Bérard Center]]  


== [[Administrative or Claims Data]] ==
[[hasCancerCenter::Institut Curie]]  


=== SNIIRAM ===
[[hasCancerCenter::Institut Paoli-Calmettes]]


[https://pubmed.ncbi.nlm.nih.gov/28544284/ [1]]
[[hasCancerCenter::University Cancer Institute Toulouse-Oncopole]]  


'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
[[hasCancerCenter::Centre François Baclesse]]  


'''Type of information:''' All health care expenses, including outpatient visits, dispensed medication, procedures, chronic conditions, hospital admission diagnoses and procedures, date of death, date and nature of lab tests without results, as well as other information.
[[hasCancerCenter::APHP-CARPEM Institute]]


'''Source of Information:''' Includes data from  3 main claims systems (CNAMTS, RSI, and MSA) and almost all the smaller systems.
[[hasCancerCenter::APHP - Sorbonne Université - Institut Universitaire de Cancérologie(IUC)]]


'''Data level:''' Patient level.
[[hasCancerCenter::Institut de Cancérologie de l'Ouest (ICO) - Integrated Center for Oncology]]


'''Number of Records:''' 98.8% of the French population as of 2017.
[[hasCancerCenter::Eugène Marquis Cancer Centre]]


'''Date Range:''' 2003 onwards.
[[hasCancerCenter::Gustave Roussy]]


'''Information/Contact for data request:''' [https://www.health-data-hub.fr/demarches-reglementaires Instructions to access data.]
[[hasCancerCenter::Cancer Institute Strasbourg Europe]]


=== Echantillon généraliste de bénéficiaires (EGB) ===
[[hasCancerCenter::Comprehensive Cancer Center Jean Perrin]]


[https://pubmed.ncbi.nlm.nih.gov/28544284/ [1]]
[[hasCancerCenter::Institut du Cancer de Montpellier]]


'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
[[hasCancerCenter::Institut Godinot]]


'''Type of information:''' Identical to SNIIRAM, but on a smaller scale to be more manageable. Data structure is streamlined and simplified in the EGB.
[[hasCancerCenter::Georges-François Leclerc Cancer Center]]


'''Source of Information:''' Includes data from  3 main claims systems (CNAMTS, RSI, and MSA) and almost all the smaller systems.  
[[hasCancerCenter::Cancer Institute AP-HP. Nord - Université de Paris]]


'''Data level:''' Patient level.
[[hasCancerCenter::Centre Henri Becquerel]]


'''Number of Records:''' 1/97 random permanent sample from the SNIIRAM database.
[[hasCancerCenter::Institut Sainte Catherine]]


'''Date Range:''' 2004 onwards.
</div>


'''Information/Contact for data request:''' [https://www.health-data-hub.fr/demarches-reglementaires Instructions to access data.]
== [[hasHealthcareSystem::Healthcare_System_(France)|Healthcare System]] ==
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</div>


=== PMSI ===
== Administrative or Claims Data ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


[https://pubmed.ncbi.nlm.nih.gov/28544284/ [1]]
=== [[hasDatabase::Database: SNIIRAM_(France)|Database: SNIIRAM]] ===


'''Sponsor, manager or home institution:''' [https://www.atih.sante.fr/ Agence technique de l'information sur l'hospitalisation (ATIH)] and [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
=== [[hasDatabase::Echantillon_généraliste_de_bénéficiaires_(EGB)_(France)|Database: Echantillon généraliste de bénéficiaires (EGB)]] ===


'''Type of information:''' Admission date, duration of stay,  main, related, and associate diagnoses coded in
=== [[hasDatabase::PMSI_(France)|Database: PMSI]] ===
ICD10 , hospital admissions for medical, surgical, and obstetrical wards, and other information. All of that information is for both public and private hospitals


'''Source of information:'''  Recording of standardized medico-administrative data in a standard collection of information.
=== [[hasDatabase::Open_Damir:_Complete_Database_on_Health_Insurance_Expenditure_(France)|Database: Complete Database on Health Insurance Expenditure]] ===


'''Data level:''' Patient level.
=== [[hasDatabase::National_data_on_health_insurance_expenditure_for_community_care_(France)|Database: National data on health insurance expenditure for community care]] ===


'''Number of Records:''' 98.8% of the French population as of 2017.
=== [[hasDatabase::National_health_insurance_expenditure_data_for_private_health_facilities_(France)|Database: National health insurance expenditure data for private health facilities]] ===


'''Information/Contact for data request:''' [https://www.atih.sante.fr/acces-aux-donnees-pour-les-bureaux-d-etudes-ou-laboratoires-de-recherche Instructions to access data.]
=== [[hasDatabase::Data_by_CPAM_on_health_insurance_expenditure_relating_to_private_health_establishments_(France)|Database: Data by CPAM on health insurance expenditure relating to private health establishments]] ===


=== Open Damir: Complete Database on Health Insurance Expenditure ===
=== [[hasDatabase::Open_Medic:_complete_database_on_drug_expenditure_(France)|Database: Complete database on drug expenditure]] ===


'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
=== [[hasDatabase::Open_Medic:_additional_databases_on_drug_expenditure_(France)|Database: Additional databases on drug expenditure]] ===


'''Type of information:''' Six axes of analysis: period, benefit, care organization, care recipient, performing healthcare professional, prescribing health professional. Four amount indicators: total expenditure, health insurance reimbursement basis, amount reimbursed, excess fees for health professionals. Three volume indicators: enumeration, amount, coefficient.
=== [[hasDatabase::Open_PHMEV:_complete_database_on_hospital_prescriptions_for_drugs_delivered_in_the_community_(France)|Database: Complete database on hospital prescriptions for drugs delivered in the community]] ===


'''Source of Information:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds Système National des Données de Santé (SNDS)]
=== [[hasDatabase::Open_PHMEV:_regional_database_on_hospital_prescriptions_for_drugs_delivered_in_towns_(France)|Database: Regional database on hospital prescriptions for drugs delivered in towns]] ===
</div>


'''Data level:''' Patient level.
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Date Range:''' 2009 to 2021.
=== [[hasDatabase::Death_registry_(CepiDC)_(France)|Database: Death registry (CepiDC)]] ===


'''Information/Contact for data request:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-damir-depenses-sante-interregimes The data is openly available.]
=== [[hasDatabase::Database:_French_Epidemiological_Strategy_and_Medical_Economics_Metastatic_Breast_Cancer_(ESME-MBC)_(France)|Database: French Epidemiological Strategy and Medical Economics Metastatic Breast Cancer (ESME-MBC)]] ===


=== National data on health insurance expenditure for community care  ===
=== [[hasDatabase::Database:_DESCAR-T_(France)|Database: DESCAR-T]] ===


'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]


'''Type of information:''' Type of expense item, type of benefit (care and cash benefits), type of performer (doctors by specialty, dental surgeons, medical auxiliaries, analysis laboratories, pharmacists, etc.), type of prescriber, date of treatment, repayment rate, type of risk covered (sickness, maternity, accident at work and occupational disease). The expenditure indicators are: the reimbursement base of the Health Insurance, the amount reimbursed, excess fees for healthcare professionals, the count of acts performed and coefficients invoiced.
</div>


'''Source of Information:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds Système National des Données de Santé (SNDS)]
== Databases for Clinical Trials, Surveys and Biobanks ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Data level:''' Patient level.
=== [[hasDatabase::Database: Epidemiology Portal of France Compilation (France)|Database: Epidemiology Portal of France Compilation]] ===
</div>


'''Date Range:''' 2010 to 2022.
== Clinical Practices Guidelines ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
=== [[hasClinicalGuidelines::The_French_Society_of_Radiology_Guidelines_(France)|Guideline: The French Society of Radiology Guidelines]] ===


'''Information/Contact for data request:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-data-depenses-sante-soins-ville The data is openly available.]
=== [[hasClinicalGuidelines::Guidelines: HAS Guidelines Compilation (France)|Guidelines: HAS Guidelines Compilation]] ===
</div>


=== National health insurance expenditure data for private health facilities  ===
== Latest Policymaking Initiatives ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">
=== [[hasPolicyData::CNAM_Studies_and_Data_(France)|Report: CNAM Studies and Data]] ===


'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(France)|Report: EU Country Cancer Profile 2023]] ===


'''Type of information:''' Department and region of residence of the beneficiary, type of expense item, type of service, type of establishment, establishment category, benefit discipline, date of treatment, repayment rate. The expenditure indicators are: the reimbursement base of the Health Insurance, the amount refunded.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(France)|Report: EU Country Cancer Profile 2025]] ===


'''Source of Information:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds Système National des Données de Santé (SNDS)]
=== [[hasReport::Report:_Overview_of_cancers_in_France_–_2024_(France)|Report: Overview of cancers in France – 2024]] ===


'''Data level:''' Patient level.
=== [[hasReport::Report:_Ten-year_strategy_to_combat_cancer_2021-2030_(France)|Report: Ten-year strategy to combat cancer 2021-2030]] ===


'''Date Range:''' 2009 to 2022
=== [[hasPolicyData::Studies_and_Data:_Reference_documents_from_the_National_Cancer_Institute_(France)|Studies and Data: Reference documents from the National Cancer Institute]] ===


'''Information/Contact for data request:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-data-depenses-sante-etablissements-prives The data is openly available.]
</div>


=== Data by CPAM on health insurance expenditure relating to city care ===
== Cancer-related Patient Associations and Resources ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
=== [[hasPatientAssociation::Patient_Association:_The_Léon_Bérard_Center_Volunteers_Association_(France)|Patient Association: The Léon Bérard Center Volunteers Association]] ===
=== [[hasPatientAssociation::Patient_Association:_ELLyE_-_Ensemble_Leucémies_Lymphomas_Espoir_(France)|Patient Association: ELLyE - Ensemble Leucémies Lymphomas Espoir]] ===
=== [[hasPatientAssociation::Patient_Association:_Belle_et_Bien_(France)|Patient Association: Belle et Bien]] ===
=== [[hasPatientAssociation::Patient_Association:_Vivre_comme_avant_(France)|Patient Association: Vivre comme avant]] ===
=== [[hasPatientAssociation::Patient_Association:_The_IAS_du_Lyonnais_(France)|Patient Association: The IAS du Lyonnais]] ===
=== [[hasPatientAssociation::Patient_Association:_Les_Mutilés_de_la_voix_(France)|Patient Association: Les Mutilés de la voix]] ===
=== [[hasPatientAssociation::Patient_Association:_Lymphedema_Rhône-Alpes_(France)|Patient Association: Lymphedema Rhône-Alpes]] ===
=== [[hasPatientAssociation::Patient_Association:_HNPCC_Lynch_(France)|Patient Association: HNPCC Lynch]] ===
=== [[hasPatientAssociation::Patient_Association:_Le_Comité_du_Rhône_de_la_Ligue_nationale_contre_le_cancer_et_les_comités_départementaux_(France)|Patient Association: Le Comité du Rhône de la Ligue nationale contre le cancer et les comités départementaux]] ===
=== [[hasPatientAssociation::Patient_Association:_Mon_Réseau_Cancer_(France)|Patient Association: Mon Réseau Cancer]] ===
=== [[hasPatientAssociation::Patient_Association:_Europa_Donna_Lyon_(France)|Patient Association: Europa Donna Lyon]] ===
=== [[hasPatientAssociation::Patient_Association:_JAMALV_(France)|Patient Association: JAMALV]] ===
=== [[hasPatientAssociation::Patient_Association:_On_est_là_(France)|Patient Association: On est là]] ===
=== [[hasPatientAssociation::Patient_Association:_CERHOM_(France)|Patient Association: CERHOM]] ===
=== [[hasPatientAssociation::Patient_Association:_HOPE_(France)|Patient Association: HOPE]] ===
=== [[hasPatientAssociation::Patient_Association:_Lyonnes_de_Tatooine_(France)|Patient Association: Lyonnes de Tatooine]] ===
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (France)|Patient Guides: ESMO Patient Guides Compilation]] ===
=== [[hasPatientGuides::Patient Guides: Patient Guides Compilation (France)|Patient Guides: Patient Guides Compilation]] ===
=== [[hasPatientResource::Self-help_Group:_French_Cancer_League_(France)|Self-help Group: French Cancer League]] ===
</div>


'''Type of information:''' Health insurance fund (CPAM), type of expense item, type of benefit (care and cash benefits), type of performer (doctors by specialty, dental surgeons, medical auxiliaries, analysis laboratories, pharmacists, etc.), type of prescriber, date of treatment, repayment rate, type of risk covered (illness, maternity, accident at work and occupational disease). The expenditure indicators are: the reimbursement base of the Health Insurance, the amount reimbursed, excess fees for healthcare professionals, the count of acts carried out and the coefficients invoiced.
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(France)|Quality of Life and Palliative Care Research]] ==


'''Source of Information:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds Système National des Données de Santé (SNDS)]
__NOTOC__
 
<span style="display:none">hasCancerCenter::Léon Bérard Center</span>
'''Data level:''' Patient level.
<span style="display:none">hasCancerCenter::Institut Curie</span>
 
<span style="display:none">hasCancerCenter::Institut Paoli-Calmettes</span>
'''Date Range:''' 2010 to 2021
<span style="display:none">hasCancerCenter::University Cancer Institute Toulouse-Oncopole</span>
 
<span style="display:none">hasCancerCenter::Centre François Baclesse</span>
'''Information/Contact for data request:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-data-depenses-sante-soins-ville-cpam The data is openly available.]
<span style="display:none">hasCancerCenter::APHP-CARPEM Institute</span>
 
<span style="display:none">hasCancerCenter::APHP - Sorbonne Université - Institut Universitaire de Cancérologie(IUC)</span>
=== Data by CPAM on health insurance expenditure relating to private health establishments ===
<span style="display:none">hasCancerCenter::Institut de Cancérologie de l'Ouest (ICO) - Integrated Center for Oncology</span>
 
<span style="display:none">hasCancerCenter::Eugène Marquis Cancer Centre</span>
'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
<span style="display:none">hasCancerCenter::Gustave Roussy</span>
 
<span style="display:none">hasCancerCenter::Cancer Institute Strasbourg Europe</span>
'''Type of information:''' Health insurance fund (CPAM), department and region of residence of the beneficiary, type of expense item, type of service, type of establishment, establishment category, benefit discipline, date of treatment, repayment rate. The expenditure indicators are: the reimbursement base of the Health Insurance, the amount refunded.
<span style="display:none">hasCancerCenter::Comprehensive Cancer Center Jean Perrin</span>
 
<span style="display:none">hasCancerCenter::Institut du Cancer de Montpellier</span>
'''Source of Information:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds Système National des Données de Santé (SNDS)]
<span style="display:none">hasCancerCenter::Institut Godinot</span>
 
<span style="display:none">hasCancerCenter::Georges-François Leclerc Cancer Center</span>
'''Data level:''' Patient level.
<span style="display:none">hasCancerCenter::Cancer Institute AP-HP. Nord - Université de Paris</span>
 
<span style="display:none">hasCancerCenter::Centre Henri Becquerel</span>
'''Date Range:''' 2010 to 2022
<span style="display:none">hasCancerCenter::Institut Sainte Catherine</span>
 
<span style="display:none">hasHealthcareSystem::Healthcare_System_(France)|Healthcare System</span>
'''Information/Contact for data request:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-data-depenses-sante-etablissements-prives-cpam The data is openly available.]
<span style="display:none">hasDatabase::SNIIRAM_(France)|SNIIRAM</span>
 
<span style="display:none">hasDatabase::Echantillon_généraliste_de_bénéficiaires_(EGB)_(France)|Echantillon généraliste de bénéficiaires (EGB)</span>
=== Open Medic: complete database on drug expenditure ===
<span style="display:none">hasDatabase::PMSI_(France)|PMSI</span>
 
<span style="display:none">hasDatabase::Open_Damir:_Complete_Database_on_Health_Insurance_Expenditure_(France)|Open Damir: Complete Database on Health Insurance Expenditure</span>
'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
<span style="display:none">hasDatabase::National_data_on_health_insurance_expenditure_for_community_care_(France)|National data on health insurance expenditure for community care</span>
 
<span style="display:none">hasDatabase::National_health_insurance_expenditure_data_for_private_health_facilities_(France)|National health insurance expenditure data for private health facilities</span>
'''Type of information:''' Main Anatomical Group, Therapeutic Subgroup, Pharmacological Subgroup, Chemical Subgroup, Chemical Subgroup, Pharmaceutical Specialty Identification Code, Top Generic, Generic Group, Age at the time of care, Sex, Region of Residence of the Beneficiary, Prescriber, Amount reimbursed, Refund Basis, Number of boxes delivered, Number of consumers (available only in NB_ type bases).
<span style="display:none">hasDatabase::Data_by_CPAM_on_health_insurance_expenditure_relating_to_private_health_establishments_(France)|Data by CPAM on health insurance expenditure relating to private health establishments</span>
 
<span style="display:none">hasDatabase::Open_Medic:_complete_database_on_drug_expenditure_(France)|Open Medic: complete database on drug expenditure</span>
'''Source of Information:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds Système National des Données de Santé (SNDS)]
<span style="display:none">hasDatabase::Open_Medic:_additional_databases_on_drug_expenditure_(France)|Open Medic: additional databases on drug expenditure</span>
 
<span style="display:none">hasDatabase::Open_PHMEV:_complete_database_on_hospital_prescriptions_for_drugs_delivered_in_the_community_(France)|Open PHMEV: complete database on hospital prescriptions for drugs delivered in the community</span>
'''Data level:''' Patient level.
<span style="display:none">hasDatabase::Open_PHMEV:_regional_database_on_hospital_prescriptions_for_drugs_delivered_in_towns_(France)|Open PHMEV: regional database on hospital prescriptions for drugs delivered in towns</span>
 
<span style="display:none">hasDatabase::Death_registry_(CepiDC)_(France)|Death registry (CepiDC)</span>
'''Date Range:''' 2014 to 2021
<span style="display:none">hasDatabase::Compilation:_Epidemiology_Portal_of_France|Compilation: Epidemiology Portal of France</span>
 
<span style="display:none">hasClinicalGuidelines::Institut_National_du_Cancer_Guidelines_(France)|Institut National du Cancer Guidelines</span>
'''Information/Contact for data request:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-medic-base-complete-depenses-medicaments The data is openly available.]
<span style="display:none">hasClinicalGuidelines::The_French_Society_of_Radiology_Guidelines_(France)|The French Society of Radiology Guidelines</span>
 
<span style="display:none">hasClinicalGuidelines::Compilation:_HAS_Guidelines_(France)|Compilation: HAS Guidelines</span>
=== Open Medic: additional databases on drug expenditure ===
<span style="display:none">hasPolicyData::CNAM_Studies_and_Data_(France)|CNAM Studies and Data</span>
 
<span style="display:none">hasReport::Report:_Cancer_Panorama_in_France_(France)|Report: Cancer Panorama in France</span>
'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(France)|Report: EU Country Cancer Profile 2023</span>
 
<span style="display:none">hasReport::Report:_Ten-year_strategy_to_combat_cancer_2021-2030_(France)|Report: Ten-year strategy to combat cancer 2021-2030</span>
'''Type of information:''' Main Anatomical Group, Therapeutic Subgroup, Pharmacological Subgroup, Chemical Subgroup, Chemical Subgroup, Pharmaceutical Specialty Identification Code, Top Generic, Generic Group, Age at the time of care, Sex, Region of Residence of the Beneficiary, Prescriber, Amount reimbursed, Refund Basis, Number of boxes delivered, Number of consumers (available only in NB_ type bases).
<span style="display:none">hasPatientAssociation::Patient_Association:_The_Léon_Bérard_Center_Volunteers_Association_(France)|Patient Association: The Léon Bérard Center Volunteers Association</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_ELLyE_-_Ensemble_Leucémies_Lymphomas_Espoir_(France)|Patient Association: ELLyE - Ensemble Leucémies Lymphomas Espoir</span>
'''Source of Information:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds Système National des Données de Santé (SNDS)]
<span style="display:none">hasPatientAssociation::Patient_Association:_Belle_et_Bien_(France)|Patient Association: Belle et Bien</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_Vivre_comme_avant_(France)|Patient Association: Vivre comme avant</span>
'''Data level:''' Patient level.
<span style="display:none">hasPatientAssociation::Patient_Association:_The_IAS_du_Lyonnais_(France)|Patient Association: The IAS du Lyonnais</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_Les_Mutilés_de_la_voix_(France)|Patient Association: Les Mutilés de la voix</span>
'''Date Range:''' 2014 to 2021
<span style="display:none">hasPatientAssociation::Patient_Association:_Lymphedema_Rhône-Alpes_(France)|Patient Association: Lymphedema Rhône-Alpes</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_HNPCC_Lynch_(France)|Patient Association: HNPCC Lynch</span>
'''Information/Contact for data request:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-medic-depenses-beneficiaires-medicaments The data is openly available.]
<span style="display:none">hasPatientAssociation::Patient_Association:_Le_Comité_du_Rhône_de_la_Ligue_nationale_contre_le_cancer_et_les_comités_départementaux_(France)|Patient Association: Le Comité du Rhône de la Ligue nationale contre le cancer et les comités départementaux</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_Mon_Réseau_Cancer_(France)|Patient Association: Mon Réseau Cancer</span>
=== Open PHMEV: complete database on hospital prescriptions for drugs delivered in the community ===
<span style="display:none">hasPatientAssociation::Patient_Association:_Europa_Donna_Lyon_(France)|Patient Association: Europa Donna Lyon</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_JAMALV_(France)|Patient Association: JAMALV</span>
'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
<span style="display:none">hasPatientAssociation::Patient_Association:_On_est_là_(France)|Patient Association: On est là</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_CERHOM_(France)|Patient Association: CERHOM</span>
'''Type of information:''' Main Anatomical Group, Label ATC1, Therapeutic Subgroup, ATC2 label, Pharmacological Subgroup, ATC4 label, Chemical Subgroup, ATC3 label, Chemical Subgroup, ATC3 label, Label CIP13, Top Generic/Biosimilar/Princeps/Reference, Generic Group, Age range, Sex, Establishment Category, Region of establishment of the AP-HP and the Red Cross; Region of establishment of the managing establishment otherwise, Geographic Finess number for the AP-HP and the Red Cross; No legal Finess otherwise, Top establishment according to availability Age group: 0 no; 1 yes, Top establishment according to availability Gender: 0 no; 1 yes, Number of boxes, Amount reimbursed, Refundable Amount
<span style="display:none">hasPatientAssociation::Patient_Association:_HOPE_(France)|Patient Association: HOPE</span>
 
<span style="display:none">hasPatientAssociation::Patient_Association:_Lyonnes_de_Tatooine_(France)|Patient Association: Lyonnes de Tatooine</span>
'''Source of Information:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds Système National des Données de Santé (SNDS)]
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(France)|Compilation: ESMO Patient Guides</span>
 
<span style="display:none">hasPatientGuides::Patient_Guides_(France)|Patient Guides</span>
'''Data level:''' Patient level.
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(France)|Quality of Life and Palliative Care Research</span>
 
<span style="display:none">hasDatabase::Database: SNIIRAM_(France)|Database: SNIIRAM</span>
'''Date Range:''' 2014 to 2021
<span style="display:none">hasDatabase::Echantillon_généraliste_de_bénéficiaires_(EGB)_(France)|Database: Echantillon généraliste de bénéficiaires (EGB)</span>
 
<span style="display:none">hasDatabase::PMSI_(France)|Database: PMSI</span>
'''Information/Contact for data request:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-phmev-base-complete The data is openly available.]
<span style="display:none">hasDatabase::Open_Damir:_Complete_Database_on_Health_Insurance_Expenditure_(France)|Database: Complete Database on Health Insurance Expenditure</span>
 
<span style="display:none">hasDatabase::National_data_on_health_insurance_expenditure_for_community_care_(France)|Database: National data on health insurance expenditure for community care</span>
=== Open PHMEV: regional database on hospital prescriptions for drugs delivered in towns ===
<span style="display:none">hasDatabase::National_health_insurance_expenditure_data_for_private_health_facilities_(France)|Database: National health insurance expenditure data for private health facilities</span>
 
<span style="display:none">hasDatabase::Data_by_CPAM_on_health_insurance_expenditure_relating_to_private_health_establishments_(France)|Database: Data by CPAM on health insurance expenditure relating to private health establishments</span>
'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
<span style="display:none">hasDatabase::Open_Medic:_complete_database_on_drug_expenditure_(France)|Database: Complete database on drug expenditure</span>
 
<span style="display:none">hasDatabase::Open_Medic:_additional_databases_on_drug_expenditure_(France)|Database: Additional databases on drug expenditure</span>
'''Type of information:''' Unknown.
<span style="display:none">hasDatabase::Open_PHMEV:_complete_database_on_hospital_prescriptions_for_drugs_delivered_in_the_community_(France)|Database: Complete database on hospital prescriptions for drugs delivered in the community</span>
 
<span style="display:none">hasDatabase::Open_PHMEV:_regional_database_on_hospital_prescriptions_for_drugs_delivered_in_towns_(France)|Database: Regional database on hospital prescriptions for drugs delivered in towns</span>
'''Source of Information:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds Système National des Données de Santé (SNDS)]
<span style="display:none">hasDatabase::Death_registry_(CepiDC)_(France)|Database: Death registry (CepiDC)</span>
 
<span style="display:none">hasClinicalGuidelines::Institut_National_du_Cancer_Guidelines_(France)|Guideline: Institut National du Cancer Guidelines</span>
'''Data level:'''
<span style="display:none">hasClinicalGuidelines::The_French_Society_of_Radiology_Guidelines_(France)|Guideline: The French Society of Radiology Guidelines</span>
 
<span style="display:none">hasPolicyData::CNAM_Studies_and_Data_(France)|Report: CNAM Studies and Data</span>
'''Date Range:''' 2014 to 2021
<span style="display:none">hasPatientGuides::Patient_Guides_(France)|Patient Guide: Compilation</span>
 
<span style="display:none">hasDatabase::Database: Epidemiology Portal of France Compilation (France)|Database: Epidemiology Portal of France Compilation</span>
'''Information/Contact for data request:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-phmev-base-regionale The data is openly available.]
<span style="display:none">hasClinicalGuidelines::Guidelines: HAS Guidelines Compilation (France)|Guidelines: HAS Guidelines Compilation</span>
 
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (France)|Patient Guides: ESMO Patient Guides Compilation</span>
=== Open Statins: comprehensive database on statin spending ===
<span style="display:none">hasPatientGuides::Patient Guides: Patient Guides Compilation (France)|Patient Guides: Patient Guides Compilation</span>
 
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
 
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
'''Type of information:''' Main Anatomical Group, Therapeutic Subgroup, Pharmacological Subgroup, Chemical Subgroup, Chemical Subgroup, Pharmaceutical Specialty Identification Code, Top Generic, Generic Group, Age at the time of care, Sex, Region of Residence of the Beneficiary, Prescriber, Amount reimbursed, Refund Basis, Number of boxes delivered, Number of consumers (available only in NB_ type bases)
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
 
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
'''Source of Information:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds Système National des Données de Santé (SNDS)]
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
 
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
'''Data level:''' Patient level.
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
 
<span style="display:none">hasCancerType::C50: Breast cancer</span>
'''Date Range:''' 2014 to 2021
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
 
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
'''Information/Contact for data request:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-statines-base-complete-depenses-statines The data is openly available.]
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
 
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
=== Open Statins: additional bases on statin expenditure ===
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
 
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
'''Sponsor, manager or home institution:''' [https://assurance-maladie.ameli.fr/ Caisse Nationale de l'Assurance Maladie (CNAM)]
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
 
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
'''Type of information:''' Main Anatomical Group, Therapeutic Subgroup, Pharmacological Subgroup, Chemical Subgroup, Chemical Subgroup, Pharmaceutical Specialty Identification Code, Top Generic, Generic Group, Age at the time of care, Sex, Region of Residence of the Beneficiary, Prescriber, Amount reimbursed, Refund Basis, Number of boxes delivered, Number of consumers (available only in NB_ type bases)
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
 
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
'''Source of Information:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/presentation-systeme-national-donnees-sante-snds Système National des Données de Santé (SNDS)]
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
 
<span style="display:none">hasCancerType::unknown</span>
'''Data level:''' Patient level.
 
'''Date Range:''' 2014 to 2021
 
'''Information/Contact for data request:''' [https://assurance-maladie.ameli.fr/etudes-et-donnees/open-statines-depenses-beneficiaires-statines The data is openly available.]
 
== [[Registries]] ==
=== Death registry (CepiDC) ===
 
'''Primary purpose:''' A complete registry of medical causes of death in France.
 
'''Sponsor, manager, or home institution:''' [https://www.cepidc.inserm.fr/qui-sommes-nous/le-cepidc Center for Epidemiology on the Medical Causes of Death (CépiDC)]
 
'''Data level:''' Patient level. Open data available at Regional and National level.
 
'''Collected information:''' Complete database: Patient name, address, date of birth, sex, date and time of death, medical component that includes the sequence of morbid events that led to death from the immediate cause to the underlying cause of death as well as the comorbidities, factors or physiological conditions that contributed to the death but not directly involved in the sequence of events described before. Open database: Sex, age, and cause of death.
 
'''Number of records:''' Unknown.
 
'''Data source:''' Death certificates issued in the country.
 
'''Cancer areas of interest:''' Malignant tumor of the lip, malignant tumor oral cavity and pharynx; malignant tumor of the esophagus; of the stomach; malignant colon tumor; malignant tumor of the rectum and anus; malignant neoplasm of the liver and intrahepatic bile ducts; malignant tumor of the pancreas; malignant tumor of the larynx, trachea, bronchi and lung; malignant melanoma of the skin; malignant breast tumor; malignant tumor of the cervix; malignant tumor of other parts of the uterus; malignant tumor of the ovary; malignant tumor of the prostate; kidney malignancy; malignant bladder tumor; malignant neoplasm of lymphatic and hematopoietic tissues; other malignant tumors,; other tumors.
 
'''Data availability:''' [http://cepidc-data.inserm.fr/cgi-bin/broker.exe Partial open data]
 
'''Link/contact:''' [https://www.cepidc.inserm.fr/le-snds/les-conditions-dacces-aux-donnees-du-snds Information to access complete data.]
 
== [[Clinical Trials Databases]] ==
 
=== [https://epidemiologie-france.aviesan.fr/epidemiologie-france/pages/le-portail-epidemiologie-france Epidemiology Portal of France] ===
 
'''Primary purpose:''' Catalog of individual french health databases to facilitate the development of research and public health.
 
'''Sponsor, manager or home institution:''' [https://www.inserm.fr/ Inserm]
<!--
== [[Electronic Health Records]] ==
 
== [[Clinical Practices Guidelines]] ==
 
== [[Latest Policymaking Initiatives]] ==
 
== [[Cancer-related Patient Associations]] ==
-->

Latest revision as of 18:32, 27 January 2026

forresearchers forpatients forproviders forpolicymakers francecountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Registries[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]

hasCancerCenter::Léon Bérard Center hasCancerCenter::Institut Curie hasCancerCenter::Institut Paoli-Calmettes hasCancerCenter::University Cancer Institute Toulouse-Oncopole hasCancerCenter::Centre François Baclesse hasCancerCenter::APHP-CARPEM Institute hasCancerCenter::APHP - Sorbonne Université - Institut Universitaire de Cancérologie(IUC) hasCancerCenter::Institut de Cancérologie de l'Ouest (ICO) - Integrated Center for Oncology hasCancerCenter::Eugène Marquis Cancer Centre hasCancerCenter::Gustave Roussy hasCancerCenter::Cancer Institute Strasbourg Europe hasCancerCenter::Comprehensive Cancer Center Jean Perrin hasCancerCenter::Institut du Cancer de Montpellier hasCancerCenter::Institut Godinot hasCancerCenter::Georges-François Leclerc Cancer Center hasCancerCenter::Cancer Institute AP-HP. Nord - Université de Paris hasCancerCenter::Centre Henri Becquerel hasCancerCenter::Institut Sainte Catherine hasHealthcareSystem::Healthcare_System_(France)|Healthcare System hasDatabase::SNIIRAM_(France)|SNIIRAM hasDatabase::Echantillon_généraliste_de_bénéficiaires_(EGB)_(France)|Echantillon généraliste de bénéficiaires (EGB) hasDatabase::PMSI_(France)|PMSI hasDatabase::Open_Damir:_Complete_Database_on_Health_Insurance_Expenditure_(France)|Open Damir: Complete Database on Health Insurance Expenditure hasDatabase::National_data_on_health_insurance_expenditure_for_community_care_(France)|National data on health insurance expenditure for community care hasDatabase::National_health_insurance_expenditure_data_for_private_health_facilities_(France)|National health insurance expenditure data for private health facilities hasDatabase::Data_by_CPAM_on_health_insurance_expenditure_relating_to_private_health_establishments_(France)|Data by CPAM on health insurance expenditure relating to private health establishments hasDatabase::Open_Medic:_complete_database_on_drug_expenditure_(France)|Open Medic: complete database on drug expenditure hasDatabase::Open_Medic:_additional_databases_on_drug_expenditure_(France)|Open Medic: additional databases on drug expenditure hasDatabase::Open_PHMEV:_complete_database_on_hospital_prescriptions_for_drugs_delivered_in_the_community_(France)|Open PHMEV: complete database on hospital prescriptions for drugs delivered in the community hasDatabase::Open_PHMEV:_regional_database_on_hospital_prescriptions_for_drugs_delivered_in_towns_(France)|Open PHMEV: regional database on hospital prescriptions for drugs delivered in towns hasDatabase::Death_registry_(CepiDC)_(France)|Death registry (CepiDC) hasDatabase::Compilation:_Epidemiology_Portal_of_France|Compilation: Epidemiology Portal of France hasClinicalGuidelines::Institut_National_du_Cancer_Guidelines_(France)|Institut National du Cancer Guidelines hasClinicalGuidelines::The_French_Society_of_Radiology_Guidelines_(France)|The French Society of Radiology Guidelines hasClinicalGuidelines::Compilation:_HAS_Guidelines_(France)|Compilation: HAS Guidelines hasPolicyData::CNAM_Studies_and_Data_(France)|CNAM Studies and Data hasReport::Report:_Cancer_Panorama_in_France_(France)|Report: Cancer Panorama in France hasReport::Report:_EU_Country_Cancer_Profile_2023_(France)|Report: EU Country Cancer Profile 2023 hasReport::Report:_Ten-year_strategy_to_combat_cancer_2021-2030_(France)|Report: Ten-year strategy to combat cancer 2021-2030 hasPatientAssociation::Patient_Association:_The_Léon_Bérard_Center_Volunteers_Association_(France)|Patient Association: The Léon Bérard Center Volunteers Association hasPatientAssociation::Patient_Association:_ELLyE_-_Ensemble_Leucémies_Lymphomas_Espoir_(France)|Patient Association: ELLyE - Ensemble Leucémies Lymphomas Espoir hasPatientAssociation::Patient_Association:_Belle_et_Bien_(France)|Patient Association: Belle et Bien hasPatientAssociation::Patient_Association:_Vivre_comme_avant_(France)|Patient Association: Vivre comme avant hasPatientAssociation::Patient_Association:_The_IAS_du_Lyonnais_(France)|Patient Association: The IAS du Lyonnais hasPatientAssociation::Patient_Association:_Les_Mutilés_de_la_voix_(France)|Patient Association: Les Mutilés de la voix hasPatientAssociation::Patient_Association:_Lymphedema_Rhône-Alpes_(France)|Patient Association: Lymphedema Rhône-Alpes hasPatientAssociation::Patient_Association:_HNPCC_Lynch_(France)|Patient Association: HNPCC Lynch hasPatientAssociation::Patient_Association:_Le_Comité_du_Rhône_de_la_Ligue_nationale_contre_le_cancer_et_les_comités_départementaux_(France)|Patient Association: Le Comité du Rhône de la Ligue nationale contre le cancer et les comités départementaux hasPatientAssociation::Patient_Association:_Mon_Réseau_Cancer_(France)|Patient Association: Mon Réseau Cancer hasPatientAssociation::Patient_Association:_Europa_Donna_Lyon_(France)|Patient Association: Europa Donna Lyon hasPatientAssociation::Patient_Association:_JAMALV_(France)|Patient Association: JAMALV hasPatientAssociation::Patient_Association:_On_est_là_(France)|Patient Association: On est là hasPatientAssociation::Patient_Association:_CERHOM_(France)|Patient Association: CERHOM hasPatientAssociation::Patient_Association:_HOPE_(France)|Patient Association: HOPE hasPatientAssociation::Patient_Association:_Lyonnes_de_Tatooine_(France)|Patient Association: Lyonnes de Tatooine hasPatientGuides::Compilation:_ESMO_Patient_Guides_(France)|Compilation: ESMO Patient Guides hasPatientGuides::Patient_Guides_(France)|Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(France)|Quality of Life and Palliative Care Research hasDatabase::Database: SNIIRAM_(France)|Database: SNIIRAM hasDatabase::Echantillon_généraliste_de_bénéficiaires_(EGB)_(France)|Database: Echantillon généraliste de bénéficiaires (EGB) hasDatabase::PMSI_(France)|Database: PMSI hasDatabase::Open_Damir:_Complete_Database_on_Health_Insurance_Expenditure_(France)|Database: Complete Database on Health Insurance Expenditure hasDatabase::National_data_on_health_insurance_expenditure_for_community_care_(France)|Database: National data on health insurance expenditure for community care hasDatabase::National_health_insurance_expenditure_data_for_private_health_facilities_(France)|Database: National health insurance expenditure data for private health facilities hasDatabase::Data_by_CPAM_on_health_insurance_expenditure_relating_to_private_health_establishments_(France)|Database: Data by CPAM on health insurance expenditure relating to private health establishments hasDatabase::Open_Medic:_complete_database_on_drug_expenditure_(France)|Database: Complete database on drug expenditure hasDatabase::Open_Medic:_additional_databases_on_drug_expenditure_(France)|Database: Additional databases on drug expenditure hasDatabase::Open_PHMEV:_complete_database_on_hospital_prescriptions_for_drugs_delivered_in_the_community_(France)|Database: Complete database on hospital prescriptions for drugs delivered in the community hasDatabase::Open_PHMEV:_regional_database_on_hospital_prescriptions_for_drugs_delivered_in_towns_(France)|Database: Regional database on hospital prescriptions for drugs delivered in towns hasDatabase::Death_registry_(CepiDC)_(France)|Database: Death registry (CepiDC) hasClinicalGuidelines::Institut_National_du_Cancer_Guidelines_(France)|Guideline: Institut National du Cancer Guidelines hasClinicalGuidelines::The_French_Society_of_Radiology_Guidelines_(France)|Guideline: The French Society of Radiology Guidelines hasPolicyData::CNAM_Studies_and_Data_(France)|Report: CNAM Studies and Data hasPatientGuides::Patient_Guides_(France)|Patient Guide: Compilation hasDatabase::Database: Epidemiology Portal of France Compilation (France)|Database: Epidemiology Portal of France Compilation hasClinicalGuidelines::Guidelines: HAS Guidelines Compilation (France)|Guidelines: HAS Guidelines Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (France)|Patient Guides: ESMO Patient Guides Compilation hasPatientGuides::Patient Guides: Patient Guides Compilation (France)|Patient Guides: Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown