Sweden: Difference between revisions

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<span style="display:none">forresearchers</span>
<span style="display:none">forpatients</span>
<span style="display:none">forproviders</span>
<span style="display:none">forpolicymakers</span>
<span style="display:none">swedencountry</span>
[https://wiki.beaconcancer.org/index.php?title=Cancer_Centers Go back to Cancer Centers list.]
== Cancer Centers ==
== Cancer Centers ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


== Healthcare System ==
[[hasCancerCenter::Karolinska Institute and University Hospital]]


Sweden operates a universal healthcare system, providing coverage for all residents, irrespective of nationality, and emergency care for EU/EEA patients and countries with bilateral agreements. The system is mainly funded through local taxes and national government contributions via general grants and specific programmes.
[[hasCancerCenter::Skåne University Hospital Cancer Centre]]


The healthcare responsibility is decentralized between the national government, 21 regions, and 290 municipalities. The Ministry of Health and Social Affairs sets the overall health policies, while healthcare delivery is managed by the regions and municipalities. Regions oversee primary, specialist, and psychiatric care, and public and private hospitals. Municipalities handle elder care, care for the physically and mentally disabled, rehabilitation, school healthcare, home care, and social care.
[[hasCancerCenter::Sahlgrenska University Hospital]]


Residents receive a wide range of benefits including preventive care, check-ups, immunization, medication, hospitalization, maternity, mental health services, and children's dental care. About 15% of health spending comes from out-of-pocket payments, mainly for pharmaceuticals, dental care, and other outpatient care.
[[hasCancerCenter::Uppsala University Hospital]]


To access these benefits, one must be a resident of Sweden. The system also offers the choice of primary care provider, either public or private, accredited by the local county council. There's a patient fee for certain services but it's capped annually, and certain groups receive completely free healthcare.
[[hasCancerCenter::University Hospital of Umeå - Norrland University Hospital]]


Sweden's healthcare data management uses electronic health record systems, with data interoperable across different providers. National health data registries are used for monitoring care quality, resource planning, and research while ensuring patient privacy is protected by law.
</div>
 
== [[hasHealthcareSystem::Healthcare_System_(Sweden)|Healthcare System]] ==


== Administrative or Claims Data ==
== Administrative or Claims Data ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


=== Database: Socialstyrelsen National Patient Register ===
=== [[hasDatabase::Database:_Socialstyrelsen_National_Patient_Register_(Sweden)|Database: Socialstyrelsen National Patient Register]] ===
 
'''Sponsor, manager or home institution:''' Socialstyrelsen.
 
'''Primary purpose:''' The patient register serves multiple purposes. One of its main functions is to track the health development of the population over an extended period. In doing so, it helps to improve the possibilities of preventing and treating diseases. Additionally, the patient register contributes to the overall development of healthcare by providing valuable data and insights. It also enables healthcare providers to monitor the quality of their operations and identify areas where improvements may be needed.
 
'''Type of information:''' [[Type of Information: Socialstyrelsen National Patient Register]]. Full list of variables [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/ovrigt/register-variabelforteckning-patientregistret.xlsx].
 
'''Source of Information:''' Healthcare providers must submit patient information to the patient register monthly, including hospital code and medical area. Data is submitted via a reporting portal or register service.
 
'''Data level:''' Patient level.
 
'''Number of Records:''' Unknown.
 
'''Date Range:''' 1964 onwards.
 
'''Cancer Areas of Interest:''' Unknown.


'''Open data access:''' Not publicly available. Instructions to request data for restricted content [https://bestalladata.socialstyrelsen.se/].
=== [[hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Database: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case]] ===


'''Information/Contact for data request:''' Contact information [https://www.socialstyrelsen.se/statistik-och-data/register/patientregistret/].
</div>


== Registries ==
== Registries ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


=== Database: Socialstyrelsen Cancer Registry ===
=== [[hasDatabase::Database:_Socialstyrelsen_Cancer_Registry_(Sweden)|Database: Socialstyrelsen Cancer Registry]] ===


'''Sponsor, manager or home institution:''' Socialstyrelsen.
=== [[hasDatabase::Database:_Socialstyrelsen_Cause_of_Death_Registry_(Sweden)|Database: Socialstyrelsen Cause of Death Registry]] ===


'''Primary purpose:'''  To map the occurrence and change of cancer diseases over time.
=== [[hasDatabase::Database:_Medicines_Registry_(Sweden)|Database: Medicines Registry]] ===


'''Type of information:''' Age of patient at diagnosis; Year of diagnosis; Indicator of malignant or benign tumor based on morphology; Basis for cause of death statement, either clinical or forensic autopsy; Date diagnosis was established; Type of examination that formed basis of diagnosis; Date patient died, information from cause of death register; Tumor spread at time of diagnosis for gynecological tumors; Patient's date of birth; Patient's place of registration at time of diagnosis, forwarded to January 1 of last year; Error code for projecting patient's place of registration; Location of tumor according to ICD-7 codes for leukemias and lymphomas according to ICD-8 during entire period (1958-); Tumor location according to ICD-9; Tumor location according to ICD-O/2 (with some elements of ICD-10); Tumor location according to ICD-O/3; Information taken from A-form that was basis for hospital and diagnosis coding (may be blank); Clinic where patient's diagnosis was established; Patient's gender; Patient's place of registration at time of diagnosis; Tumor spread at time of diagnosis, distant metastases; Tumor spread at time of diagnosis, lymph nodes; Tumor identified at autopsy; Histopathological diagnosis of tumor according to C24.1; Diagnostic pathology and cytology department; Patient's social security number; Variable showing quality of personal identification number (PNR), created using standard macro checking; Number of histopathological preparation including year; Healthcare region; Side indication for paired organs; Healthcare facility where diagnosis was established; Morphological diagnosis of tumor according to ICD-O/3; Morphological diagnosis of tumor according to ICD-O/2; Tumor spread at time of diagnosis, tumor size; Week when move was announced until 1997. Statistics Sweden has translated year and week into the first day of the respective week. From 1998, the date refers to the day person declared move to Tax Authority;
=== [[hasDatabase::Database:_National_Quality_Register_for_Cervical_Cancer_Prevention_(Sweden)|Database: National Quality Register for Cervical Cancer Prevention]] ===
Research that was the basis for TNM, indicated as pathological if any of T, N, or M is based on morphological examination; clinical if only clinical examination was the basis and morphological examination is missing; Tumor number in chronological order for all reportable tumors if the patient was diagnosed with multiple tumors; Tumor numbers in chronological order for malignant tumors only if the patient was diagnosed with multiple tumors; Illness/injury that started a chain of events leading to death. Full list of variables [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/statistik/register-variabelforteckning-cancerregistret.xls].


'''Available type of information''': Number of new cases; Cases per 100,000; Incidence; Age; Sex; Cancer area, and year.
=== [[hasDatabase::Database: Swedish National Data Service (SND) Compilation (Sweden)|Database: Swedish National Data Service (SND) Compilation]] ===


'''Source of Information:''' The data is sent from hospitals to six regional cancer centers for coding and registration. Once the material has been verified, it is then transmitted to the National Board of Health and Welfare to become part of the cancer registry. The registry is updated annually.
== Databases for Clinical Trials, Surveys and Biobanks ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


'''Data level:''' Patient level.
=== [[hasBiobank::Biobank:_Biobank_for_individuals_with_prostate_cancer_-_Biobank_for_prostate_cancer_controls_(Sweden)|Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls]] ===


'''Available data level:''' Regional and national level.
=== [[hasDatabase::Survey:_Malmö_Diet_Cancer_(Sweden)|Survey: Malmö Diet Cancer]] ===


'''Number of Records:''' 60,000 cases registered every year [https://www.healthinformationportal.eu/health-information-sources/swedish-national-cancer-register].
=== [[hasDatabase::Survey:_Family_Studies_of_Childhood_Cancer_-_Genealogy_Database_(Sweden)|Survey: Family Studies of Childhood Cancer - Genealogy Database]] ===


'''Date Range:''' 1970 onwards.
=== [[hasDatabase::Survey:_Cohort_of_Swedish_men_(COSM)_-_2019_health_(Sweden)|Survey: Cohort of Swedish men (COSM) - 2019 health]] ===


'''Cancer Areas of Interest:''' All.
=== [[hasDatabase::Survey:_Swedish_mammography_cohort_(SMC)_2019_lifestyle_(Sweden)|Survey: Swedish mammography cohort (SMC) 2019 lifestyle]] ===


'''Open data access:''' Partially publicly available [https://sdb.socialstyrelsen.se/if_can/val.aspx]. Instructions to request data for restricted content [https://bestalladata.socialstyrelsen.se/].
=== [[hasDatabase::Biobank/Database:_Breast_cancer_-_a_metastasis_study_(Sweden)|Biobank/Database: Breast cancer - a metastasis study]] ===
</div>


'''Information/Contact for data request:''' Contact information [https://www.socialstyrelsen.se/statistik-och-data/register/cancerregistret/].
== Clinical Practices Guidelines ==
<div class="mw-collapsible" data-expandtext="Show" data-collapsetext="Hide">


=== Database: Socialstyrelsen Cause of Death Registry ===
=== [[hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|Guidelines: The National Clinical Cancer Care Guidelines]] ===


'''Sponsor, manager or home institution:''' Socialstyrelsen.
=== [[hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Guidelines: National Board of Health and Welfare Guidelines]] ===


'''Primary purpose:''' To describe the causes of death and track mortality trends in Sweden.
</div>


'''Type of information:''' Age at death in year at death itself; Alcohol-related diagnosis mentioned on the certificate; marking for all entries that have an alcohol-related diagnosis either as an underlying or contributing cause of death; Registration of any marking on accident during gainful employment present; The year of death; Age at death in days if the person in question has died before she/he has turned 1 month old; Age at death at the actual death in five-year age groups; Age at death in months if the person in question has died after she/he has turned 1 month but before she/he has turned 1 year; Registration of any marking on the form regarding the age of the deceased; About clinical or forensic autopsy; About examination before death in hospital; About external autopsy; About "other source" or unknown source; Diabetes as either underlying or contributing cause of death; The deceased's date of death; Place of death; Death abroad; Previous marital status; The country in which the deceased was born; The deceased's date of birth; The deceased's county of birth; The country in which the deceased was born; ICD version; Main damage when the underlying cause of death is an external cause, a code from Chapter 19 (ICD-10) is included in this variable; for ICD 7, ICD 8 and ICD 9, this information is found in chapter 17 (KAP17) instead; Sex; County, municipality where the deceased was registered at the time of death; District where the deceased was registered at the time of death; County, municipality; parish where the deceased was registered at the time of death; Multiple causes of death according to the ICD. In combination with ULORSAK and KAP19/KAP17, these include all multiple causes of death; "Drug-related diagnosis mentioned on the certificate. Marking for all entries that have a drug-related diagnosis either as an underlying or contributing cause of death." Please note that this is an old definition that is no longer used by the National Board of Health and Welfare." Nationality; Date of possible surgery; If surgery was undertaken within 4 weeks before death; The deceased's social security number; Which line and which place on the certificate did the diagnosis appear; Indicates where the deceased was registered; Base list; Underlying cause of death according to ICD; Nordic list; About examination before death outside the hospital; Variable that shows the quality of a personal identification number (PNR) according to certain predetermined rules. The variable is created using the standard macro checking; Indicates that the deceased was not registered in Sweden at the time of death; Municipality where the death took place; Nationality/national registration country for deceased persons who were not registered in Sweden at the time of death; The deceased's date of death; Sex; County, the municipality where the deceased was registered at the time of death; District where the deceased was registered at the time of death; The deceased's social security number; Variable that shows the quality of a personal identification number (PNR) according to certain predetermined rules. The variable is created using the standard macro checking. The deceased's date of birth; The deceased's date of birth; Age at death in the year at death itself; The deceased's date of death; The year of death; Underlying cause of death according to ICD; Main damage. When the underlying cause of death is an external cause, a code from Chapter 19 (ICD-10) is included in this variable. For ICD 7, ICD 8, and ICD 9, this information is found in chapter 17 (KAP17) instead; Age at death in the year at death itself; CONE; County, the municipality where the deceased was registered at the time of death; Substances; Indicates that the deceased was not registered in Sweden at the time of death. Full list of variables [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/statistik/register-dodsorsaksregistret-variabelforteckning.xls].
== Latest Policymaking Initiatives ==
 
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'''Available type of information:''' Number of deaths; Deaths rates and deaths by 100,000 people; Diagnosis; Age; Sex and region.
 
'''Source of Information:''' The death certificates are sent by doctors to the Tax Agency or the Police, and then are sent to the Socialstyrelsen.
 
'''Data level:'''Patient level.
 
'''Available data level:''' Regional and national level.
 
'''Number of Records:'''
 
'''Date Range:''' 1969 onwards.
 
'''Cancer Areas of Interest:''' All.
 
'''Open data access:''' Partially publicly available. Data from 1969 to 1996 information [https://www.statistikdatabasen.scb.se/goto/sv/ssd/DodaOrsak] and data from 1997 onwards information [https://sdb.socialstyrelsen.se/if_dor/val.aspx]. Instructions to request data for restricted content [https://bestalladata.socialstyrelsen.se/].
 
'''Information/Contact for data request:''' Contact information [https://www.socialstyrelsen.se/statistik-och-data/register/dodsorsaksregistret/].
 
=== Database: Medicines Registry ===
 
'''Sponsor, manager or home institution:''' Socialstyrelsen.
 
'''Primary purpose:''' The objective of the pharmaceutical registry is to enhance patient safety within the pharmaceutical industry.
 
'''Type of information:''' Social security number: a personal identification number (PNR) according to certain predetermined rules; Quality of social security number: a variable that shows the quality of the PNR; Age at the end of the year: calculated as year of expedition minus year of birth; Sex; Patient's place of registration at the time of dispatch: county, municipality, and parish (only counties and municipalities from 2016); Patient's place of registration at the time of dispatch: county and municipality; Date of shipment: date when the patient bought the item; Date of prescription: date when the prescription was issued; Start date for current high cost period; Patient's accumulated co-payment before dispatch: sum of co-payments that the patient has paid during the ongoing high-cost period (only costs within the pharmaceutical benefit are included in input); Billing period: year and month in which the shipment was invoiced; Order type/sales method: indicates how the product has been prescribed; Transaction type: indicates how the item has been prescribed (coarser categories of non-type); Origin of the prescription: how the prescription arrived at the pharmacy; Type of benefit within the framework of the pharmaceutical benefit: goods defined as "within the benefit" are discounted according to the benefit ladder; Starter pack: indicates whether the patient has received a starter pack or not; Flag indicating whether a change of the prescribed item to a medically equivalent alternative at the pharmacy is allowed or not; Code indicating the type of change that has taken place during dispatch, from the prescribed drug product to a generic drug, alternatively to a parallel imported or parallel distributed drug (only filled in if a change has taken place); Product type; Number of packages that have been picked up: for dose-dispensed medicines, the number of packages can be a decimal number; Prescribed number of packages, if this differs from the dispatched number.
Dosage text: free text containing information on dosage, use, and purpose; Patient's cost (excluding VAT): calculated as total cost minus benefit-cost; Benefit cost/County cost (excluding VAT): amount that the county council pays for goods included in the pharmaceutical benefit; Total cost (excluding VAT): includes both the part that the patient himself pays and the part that the county council pays; VAT rate: commercial goods etc. 25%, food 12%, pharmaceuticals 0%; Additional cost (excluding VAT): amount the patient has to pay if he/she chooses a drug other than the cheapest equivalent alternative; Price per pack, including VAT; Issuer category code/prescriber category code: the pharmacy's code for occupational. Data dictionary can be found [https://www.socialstyrelsen.se/globalassets/sharepoint-dokument/dokument-webb/statistik/register-variabelforteckning-lakemedelsregistret.xlsx here].
 
'''Available type of information:''' Drug groups and ATC codes for all ages, drug groups for children 0-17 children; filtered by annual data, monthly data divided by age, monthly data divided by region, drug groups, ATC codes, regions, sex, measure, year and month.
 
'''Source of Information:''' The pharmaceutical register exclusively obtains data from the E-health authority, which requires all pharmaceutical trades to report their sales data. When a prescribed medication is dispensed, pharmacies must also furnish supplementary information to the E-health authority. The E-health authority, in turn, forwards information regarding prescription-based shipments to the National Board of Health and Welfare.


'''Data level:''' Patient level.
=== [[hasReport::Reports:_Socialstyrelsen_(Sweden)|Reports: Socialstyrelsen]] ===


'''Available data level:''' National and regional level.
=== [[hasReport::Report:_Cancer_Fonden_(Sweden)|Report: Cancer Fonden]] ===


'''Number of Records:''' About 100 million per year.
=== [[hasReport::Reports:_Swedish_Palliative_Registry_(Sweden)|Reports: Swedish Palliative Registry]] ===


'''Date Range:''' 2005 onwards.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2023_(Sweden)|Report: EU Country Cancer Profile 2023]] ===


'''Cancer Areas of Interest:''' Unknown.
=== [[hasReport::Report:_EU_Country_Cancer_Profile_2025_(Sweden)|Report: EU Country Cancer Profile 2025]] ===
 
'''Open data access:''' Partially publicly available [https://sdb.socialstyrelsen.se/if_lak/val.aspx]. Instructions to request data for restricted content [https://bestalladata.socialstyrelsen.se/].
 
'''Information/Contact for data request:''' Contact information [https://www.socialstyrelsen.se/statistik-och-data/register/dodsorsaksregistret/].
<!--
== Databases for Clinical Trials, Surveys and Biobanks ==
 
== Electronic Health Records ==
 
== Clinical Practices Guidelines ==
 
== Latest Policymaking Initiatives ==
-->


== [[Cancer-related Patient Associations and Resources]] ==
</div>


=== Compilation: ESMO Patient Guides ===
== Cancer-related Patient Associations and Resources ==
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'''Sponsor, manager or home institution:''' European Society for Medical Oncology
=== [[hasPatientAssociation::Patient Association: Swedish Breast Cancer Association (Europa Donna Sweden) (Sweden)|Patient Association: Swedish Breast Cancer Association (Europa Donna Sweden)]] ===


'''Primary purpose:''' To translate complex medical language into understandable information for patients.
=== [[hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Sweden)|Patient Guides: ESMO Patient Guides Compilation]] ===


'''Available guides:''' Bone Health in Cancer; Cancer Care During the COVID-19 Pandemic; Cancer Pain Management; Immunotherapy Side Effects;
=== [[hasPatientResource::Self-help_Group:_Swedish_Network_Against_Cancer_(Sweden)|Self-help Group: Swedish Network Against Cancer]] ===
Personalised Cancer Medicine; Survivorship; AML; Biliary Tract Cancer; Bladder Cancer; Bone Sarcoma; Breast Cancer; Cervical Cancer; CML; Colorectal Cancer; Endometrial Cancer; Follicular Lymphoma; Glioma; Head and Neck Cancer; Hepatocellular Carcinoma; Multiple Myeloma; Non-Small-Cell Lung Cancer; Oesophageal Cancer; Ovarian Cancer; Pancreatic Cancer; Prostate Cancer; Soft Tissue Sarcoma; Stomach Cancer; Testicular Cancer.
</div>


'''Type of information:''' Information on each guide varies for each cancer type. Generally, guides provide definitions, explanations of causes, diagnosis, treatment, treatment options, care after treatment, among others.
== [[hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Sweden)|Quality of Life and Palliative Care Research]] ==


'''Access to information:''' List of guides [https://www.esmo.org/for-patients/patient-guides/patient-guides-by-language/cancer-patient-guides-in-english [2]].
__NOTOC__
<span style="display:none">hasCancerCenter::Karolinska Institute and University Hospital</span>
<span style="display:none">hasCancerCenter::Skåne University Hospital Cancer Centre</span>
<span style="display:none">hasCancerCenter::Sahlgrenska University Hospital</span>
<span style="display:none">hasCancerCenter::Uppsala University Hospital</span>
<span style="display:none">hasCancerCenter::University Hospital of Umeå - Norrland University Hospital</span>
<span style="display:none">hasHealthcareSystem::Healthcare_System_(Sweden)|Healthcare System</span>
<span style="display:none">hasDatabase::Database:_Socialstyrelsen_National_Patient_Register_(Sweden)|Database: Socialstyrelsen National Patient Register</span>
<span style="display:none">hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Registry: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case</span>
<span style="display:none">hasDatabase::Database:_Socialstyrelsen_Cancer_Registry_(Sweden)|Database: Socialstyrelsen Cancer Registry</span>
<span style="display:none">hasDatabase::Database:_Socialstyrelsen_Cause_of_Death_Registry_(Sweden)|Database: Socialstyrelsen Cause of Death Registry</span>
<span style="display:none">hasDatabase::Database:_Medicines_Registry_(Sweden)|Database: Medicines Registry</span>
<span style="display:none">hasDatabase::Database:_National_Quality_Register_for_Cervical_Cancer_Prevention_(Sweden)|Database: National Quality Register for Cervical Cancer Prevention</span>
<span style="display:none">hasDatabase::Compilation:_Swedish_National_Data_Service_(SND)_(Sweden)|Compilation: Swedish National Data Service (SND)</span>
<span style="display:none">hasBiobank::Biobank:_Biobank_for_individuals_with_prostate_cancer_-_Biobank_for_prostate_cancer_controls_(Sweden)|Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls</span>
<span style="display:none">hasDatabase::Survey:_Malmö_Diet_Cancer_(Sweden)|Survey: Malmö Diet Cancer</span>
<span style="display:none">hasDatabase::Survey:_Family_Studies_of_Childhood_Cancer_-_Genealogy_Database_(Sweden)|Survey: Family Studies of Childhood Cancer - Genealogy Database</span>
<span style="display:none">hasDatabase::Survey:_Cohort_of_Swedish_men_(COSM)_-_2019_health_(Sweden)|Survey: Cohort of Swedish men (COSM) - 2019 health</span>
<span style="display:none">hasDatabase::Survey:_Swedish_mammography_cohort_(SMC)_2019_lifestyle_(Sweden)|Survey: Swedish mammography cohort (SMC) 2019 lifestyle</span>
<span style="display:none">hasDatabase::Biobank/Database:_Breast_cancer_-_a_metastasis_study_(Sweden)|Biobank/Database: Breast cancer - a metastasis study</span>
<span style="display:none">hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|The National Clinical Cancer Care Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Compilation: National Board of Health and Welfare Guidelines</span>
<span style="display:none">hasReport::Reports:_Socialstyrelsen_(Sweden)|Reports: Socialstyrelsen</span>
<span style="display:none">hasReport::Report:_Cancer_Fonden_(Sweden)|Report: Cancer Fonden</span>
<span style="display:none">hasReport::Reports:_Swedish_Palliative_Registry_(Sweden)|Reports: Swedish Palliative Registry</span>
<span style="display:none">hasReport::Report:_EU_Country_Cancer_Profile_2023_(Sweden)|Report: EU Country Cancer Profile 2023</span>
<span style="display:none">hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Sweden)|Compilation: ESMO Patient Guides</span>
<span style="display:none">hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Sweden)|Quality of Life and Palliative Care Research</span>
<span style="display:none">hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Database: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case</span>
<span style="display:none">hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|Guidelines: The National Clinical Cancer Care Guidelines</span>
<span style="display:none">hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Guidelines: National Board of Health and Welfare Guidelines</span>
<span style="display:none">hasDatabase::Database: Swedish National Data Service (SND) Compilation (Sweden)|Database: Swedish National Data Service (SND) Compilation</span>
<span style="display:none">hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Sweden)|Patient Guides: ESMO Patient Guides Compilation</span>
<span style="display:none">hasCancerType::C00-D48: All neoplasms</span>
<span style="display:none">hasCancerType::C00-C97: All cancer types</span>
<span style="display:none">hasCancerType::C00-C14: Mouth/throat cancers</span>
<span style="display:none">hasCancerType::C15-C26: Digestive system cancers</span>
<span style="display:none">hasCancerType::C30-C39: Lung/chest cancers</span>
<span style="display:none">hasCancerType::C40-C41: Bone cancers</span>
<span style="display:none">hasCancerType::C43-C44: Skin cancers/melanoma</span>
<span style="display:none">hasCancerType::C45-C49: Soft tissue cancer</span>
<span style="display:none">hasCancerType::C50: Breast cancer</span>
<span style="display:none">hasCancerType::C51-C58: Female genitalia cancers</span>
<span style="display:none">hasCancerType::C60-C63: Male genitalia cancer</span>
<span style="display:none">hasCancerType::C64-C68: Urinary system cancers</span>
<span style="display:none">hasCancerType::C69-C72: Eye and brain cancer</span>
<span style="display:none">hasCancerType::C73-C75: Thyroid and other gland cancers</span>
<span style="display:none">hasCancerType::C76-C80: Cancers of unknown or unspecified areas</span>
<span style="display:none">hasCancerType::C81-C96: Cancers of the blood and immune system</span>
<span style="display:none">hasCancerType::C97-C97: Cancers in multiple locations from the start</span>
<span style="display:none">hasCancerType::D00-D09: Early-stage cancers not yet spread</span>
<span style="display:none">hasCancerType::D10-D36: Benign tumour</span>
<span style="display:none">hasCancerType::D37-D48: Growths of uncertain nature</span>
<span style="display:none">hasCancerType::unknown</span>

Latest revision as of 13:47, 23 January 2026

forresearchers forpatients forproviders forpolicymakers swedencountry Go back to Cancer Centers list.

Cancer Centers[edit | edit source]

Healthcare System[edit | edit source]

Administrative or Claims Data[edit | edit source]

Registries[edit | edit source]

Database: Socialstyrelsen Cancer Registry[edit | edit source]

Database: Socialstyrelsen Cause of Death Registry[edit | edit source]

Database: Medicines Registry[edit | edit source]

Database: National Quality Register for Cervical Cancer Prevention[edit | edit source]

Database: Swedish National Data Service (SND) Compilation[edit | edit source]

Databases for Clinical Trials, Surveys and Biobanks[edit | edit source]

Clinical Practices Guidelines[edit | edit source]

Latest Policymaking Initiatives[edit | edit source]

Cancer-related Patient Associations and Resources[edit | edit source]

Quality of Life and Palliative Care Research[edit | edit source]

hasCancerCenter::Karolinska Institute and University Hospital hasCancerCenter::Skåne University Hospital Cancer Centre hasCancerCenter::Sahlgrenska University Hospital hasCancerCenter::Uppsala University Hospital hasCancerCenter::University Hospital of Umeå - Norrland University Hospital hasHealthcareSystem::Healthcare_System_(Sweden)|Healthcare System hasDatabase::Database:_Socialstyrelsen_National_Patient_Register_(Sweden)|Database: Socialstyrelsen National Patient Register hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Registry: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case hasDatabase::Database:_Socialstyrelsen_Cancer_Registry_(Sweden)|Database: Socialstyrelsen Cancer Registry hasDatabase::Database:_Socialstyrelsen_Cause_of_Death_Registry_(Sweden)|Database: Socialstyrelsen Cause of Death Registry hasDatabase::Database:_Medicines_Registry_(Sweden)|Database: Medicines Registry hasDatabase::Database:_National_Quality_Register_for_Cervical_Cancer_Prevention_(Sweden)|Database: National Quality Register for Cervical Cancer Prevention hasDatabase::Compilation:_Swedish_National_Data_Service_(SND)_(Sweden)|Compilation: Swedish National Data Service (SND) hasBiobank::Biobank:_Biobank_for_individuals_with_prostate_cancer_-_Biobank_for_prostate_cancer_controls_(Sweden)|Biobank: Biobank for individuals with prostate cancer - Biobank for prostate cancer controls hasDatabase::Survey:_Malmö_Diet_Cancer_(Sweden)|Survey: Malmö Diet Cancer hasDatabase::Survey:_Family_Studies_of_Childhood_Cancer_-_Genealogy_Database_(Sweden)|Survey: Family Studies of Childhood Cancer - Genealogy Database hasDatabase::Survey:_Cohort_of_Swedish_men_(COSM)_-_2019_health_(Sweden)|Survey: Cohort of Swedish men (COSM) - 2019 health hasDatabase::Survey:_Swedish_mammography_cohort_(SMC)_2019_lifestyle_(Sweden)|Survey: Swedish mammography cohort (SMC) 2019 lifestyle hasDatabase::Biobank/Database:_Breast_cancer_-_a_metastasis_study_(Sweden)|Biobank/Database: Breast cancer - a metastasis study hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|The National Clinical Cancer Care Guidelines hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Compilation: National Board of Health and Welfare Guidelines hasReport::Reports:_Socialstyrelsen_(Sweden)|Reports: Socialstyrelsen hasReport::Report:_Cancer_Fonden_(Sweden)|Report: Cancer Fonden hasReport::Reports:_Swedish_Palliative_Registry_(Sweden)|Reports: Swedish Palliative Registry hasReport::Report:_EU_Country_Cancer_Profile_2023_(Sweden)|Report: EU Country Cancer Profile 2023 hasPatientGuides::Compilation:_ESMO_Patient_Guides_(Sweden)|Compilation: ESMO Patient Guides hasQoLandPalliativeCareResearch::Quality_of_Life_and_Palliative_Care_Research_(Sweden)|Quality of Life and Palliative Care Research hasDatabase::Registry:_Cancer_incidence_and_mortality_in_the_southern_healthcare_region_-_Healthcare_costs_per_case_(Sweden)|Database: Cancer incidence and mortality in the southern healthcare region - Healthcare costs per case hasClinicalGuidelines::The_National_Clinical_Cancer_Care_Guidelines_(Sweden)|Guidelines: The National Clinical Cancer Care Guidelines hasClinicalGuidelines::Compilation:_National_Board_of_Health_and_Welfare_Guidelines_(Sweden)|Guidelines: National Board of Health and Welfare Guidelines hasDatabase::Database: Swedish National Data Service (SND) Compilation (Sweden)|Database: Swedish National Data Service (SND) Compilation hasPatientGuides::Patient Guides: ESMO Patient Guides Compilation (Sweden)|Patient Guides: ESMO Patient Guides Compilation hasCancerType::C00-D48: All neoplasms hasCancerType::C00-C97: All cancer types hasCancerType::C00-C14: Mouth/throat cancers hasCancerType::C15-C26: Digestive system cancers hasCancerType::C30-C39: Lung/chest cancers hasCancerType::C40-C41: Bone cancers hasCancerType::C43-C44: Skin cancers/melanoma hasCancerType::C45-C49: Soft tissue cancer hasCancerType::C50: Breast cancer hasCancerType::C51-C58: Female genitalia cancers hasCancerType::C60-C63: Male genitalia cancer hasCancerType::C64-C68: Urinary system cancers hasCancerType::C69-C72: Eye and brain cancer hasCancerType::C73-C75: Thyroid and other gland cancers hasCancerType::C76-C80: Cancers of unknown or unspecified areas hasCancerType::C81-C96: Cancers of the blood and immune system hasCancerType::C97-C97: Cancers in multiple locations from the start hasCancerType::D00-D09: Early-stage cancers not yet spread hasCancerType::D10-D36: Benign tumour hasCancerType::D37-D48: Growths of uncertain nature hasCancerType::unknown